Best Of

Re: My Husband, My Life, My Love, My Family, My Cancer

@micmel I just don't understand this new docs thinking! Isn't about giving you the best quality of life? Ugh I'm so sorry to hear how rough it's been for both you and Gabby.Continued prayers for healing and love to you both.❌⭕️

cookie54

5

Re: My Husband, My Life, My Love, My Family, My Cancer

@micmel My heart hurt when I read your post this morning. Both your struggles with your new doctor and hearing of Gabby's struggles. There are no good words here. Just know you are both wrapped in hugs and prayers.

intolight

6

Re: My Husband, My Life, My Love, My Family, My Cancer

@irishlove - Oh Irish, I am so sorry to hear about what's going on with you. Not fair! I sure hope the doxicycline does the job. No need for any apologies whatsoever. I understand wanting to keep up with posts, but sometimes it's just not easy or possible. I've not been able to keep up with posts when I've had far less going on than you do. Please just take it easy, take care of yourself as best you can, and maybe get a second opinion or something? I agree, it seems like perhaps they should have kept you initially. I'm in your pocket for sure, Irish, thinking of you with fingers crossed. Get well soon!

@candy-678 - Yes! A good report - good news indeed!

threetree

2

Re: My Husband, My Life, My Love, My Family, My Cancer

Another weird sleep cycle. I wound up sleeping on couch til 7am but still wound up going to bed which had me waking up at noon. Still feel pretty good regardless. Only thing that is annoying me are the little black bugs flying around, moved litter over to a container that I keep the scooped stuff in, scoop ASAP and cleaned out the other container I was keeping it in. Got apple cider vinegar traps set around the house, one in living room, two in kitchen. I originally blamed the litter but now wondering if drains are the problem. Bathroom sink is always plugged up. Will continue the hot water down the drain I guess. The traps do work to catch a lot and perhaps come winter they will f*ck the heck off.

I was planning to walk to the pharmacy for the loperemide but almost tripped over the wheel so decided not to walk there, prescription will arrive tomorrow. I think the best thing for me is to practice going around the block or up and down the street, I will see, lots of fear involved but rather stay safe than fall and DB being contacted and SIL getting pi$$ed off. Need to make sure I can walk to places and walker may not be the right thing for me. Paratransit is the way to go. I plan to skip the walker totally. I am exercising legs both from bed and on top of automan. Need to strengthen legs even with sitting on couch or in bed, saved youtubevideos on that. My ankles are super strong.

mara51506

4

Re: Bone Mets Thread

@norah2024 I'm so sorry you're having to go through all this, and I hope you have a quick recovery. You may want to ask your doctor if Kisqali may have contributed to your lung problem since pneumonitis is a side effect. I stopped the 600 mg of Kisqali a couple of times for a week until my dose was reduced. This was due to neutropenia. That was a year ago, and I'm still going strong.

tougholdcrow

2

Re: Bone Mets Thread

hi @norah2024 , I’m so sorry to hear about your hospitalization and pneumonia, I hope getting discharged means you’re doing better.

for other reasons (high QT interval) I had to interrupt Kisqali for a week or 10 days last year. I remember it was scary for me too back then but it didn’t impact my results. I interrupted it for another week last May prior to a surgery, and I will probably do that again next month prior to dental work I need to do. I guess it’s normal and expected that we will interrupt the medication for regular health issues that arise during our (hopefully long) life as it impacts healing.

I hope you feel better soon and resume your protocol. My tumor markers were never reliable so my doctor relies on scan work.

radiation_cinderella

3

Re: TNBC MBC Stage 4

@rlschaller Well I am happy to hear that you're have such an amazing army on your side! So many wonderful caring and super intelligent docs working for your best outcome.Fingers crossed that this new chemo will treat you well. I will continue to hold you in my daily prayers of strength and healing.Yes, overall all went well at MO and I am grateful. Enjoy this fabulous Fall weekend!❤️

cookie54

1

Re: Stage IV MBC Fitness

I just came back from a great American road trip with lots of demanding physical exercise, but for me there is always the goal of getting away from the road to experience the astonishing natural beauty of the land and its creatures. I used to backpack many miles from any road. Not sure I could do that now, but I will take what I can get. When I can just walk the road, I will walk the road. When I can just take 10 steps outside, I will take 10 steps outside.

tougholdcrow

3