Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
candy-678, good news makes us happy!
Irish, oh no. You have enough struggles without the ER mucking around pneumonitis and ground glass opacaties. They really need to get a better handle on that type of diagnosis for mbc patients. I had a similar experience three years ago. I went back to the ER three times, in three successive weeks. Finally I was so ill they had to admit me and it took a week of constant IVs before I was cured. In the end there were a host of hospital personnel involved because they feared they had miss diagnosis in the beginning. Don't let up on it…keep insisting on treatment.
Re: Stage IV MBC Fitness
@AJ - I love that tip about going outside and looking at something beautiful if things get too bad. That's a great idea. I even have a couple of spots I can view out my window that can give me that something nice to look at, but I agree that outside is much better. I think the fresh air, etc. adds to it all in a real positive way.
Re: My Husband, My Life, My Love, My Family, My Cancer
@candy-678 I am so happy to hear the news.
I slept well last night. Did not go anywhere or hear from DB at all for going out purposes. I do not need groceries at this time anyway. I chickened out on going to pharmacy myself so not keep the walker, a cane is fine in most instances. If I was stuck taking the bus when Paratransit too busy, I could walk to the bus stop. It is funny though, I have a lot of free rides on PT, was checking my card and I have 6 rides credited. Not sure why but I do not mind.
On the agenda today, a massive amount of laundry to get done, running out of cloths. May use up ALL washers and do everything at once, doubtful that it would overpower the power set up myself. I have soaking dishes, a litter area to clean out. I have stopped using the litter genie because I really believe the black bugs, tiny little bastards came from the bag IN the litter genie. Planning to dump all litter and give area a thorough cleaning and long overdue vacuum. I have never had so many all at once, it is crazy until I got the litter genie. Clean out all sinks and pour hot water on the daily. My traps catch a lot of them at least but obviously an on going problem. I am aware they could be coming from another apartment through the shared plumbing, that is a possibility so plugs are put in all the time.
Not sure on food, probably have one of the queso pasta bowls I bought, has a lot of good chicken. Later, heat up some eggs and regular beans in a mini griddle and make up an egg in there. If I do not want that, microwave egg and beans, chop up with cheese and chips for flavour and throw mix in frying pan.
I am presently waiting on prescription I failed to get yesterday, it is coming, going to wait for it before pulling down treadmill to use it. Tigger will be mad but too bad. He is on it on the daily. Loves it, I put a blanky up there for him. Ava has taken the bathroom now, either sitting in window sill or on toilet lid.
I hope everyone has a good day and in pockets for all.
Re: Can we have a forum for "older" people with bc?
I will participate in the rallies in spirit. I admire those of you who will participate in person. I hope all participants stay safe.
Re: My Husband, My Life, My Love, My Family, My Cancer
Just an update from here (concerning my questionable area seen on the mammogram- look back at my previous posts):
Screening mammogram showed something something. Had spot compression views and then ultrasound. Dense breast tissue and nothing else bad seen. To have another mammogram in 6 months as a follow up.
Reading along on here always. HI from here.
Re: Bone Mets Thread
Sorry you're still in the hospital. Yes, I stopped Kisqali during the one week dosepack.
On a related topic, I have been dealing with diverticulitis since June, 2025. The emergency room doctor prescribed augmentin, which seemed to help initially, but then it reoccurred a few weeks later and the gastro doc prescribed augmentin again. Both times I stopped Kisqali. Diverticulitis started again on 10/12, more augmentin prescribed. I contacted my MO and she said that I could continue on Kisqali. Hoping something works, as the pain is pretty severe.
eleanora
Re: My choice--refusing treatment
I am 50 in March and so happy to see I'm not alone on the island!
I did the surgery.....that's it I'm out.
The chemicals in the chemo are GOING to cause other problems down the road.....this isn't a maybe. The MO said it would have a 1.6% chance of stopping death from BC in 10 years (doesn't say it won't reoccur btw), but it has a chance of creating leukaemia!!!!! I will take my chances....
The tamoxifen is my last decision. I originally thought I would take it, almost everyone I know who could take it did. I started reading and I can honestly say it was really disturbing! The origin of the drug, one particular study to validate it, the fact that it is a carcinogen on the WHO and cancer sites, the possible side effects which can be beyond serious in my eyes, and the fact that it can still come back after all that(and stronger), I can't do it.
Now I was stage 2A (3cm no lymph nodes involved), another area was 1.4cm. Was multi centric in the right breast, something unknown in left, 3 aunts with BC, I chose a bilateral mastectomy. Turns out I also had Pagets on the right, so good choice!
My plan is diet, exercise, supplements, emotional and spiritual well being. It was always about everyone and everything else for me, now this will change. BC was my wake up callto treat myself better.
There is an abundance of information out there, choose wisely (from reputable sources), read and think outside the box a bit (recognize full hippie fanatic vs pharma front man and anyone who receives bonus payment for the kind of treatment they recommend)
Do what you can live with. It's a hard decision, I am trying to come to terms with mine......
Yet don't want to upset MO lol how silly!!!!
Re: Mastectomy or 3rd try
I haven’t been keeping up with my post but checked today and saw yours. I ended up having a bilateral mastectomy in July, no reconstruction. Pathology findings were IDC grade 2, right axilla lymph node positive for metastatic carcinoma. Left breast had minor findings of DCIS, so very thankful we did the bilateral. I finished 6 weeks of radiation and have just now started on Kasqali and Anastrozole along with a monthly injection of Goserelin. Sending you all the best vibes as you navigate this next part of your journey.
Re: So...whats for dinner?
Carole, Well done getting back to your winter routine and making your scale go in the right direction.
Wally, It’s too bad the saw arrived at the same time as your DH’s fatigue. Hopefully your eyes will recover from dilation quickly so you can attend the dedication.
Nance, Enjoy the Italian dinner. When you find a dish you really enjoy there’s no need to order anything else.
Eric, A gravel truck that was supposed to slowly spread new stone along our driveway in MD miscalculated the height of a wire and just dumped the load of gravel. DH had already moved to Canada so I had to spread it all. Afterwards people driving by would ring the doorbell and ask who had done our driveway. I told them but let the know I was not for hire. It was hard work.
Dinner tonight was pot roast, butternut squash and mashed potatoes.
maggie15