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CMF Question

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  • Dianarose
    Dianarose Member Posts: 1,951
    edited September 2012

    Boy, is this site messed up or what???

  • socallisa
    socallisa Member Posts: 10,184
    edited September 2012

    Yes, it has my picture next to comments made by someone else

  • curveball
    curveball Member Posts: 1,583
    edited September 2012

    I have noticed the same glitch on other threads. Whatever causes it, it seems to go away when you get to the bottom and a new page starts.

  • Dianarose
    Dianarose Member Posts: 1,951
    edited September 2012

    Curveball- where are you at on the chemo rollercoaster? I have 36 days to go. I can't wait to be done. I can't get rid of the sour taste in my mouth. I slept for 11 hours last night and it felt like it wasn't enough.

  • ritajean
    ritajean Member Posts: 4,042
    edited October 2012

    Hi everyone!  I've been away from the boards for a little while here.............just busy, which is good.

    Loki...If your hair is thick, I doubt that anyone will even notice your hair loss.  Mine is pretty thick and only my hairdresser and I knew.  I also colored my hair during chemo and had no problems.  My onc had no problems with it and I had it done.  I didn't attempt it myself. 

    You gals with the high liver enzymes need to listen to SoCal Lisa.  She had experience with this and can give you good advice.  I guess I was lucky because I avoided that issue. 

    I hope everyone had a great day.  It was lovely here in central Illinois.  We spent the afternoon on the golf course!

    Hugs to all of you.

    Rita

  • cabmom
    cabmom Member Posts: 291
    edited October 2012

    Hello to everyone!  I've taken quite a long break from the boards but I ALWAYS keep everyone in my prayers.  Today is my 3 year cancer-free anniversary and I'm so thankful to all the wonderful ladies on this board.  I know that without each of you in my life, this would have a much harder journey.  I was so blessed to have all of you in my life!!  Hope everyone is doing great that's on treatments!!  

    ((HUGS)) 

  • curveball
    curveball Member Posts: 1,583
    edited October 2012

    happy anniversary cabmom! >>>happy dance<<<

  • Dianarose
    Dianarose Member Posts: 1,951
    edited October 2012

    cabmom- YAHOO---- HAPPY DANCE

  • socallisa
    socallisa Member Posts: 10,184
    edited October 2012

    Way to go cabman!

  • mandy1313
    mandy1313 Member Posts: 978
    edited October 2012

    Cabmom:  That is great news.  Happy anniversary and many many many more!!! Hugzz!

  • curveball
    curveball Member Posts: 1,583
    edited October 2012

    I saw my oncologist today and asked about trying a probiotic for the gas I've been getting with chemo. He said the gas is most likely caused by the chemo affecting cells of the intestinal lining (because they are dividing rapidly) but there would be no harm in trying a probiotic, so I got some on the way home and will start taking them tomorrow.

  • lokimax2
    lokimax2 Member Posts: 14
    edited October 2012

    Cabmom--CONGRATS on your anniversary!

    Curveball--i've been taking probiotics while i was on antibiotic and it did nothing for the gas.  i've continued with the probiotics even once done with the antibiotics because i was fighting off a yeast infection, too.  I had some pain when i peed on two occasions but that stopped, so i think it was related to yeast infection and not a UTI.  it didn't burn like a UTI, more of a pain...like passing a small kidney stone or crystals.  Who knows, maybe that was it, as small stone.  I doubled up on my water, too.

    Yesterday, I had normal bowel movement in the morning and by afternoon I had pouring out diarrhea.  It seems to have no pattern at all.  I also noticed that this week i've developed pain in my hip joints and right shoulder.  The right shoulder had surgery last year, so i'm a little worried.  I've read that chemo can cause some arthritis.  so i'm hoping that is all it is.  I have felt realtively good for about 1.5 weeks and now Chemo #2 is quickly approaching Friday.  Based on last time, i'm anticipating that this weekend will be a complete wash....sleeping away the nausea, headache, terrible taste in my mouth and dizziness.  I just hope there are no surprises, but as I read everyone's posts it seems that each infusion can be different.

    Good luck to everyone. 

  • curveball
    curveball Member Posts: 1,583
    edited October 2012

    @lokimax2, I think my onc was also doubtful the probiotic would help. I just want to try it first because I am leery of getting on lots of medications and the possibility of unintended interactions between them. But if the probiotic doesn't work, I might try simethicone, which is what Dr F recommended the first time I asked him about the gas. It is an over-the-counter med so maybe not too scary. Other that that I am doing OK. Next week is the halfway point.

  • ritajean
    ritajean Member Posts: 4,042
    edited October 2012

    YEA cabmom................You've given us the type of news that we need to hear!  Hugs to you!  I hope you celebrated!

  • mandy1313
    mandy1313 Member Posts: 978
    edited October 2012

    During chemo I used a "natural" probiotic and ate a cup of plain yoghurt daily. It seemed to help me with digestion and gas. Others I know have had good experiences with probiotic pills. So curveball, may as well try it and let us know how you find it.

    Have a nice day!

    Mandy

  • curveball
    curveball Member Posts: 1,583
    edited October 2012

    @Mandy1313, I have been taking the probiotic since last week. So far it has not made any noticeable difference to the amount of gas. I don't like yogurt, so I haven't tried it. Maybe it was the yogurt that helped you, more than the probiotic.

  • mandy1313
    mandy1313 Member Posts: 978
    edited October 2012

    Curveball: sorry that you have not had relief.  Maybe try a different probiotic....they are not all the same.  I love yoghurt so it was not a problem for me to eat it.

  • Dianarose
    Dianarose Member Posts: 1,951
    edited October 2012

    Now on a 14 day break from chemo and then 14 days of regimen #6 and then I am done. Cool My bones in my fingers are hurting. Did anyone have this? I wonder how long it will be afterwards that I start to see my hair coming back. I am dam tired of the wig.

    I take a stool softener and it helps to go so it also relieves the dam gas that builds up as well. I would have to be starving to death to eat yogurt.

  • mandy1313
    mandy1313 Member Posts: 978
    edited October 2012

    Dianarose: My shin bones ached alot around the time of my last tx.....I would be awakened during the night with the pains.  I don't remember how my fingers felt.  The good news is that the bone aches went away with time.

    Have a nice day!

  • curveball
    curveball Member Posts: 1,583
    edited October 2012

    @dianarose, you're in the home stretch! What kind of stool softener did you find helped with the gas? 

  • ritajean
    ritajean Member Posts: 4,042
    edited October 2012

    YEA Diana Rose....you are getting there!  It won't be long and you'll be done!  I know how long and frustrating this journey can be, but there is a good life waiting for you after chemo. Hang in there, gal!

    curveball, I used Senokot.  It took care of all my constipation and gas problems.  My chemo nurse recommended it and it worked so I never tried anything else.  I'm sure there are others out there that are equally as good.

    The trees are gorgeous in Illinois now.  I love the Fall, but not what follows!  I dread winter more and more as I get older.  Give me that sunshine and warmth!

    I hope everyone is doing well today.

    Hugs....

  • socallisa
    socallisa Member Posts: 10,184
    edited October 2012

    Rita it was over 90 here today..dry air from the desert. We did use our A/C!

  • ritajean
    ritajean Member Posts: 4,042
    edited October 2012

    Hey Lisa!  Can I come visit?   LOL 

    There hasn't been too much activity on here lately so I'm hoping that means that everybody is doing well with their treatments and just marking them off their calendars with little side effects!

  • Dianarose
    Dianarose Member Posts: 1,951
    edited October 2012

    Went apple picking today with the 5 granddaughters. The 1 and 2 yr old wore me out. There were way to many bees out for me. I am allergic to them. Going to can some more applesauce for the winter.

    I start regimen #6 on Tuesday. I am looking forward to the end on Nov 5th. I am sick of the whole wig thing. I sick of the whole dam BC thing too. Just want to get back to where my life was. Not that I can remember what I was doing before all this. Dam chemo brain.

    Waiting and wondering if we are going to get after shocks from the earth quake we had the other night. I didn't care much for that. We are used to blizzards here, not quakes.

    My daughter and granddaughters will be leaving to go back to NC on Sunday. I wish they could stay forever. I have missed out on so much of the kids. The 10 week old is so precious. The best little baby. I will be sad.

    I hope everyone is doing well. Is anyone else nearing the end of chemo with me?

  • socallisa
    socallisa Member Posts: 10,184
    edited October 2012

    We were in Maine the first couple of weeks in June..one rainy day and some cloudy days but very nice..We were in

    Kennebuck before all the new



    But we drove from San Diego to acadia nat. Park and down the coastal route to NH and back to SoCal.

    We are used to earthquakes.

    Diana the treatments seem to last forever, hugs to you.

  • curveball
    curveball Member Posts: 1,583
    edited October 2012

    I'm just plugging along. Fatigue is increasing but not overwhelming. I changed my chemo appointments from Weds to Tues last month so I could do it all in one trip with going to the support group, which meets in the building next to the infusion center. The first week I did that, I had a horrible headache all day long, felt totally wrecked during the support group meeting, and too wiped out to go to choir practice that night. It didn't help that I was also very disappointed over a house I wanted to buy, but the inspection revealed it needed way more repair work than I could afford. This week, I skipped my regular support group meeting to go to another group for reconstructive surgery--ask your questions and see other women's results. That group meets only once a month in the evening, so I missed choir practice again. I'm scheduled for infusion next Tuesday and the Tuesday after that and will try going to all three things, but if I feel as rotten as I did the first time, I think I'll switch my chemo back to Wednesdays, even though that will mean having to make two trips instead of only one. Infusion, meeting and choir may just be too much for me on one day. Tuesday the 30th I have an appointment with my oncologist and then starts the countdown. I will have ten treatments left after the one that day. I would have to do that eventually anyway, as Christmas & New Years are both on Tuesday.

    I also found out at the reconstruction support group meeting that I don't have to wait until I finish chemo to get myself on the calendar for reconstructive surgery. (yay!) So if my blood count and everything is OK at my next onc appointment, I think I will call the PS's office and see when I can get on the surgery schedule. I also  have an offer on another house, but even if the inspection is OK, I don't know whether to move down there before reconstruction or wait until after. It's a long way from the hospital where they do the surgery, so maybe better to move beforehand, since there are some pretty strict lifting limitations after DIEP. Oh well (as Scarlett said) I'll think about that tomorrow.

  • ritajean
    ritajean Member Posts: 4,042
    edited October 2012

    Dianarose....You are about done!  I know that it seems like a long journey while doing the chemo but you're almost finished now!  Good for you, gal.

    Lisa, I am so glad that you can travel so much.  I enjoy seeing your pictures from your trip and hearing about it.  Dave is not yet retired so we're very limited still.  I look forward to just being able to get in the car and explore new places when he's able.  For now I will be content with our Florida trip in February.  We have rented a place in Florida for the month and I always enjoy a reprieve from Illinois winter weather. 

    Curveball....you will get there, too.  Take one day at a time and just keep surging ahead.  Just listen to your body and do the things you can do.  There will probably be several times when you need to rest instead of going to a meeting or scheduled event.  The good thing about it is that when the chemo is over, you can get back to your life which has been put on "hold."  I really remember this part of it and understand how you're feeling.  I hope your offer on this new house goes through for you.  That would be something exciting to help you get through the rest of this "crap."  Hugs to you!

  • Dianarose
    Dianarose Member Posts: 1,951
    edited October 2012

    http://post.mainelymediallc.com/news/2012-10-19/Letters/Neighbors.html

    I wanted to share a newspaper article I am in.

  • socallisa
    socallisa Member Posts: 10,184
    edited October 2012

    Wow what a wonderful article..kudos to you!

  • mandy1313
    mandy1313 Member Posts: 978
    edited October 2012

    Diana Rose: What a wonderful article! Thank you for sharing it with us. 

    Curveball and Diana Rose: As Ritajean says (and she said this to me too), your chemo will be over and you will feel better. But right now get the rest you need and let your body tell you what to do.  Treat yourself well.

    Hugs to all for a great weekend.

    Mandy