Best Of
Re: HERCEPTIN and/or PERJETA Threads
@livinglifenow I am so sorry you’re experiencing pain, I hope a change in hormone therapy may do the trick.
I never took any other AI, just the anastrozole for 6 years. I went straight to Fareston because I had read good things about it and it really is treating me well. I had horrible leg cramps almost every night with anastrazole, and since going on Fareston and no HP, I am the most side effect free I’ve been since getting diagnosed with BC. Look into Fareston maybe and see if the you and your doc think it might be for you. ««I just realized I sound a little like a drug commercial - “Talk to your doctor and see if XXX might be for you”.
@bsandra Oh, you flatter me 😄but seriously I hope we do get some good information from the studies of HER2+ outcomes. The study I am on is very small but my doctor revealed to me that other day that since October 2024 only one subject on this study has had a positive Signatera and even with that, her imaging did not yet show progression. Again, it’s a tiny study but still we cling to all tidbits of good news, right? Take care and best regards to your lovely family.
olma61
Re: Afinitor/Aromasin
Hi @norah2024 I am going to reply to your earlier message first. I get anxiety also but I am somehow able to talk myself out of it most of the time. I don’t know if the anxiety is causing the side effects but of course does not help. I had pain on the right side of my face a few times but think it is due to dental issues. Do you have any dental issues you need looked at? Also I have super sensitive sinuses. Do you have any sinus issues?
I now take Naproxin for pain relief (Alieve) because I cannot have headaches and pain ruling my days. I hate to take additional l meds but I will to feel better if I have to.
Do you have any relief since you sent this first message?
I very rarely have any nausea issues. And my side affects all started after a month+ into the medication. Have you called the pharmacist at Affinitor? They may be able to help with food suggestions. Also maybe a nausea medicine to at least get you through this part. I would ask your oncologist about that. I have to be very careful with supplements - they do not agree with me. But we are all different. Be careful with that.
Do you have other symptoms and/or have some subsided? I’m sorry I don’t have more info for you. Let me know how you are doing. Thinking about you.
Re: Can we have a forum for "older" people with bc?
Betrayal, definitely get that cross stitch set up and while away the time.
Carole, I’ve purchased the tax software and have most of what’s needed to file. All due 4/15, I’ll file both through the software.
Your mention of sales tax reminded me of a time traveling down here, via TX. I think we were by Loretta Lynn’s ranch, headed back to the main route and stopped in a gift store. I bought a few things for gifts and at check out the total was so off of my estimate I had to ask did something ring up wrong. No, it was their sales tax … I swear it was near 13%. Blew my mind. We pay 8% which we thought was high. I digress!
We had a beautiful sunny and warm day. First good day in some time. All neighbors are comparing our power bills, on how much they’ve gone up now that we put heat on. I think from last month which included Christmas lights and guests, ours went up $20. And in comparison to NY it’s still lower by about $40, and that house is empty!
Speaking of NY it’s absolutely brutal there right now. Winds were causing -21 feel temps. It’s going down to -6 overnight. I keep checking on power, wifi Thermostat and cameras. So far, so good.
We went down to the casino for another free outdoor concert. Weather was great, but attendance wasn’t real high. We’re thinking it was due to the many things going on today. It was a New Orleans funk fest, zydeco music, which is fun.
This was Soul Rebel, a lot of horns that sounded great. I did run into the casino to leave some money. Hope to collect some money one of these days.
Super Bowl tomorrow, I’m viewing it as an east coast, west coast challenge. Sorry ladies, I’m east coast for both houses!
We’re planning on running down to Bonita Springs for their music & seafood festival at noon, before football. Really it’s for SO to hear some guy play - he’s tried 2x and the guy always cancels. I hope he shows up this time.
cindyny
Re: Am I being under-treated?
Hi @amerli,
It's very common for those who are questioning their care to get a second (or even third or fourth) opinion - have you considered this option? Many people find doing so either gives them peace of mind as it confirms their original doctor's recommendations or opens up some other options to discuss the benefits and risks of one path vs. another. Read more about Getting a Second Opinion, including how to ask your doctor for one and how to make sense of what you find out.
We're sure others will be by soon to weigh in with their thoughts on TNBC and their treatment experiences.
We hope this helps!
—The Mods
Re: Am I being under-treated?
Hi @amerli, A confirmation of a treatment plan from a team at a large teaching hospital is a reassuring sign but technically is not a second opinion. Seeing or having an online consult with an oncologist at another institution would cover that.
It is very common to be given a proposed treatment plan with final decisions made after surgery. The postsurgical pathology is far more accurate than the biopsy pathology which is based on a small tumor sample and imaging. If there are any new findings in the surgical pathology, treatment can become more or less aggressive than first proposed.
If you still have doubts about the recommended treatment at this point you could seek a second opinion then. All the best.
maggie15
Re: how about drinking?
If anyone has been watching the mixed doubles curling from the Winter Olympics, the team representing the U.S. is from my region of the country!
m0mmyof3
Re: Can we have a forum for "older" people with bc?
Betrayal, your description of winter is so vivid that you make me shiver. LOL. I wish I could share the beautiful day we're having, sunny and mild. As I write, I realize I should take a walk. I had planned to go to Hobby Lobby and shop for soft yarn to crochet lap afghans but I don't know if that plan will come to fruition. I opened up the Turbo Tax program and completed filing our federal tax return. So that's done. The deadline for state filing is May 15 but I'll get to it before then, using the software on the state department of revenue web site. We have income tax in Louisiana. Also really high sales tax.
My jigsaw puzzle is progressing, maybe about a third completed. Working on it isn't the best posture for my back. I find the whole process somewhat mysterious, the way you can pick up a puzzle piece that doesn't look particularly right for a spot and it fits right into place.
I read a recipe for pizza dough, thinking I might do a home-made pizza for dinner. Read another recipe for easy sauce. Then decided that tonight would be a good night for take-out pizza. I've been doing a lot of cooking. It takes dh no more than ten minutes to make the pickup and the pizza is hot. We don't do home delivery. I love pizza and seldom eat it.
We'll tune in the Super Bowl even though we're not fans of either team. I may even watch some of the halftime because of all the hoopla. The staging is always interesting.
Happy Saturday to everyone.
Re: HERCEPTIN and/or PERJETA Threads
Dear @olma61 , congratulations! You know we all are huge fans of yours as you are our brave pathfinder (remember that Mars mission back from 1997?:) Saulius
bsandra
Re: Bone Mets Thread
@norah2024 - Is Ondansetron (Zofran) an option for you? Dissolves under tongue for nausea. It is like a miracle for me in that it seems to relax my stomach and stop nausea in its tracks. Comes in 4 mg and 8 mg dosages. Magical - I swear by it. Hope this helps. Healing thoughts for you - Terry B.
tbos805