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BRIP1 Positive Genetic Mutation- Anyone else out there?
Hello, I tested positive for a new gene mutation called BRIP1 in November. As you may know, it carries a elevated risk for ovarian and breast cancer. It is a fairly new gene mutation and there are not clear cut guidelines on how patients should proceed. So, here's what has happened so far: My mom told me she had the BRIP1…
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Connection Between Spironolactone and Breast Cancer?
Has anyone ever heard about a connection between Spironolactone and breast cancer? This drug is diuretic that is also used to treat acne. I have taken this for several years, and I am at high-risk for breast cancer, so I was very concerned when I read about a possible connection. I have posted an excerpt below from one of…
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Anyone out there with the Chek2 gene mutation???
my mom's genetic testing for her breast cancer was positive for the Chek 2 gene mutation. We were told this is a rare mutation, but a high risk one. I was tested a week ago and awaiting my results. Anyone out there like us???? Would love to hear how you navigated this or any info you may have.
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PBMX for ALH or ADH?
Just wondering how many ladies out there decided to have prophylactic masectomies when your diagnosis was ALH or ADH? I know I can't be the only one.... Hugs to all, Valerie
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ADH and PASH
Hi, I'm new here. Just want to post something about myself. I am 27, Asian. No family history. Recently diagonised with ADH and PASH. English is not my first language, so I hope I don't make too much mistakes here. I've spent some time learning about the two and I know ADH is the risky one. I first found my nipple was…
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Do breast reductions lower your risk?
I plan to get a breast reduction soon due to neck,shoulder pain and headaches as well as my breasts just constantly hurting. Anyone know if it also helps reduce the risk?
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MRI experiences with false positives and over treatment?
How many of you have been screening annually with MRI? How many false positives have you had? Do you feel it has been worth the price, financially, and in terms of quality of life? Many of us at high risk (especially those who are young and/or have dense breasts) have been advised to get supplemental screening with MRI. I…
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Insurance company will not cover my MRI
Wondering if anyone out there has run into this: I went in for my annual mamo and to make a long story short I ended up having a MRI as the radiologist was not comfortable with the findings in the mamo and ultra sound. I have dense breasts and I guess it's like trying to find a needle in a haystack. Years ago I also had a…
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Do U wear a Medical Alert Braclets?
Do you wear a medical alert type braclet? Although I belong to several BC organizations I've noticed very few gals wearing medical alert braclets. After my unilateral mastectomy I got a medical alert braclet stating no BP or needle sticks in left arm. While I haven't had a problem with lymphodema & my BS said my risks are…