CMF Question
Comments
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Surgery in the morning. TE exchange and out with the ovaries. I will be like the bionic woman pretty soon. After this I am done. My grandmother lived to be 96 without cancer or ever having surgery. I sure as hell didn't get her genes.
Hope everyone is doing well.
Robin3- glad you are finished and kept your hair too.
Cherish- how are you feeling? Remember, this too will pass. I always have to remind myself that nothing last forever and it will pass. Just another hurdle of life.
Talk to you all soon.
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Dianarose, sending you good vibes for your surgery. Let us know how you are doing once you are up and about.
Hugs, Mandy
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Dianarose,
Sending well wishes your way this morning!! As I can recall the Bionic Woman's Jaimie Summers was the coolest!! & she kicked ass!!!! Yes!!!!!!!0 -
All the best Dianarose x
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Good Luck DianaRose
Kick Ass!
Robin3
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Starting tomorrow....Just want to know what to expect....a bit nervous but mostly looking forward to the knowing part. Is it true that whatever reaction you get the first time is pretty much how you will react, that it is not cummulative?
Today my DD (7 years old) said to me, "Mommy even if you go bald it'll be okay."
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Jojo
beautiful words from your dd.
My ds whos 3 said mummy you look like a boy with short hair...lol got to love them for honesty!!
I felt a little nauseas at times with cmf and the only thing i found with it being cumulative was fatigue.
Good luck for tomorrow0 -
Dianarose, hugs~~~ yes, it will all passed! We are just taking a break now cuz we were running too fast! Thx for the asking, I'm doing fine with the 2nd treatment and it seems slowing down on the hair falling too! We all love you and pray for you.
<3<3.....</p>0 -
Jojo
My first week was not the best, i had to learn how to take the meds to control nausea. I had a sancuso patch the day before which i would leave on until saturday. After the first week, it was fine. I would get super tired the two days after each treatment. My hair thinned a little, but no one can really tell. I will take it any day of the week. Honestly, if you have to do chemo, it's doable. No complaints here. Good luck!
Robin3
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Jojo- sorry you have to join but it's nice to have someone else currently doing cmf as I am done with 3 treatments. I found that the first tx was easiest and the second and third were pretty much the same although I felt a bit more se interms of nausea ans fatigue than the first but they were pretty much the same. The day or two after aren't so bad for me- its day 3-4 that I feel achy and fluish and just yucky. The nausea is still the same with all tx and by day 5-6 I'm pretty much ok.
Are you doing every 2 or 3 weeks? I am every 2.
Also it seems for me that days 3/4 I see more hair in the shower but then it stops. Hopefully that will continue to be the same.
I think the hardest part is knowing you have to do it all over again. Next week is my 4 tx and then half way done!
I find the other chemo boards helpful but overwhelming bc people have such different protocols and the se seem much greater.
Good luck and we can get thru it together!
Jsrose0 -
I just finished my 6th treatment!!!
2 more to go!!!! Yay.... I'm getting my happy dance on.
Jojo, for me the first 2 treatments were the worse so far, especially the 2nd one. Once we got my meds together I have been able to deal with it much better. The 2 times I was nauseous and only taken zofran. They added compazine and that was the magic pill. I take them and I might feel a slight background version of nauseousness but it never comes forward. In the beginning it looked as if my hair would all come out because every time I combed it, there was so many strands.. It thinned, but no one notices.. That hair shedding has slowed down, so my hair looks pretty much the same. Good Luck!!!!Ann
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Jojogal123
You have the first treatment over. I think this is a big hurdle as now you know what to expect as far as the procedure itself and you will be more comfortable going back for the next one. I see you are BRCA+ and triple negative so chemotherapy is your chance of nipping this in the bud, since you won't have the option of tamoxifen or AIs. I'm curious whether the doctors suggested only CMF as a therapy.
Good choice to have your treatment on a Thursday so you will have weekend to take it easy. It must be difficult going through this with a seven-year old. Typically I felt OK on day of treatment and following day, then bad the next few days partly as the anti-nausea meds wore off.
I found the SEs cumulative, particularly the tiredness and of course that got worse during and after radiation. But with zero positive nodes not sure radiation will be recommended for you.
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Dianarose: Hope you are doing OK. I didn't know they would do those surgeries (TE and oophorectomy) at the same time. But if they can it sounds like a good idea to just have anesthesia once.
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MaryNY- I am thinking twice now if it was a good idea or not. I am still in a fair amount of pain.The Anesthesiologist was not gentle at all. It feels like she broke my jaw. She also put a tube down into my stomach to deflate it. I have been coughing up blood, not hungry at all, and I have to hold on to my stomach to cough. The cut she made on the left side is black and blue. My ribs hurt where the ps cut to remove the TE's. My back hurts too. Just a hot mess today. I hope it gets better soon. I have an appointment on Monday with the PS. I am hoping to be able to ditch the compression bra. It is so tight. I feel like I am being squeezed. Just need to feel better so I can go back to work. I was hoping to go back tomorrow, but I know that's not going to happen.
Hope things are going well for everyone, Diana
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Dianarose, hope you soon feel better. For me surgery always has unexpected difficulties but usually in a day or two, I feel alot better. I hope you also will soon feel better. Hugs.
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Dianarose, so glad to hear from you! N knowing you are doing ok! God bless you
Hope you can get more rest before to work or anything. Since it got all fixed,we need to love ourselves and take very good care of ourselves from now on! Hugs!,0 -
Well, got the path report from the ovaries yesterday. Wasn't prepared when the doc said there was lobular in one of them. Bastards, get the hell out of my body!!! Puts me at stage IV now. Have cried since yesterday. I am so bummed out.
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So sorry to hear about your path report Dianarose.
I am lost for words but know you sound like a strong woman and will put on those girly pants to get that bitch in there!
Sending big cyber (((hugs))) xxx0 -
Dianarose: was sorry to hear about your pathology report. One of the gals on my 2008 chemo thread had something similar--was treated at Sloane Kettering in NYC--and is doing ok for a couple of years already. You've got us behind you as you fight it! Take care. Hugs. Mandy
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Awww Dianarose we are here for you ((hugs))
Robin
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Dianarose ,
If/when I am in your situation I expect to grieve (rage, sorrow)and more!
When you get news like this it is so good to be I even more active in getting support here and elsewhere. Iam tnbc and my docs have given me a one in five chance of mets within the next three years.
I am so sorry you are facing this now!!! You are in my thoughts and prayers.
Hugs,
Peggy0 -
DianaRose,
So sorry to hear this news. Time to put on our capes and become Superwomen... Fight time ladies!!!!
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How is everyone doing???
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MO made the idiot pathologist do the fish test for the HEr2 and it was negative not positive as he had put on the report. He never did the fish test so how the hell did he come up with positive to begin with. My ovaries and fallopian tubes were sent to a lab in Boston. We are not trusting this guy. I was doing a lot of crying when I first found out, but this is going to sound weird, but it is a relief to not always be waiting for that other shoe to drop. It has dropped and now I have to deal with what I have. I always knew that I was going to be stage IV at some point, I just didn't think so soon after chemo and rads. F'n bc doesn't let up and let us have a break.
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Dear Dianarose , saw your post couple of days ago, it got me heartbreaking ! I know n i can feel your frustration and hopeless. I have been thinking about you but don't know how to express how I feel for you.... Yes, we have to deal with what we have to do! I'll pray for you and Fight on ! BIG Hugssssssss.....
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Today is my 3 rd chemo, for some reasons, I feel so tired... It might be on my period but felt so fatigue since last night. Slighty headache but I can take it. Saw a lady at infusion center said that today is her last treatment. It took almost an year to complete the cycle cuz there are couples of times thr blood tests are not qualified. Feels great for her to finish this stage. It's always nice to talk to the people!
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Dianarose:
Not to make excuses for the pathologist, but maybe the lab did the IHC test. I would still want it checked with the FISH test though as Herceptin should only be given to someone likely to benefit from it. Also both tests can give false positives, as well as false negatives.
I think you are living through what we all have as one of our worst nightmares. Sometimes I wonder if I did enough chemotherapy -- my initial plan was for six to eight treatments of AC, but I wimped out as I wasn't tolerating it well so only did four treatments of AC followed by four of CMF. And yes, the side effects were bad but maybe I should have pushed through.
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OMG!!!! 1 more to go. This is like a marathon and finally seeing this finishline!! Tired as hell. My 7th treatment was blah. I was sick & couldn't finish work on Thursday. Fri was better & yesterday I went to my son's football camp at CCSU campus. Why??!! We walked all over the place... uurrgghh!!I'm laid up in bed exhausted today
But yesterday was great the school really wants my son there, and I just keep thinking 1 more treatment. This has been a long ride starting on Valentine Day. Some love affair. Lol0 -
Excellent news about your last treatment coming up. time flies when you're having fun......!!! Lol, some 'love affair' hey !
Sounds like you had an eventful camp with your son. Good times ahead
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Softness: Congrats on your son's football camp getting the school interested in him. That is great news. And great that you have 7 out of 8 down. I also got more tired as my tx went on -- after tx 8 I was pretty tired and had to begin back slowly. But within a month I was raring to go and walking miles every day.
Hugs to all.
Mandy
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