Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: <a href="https://breastcancer.vanillacommunities.com/en/categories/caring-for-someone-with-stage-iv-or-mets"><em>Caring for Someone with Stage IV or Mets</em></a>.
I've been on this combo since Nov 2019. Since all treatment combos seem to offer their own side effects and challenges, I'd like to hear from others taking these drugs. Especially your experiences, duration of success and how you deal with the fatigue, itchiness, etc that goes along with this treatment.
Hi! Many know about me, but I would like to connect with others in my situation. After being on pill treatments since 2019, I was told Enhertu. I gave it two tries, decided I did not want any infusions, chemo or otherwise, and chose to stop treatment. My last treatment was September 12, 2024. Enhertu had me feeling the…
How do you handle the constant loss of hope? I have only been dx a year and a few months. A lot of drs missed the lymph nodes and said it was related to an autoimmune disorder. I am still angry but just cannot believe my time is going so quickly. I have not responded to the traditional treatments for less than a few months…
Hi all! Join us for a Zoom meetup for those who are Younger with MBC discussing the unique experiences that a stage IV diagnosis brings at a younger age. We'd love if you could join us on Thursdays bi-weekly at 1pm ET. Register in advance for this meeting: After registering, you will receive a confirmation email containing…
Hi everyone, I'm starting a low dose of Enhertu today, been resisting for a while as I'm more than done with hair loss and any more reduction in quality of life. Side effects don't seem to be consistent with most patients I've observed from research, am very trepidatious. Any thoughts? Thanks
13 years was a good run but all good things must come to an end. Will be heading to see my mo in about an hour to review latest PET scan, which was not posted in the patient portal ☹️. Yes, I have been having pain/soreness in my back and the CT I had during my kidney stone episode showed a healing fractured rib as well as…
Hello - My cancer recurrence (since 2010-2011 lumpectomy/chemo/radiation/tamoxifen/arimidex 6 yrs) is now MBC+bone metastisis diagnosed the end of January 2025. I have been on 100 mg Verzenio pills since February 2025 (along with monthly Faslodex injections and 3-month Zometa infusions). I keep hearing from the oncologist…
Hi, I've not had good news since forever—since suspected recurrence in August 2023 anyway, looks like I won't be getting any either. I had some red raised places — not bumps, not nodules, that would get red, then go away, etc. that appeared Nov. 23, the same month I was dx with St. IV. PET scan didn't show this. CTs-four…
Hello ladies and gentlemen. I'll keep it brief for now however, i'm hoping I can navigate this site as well as I did first go round. The website has changed A LOT and I don't know what I'm doing quite yet. I'm going to see if they archived my old stuff. It was a LOT. I was here in 2009 or 10 as Stage IIIc. Was NED until…
Hi, all I had ILC back in 2008. Had radical mastectomy on the right breast and prophylactic on the left. Chemo AC→T, radiation and 7 years of Arimidex. 16 years later I am back in the game. Still in discovery phase. Had FDG Pet Scan that shows liver uptake, had endoscopy that shows little spot in the stomach consistent…
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