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Advice about brca gene testing.
I am a 65 year old female. My preternal grand aunt (my fathers, mothers sister) and preternal aunt (fathers sister) died of breast cancer. My preternal aunts grand daughter was also diagnosed with breast cancer. I get routine mammograms' yearly. Every time I get a mammogram, I am asked about my families breast cancer…
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Testing Baseline Hormone Levels before starting Tamoxifen
Hi, I will be starting Tamoxifen due to ADH. My doctor did not suggest any tests to measure hormone levels before starting the treatment. Can you share your experience if your doctor has ordered any tests? Thank you.
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Share your Genetic Testing Story
Dear Members, Would you be willing to share your story if you have had genetic testing. We are interested in the following questions: What led you to doing the testing? What were your results, and what choices have you made based on the findings? Was payment an issue? How have you discussed these decisions with your…
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Member of the "6 Month Watchful Waiting Club", Unite!
Oops, meant to say "Members" in the title - guess I need more coffee! Hi ladies, just wanted to start a thread to pull together thoughts from many boards on this subject. I've been in the 6 month club for 5 years now. Like someone else out here recently said - if I don't have cancer now, I surely will get it from all of…
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P53 Genetic testing
Hi All, My wife's oncologist is suggesting that my wife get checked for P53 mutation after her local recurrence. Can anybody please shed any light on that? She is negative for BRCA1 and BRCA2. Is it really necessary to get this done or is it something we get it done and worry about it without any solution? Thanks
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Women W/ Gene Mutation Have Same/Better Survival as Women W/o
Women With Breast Cancer Gene Mutation Have Same or Better Survival as Women Without Mutation September 8, 2021 Women with a genetic mutation linked to a higher cancer risk who are diagnosed with breast cancer or ovarian cancer and receive chemotherapy treatment have the same or better survival rates as women who don't…
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Fertility drug connection???
Hello all! Since reading so many different forums regarding pain in BC (such as docs saying you don't get pain in BC), being 'too young' to get BC, and other sorts of dismissive things docs say-and the uninformed in general! Let me begin by saying I do NOT have breast cancer! I've had breast issues the past three years…
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Women With BRCA1 Gene Mutation Have Fewer Eggs in Ovaries
Women With BRCA1 Gene Mutation Have Fewer Eggs in Ovaries July 1, 2021 Women with a mutation in the BRCA1 gene likely have fewer eggs in their ovaries than the average woman, which may shorten their window of opportunity to have children. Read more...
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Removing Fallopian Tubes 1st,Then Ovaries=Better QOL for BRCA+
Preventively Removing Fallopian Tubes First, Ovaries Later Offers Better Quality of Life for Women With BRCA Mutations June 23, 2021 Women with a BRCA1 or BRCA2 gene mutation had better menopause-related quality of life after having surgery to remove the fallopian tubes between ages 40 and 50, and then surgery to remove…
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Cancer not detected in Breast until Metastasized to Bones?
Hi everyone, I went for a walk with a nurse that worked in oncology for many years and she mentioned that a friend had discovered breast cancer which had metastasized to her arm and it was never located in the breast initially! I also read in some of these forums that once cancer had metastasized to either bones or…
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Podcast: Breast Self Exam
Breast Self-Exam May 28, 2021 Brian Wojciechowski, M.D., practices medical oncology in Delaware County, Pennsylvania at Riddle, Taylor, and Crozer hospitals and also serves as Breastcancer.org's medical adviser. He is a sought-after speaker on the topics of medical ethics and the biology of cancer. Medical and oncology…
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Pre-menopausal High Risk ladies... what choice have you made?
I'm wondering in those young, high risk ladies who HAVE HAD a scare before, like a biopsy that ended up being benign... how did you proceed? Anyone doing yearly MRI's on top of yearly mammograms? Is the constant waiting for results with that type of monitoring every 6 months unbearable? Anyone choose a prophylactic…
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High Risk Women Face Financial Barriers to Preventive Care
Women at High Risk for Breast Cancer Face Financial Barriers to Preventive Care, Even With Insurance May 11, 2021 Women with a higher-than-average risk of breast cancer face barriers to preventive care because of financial concerns, even when they have health insurance. Read more...
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MRI Finds BC at Earlier Stage Than Mammos in High-Risk Women
MRI Finds Breast Cancer at Earlier Stage Than Mammograms in High-Risk Women, but May Result in More False Positives June 29, 2019 Screening with MRI finds breast cancers at an earlier stage than mammograms in women with a family history of the disease, but this benefit may come with the risk of more overdiagnosis and…
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Am I at "high risk"? If so, what then?
This is my first post, although I've been lurking and reading a lot for months. I'm in the midst of what feels like an incredibly slow process to sort out an abnormal screening mammogram, in September (2 areas of microcalcifications). Next came diagnostic mammogram, which was deemed to BIRADS 4a (late September). Then…
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ADH without any more suspicious mammos
it seems like all I've been reading on here about ADH “surveillance" is women having frequent abnormal mammos, and repeated biopsies or excisions biopsies which sometimes remain benign or sometimes turn into DCIS or worse. The literature and pros tell us not to worry, that most ADH isn't upgraded upon excision, and doesn't…
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Concerned and needing tips to help with the waiting game!
Hello, I came here last week and reading others stories helped, but now I find myself in an extended waiting game and am stressing too much! I have a family history of breast cancer on my mothers side. My grandmother died from breast cancer when she was 41 or 42 years old. She had 5 daughters including my mother and two of…
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BRIP1 Positive Genetic Mutation- Anyone else out there?
Hello, I tested positive for a new gene mutation called BRIP1 in November. As you may know, it carries a elevated risk for ovarian and breast cancer. It is a fairly new gene mutation and there are not clear cut guidelines on how patients should proceed. So, here's what has happened so far: My mom told me she had the BRIP1…
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Connection Between Spironolactone and Breast Cancer?
Has anyone ever heard about a connection between Spironolactone and breast cancer? This drug is diuretic that is also used to treat acne. I have taken this for several years, and I am at high-risk for breast cancer, so I was very concerned when I read about a possible connection. I have posted an excerpt below from one of…
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Anyone out there with the Chek2 gene mutation???
my mom's genetic testing for her breast cancer was positive for the Chek 2 gene mutation. We were told this is a rare mutation, but a high risk one. I was tested a week ago and awaiting my results. Anyone out there like us???? Would love to hear how you navigated this or any info you may have.
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PBMX for ALH or ADH?
Just wondering how many ladies out there decided to have prophylactic masectomies when your diagnosis was ALH or ADH? I know I can't be the only one.... Hugs to all, Valerie
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ADH and PASH
Hi, I'm new here. Just want to post something about myself. I am 27, Asian. No family history. Recently diagonised with ADH and PASH. English is not my first language, so I hope I don't make too much mistakes here. I've spent some time learning about the two and I know ADH is the risky one. I first found my nipple was…
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Do breast reductions lower your risk?
I plan to get a breast reduction soon due to neck,shoulder pain and headaches as well as my breasts just constantly hurting. Anyone know if it also helps reduce the risk?
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MRI experiences with false positives and over treatment?
How many of you have been screening annually with MRI? How many false positives have you had? Do you feel it has been worth the price, financially, and in terms of quality of life? Many of us at high risk (especially those who are young and/or have dense breasts) have been advised to get supplemental screening with MRI. I…
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Insurance company will not cover my MRI
Wondering if anyone out there has run into this: I went in for my annual mamo and to make a long story short I ended up having a MRI as the radiologist was not comfortable with the findings in the mamo and ultra sound. I have dense breasts and I guess it's like trying to find a needle in a haystack. Years ago I also had a…
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Do U wear a Medical Alert Braclets?
Do you wear a medical alert type braclet? Although I belong to several BC organizations I've noticed very few gals wearing medical alert braclets. After my unilateral mastectomy I got a medical alert braclet stating no BP or needle sticks in left arm. While I haven't had a problem with lymphodema & my BS said my risks are…