Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
In everyone's pockets… Mel, I'm so deeply sorry you are going thru this crap with of all medical personnel, a pallative care team member. Withdrawal is a very real and unhealthy and totally unnecessary hurt to put on you.
I hope the time passes quickly for Gabby and she has much success with reconstruction. Send our love and support to her and save some for you, too.
Mkestrel, best of luck tomorrow and thank you for kitty picture. It soothes one's nerves and reminds me of a Hemingway kitty we rescued from under a trailer years ago. She was so sweet…
That was ridiculous three trips to the hospital and those folks could not give you proper standard of care. I sure like the idea of an ID bracelet for MBC patients. Thank you all for your caring notes. I just got home from the hospital, again. This time, oh boy, it was tested properly and is bacterial pneumonia. I was quarantined till they could identify any and all issues. Now I'm settled in my own room and will be on two different types of antibiotics after nonstop IV's. New hospitalist and he was brilliant. Went over images, talked shop visited twice with me and I was quite impressed as was the head charge RN. He wanted another day but I begged to come home to my own bed and be a good girl. It worked…
Re: Can we have a forum for "older" people with bc?
@petite1 @betrayal your holiday adventure photos are great! I've been viewing them numerous times. I work all this weekend and it's super slow. So I was able to catch up on all 49 new posts!!! Tomorrow I have my annual eyeball tests and Tuesday an endometrial biopsy. Exercise this week will be tricky as I miss all three of my scheduled classes for appointments. ugh. I'm watching baseball Go Jays Go as well as hockey and saw the last period of the Nuckleheads vs Washington today. Canucks are lucky it stayed 4-3. They went into the third at 4-1. ugh.
Kitties are not amused that the weather is tipping but still try to go out if I open the door to the catio, Hope everyone is doing well.
Re: Can we have a forum for "older" people with bc?
I'm glad so many people turned out for the NoKings protests and all seems to have been peaceful. I was afraid the ProKing crowd would provoke violence.
I accomplished a major yard task yesterday, pruning the two out-of-control wisteria bushes located on either side of our driveway near the street. Pruning includes using the loppers to attack invasive trees and vigorous yanking of vines. It's quite an undertaking . I should take before and after pictures. Wisterias are a lot of trouble for the brief blooming in the spring. But it is a lovely display of lavender in contrast to the silver-gray bare vines. At the longest, the bloom lasts two weeks, and the jungle tendencies of the plant take over.
We had a chance of rain last night and I was so hopeful we would get some natural watering. The shrubs all look desperate for a drink of water. I don't have a watering system and have no intention of hauling a hose around our huge yard. Nature will have to provide.
Not sure if I will continue yard work today. I may do laundry.
Taco, I was up shortly before 5 am this morning getting tee times online for the Tues/Fri golf group. Then I went back to bed. If you don't get online early, the desired tee times for the season are quickly gone. I'm responsible for October tee times and will send out a group email.
Hi to all.
Re: recurrence with pleural effusion
@birdsndognow I haven't had cancer in my lungs but I'm also a stage iv patient and can feel the devastation this can cause. I hope they soon find a treatment that will work for your case. You may want to seek an opinion at a major cancer center if you are not already at one.
Re: Stage IV MBC Fitness
Sounds like you are doing all you can. I'm sure the rewards will come. It was a year or so before the quadriceps on my surgical side felt normal. Once I was past the initial pain, I requested a muscle relaxer and found that very helpful for the quads. Is it your insurer who decides if you get out-patient PT? Have you let them know that you live alone and the PT is a critical part of you remaining independent? It must be cheaper for them to pay for that than for a rehab facility.
eleanora
Re: My Husband, My Life, My Love, My Family, My Cancer
@micmel I just don't understand this new docs thinking! Isn't about giving you the best quality of life? Ugh I'm so sorry to hear how rough it's been for both you and Gabby.Continued prayers for healing and love to you both.❌⭕️
cookie54
Re: My Husband, My Life, My Love, My Family, My Cancer
@micmel My heart hurt when I read your post this morning. Both your struggles with your new doctor and hearing of Gabby's struggles. There are no good words here. Just know you are both wrapped in hugs and prayers.
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove - Oh Irish, I am so sorry to hear about what's going on with you. Not fair! I sure hope the doxicycline does the job. No need for any apologies whatsoever. I understand wanting to keep up with posts, but sometimes it's just not easy or possible. I've not been able to keep up with posts when I've had far less going on than you do. Please just take it easy, take care of yourself as best you can, and maybe get a second opinion or something? I agree, it seems like perhaps they should have kept you initially. I'm in your pocket for sure, Irish, thinking of you with fingers crossed. Get well soon!
@candy-678 - Yes! A good report - good news indeed!
Re: My Husband, My Life, My Love, My Family, My Cancer
Another weird sleep cycle. I wound up sleeping on couch til 7am but still wound up going to bed which had me waking up at noon. Still feel pretty good regardless. Only thing that is annoying me are the little black bugs flying around, moved litter over to a container that I keep the scooped stuff in, scoop ASAP and cleaned out the other container I was keeping it in. Got apple cider vinegar traps set around the house, one in living room, two in kitchen. I originally blamed the litter but now wondering if drains are the problem. Bathroom sink is always plugged up. Will continue the hot water down the drain I guess. The traps do work to catch a lot and perhaps come winter they will f*ck the heck off.
I was planning to walk to the pharmacy for the loperemide but almost tripped over the wheel so decided not to walk there, prescription will arrive tomorrow. I think the best thing for me is to practice going around the block or up and down the street, I will see, lots of fear involved but rather stay safe than fall and DB being contacted and SIL getting pi$$ed off. Need to make sure I can walk to places and walker may not be the right thing for me. Paratransit is the way to go. I plan to skip the walker totally. I am exercising legs both from bed and on top of automan. Need to strengthen legs even with sitting on couch or in bed, saved youtubevideos on that. My ankles are super strong.
Re: Bone Mets Thread
@norah2024 I'm so sorry you're having to go through all this, and I hope you have a quick recovery. You may want to ask your doctor if Kisqali may have contributed to your lung problem since pneumonitis is a side effect. I stopped the 600 mg of Kisqali a couple of times for a week until my dose was reduced. This was due to neutropenia. That was a year ago, and I'm still going strong.