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Is seven weeks too long to wait for radiation after lumpectomy?
I had my surgery on May 4th and can't even get in to see a radiologist until June 9th. The front office said radiation would usually start two weeks after this visit. I'm concerned as everything I've read said ideally radiation should start 4-6 weeks for older people (I'm 60) to prevent reoccurance. Has anyone else had to…
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Pathology Results
I saw my surgeon this morning, two weeks post lumpectomy and SLNB. Here are the results: 24mm IDC and DCIS (larger than previously imaged on MRI and mammogram)Margins are clearLymph nodes are negative Grade 3I don’t know if I need chemo yet, that will depend on mammaprint and oncotype results I hate that I know all these…
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I'm thinking about discontinuing all doctor visits.
I'm three years out, had stage 1, grade 2, lymph node negative, Oncotype 7 IDC with DCIS. I had a mastectomy and proceeded to go through a year of hell on hormonal meds until I stopped those. The doctors told me that until I reach year 5, I need to see my breast surgeon ever 6 months, my oncologist every 6 months, and my…
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BRCA2 mutation, IDC and lumpectomy and sentinel node
I found out that I had IDC and then through genetic testing, found out I have the BRCA2 mutation. After research and multiple discussions with surgeon and oncologist, I have decided to have lumpectomy and sentinel node biopsy at this time. Now waiting for pathology report and will do every 6 month surveillance. Have others…
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Swelling post lumpectomy surgery
Has anyone had swelling in the area of their lumpectomy? It’s not where the SLNB was (it’s not under my arm) but above where the lumpectomy scar is. It’s like I can hear water in there. I know some swelling is to be expected but should the area be elevated and filled with liquid? Also, any suggestions on what I can do to…
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Surgery done…
This is my first post in this group as I know I have IDC. I had my lumpectomy and SLNB yesterday. I was at hospital early as they put a wire in, they injected the lymph nodes with nuclear something, had a gamma scan, had an MRI and ultrasound. I was supposed to have the IDC and another suspicious area removed (that was…
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Has anyone just done Endocrine Therapy(No Radiation)?
Brand new to this. I’m 65 years old and was Dx with IDC in April 2023. It was found on a my yearly Mammo/Ultrasound. Had a lumpectomy on May 5th. Stage 1, Negative Lymph Nodes, Estrogen and Progesterone strongly positive, HER2 negative, Proliferation 5%. I met with the Medical Oncologist a few days ago and am meeting the…
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Grade 3 long term survivors
Hi diagnosed last year with a primary breast cancer aggressive Grade 3 in two nodes. I wondered if anyone had long-term survivor stories. I'm terrified of secondary and have read lots of posts of survival but they tend to be stage 3 but grade 1 or maybe 2. Is there anyone with a Grade 3 in nodes with a positive story.…
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Is Oncotype test always ordered? Are there are genetic tests I could request in addition?
Had a lumpectomy 10 days ago and SBN. Stage 1, grade 1, no lymph no involvement 90/98 EST/PR. My surgeon has made no mention of the Oncotype score and when I called the lab for my biopsy results, they said I would need to ask my surgeon to submit for genetic tests. Is this normally how it's done? Also, are there any…
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Diagnosed yesterday - Intermediate Ductal Carcinoma
Hi everyone, I'm Jayne. I would like to say it's so nice to meet you all, but this is a forum I never expected to find myself. I'm 52, relatively healthy with an absolutely amazing husband and was loving life, running our own business, kids left home, travelling, living the dream to be honest. Seven weeks ago I had my…
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second lumpectomy
I opted for a second lumpectomy on the advice of my surgeon instead of a mastectomy. Has anyone done the same and did you have a reoccurence of cancer?
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2013 Survivors!!!
I was going to create this thread under the "Recovery, Renewal & Hope" thread, but then I decided that the IDC forum is our "home". We started this journey here as the "2012 Sisters" and grew, and grew, and grew. Although truly sad to see how many of us there are, each new member of our little family has been given the…
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IDC with lobular features
Hi, What does it mean to have IDC with lobular features? I was looking back at my pathology from a few years ago and saw that listed there. None of the doctors have mentioned with the lobular features part meant. Does it mean it was found in the ducts and lobules? Thanks in Advance
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No sentinel node were found during sentinel node biopsy
Hi, i have a few questions and i wonder if anybody had the same experience. 1. I recently had my Mastectomy done and the doctor performed a sentinel node biopsy for me. However strange enough after the surgery he says that he couldn't find the sentinel node and histopathology report came back with 2 axillary lymph nodes…
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Drinking Alcohol after Breast Cancer
Hi Everyone, I have been on this website a lot since my diagnosis (September 2022), and this is my first post, so please forgive me if this topic is on here somewhere - but I just couldn't find it. What are you thoughts about drinking alcohol after breast cancer? I am petrified of recurrence, even though I am at low risk.…
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grade 1, Oncotype 35
My cousin has a grade 1 IDC, 1.7cm, ER/PR+ (ER is 90% I believe), HER2- but Oncotype is 35. I got her text at 3 am and was shocked. For grade 1 tumors less than 1cm, 97% had low Oncotypes. Granted hers is slightly larger. She is 70, already in ill health with IgA immune deficiency (she has been getting IVG) with frequent…
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What will an MRI tell me that I don't already know?
I was recently diagnosed with IDC grade 1 100% ER and PR + HER2 -, I'm currently waiting on genetic testing results and going for an MRI in a couple of days. My question(s) is what is the purpose of the MRI? Is this standard procedure? Will it possibly show something more than they have already seen? I'm just ready to get…
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How much did your breast change/shrink after rads?
It's been recommended to me to have a lumpectomy with rads however through research I've discovered that obviously the lumpectomy removes volume, but that radiation can significantly shrink or damage the breast. I'm already a B cup and asymmetrical and the mass is in my smaller breast. I'm VERY concerned that the outcome…
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Multivitamin
i am breast cancer survivor for 2 yrs (++- IDCS). Can i take Multivitamin after the treatment. My doctor said i can take multivitamin. Can you recommend which brand is good for the patient like me? Thanks -XT
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ZEST trial
Is anybody participating in ZEST trial? Thank you
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I’m Having Iron Infusion——Share your experience please!!!!!
Hi Friends: I know lots of you have had iron infusions. I'm having one this week. I'm a little nervous because there are side effects. What have you all experienced? Was iron infusion a great thing for you? Did it improve your energy levels post infusion? I'm low in iron and pulls weren't really working well enough. So…
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Metastasized?
I had a lumpectomy a few weeks ago and start chemo in a few weeks. My oncologist ordered a few scans in between. I had a CT scan today and I saw my results online before the nurse called. It showed a few lesions (2-3 mm) on my lung and kidney. I was freaking out a bit and assumed I was going to have to have more scans…
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Nipple Reconstruction or 3D Tattoo only?
Looking for advice following a successful bilateral mx implant. Very happy with results. Next I have to decide if I want to get a nipple reconstruction or should I just go with a 3D tattoo instead. My surgeon said that a reconstruction means that the nipple is always erect and while it will flatten over time I should…
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Estrogen Positive, Progesterone Negative, Her2 Negative
I am going to see an oncologist tomorrow. Does anyone else ER+ and PR-? It is my understanding that taxomxifin is not as effective due to being PR- and an Aromatase Inhibiter is more effective. My Oncotype DX score is 26. I wonder if I should have chemo. From what I have read it does not seem like it would be that helpful.
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Bone metastasis or osteoporosis - very anxious waiting
I was diagnosed with stage 1a, grade 3, er+, pr-, her2- BC in August 2020. 1 of 4 nodes with a micromet, others clean. Had a double masectomy and 4 rounds of DD AC and 4 rounds of DD taxol. I have been on arimidex ever since. As someone on the taller and thinner side I have always had back issues. Now I have a fractured…
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Clear margins, but cancer in lymph node
A little over a week ago, I had a lumpectomy and sentinel node biopsy. My surgeon just called me yesterday with the results. I was happy to hear that I have clear margins, but then she said there was a 2.5 mm metastatic carcinoma found in one of my 3 lymph nodes that were biopsied. How happy should I be that my margins are…
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Is this considered triple negative?
I just my follow up with my surgeon. Margins are clear, the 6 lymph nodes she took out had 0 cancer. The estrogen was low positive, just 3% and the progesterone and HER2 were negative. It is stage 1, grade 2. I will have radiation for sure and she's thinking no chemo but that will be up to the oncologist. I will get a call…
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Breast Cancer Index Test
Breast Cancer Index Test I was looking for stats to compare when waiting for my results and couldn't find much so I am starting this for others to post who are willing to share. My stats: Age: 41 at dx Stage 2 Grade 2 ER/PR+ (99%) Oncotype 9 Node-Positive: (1 macromet) BCI results: NO benefit from extended endocrine…
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IDC - HER2+, starting Chemo this week maybe
Everything is moving kind of fast. Friday before last, I just went in because my right breast and under the arm were sore. Flash forward to now, and I've had a mammogram, ultrasound, biopsy, and met with a surgeon and an oncologist. Originally the surgeon wasn't until Tuesday, and the oncology appointment wasn't until…
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Parathyroid disease and breast cancer
I keep on seeing posts that people have had these dual diagnoses; sometimes the parathyroid disease pre-dated the bc and sometimes the other way round. I am becoming convinced that the two are causally related, so am interested to see just how many of you have been affected. Many of us are getting osteoporotic and blaming…