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Tamoxifen and breast tenderness
I finished chemo (12 cycles) May 30th. IDC, Mets to liver, ER and HER2 positive. Still on herceptin and perjeta. I’ve been on tamoxifen for 3 weeks and I’ve had breast tenderness since I started. It comes and goes. Anyone else?
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Vegetarian Diet Offers Physical, Mental Benefits for Women With Metastatic Breast Cancer
Vegetarian Diet Offers Physical, Mental Benefits for Women With Metastatic Breast Cancer Jul 24, 2024 If you have metastatic breast cancer, a whole-food, plant-based diet may help you think and feel better. Read more…
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Which Type of Radiation Is Best for Painful Spots of Cancer in Spine?
Which Type of Radiation Is Best for Painful Spots of Cancer in Spine? Jul 11, 2024 Stereotactic body radiation seems best for easing pain caused by spots of metastatic cancer in the spine. Read more…
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Exercise Boosts Sexual Health in Women With Metastatic Breast Cancer
Exercise Boosts Sexual Health in Women With Metastatic Breast Cancer Jul 9, 2024 If you have metastatic disease and want better sex, exercise can help. Read more…
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Enhertu Beats Chemotherapy for HER2-Low and -Ultralow Metastatic Breast Cancer
Enhertu Beats Chemotherapy for HER2-Low and -Ultralow Metastatic Breast Cancer Jun 17, 2024 Enhertu seems better than chemotherapy for metastatic breast cancers with even the lowest detectable levels of HER2. Read more…
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Progression question
I have severe scanxiety right now…had scans yesterday (nuclear bone and CT). Previous insurance wouldn't pay for a PET, but since I have changed insurances recently I am going to pursue that again for the next scan. I'm told by my MO that I will have to have scans every three months. My fear, of course, is that these scans…
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Truqap experience
stage 4 Mets to lung, liver, bones and lymph On the sixth week of truqap, handling it pretty well. Some diarrhea that is unpredictable so I always have Imodium on hand. Sometimes I get nauseous and my taste is off. My concern is for the blood sugar levels. Trying to keep my diet during the four days which is no sugars but…
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Enhertu Beats Chemotherapy for HER2-Low and -Ultralow Metastatic Breast Cancer
Enhertu Beats Chemotherapy for HER2-Low and -Ultralow Metastatic Breast Cancer Jun 17, 2024 Enhertu offers better survival than chemotherapy for pre-treated, metastatic, HER2-low or -ultralow breast cancer. Read more…
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Faslodex
Just wondering if anyone has experienced this. I have been on faslodex (and Ibrance) for 3 and a half years. I am so fortunate that his combo is still working and don't want to change it. I have always had a couple of side effect days after shots but bearable. Though recently my side effects seem worse. Anyone experience…
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Trodelvy Now Approved for Hormone Receptor-Positive MBC
Trodelvy Approved for Metastatic, Hormone Receptor-Positive Breast Cancer Feb 3, 2023 Trodelvy is now approved to treat metastatic, hormone receptor-positive breast cancer, rather than only triple-negative disease. Read more...
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Thread for Stage IV Oligometastatic Folks
Hi, Wanted to start a separate thread for stage 4 oligometastatic folks. I was diagnosed in January and my metastatic disease consists of lymph nodes -axillary, mammary, supraclavicular, and cervical (extending into my neck - that's the one that made me stage 4). After 3 months on Ibrance/Letrozole, many of the lymph nodes…
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Fracture in pelvis
I have Stage IV MBC with bone Mets to my pelvis. I have been suffering with R leg, hip, inner thigh, and abdominal pain for 3 months. Nothing showed on MRI or x-ray in Feb. I had a CT yesterday and it shows a incompletely healed R pubic Fx. I’m waiting for an appt with Ortho. Anyone out there have any advice. Rhonda
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right pubic parasymphyseal fracture
I have Stage IV MBC with bone Mets to my pelvis. I have been suffering with R leg, hip, inner thigh, and abdominal pain for 3 months. Nothing showed on MRI or x-ray in Feb. I had a CT yesterday and it shows a incompletely healed R pubic Fx. I’m waiting for an appt with Ortho. Anyone out there have any advice. Rhonda
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MBC and working
Hello sisters I’m new here and just diagnosed stageIV. Has anyone with this stage and still working?? I am a RN and single mother and I have to take care of my 11 years old daughter😭😭
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Tumor Marker Increases Within Normal Range
Has anyone had experience with tumor markers increasing within the normal range? Since completing chemo/rads/mx after stage IV diagnosis (one unconfirmed met to the sacrum) I had been staying in the 13-14 range on the CA 15-3. I just had it increase to 19.6. I know that's a "normal" range, but it is still concerning to me.…
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And now for something unusual and a bit scary
Other than living with stage IV for 12 years, my bc life is something I keep low key, even on bco. However after 12 years on an AI (I’ve tried them all) the cumulative side effects have worn me down.None of my se’s were truly debilitating and I managed to cope but I have been struggling with chronic low level pain that…
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I’m losing hope….
I just found out what I thought was stage 2/3 idc breast cancer with 1 positive node, has spread to my liver and I am now stage 4 de novo. I am only 39 years old. I have 4 young kids. There’s at least 6 spots in my liver. I haven’t even gotten a chance to start treatment and now I have no chance of fighting this???!?!…
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Big Lump on Butt from Faslodex Shot
Has anyone had a big lump from the shot. It has been several weeks since I have had the shot. There is a big Lump and it looks brusied.
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Verzenio/Letrozole to Xeloda?
Curious whether anyone else has had Xeloda as second line monotherapy after the Verzenio/Letrozole combo? 18 months on that but suddenly many more bone mets/lesions grown bigger so switch has been recommended by onc.
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Given my dx, should I adopt a dog?
Okay, bear with. Last year was the sh*ttiest year of my life, bar none. My DH was dx with prostate cancer (now in active tx), I had my own crappy dx (in active tx), and probably the worst hurt was that we had to say goodbye to our own fur girl, Preshy, who had been in our family for 13 years. She was my soul. Got me…
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Seeking hope/thoughts
Hi all, My mother is now on her third cancer battle. In 1995 she had non Hodgkins lymphoma - she had chemo, radiation and a stem cell transplant In 2018 she was diagnosed with triple negative invasive ductal carcinoma - mastectomy and chemo In November 2023 she began having pain in her sternum. A CT scan & bone scan showed…
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AI or targeted therapy failure?
Hi there, Just wondering how one knows which medication failed if you are taking a targeted therapy and an AI? My sister is on Ibrance and Letrazole and MRI was clear on spine in November and now a 19 mm spot on T2. Her tumour markers have also been slowly rising. Her cancer is lobular, estrogen positive, progesterone…
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Lobular Stage IV Imaging Issues - I Know I’m Not Alone
Hi, everyone. I was thinking about starting a Facebook group for those of us who have so many issues with imaging. I got some feedback from others that they did not want me to start a separate group, so I am starting a group here. Below is my post on Facebook so that you can get a sense of the imaging issues I've had.…
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Tips for fighting the dark clouds
I've started this thread at the urging of fellow Stage IV sisters. I've been fortunate enough to get a lot of really good advice from friends, healers, therapists, etc., on how to fight the dark clouds that come with Stage IV. Not everything will work for everyone and not everything will work all the time. But hopefully…
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Combat dry skin on face
This is not a huge problem, but I thought I’d throw it out to the community. As one of the side effects from the faslodex and/or Kisqali is dry skin, I’m curious to see if anyone has anything that has worked well for them? My face, in particular, is extremely dry and if you look up close (which I hope no one does), it…
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Primary endocrine resistance
hello. I was dx with stage IV de novo in July 2023. ER/PR+, Her2 - small Mets to pelvis Treatment was Letrozole with Ribociclib. First scan after 4 months showed reduction. Second scan 3 months later showed bone mets reduced but small spots on liver. Told I was primary endocrine resistant. Moved on to capacetabine. On…
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Stage IV MBC Fitness
Hello! Welcome! We are done with Stage IV, moving on and planning to staying healthy for a long time. We're Stage V (Which is not dead. We're doing fine, ready to live with this beast.) This is the American Cancer Society/NCI consensus on exercise for cancer patients. * 150 minutes/week moderate-intense aerobic exercise or…
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How often you do PET scan
I am writing this post on behalf my mother, who has breast cancer and is undergoing hormonal treatment. Her doctor performs a PET scan every year. There were nodules on her lung and a lymph node, but with treatment, there has been significant improvement, and the tumor has reduced in size considerably. Today, she had her…
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Ibrance Users greater than 24 months
How many of us have used Ibrance (plus an antiestrogen) greater than 24 months - even those who have moved on to next line of treatment. Apparently, the median PFS on this combo is now 27.6 months. For bone mets only the median PFS at 36.2 months. Data is from the Paloma 2 trial.
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Gemcitabine / Carboplatin
Anyone have any experience or tips on this combo. I’m starting this combo on the 19th Nov since Ibrance/Falsodex and Xeloda failed after 11 months in. Thank you in advance for any tips or suggestions. I got my port placed Wednesday. Thanks so much, Karen