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Ibrance-Faslodex Combo Improves Overall Survival in Advanced HR+
Ibrance-Faslodex Combo Continues To Improve Overall Survival in Advanced-Stage, Hormone-Receptor-Positive Breast Cancer June 10, 2021 The latest results from the PALOMA-3 trial show that combining Ibrance and Faslodex continues to offer better overall survival than Faslodex alone. Read more...
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CA 27-29 testing
I have mets to my spine. My CA 27-29 had been running about 38-40 (normal 35) My Onc tested again 6 weeks after my total hysterectomy and it went to 134. At the time of the hysterectomy, they found many fibroids/ovarian cysts. Now, one month later he is testing again. He said if it trends up again "we will have to do more…
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Need your tips for taking a CDK 4/6 inhibitor
Tips for Taking a CDK 4/6 inhibitor such as Abemaciclib (Verzenio), Palbociclib (Ibrance), Ribociclib (Kisqali)—Before and During Treatment: Please share your advice for preparing to start treatment, dealing with side effects, testing during treatment, etc. Thank you!! p.s. this is to help us in a new content piece we are…
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Long term survival Her2 pos stage 4
Hi, I would like to hear from other long-term stage 4 survivors. Have any of you experienced ful remissions? What are your stories, what did you do personally to beat the odds? Below I will share my story. I am happy to expand on the integrative care I was/am receiving that has played a huge role in my well-being and…
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Newly diagnosed stage IV triple positive
I am 43 old mother of 13 and 9 year old girls and former police officer who was recently diagnosed with stage IV Breast Cancer. In the last two month I had a mammogram with a biopsy performed same day, been to a surgeon, received my pathology reported saying I'm triple positive with undefined cells, and told I was stage 2…
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Urgent call: Share your photo for Beyond Pink Website
Hi All, AstraZeneca is looking for photos and and quotes to be posted on their website, Beyond Pink: Sharing Our Metastatic Breast Cancer Story All you would need to do is: 1. sign release form 2. select photo to share 3. write quote (Per AstraZeneca: The quote can be anything you want to share with the community to…
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PROTON THERAPY
Has anyone had this done? If so, what did you have it done for Bone or Organ mets, and how was it as far as the actual treatment and side effects? Does anyone know if this is good for spine mets?
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CDK inhibitors may boost effectiveness of immune therapy in MBC
Just saw this and thought some of you might be interested. Cross posted from the research thread. CDK inhibitors may boost the effectiveness of immune therapy in metastatic breast cancer * Download PDF Copy Reviewed by Emily Henderson, B.Sc.May 10 2021 A class of drugs that inhibits breast cancer progression when used with…
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Gallbladder sludge and constipation-is there a connection
I had an abdominal MRI today. Everything seems okay except gallbladder sludge and fecal matter seen in whole colon. I’ve been dealing with constipation on all CT scans for a while. Is it from the gallbladder? I don’t have pain in my gallbladder, but I should say yet. My mom ended up having her gallbladder out later in…
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Please Take the MBC Alliance Surveys About the Pandemic
The Metastatic Breast Cancer Alliance (https://www.mbcalliance.org) is calling all metastatic breast cancer patients to take two surveys about your experience during the pandemic to help doctors improve care #MBCconnect Get started here. Thank you for your help on behalf of the Alliance.
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Stage IV breast cancer and Leptomeningeal carcinoma
Hi. I have a question. I was diagnosed in October with Leptomeningeal and stage 4 bc to my spine and pelvis. Had methotrexate and then switched Drs and had proton radiation. Went to dr yesterday I and she said I should either do Xoleda or try for a clinical trial. My question is Why do these treatments and feel worse when…
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Anyone know anything about Resolvin?
Hi all I read an article about chemo and targeted therapy being a two edged sword The cancer cell debris caused by therapy causes inflammation that can trigger new cancer cell growth!!! The body needs these Resolvins to help the system deal with the cell death debris. Anyone got any input? Ann
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Skin mets
My breast cancer has moved to my skin. I have had radiation to my chest and my back. The skin mets have returned. Some are small bumps and others are huge places that seem to be spreading. The radiation did not work. It only caused a lot of pain for me and loss of my skin. I was taking Xeloda with the radiation. In…
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Kadcyla/ other antibody conjugates and icing/ cold capping ?
wondered what was drug's pharmacology - does it stay where it has got to during IV infusion making it reasonable to use icing/cold caps with it or does it recirculate during it's presence in the body ( half life 4 days or thereabouts) making it pointless ?
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Stiffness after spine radiotherapy
Hi again. So after been in chronic back pain what i thought was down to my recent reconstruction, it was the cancer returning. Spine,pelvis,liver and nodes. Diagnosed 3 weeks ago. I went from bed bound in hospital, they managed my pain and i was pottering around with a walking frame. Im 47 and active usually. 2 weeks ago i…
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Febrile Neutropenia, 1st Ibrance cycle :(
I'd just completed my very first cycle of Ibrance, and three days into the "off" week, I developed a fever. Was advised to immediately get to the ER, was promptly admitted to the hospital for two nights, and given IV antibiotics. Home now on oral antibiotics for several more days. I talked with my oncologist at length…
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Aunt Recently Diagnosed with Stage IV Breast Cancer
Hi everyone, This is my first time posting. I really appreciate this forum and I love the support it provides. I'm also sure you all know more about this topic than me so I'd really like any information anyone can provide. My aunt (who was diagnosed) doesn't speak English well. We're a close knit family and I'm trying to…
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HER2- with ERBB2 mutation
I am now and have always been HER2-, but Foundation 1 testing of my liver tumor found it has the ERBB2 mutation. I have been trying to research this but still don't quite understand the difference, or if there is a difference. My mo has mentioned H&P as next tx when A/A fails. TMs took a jump last month and I have PET…
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Weekly Doxorubicin
There doesn't seem to be a lot of information on SE's of this treatment, only the monthly infusions. Perhaps this is used more in Canada? But if anyone has any personal insights into this treatment, i would love to hear. I start it today. My body seems to really dislike any new treatment and I get really bad SE's Any tips…
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Kadcyla has not worked
Hello Looking for some advice/help please HER2+ BC not metastatic to liver. I have done 24 sessions on Kadclya and now am having what my oncologist thinks is a reaction to the Kadcyla, I have hives and itch all over my body. Last CT scan in January showed small cyst on my liver. So they stopped my treatment now for 9 weeks…
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Don’t Throw Away Your Shot! A must see for Hamilton fans
As some of you know, I am a huge Hamilfan. I love it so much and know it so well that I could be an understudy for almost every part . Not sure they would want 64 year old stage IV patient who can't sing well anymore but you never know! Anyway, here is a wonderful parody version of My Shot, written an performed by medical…
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Has anyone dealt with extensive distant lymph node involvement?
I tried searching the forum but the only posts I find are about regional (mammary and axilla) lymph node involvement. I have extensive lymph node involvement from my supraclavicular down through "multiple clusters" throughout my chest and abdomen. My last scan showed significant progression in the lymph system after my…
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How often do you see your oncologist?
My apologies if this topic already exists somewhere but I could not find it. Something has been bothering me a bit lately and I wanted to get some opinions. I am stage IV and have been on various treatments since 2015. Unfortunately my previous onc retired in 2019 and I was passed over to a new one. He is a good doctor but…
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Request a Free MBC Guide about Treatments, SEs, and more..."
If you are newly diagnosed with MBC, facing a treatment change, or contending with difficult side effects, then you may want to look at "The Insider's Guide to Metastatic Breast Cancer," which provides science-based information about approved and emerging therapies, cutting edge research, symptom mitigation, and more. It…
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When do you know it's time to change MO
Hi everyone I am still new at MBC, just found out in October. I went for a 2nd opinion shortly after diagnosis. Her treatment was fairly consistent with my current MO, so I chose to stay with my current dr. Here's the deal, I keep having this nagging gut feeling I need to change. I have never felt a strong connection with…
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Viability of biopsy
after a year and a half first on THP and then just HP I have partial progression- one of the lesions increased a lot in uptake, a few lymph nodes increased in uptake and a couple of new avid nodes popped up. The lesion is 1 cm in the upper lobe of the left lung. Lymph nodes are in the right supraclavicular fossa (4mm),…
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Eye mets.
Hello, anyone with eye mets? Looking for words of encouragement. Eye doctor found lesion on my retina and am scheduled for an orbital MRI to confirm diagnosis. Onco is already pushing proton therapy with radiologist. Has anyone had this resolve on cdk 4/6 inhibitor?Thank you for your time.
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Cryotherapy for Lung Mets?
I have a low volume of lung mets and was stable for approximately 7 years just on Femara. Recently, 4 lung Mets slightly grew, I switched to Fulvestrant and have been stable since June 2020. I would like to have these 4 lung mets or at least the largest one cryotherapy ablated or with laser/heat ablation. Does anyone know…
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De Novo Metastatic
Hello, I’m new to blogging and to breast cancer. I’m overwhelmed by the speed of my diagnosis, even my doctors are shocked. November of last year I learned from biopsy and mammogram that I had Stage 1 A breast cancer. The tumor in the left breast was < 2 cm invasive ductal carcinoma grade 2. I was scheduled for bilateral…
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Mets to lung
Hello ladies. I sadly find myself joining this group within 18 months of initial bc diagnosis. Im 44 years old. I had a wedge resection and lobectomy about a month ago and my oncologist is talking about oral chemo and immunotherapy together to treat this. My borders at surgery were clear thankfully. Gotta say with the…