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High Risk for Breast Cancer? Start Here
Helpful information for those who are at high risk for breast cancer: Some suggestions from the main Breastcancer.org site: * The expansive Know Your Risk section is extremely helpful if you have questions about what risk factors are, what you can or can't do about them, and more! * The Genetic Testing section is key for…
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High Risk - MRI?
Dear All, I have posted 1-2 times before here and find this to be wonderful, caring and supportive community. I am high risk. Tyrer - Cuzick is 23.9 % lifetime (without co-morbidities) and 20.3% (with co-morbidities turned on). Mom had BC at 59. I have had mammos at 35, 38, 40, 41, and about to have my next one at age 42.…
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Questions regarding testing
To make it short. My daughter unfortunately had BC dx in her 20's, and passed away years later. My other 2 daughters, now in their early 30's have been doing Mamos/Sono and 6 months later MRI. We were all checked for mutations but they showed all negative. Including my other daughter. Now my daughters are getting anxious…
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Risk in older women with BRCA1
I found out, at age 66, I have the BRCA1 gene mutation. I'm debating about whether to have the prophylactic mastectomy. Anyone else have this experience? Have you been told what your chance of getting cancer at your age is?
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Any regrets surgery brca positive
if you removed your ovaries and uterus because of genetic testing do you have any regrets or are you happy? What was your experience. My daughter is having a very difficult time making this decision. She has decided on extra screening for breast cancer but all doctors are urging her to remove ovaries now. Thank you for…
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So what to do with this information
Hello, my daughter had a mammogram and ultrasound, everything was ok. She is 44 years old. this is the first time she had breast cancer risk determined and it is 22%. Because i had a few years ago breast cancer. We are confused now. Should she every year have 3 tests done: mammo, ultrasound and MRI. It seems too many tests…
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Tyrer--Cuzick Risk calculator
Hello - on the Tyrer-cuzick risk calculator, does a 10 year risk of 7.3% for breast cancer. And a lifetime risk of 11.2% mean a high risk? Thank you
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Breast Ultrasound Screening Advice Missing Many Women Who Would Benefit
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Worried about my daughter with BRCA1
This discussion was created from comments split from: Worrying about future - need to vent.
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ADH Club
Can we start a thread on ADH (known as atypical ductal hyperplasia)? There may be one already existing, but without a lot of hunting around, it's not easy to locate and may not be recent. I'm 51 and have (had) no risk for BC other than being a female - non smoker, no immediate BC in my family, I'm fit, I exercise, eat…
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34 & recovering from 3rd lumpectomy in 3 years…so over it!
Hi all, I’ve been around the forums since my first BIRADS 4C biopsy back in 2019 right after I turned 30. Came back as a radial scar with ADH and a few other things. Since then, I’ve had 6-month alternating mammo/US and MRIs because I have extremely dense breasts, and I’ve had 2 more biopsies which have both resulted in…
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New PA Breast Cancer Testing Bill April 2023
A bill to boost early detection of breast cancer earned unanimous, bipartisan support in the PA house this week and is on the way to the governor's desk! Senate Bill 8 would eliminate out-of-pocket costs associated with BRCA-related genetic testing and counseling, as well as supplemental screening such as breast MRI and…
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Bilateral mastectomies for atypical ductal hyperplasia (ALH)?
Hi, I'm new here & recently diagnosed with two radial sclerosing lesions, one of which the biopsy showed contained atypical ducatal hyperplasia (ALH) in the same breast. The other was benign, but I still have to get both of them surgically removed. My breast surgeon ran 'my numbers' through the database and told me my…
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Obesity May Increase Risk Even More for BRCA+
Obesity May Increase Breast Cancer Risk Even More in Women With BRCA Mutations Mar 22, 2023 Obesity may increase breast cancer risk even more in women with a BRCA mutation, who are already a high-risk group. Read more...
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High Risk Without Gene Mutations
Hi Everyone. New here and looking for some support. I have an incredibly strong history of breast cancer in my maternal line - Great grandmothers at least 3 generations back as well as some of their sisters, Grandmother died age 35, Great Aunt DX in her 60s, Mom in 60s, Aunt in 50s, and now my sister has been diagnosed age…
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Breast Cancer Risk Remains High for BRCA+ Women After Age 50
Breast Cancer Risk Remains High for Women With BRCA Mutations After Age 50 Mar 2, 2023 Women with BRCA mutations continue to have a higher risk of breast cancer after age 50. Read more...
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Many Women Don't Think Breast Density Is Important Risk Factor
Many Women Don't Think Breast Density Is Important Risk Factor Jan 25, 2023 Few women understand that having dense breasts increases breast cancer risk more than family history or some other risk factors. Read more...
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Family History. Doctors not taking me seriously
Hi I'm Dani and I'm new here. I've never posted on a forum before so I guess this really feels like a last resort for me. I've had obsessive thoughts about getting breast cancer ever since I learnt of my alarming family history 5 years ago. I am currently 25 and after being in and out of therapy over this I don't want it…
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Anxiety is real
Hello all wonderful women..I am new but not new. I have been lurking and posting occasionally for several years. My story started 26 years ago when my mom was diagnosed with BC at age 46. I was 26 and newly married. I am not sure what kind of breast cancer she had but it went from zero to 60 fast. It was so aggressive. She…
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Podcast: Low-Dose Tamoxifen to Reduce Risk After Chest Radiation
Low-Dose Tamoxifen to Reduce Risk in Women Who Received Chest Radiation Jan 6, 2023 Dr. Sandhya Pruthi explains a study on using low-dose tamoxifen to reduce breast cancer risk in women who received radiation to the chest as children. Women with a higher-than-average risk of breast cancer often take tamoxifen to reduce…
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Considering preventative mastectomy
I have been having unilateral, spontaneous, clear and occasionally bloody nipple discharge. After 9 tests (3d mammograms, sonograms, MRI, sono guided biopsy and MRI guided biopsy) my last biopsy came back with a dx of atypical sclerosing papillary lesion with epithelial proliferation with mild atypia and rare mitoses, as…
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Flat Epithelial Atypia and Mucocele-Like Lesion
Hi all, In my last mammogram, there appeared to be a 1cm of clustered grouped microcalcifications. I received a stereotactic biopsy last week, and the pathology report is as follows - Left Breast with microcalcifications: Flat epithelial atypia Focal mucocele-like lesion Microcalcifications associated with in flat…
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Considering prophylactic mastectomy
Here's my history: November 2018: ADH confirmed via biopsy. ALH discovered in same breast during excision. In the last two years, I have had three more biopsies (thankfully, all benign), the most recent last week for clustered microcalcifications in the other breast. Started low-dose Tamoxifen in October 2021. Had complete…
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3D Mammos Reduce Risk for Extremely Dense Breasts & High Risk
3D Mammograms Reduce Risk of Advanced-Stage Disease in Women With Extremely Dense Breasts and High Risk of Breast Cancer June 15, 2022 In women with extremely dense breasts and a high risk of breast cancer, screening with 3D mammograms — rather than 2D digital mammograms — was linked to a lower risk of advanced-stage…
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Dense Breasts and History of Breast Cancer
I have dense breasts - Category C - Heterogeneously Dense - and was diagnosed with breast cancer in my right breast 7/29/21. I had a lumpectomy and just finished 16 rounds of radiation. My tumor was small (3mm) and luckily no lymph node involvement, so no chemo. Because of the tumor size I also was unable to get Oncotype,…
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Low Vit D Levels Linked to Higher Risk in Black & Hispanic Women
Low Vitamin D Levels Linked to Higher Breast Cancer Risk in Black and Hispanic Women May 3, 2022 Black and Hispanic women who had low levels of vitamin D in their blood were more likely to develop breast cancer than women with sufficient levels. Read more...
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Breast Cancer Screening Options for Women With ATM, CHEK2, PALB2
Study Suggests Breast Cancer Screening Options for Women With ATM, CHEK2, and PALB2 Mutations Mar 22, 2022 Women with ATM, CHEK2, or PALB2 mutations may benefit from starting annual breast cancer screening with MRI between the ages and 30 to 35 and an annual MRI and mammogram starting at age 40. Read more...
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Preventative Mastectomy
I was hoping to connect with some other women who have made the decision to have a preventative mastectomy. It's a decision I am in the midst of making, my family did not test positive for any gene mutation but I'm being informed that my risk is just the same. I would love to hear from other women what they went through…
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Recommendations for ATM info -both cancer and non-cancer issues
Hi Everyone - Made it ten years! I had genetic testing and have an ATM variation. My mom was tested, she was negative, so we assume it came from my dad who passed from prostate, bladder and Acute Mylodica leukemia before he could be tested. Fun times. Now, I am starting to get test results on my immune system - these blood…
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How to understand risk level and best risk calculator to use
Hi , I am totally confused about what my risk for breast cancer is now at my age of 67 years and having discovered incidentally I have a BRCA2 mutation 3 years ago . When I reread the info my Genetic Counselor sent home with me I received the following stats- cumulative life risk of breast cancer-61-77% to age 80 My risk…
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Considering prophylactic mastectomy vs 4th lumpectomy
Feeling frustrated. I’m 45 years old. I have been on Tamoxifen for the past 2 years following a biopsy with ADH and several other biopsies and lumpectomies including multiple intraductal papillomas, fibroadenomas, cysts, calcifications etc. My right breast is constantly producing junk. Genetic testing has come back…