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Chemo v. Targeted theraphy
Hello, this month I was diagnosed with MBC, pet scan shows bone met on several locations, 1.7 lungs nodule, and met on my chest lymph nodes. I am ER+(98%), PR-, HER2-. Biopsy on my fibula confirmed as cancer. My Onco recommended Abraxane chemo for 3 months and Zometa every month for 5 months. I saw my 2nd opinion doctor,…
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Multiple Organ Mets and on Kisqali/Ribociclib (3+yrs)
I always hear amazing stories from those with dx’d with bone mets de novo on this drug. Curious to hear from those with multiple organ mets or were dx’d secondary who have done well long term on the Kisqali/Ribociclib combo. Where were your mets, and how long have you been on this treatment?
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Triple Negative Stage IV
This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)
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joint replacement while on Ribociclib
I have bone on bone osteoarthritis in my L shoulder which also is the side of my initial breast surgery and radiation in 2018. Currently I am on Ribociclib and Faslodex for recent mets to liver. My ortho is recommending joint replacement. Has anyone had a joint replaced while on these meds? Thanks,
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Progression after ribociclib (csk4/6i) and letrozole
Hi I had her2 neg er+ breast cancer in 2018. In 2022 i had recurrence in my bones (all over with 3 collapsed vertebrae) and liver. I was on ribociclib and letrozole that worked really well, pet was negative and most metastasis disappear. In August I had liver recurrence. Blood test and markers are ok and i feel well so i…
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Feelings and insights about Breast Cancer Awareness Month as people with MBC
October is Breast Cancer Awareness month, which can be an overwhelming time for many women and men affected by breast cancer, especially for those with a metastatic breast cancer diagnosis. We'd really like to have everyone discuss here what you think and feel approaching this month. Thank you ❤️
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This sucks - Osteonecrosis of the jaw
After 10 months of bisphosonates I have been been diagnosed with ONJ. 3 weeks of mega antibiotics, everything else except letrozole stopped until this is resolved. A bottle of liquid morphine to add to my collection. (Resisting because it feels too ‘cancery’, if you get my drift.) And more ‘activity’ detected in my bones…
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In Remembrance of Nicolerod
Sadly, our beautiful nicolerod passed away Friday evening, September 22. She’d asked her friend, member beesy_the_other_one, to let us know. I’m just so sad and heartbroken over the news. 💔
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My oncologist and disability opinion
I was originally diagnosed with 2B (++-) in 01/2014, 8 dose dense chemo, and 45 rads treatments. In 11/2021, I was diagnosed with MBC to pleura. They started my on Faslodex in 11/2021 and added Ibrance 9/2022. I’ve had a treatment failure and now have started Xeloda. The oncologist ran a Guardant 360 and the results…
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How to not be a negative person career-relationship wise?
Hello! Is it possible to resist the urge to punch your boss after he asks "but what about your career aspirations?" when you tell him you are not interested in going up the corporate ladder? Is it possible to dig oneself out of a hole: pushing loved ones away knowing you don't have long to live? Not wanting to meet new…
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tooth extraction
hello warriors. i saw the gallow's humour thread - love, love, love! what a great idea. today's question is: do any of you fine persons in our category have any experience with tooth extraction? i gots a molar that gots to come out, and am researching because at this moment in time, i don't trust my onco. i did a quick…
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osteonecrosis of the jaw
I have just found out that I have osteonecrosis of the jaw due to my Zometa infusions. I am currently taking pain killers, antibiotics and oral rinse. I'm having a hard time finding an oral surgeon who will see me. I'm curious about people's experience with this diagnosis, if treatment has been effective, and what…
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Mammograms and Colonoscopies
I'm only six months in on my stage IV diagnosis but I keep forgetting to ask my doctor about my upcoming 60th birthday and the dreaded colonoscopy. He already told me that I don't need to get mammograms but does that hold true for colonoscopies? (Fingers crossed).
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Seattle -- looking for info./advice re: MBC treatment options/ locations ....
Hi all — my beau and I are likely to be moving to the Seattle area next spring (exact area not decided yet). I am looking for info. / advice regarding where to get MBC treatment and tips re: transportation and other practical advice. I am generally aware of Fred Hutch, but again am looking for practical tips about getting…
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Anxious about mixed scan results
Hi all, ER+ HER2- with mets to lung, liver and bones for 6 years. Been on xeloda for about 4-5 months now and had my first scan, which showed significant improvement in all areas except for two stupid little bone mets. It worked in my lungs, liver, every other bone, aside from these 2 (one spot on hip and one in femur)…
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Bone Pain
I just posted in the wrong group by accident, now I have to explain this all over again, in this group, the right group. My hip/thigh bone and down my leg to my knee is aching. The groin area gets painful and I cannot get up off a chair or go up stairs very well. This started about 2 weeks ago. I just had a Lattimus Dorsal…
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Single or part of a couple? How different is the Stage IV journey?
Pure curiosity. I’m single. It seems as though the majority on here are coupled up but perhaps I’ve misread. Not a pity party, I promise. I just wonder if anyone else is going through this with friends and (adult or younger) children rather than a partner, and how they feel about it?
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And now for something unusual and a bit scary
Other than living with stage IV for 12 years, my bc life is something I keep low key, even on bco. However after 12 years on an AI (I’ve tried them all) the cumulative side effects have worn me down.None of my se’s were truly debilitating and I managed to cope but I have been struggling with chronic low level pain that…
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Transitioning
This is not an easy note to write, and I am very sorry that it may be a difficult one to read. I've come to the realization that I can no longer contend with the effects of metastatic breast cancer combined with multiple GI issues that prevent me from eating and drinking. I am hoping that hospice will help ease my…
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Any information on having stage 4 Breast Cancer with metastatic carcinoma
Hello, First time posting and hoping to find someone like me or some information about Stage 4 with metastatic carcinoma. Originally diagnosed with breast cancer in 2006. Had Mastectomy, chemo, radiation and Tamoxifen for 10 years. This year, 17 years later after a routine mammo, found 2 masses in my other breast. Last…
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Bone Mets/PAIN
I apologize if there's already a thread on this topic, but I'm still having a difficult time navigating this new format. I've tried the search fields, but it's not directing me to a common thread. Anyway, I'm having a BAD pain day. Bone mets basically everywhere in my chest cavity. RIBS especially, sacrum, etc. I'm on…
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In Memorium - sadiesservant
I wanted to let members know that our sweet, kind sadiesservant passed away on June 1, 2023. I only found out a couple days ago and got confirmation on it before I posted (thank you, chicagoan). I do not know any details, other than she’d been having some additional complications since about the beginning of the year.…
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Operation in 4 stages
Hi all. I know that they don’t do surgery at stage 4, but I know cases when surgeons took it and performed the operation. I don't see similar threads on this forum and would like to hear from you.... Have any of you had stage 4 surgeries? Maybe someone knows such cases?
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Newly Diagnosed liver/bones LOOKING FOR LONG TERM SURVIVORS/HOPE!
Hello there, After 10 years of stage 2 breast cancer, 3 months ago I discovered it has returned stage4 to my bones/liver. I thought it was all behind me… I am finding it so hard to cope & terrified of my future, especially being a mother of a young child. I am hormone positive, Her2- I would love to hear from others with…
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Surgery after “horse is out of the barn
This may be addressed somewhere else but I can't find it. Original bc 2013 with lumpectomy in left followed by 30 radiation. 8 years later shocked to learn MBC in liver. Been treated 19 months and lesions have shrunk and now CT shows some increased activity in that breast and I have been referred now to a breast surgeon…
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Cognition issues
Hello First post, from UK. Stage IV with bone mets, diagnosed 2022, after first multifocal diagnosis in 2018, mastectomy and DIEP. Stable so far with abemaciclib, denosumab and letrozole. Just started on Serena6 trial. I've been so impressed by the ballsiness of this forum and the amount of knowledge and critical thinking.…
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Lymphangitic Carcinomatosis - Can anyone relate?
I was just diagnosed on Friday (7/7/23) with suspected lymphangitic spread (lymphangitic carcinomatosis?) to the lungs after being stable with bone only mets for 3.5 years. I'm a little devastated after meeting with my MO. I'm just wondering if there is anyone else out there living with this? At this point I have more…
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How Many Are We?
The purpose of this thread is to count the number of people lurking or posting on this forum and gather some basic info. We are trying to get a sense of who is out there and add everyone to the collective cyber hug that is this MBC forum. This is not a thread for discussions. The only thing you need to put in the body of…
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All About Doxil
As I haven't seen a specific page related to just Doxil treatment, I thought I'd start one because that is likely my next treatment progression and I've seen little discussion of it here. So, who has been on Doxil? What were the SEs? How did it affect you after the treatment, i.e. how long were you not feeling well or…
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Skin mets
Hi all! I posted this on the Her2 thread but haven't got any responses yet, so I'll try it here. I just got diagnosed with skin mets. Woohoo! I'm Finding out its pretty uncommon. Tumor markers a few months ago were fine, as was all other blood work. Talked with MO about getting very close to that 5 year, take a breath,…