-
Opinions on MRI, Biopsy and Overall Worry
I'm looking for opinions or similar situations. Every year I get my mammo and since cancer they appear hypervigilant. The first few years they wanted to biopsy everything they saw. I had a couple of bad experience with the first two biopsies so I later took charge and said no if it was something that could be watched.…
-
MRI w/o contrast
Hi I am wondering if anyone have had an MRI without contrast. Is that better than a 3d mammogram for dense breasts or an ultrasound? Just wondering as reading up on the contrast used for MRIs and getting nervous on using it as it saying that gadolinium can stay in your body for a LONG time and even staying in the brain.…
-
How often do you think about recurrence?
Hi all, I'm just wondering how much you think or don't think about recurrence. We are all different, and we have different chances of recurrence, but I wonder if you think about it. I was diagnosed in February. DMX in March, currently on Tamoxifen for five years. Taking a daily pill is a great way to think about the…
-
IDC and Mental Health
Hello, I've been recently Dx with IDC Grade 2, ER+, PR+, HER2+ as well as DCIS on left breast and also managing Major Depression Disorder, Generalized Anxiety Disorder, and PTSD. I've had my crying episodes and everyone I have talked with says to have a positive attitude. In my experience having a positive attitude is…
-
Hormone therapy or not if bad side effects
5 months now on Letrozole…post 20 radiation treatments after removal of 1 cm invasive ductal carcinoma, oncotype 17 and no nodes positive but high grade all markers. The severe hot flashes are back and with adrenaline rushes that keep me from falling quickly back to sleep. Been awake every 1-2 hrs for years now with hot…
-
Worried
I am 85. Diagnosed in April with IDC, right breast, grade 3, stage 1A, 1.8 cm. Surgeon removed tumor and cancerous intramammary lymph node close to tumor. No lymph nodes removed underarm. Seeing medical oncologist this week to discuss treatment plan. Hoping I don’t have to do chemo!
-
Have to make a radiation decision
I have IDC…stage 1, HR+, PR+, HER2-, Grade 2. I’ve had a lumpectomy with tissue rearrangement and sentinel node biopsies. The sentinel nodes came back clear. The RO said that since I’m 73 yo and the tumor was small, 1.9 cm, that I can either have no radiation or a partial breast accelerated radiation course of 5 days. Even…
-
Second mass found...reconsidering treatment plan
Hi! I was diagnosed about 6 weeks ago with IDC (ER/PR+, HER-). I had to pause starting any treatment to travel to the UK to be with my mom, who was diagnosed with stage 4 colon cancer. Sadly she passed away last week. I have just got back and now picking up my treatment journey. Just before I left for the UK, an MRI showed…
-
Ki-67- ONCOTYPE? What was everyone’s experience?
I’m just sort of curious. For those who had a ki-67 number before your oncotyoe, what were your numbers? I’m wondering how often a high ki-67 results in a high oncotype, and vice versa. What’s your experience?
-
VERY overwhelmed!
I have recently been diagnosed with IDC Stage 2 Grade 3, it is negative in my lymph nodes. Everything is so overwhelming, I had a EKG and EX-Rays yesterday and go into get my port tomorrow morning. I attend chemo class on Monday and start chemo on Tuesday. I am just very overwhelmed, I have friends that suggest that I go…
-
Er/pr/her2 + IIIA stage IDC
Hi, my 68 year old mother was diagnosed with hr+ pr+ and her2/neu breast cancer (score 2+ currently being verified with fish method), last week. she underwent a tumorectomy with an axillary dissection. the pathological analysis showed the following results: - infiltrating ductal carcinoma of 18 mm, grade SBR 3 according to…
-
Did your doctor talk about your Ki67 %
Hello - I have IDC Stage 2 (++-), and I am one week out from my bilateral mastectomy. My lymph Node pathology reports were posted online, and from what I can read, there is no cancer in my lymph nodes. However, my Ki67% - was reported at 43%. so I have a Ki67: 43%. Is that bad? Did your doctor put much stock into your Ki67…
-
Breast cancer survival
This breast cancer journey is so difficult to endure physically and psychologically. The one thing that helps me to feel better is to hear success stories of people who have survived long term. There is a " success stories" thread on here ( that I read frequently) but it is from over 10+ years ago. Let's share more recent…
-
Onctoype 16- premenopausal…
what did you do when you were premenopausal and in what the doctor calls the “gray area” (16-25) for chemo and given the option? I’m not sure what to do because I had some things that worried me on my path report and the radiologist oncologist mentioned it as being “more advanced”. I had one of four nodes positive with…
-
Been on Letrozole almost 4 years IDC
I will not list all the SE I had during my last 4 years on the 2 ALS I tried but it was not good. I took a 41/2 week break still had some major foot pain, sores not healed up in nose and very itchy scalp any how I am now cutting my Letrozole pill in half and taking it every other dayIF my SE come back in full I am done. I…
-
Just diagnosed with IDC ER+ PR+ HER2+
I just was diagnosed with Invasive Ductal Carcinoma ER+ PR+ HER2+ on Dec 23rd, 2023 but still do not have an oncologist. I do not know what is normal for being diagnosed with cancer as I have never had cancer in my life before. I do not know the Stage or Grade of the tumour yet. I am in Canada. When looking up anything…
-
Itchy rash after lumpectomy
hi there, Looking for advice please BC friends? I had a lumpectomy and SNB 5 weeks ago today. Lumpectomy Incision was all the way around my areola. I had my dressings taken off approx 2.5 weeks after surgery and thereafter developed an itchy rash around the areola. Saw my surgeon who advised it was some kind of skin…
-
Rib pain after Double Mastectomy
I had a double mastectomy three weeks ago. I’m now having pain in my left side which may? Be a rib out. I’ve never had a rib out before. Is this common after a double mastectomy to have rib pain or possibly a rib out of place? I don’t feel ready to go to the chiro but boy does it bother me 😫
-
Grade 3 long term survivors
Hi diagnosed last year with a primary breast cancer aggressive Grade 3 in two nodes. I wondered if anyone had long-term survivor stories. I'm terrified of secondary and have read lots of posts of survival but they tend to be stage 3 but grade 1 or maybe 2. Is there anyone with a Grade 3 in nodes with a positive story.…
-
Newly-dX'ed today
Hi everyone. I received my biopsy results this afternoon. I don't have the full picture yet, but I'm looking for some guidance and support from others who may have had a similar experience. Here are my details: 50-yo, possibly newly post-menopausal Diagnosis: Invasive Ductal Carcinoma (IDC) HER2 Status: Positive Hormone…
-
Did you get a 2nd Opinion regarding Oncology Report?
Hello, My onctype report should be back this week, and I am scheduled to meet with an Oncologist. I am just wondering if people get second opinions on oncology and the steps taken after mastectomy or lumpectomy.
-
Drains out today - started to cry
Double Mastectomy was on March 13th. My drains were removed today, and saline was injected into the expanders. All is going well with recovery from surgery. When my husband and I left the office and walked to the elevator, I started crying. Tears of joy, tears of exhaustion. When I was first diagnosed and met with my…
-
Prognostic without treatment
Hi community, Very hard to find information on patient refusing treatment. Mother 92 , has Recurrence IDC (first cancer 2011) she had lobectomy , axilliary node removed , she refused radiation , chemo and stopped hormone therapy after a few months… Now she is diagnosed with IDC stage 3a , grade 3 , at least one lymp node…
-
Panicking Before Surgery
I am having so much anxiety and panic right now. Surgery is early next week for my double mastectomy. I have a lot to be grateful for. It was found early, in Stages 1-2, and is smallish still. But I am panicking over fear, and I get that. Also, the reality is setting in that I have to deal with this. Before, it was just…
-
Recurrence after Mastectomy, then positive margins
Hello, I am hoping to connect with people who might have a similar situation to mine, although I think (?) my situation might be on the rare side. Six years ago I was diagnosed with Stage 1B IDC. I am BRCA2. I did a double mastectomy with reconstruction (implants) and was told chemo/radiation not needed since my tumor was…
-
Stupid comments ....
I will soon go for more surgery on Feb 27th, admitting diagnosis " undefined probable malignancy left breast" Once again I had to bear stupid comments as in the first time I was diagnosed. Stupid comment 1 " Oh we all have cancer cells and have concerns " I wanted to say 'Ok you take my daily cancer concerns and I'll take…
-
Recently diagnosed
Hi all, I’m new to this forum and some other patients I have met recommended me to come here. I just got diagnosed with stage 2A ductal invasive carcinoma, ER+/PR+/ HER- and I’m 26 years old. I have a 3.2 cm lump in my left breast. The treatment they want me to do is chemotherapy first even though they said there is a…
-
Can't Decide Between Lumpectomy or BM(x)
Age: 51 IDC stage 1 (possible2) right breast Estrogen Positive Tomorrow, I see my breast surgeon again, and I am supposed to share with him if I want to go for a Lumpectomy or mastectomy. If I did a mastectomy, I would do a double mastectomy. I have been thinking and thinking. In one way, it would be easier to do a…
-
2013 Survivors!!!
I was going to create this thread under the "Recovery, Renewal & Hope" thread, but then I decided that the IDC forum is our "home". We started this journey here as the "2012 Sisters" and grew, and grew, and grew. Although truly sad to see how many of us there are, each new member of our little family has been given the…
-
Did you spend the night in hospital after bilateral mastectomy
Did you spend the night in the hospital after your bilateral mastectomy? My surgeon said he would probably send me home, but it seems like an extensive surgery, so I'm wondering what others did. I am having reconstruction at a later time, not the same time as mastectomy. I am having a skin-sparring mastectomy with…