Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
Had a chuckle earlier - called a roofing company to inspect my roof (no leaks, thankfully, but it's getting older), and they said it doesn't need to be replaced, no soft spots, still feels really solid. But suggested a silicone membrane type of substance that was guaranteed for ten years, or for twenty years (the heavier-duty stuff).
So, huh, the likelihood that I'll BE here in 10, let alone 20 years...I did start laughing, which I passed off as delight that the whole thing didn't need replacing.
How to even make these types of decisions, with this diagnosis hanging constantly over me? Guess I'll go for the 10 year option, costs less. If my roof starts leaking in 10 years and I'm still here to feel drops of water on my head while sitting on the couch...I promise to start laughing.
sf-cakes
Re: Any new info on ATM VUS?
Hi Marshmella. I had a VUS different from yours (MSH6) and I was also very concerned because of other cancers in my family that are associated with that gene. I had my test in the summer of 2022. Just a few weeks ago I got a letter from the testing company that my variant has now been determined to be benign. So three years. If you have very strong google-fu you might be able to find a preliminary report. I found one that said my variant was undergoing lab tests, so I knew they were working on it.
Re: Stage IV MBC Fitness
01-29-2026
Thank you, @chicagoan !
>I am back to pickleball<
Haha, I have no idea what that is but you all talking about it has raised my curiosity. I will be checking out the senior and community center to see if it's offered there. Also the exercises for those with cancer.
@livinglifenow I hope your sciatica can be dealt with through PT , but that is so great all your tests looked good!
>Doing my best to keep moving and not give into the fatigue which is always around the corner for me.<
That's how I find myself. I have to plan my moves due to fatigue. I have to learn how much I can do without really paying for it later.
Pls luk how your new pickball activities go.
~ Wanda
Re: recurrence patterns
I was curious if recurrences after having DCIS are similar to having recurrences after invasive. For example, TNBC has a higher occurrence rate the first several years compared to ER/PR positive BC (that is my understanding). Then from what I have read the occurrence rate actually drops lower as the years go by. This is of interest to me because I had ER/PR negative (HER not tested) grade 3. Think that puts me on the more aggressive DCIS side. It was so hard to not worry in the beginning. But I've got a few years under my belt now and I would love to be able to think that as time goes by the risk of recurrence will dwindle. Of course getting older raises the risk, I understand that, not just for BC buy for all sorts of ailments. I don't know....maybe it is all just a crap shoot.
kkubsky
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove I am sorry to hear abbout DS, I hope he was not seriously injured. I gathered that most places below Michigan got quite a bit of freezing rain and that is dangerous for trees power lines and such. If places are not used to this type of weather it is tough. We are still covered in snow, no loss of power or exploding trees happening here.Glad no cancer seen and glad you will take time off.
Nothing on the agenda beyond laundry, sweeping and a quick multifibre mop. Floor looks dusty from shoes having been outside, quick fix for that with a sweep and mop.
Need to check cancer clinic for appointments coming up. I will view treatment differently than I have. Treating neck down makes sense, no mets yet. Brain will be day by day. Necrosis can present with similar symptoms of brain mets. There is no exercise to restore the brain cells that have died but perhaps I need to start more exercise so the cells still alive back there can rewire themselves. I will repeat the positive fact the location of original mets and subsequent necrosis are not in an area that does much like mobility, speech and memory. I also realize that nothing may not be needed for a long time and when the time comes, decide for myself what I am willing to do, not willing to have longterm steroids or surgery again.
I need to get on the treadmill or march on the spot for more exercise, music will boost my overall mood which has been low for most of January. Music and movement will be helpful.
Not sure what to have. I had a bad supper last night. I am not a soup sort of person. I had roast beef and veggie soup but really disliked the liquid. I think if I am to attempt a soup again will rinse out the stuff in it and lose the juice. Mix the other stuff in with some good hash browns eggs etc. I may also thaw some cheese from the freezer. I do it in cold water for maybe a half hour, allows me to use quicker. I am also enjoying peppers and may even get a couple more bananas. I put those in a smoothie with yogurt and fruit punch mio. I have also been known to put lentils in same smoothie. Red peppers seem appealing as well.
Enough about me, need to finish up laundry chores and get started on meal prep. I will post if I have something really good. I want everyone to have a good day and in pockets for all.
Re: Stage IV MBC Fitness
@rlschaller Rhonda, I agree that movement is the key. Some days it’s easier than others. So glad qigong works for you. I will have to look into that.
From looking at your signature, it appears you have been through a lot since initial diagnosis. Praying everything stays stable.
I had first PT appointment yesterday. Did some dry needling in my buttocks with some electrical stimulation. I think it helped. Feeling less sciatica in my leg today. Also got a few exercises to perform daily. Looking forward to getting back to normal soon.
Hugs, Pam 💗
Re: Newly diagnosed IDC
@moderators thank you. I am waiting to find out what subtype I am facing to join the appropriate group.
amerli
Re: Newly diagnosed stage 1 Invasive Ductal Carcinoma
I am 2.5 weeks post-op and doing well. Sentinel node was negative (Praise The Lord!). I do have some fluid accumulation since drains were removed but not causing pain, just slight discomfort, so hopefully my body will absorb it. Will make my appointment in a few weeks to be fitted for prosthetics and bras/camis. I decided to wait and see how I feel once healed before I make a definite decision on whether to have reconstruction or not.
chachi
Re: Biopsy marker migration and pain...4 years post biopsy?
To All:
If anyone manages to find someone to remove their biopsy markers, I would be very interested to know if their removal eliminates the pain and other symptoms. Thanks.
djmammo
Re: Biopsy marker migration and pain...4 years post biopsy?
Yes, the clips are most likely causing the pain. I had no issues until titanium clips were placed unknowingly in my right lower breast after a benign biopsy. From that day on...I have had a shooting/stabbing pain in that area for years. This is not normal people and you shouldn't feel afraid to speak up. I thought the pain would go away, but it hasn't. It has gotten worse in that area. It wasn't until I explained the pain in that area to the mammogram appt to the tech, that should told me the Exray showed two titanium clips. I now know what is causing the pain. Why are drs dismissing patients' pleas about the clips causing them pain? They also refuse to take them out...even though it is your own body. Something is wrong with this picture. If anyone has found a dr to remove these...please let me know. I hope there becomes a more public awareness of the pain these clips are causing many. Are the drs being threatened by the American Medical Association? Is it because they are being paid by the makers of these titanium clips and so they ignore patients pain and suffering?