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Tyrer--Cuzick Risk calculator
Hello - on the Tyrer-cuzick risk calculator, does a 10 year risk of 7.3% for breast cancer. And a lifetime risk of 11.2% mean a high risk? Thank you
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Breast Ultrasound Screening Advice Missing Many Women Who Would Benefit
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Worried about my daughter with BRCA1
This discussion was created from comments split from: Worrying about future - need to vent.
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New PA Breast Cancer Testing Bill April 2023
A bill to boost early detection of breast cancer earned unanimous, bipartisan support in the PA house this week and is on the way to the governor's desk! Senate Bill 8 would eliminate out-of-pocket costs associated with BRCA-related genetic testing and counseling, as well as supplemental screening such as breast MRI and…
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Bilateral mastectomies for atypical ductal hyperplasia (ALH)?
Hi, I'm new here & recently diagnosed with two radial sclerosing lesions, one of which the biopsy showed contained atypical ducatal hyperplasia (ALH) in the same breast. The other was benign, but I still have to get both of them surgically removed. My breast surgeon ran 'my numbers' through the database and told me my…
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Obesity May Increase Risk Even More for BRCA+
Obesity May Increase Breast Cancer Risk Even More in Women With BRCA Mutations Mar 22, 2023 Obesity may increase breast cancer risk even more in women with a BRCA mutation, who are already a high-risk group. Read more...
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Many Women Don't Think Breast Density Is Important Risk Factor
Many Women Don't Think Breast Density Is Important Risk Factor Jan 25, 2023 Few women understand that having dense breasts increases breast cancer risk more than family history or some other risk factors. Read more...
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Anxiety is real
Hello all wonderful women..I am new but not new. I have been lurking and posting occasionally for several years. My story started 26 years ago when my mom was diagnosed with BC at age 46. I was 26 and newly married. I am not sure what kind of breast cancer she had but it went from zero to 60 fast. It was so aggressive. She…
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Podcast: Low-Dose Tamoxifen to Reduce Risk After Chest Radiation
Low-Dose Tamoxifen to Reduce Risk in Women Who Received Chest Radiation Jan 6, 2023 Dr. Sandhya Pruthi explains a study on using low-dose tamoxifen to reduce breast cancer risk in women who received radiation to the chest as children. Women with a higher-than-average risk of breast cancer often take tamoxifen to reduce…
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Considering preventative mastectomy
I have been having unilateral, spontaneous, clear and occasionally bloody nipple discharge. After 9 tests (3d mammograms, sonograms, MRI, sono guided biopsy and MRI guided biopsy) my last biopsy came back with a dx of atypical sclerosing papillary lesion with epithelial proliferation with mild atypia and rare mitoses, as…
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Flat Epithelial Atypia and Mucocele-Like Lesion
Hi all, In my last mammogram, there appeared to be a 1cm of clustered grouped microcalcifications. I received a stereotactic biopsy last week, and the pathology report is as follows - Left Breast with microcalcifications: Flat epithelial atypia Focal mucocele-like lesion Microcalcifications associated with in flat…
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Considering prophylactic mastectomy
Here's my history: November 2018: ADH confirmed via biopsy. ALH discovered in same breast during excision. In the last two years, I have had three more biopsies (thankfully, all benign), the most recent last week for clustered microcalcifications in the other breast. Started low-dose Tamoxifen in October 2021. Had complete…
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3D Mammos Reduce Risk for Extremely Dense Breasts & High Risk
3D Mammograms Reduce Risk of Advanced-Stage Disease in Women With Extremely Dense Breasts and High Risk of Breast Cancer June 15, 2022 In women with extremely dense breasts and a high risk of breast cancer, screening with 3D mammograms — rather than 2D digital mammograms — was linked to a lower risk of advanced-stage…
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Dense Breasts and History of Breast Cancer
I have dense breasts - Category C - Heterogeneously Dense - and was diagnosed with breast cancer in my right breast 7/29/21. I had a lumpectomy and just finished 16 rounds of radiation. My tumor was small (3mm) and luckily no lymph node involvement, so no chemo. Because of the tumor size I also was unable to get Oncotype,…
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Low Vit D Levels Linked to Higher Risk in Black & Hispanic Women
Low Vitamin D Levels Linked to Higher Breast Cancer Risk in Black and Hispanic Women May 3, 2022 Black and Hispanic women who had low levels of vitamin D in their blood were more likely to develop breast cancer than women with sufficient levels. Read more...
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Breast Cancer Screening Options for Women With ATM, CHEK2, PALB2
Study Suggests Breast Cancer Screening Options for Women With ATM, CHEK2, and PALB2 Mutations Mar 22, 2022 Women with ATM, CHEK2, or PALB2 mutations may benefit from starting annual breast cancer screening with MRI between the ages and 30 to 35 and an annual MRI and mammogram starting at age 40. Read more...
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Preventative Mastectomy
I was hoping to connect with some other women who have made the decision to have a preventative mastectomy. It's a decision I am in the midst of making, my family did not test positive for any gene mutation but I'm being informed that my risk is just the same. I would love to hear from other women what they went through…
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Recommendations for ATM info -both cancer and non-cancer issues
Hi Everyone - Made it ten years! I had genetic testing and have an ATM variation. My mom was tested, she was negative, so we assume it came from my dad who passed from prostate, bladder and Acute Mylodica leukemia before he could be tested. Fun times. Now, I am starting to get test results on my immune system - these blood…
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How to understand risk level and best risk calculator to use
Hi , I am totally confused about what my risk for breast cancer is now at my age of 67 years and having discovered incidentally I have a BRCA2 mutation 3 years ago . When I reread the info my Genetic Counselor sent home with me I received the following stats- cumulative life risk of breast cancer-61-77% to age 80 My risk…
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Considering prophylactic mastectomy vs 4th lumpectomy
Feeling frustrated. I’m 45 years old. I have been on Tamoxifen for the past 2 years following a biopsy with ADH and several other biopsies and lumpectomies including multiple intraductal papillomas, fibroadenomas, cysts, calcifications etc. My right breast is constantly producing junk. Genetic testing has come back…
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Advice about brca gene testing.
I am a 65 year old female. My preternal grand aunt (my fathers, mothers sister) and preternal aunt (fathers sister) died of breast cancer. My preternal aunts grand daughter was also diagnosed with breast cancer. I get routine mammograms' yearly. Every time I get a mammogram, I am asked about my families breast cancer…
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Testing Baseline Hormone Levels before starting Tamoxifen
Hi, I will be starting Tamoxifen due to ADH. My doctor did not suggest any tests to measure hormone levels before starting the treatment. Can you share your experience if your doctor has ordered any tests? Thank you.
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Share your Genetic Testing Story
Dear Members, Would you be willing to share your story if you have had genetic testing. We are interested in the following questions: What led you to doing the testing? What were your results, and what choices have you made based on the findings? Was payment an issue? How have you discussed these decisions with your…
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P53 Genetic testing
Hi All, My wife's oncologist is suggesting that my wife get checked for P53 mutation after her local recurrence. Can anybody please shed any light on that? She is negative for BRCA1 and BRCA2. Is it really necessary to get this done or is it something we get it done and worry about it without any solution? Thanks
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Women W/ Gene Mutation Have Same/Better Survival as Women W/o
Women With Breast Cancer Gene Mutation Have Same or Better Survival as Women Without Mutation September 8, 2021 Women with a genetic mutation linked to a higher cancer risk who are diagnosed with breast cancer or ovarian cancer and receive chemotherapy treatment have the same or better survival rates as women who don't…
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Fertility drug connection???
Hello all! Since reading so many different forums regarding pain in BC (such as docs saying you don't get pain in BC), being 'too young' to get BC, and other sorts of dismissive things docs say-and the uninformed in general! Let me begin by saying I do NOT have breast cancer! I've had breast issues the past three years…
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Women With BRCA1 Gene Mutation Have Fewer Eggs in Ovaries
Women With BRCA1 Gene Mutation Have Fewer Eggs in Ovaries July 1, 2021 Women with a mutation in the BRCA1 gene likely have fewer eggs in their ovaries than the average woman, which may shorten their window of opportunity to have children. Read more...
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Removing Fallopian Tubes 1st,Then Ovaries=Better QOL for BRCA+
Preventively Removing Fallopian Tubes First, Ovaries Later Offers Better Quality of Life for Women With BRCA Mutations June 23, 2021 Women with a BRCA1 or BRCA2 gene mutation had better menopause-related quality of life after having surgery to remove the fallopian tubes between ages 40 and 50, and then surgery to remove…
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Cancer not detected in Breast until Metastasized to Bones?
Hi everyone, I went for a walk with a nurse that worked in oncology for many years and she mentioned that a friend had discovered breast cancer which had metastasized to her arm and it was never located in the breast initially! I also read in some of these forums that once cancer had metastasized to either bones or…
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Podcast: Breast Self Exam
Breast Self-Exam May 28, 2021 Brian Wojciechowski, M.D., practices medical oncology in Delaware County, Pennsylvania at Riddle, Taylor, and Crozer hospitals and also serves as Breastcancer.org's medical adviser. He is a sought-after speaker on the topics of medical ethics and the biology of cancer. Medical and oncology…