CMF Question
Comments
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Thanks, Mandy. Just had #4, so maybe this will be the worst of it. Thanks so much for your sweet words of encouragement.
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Mandy is right! Hang in there, Sue. I think that most of us were scared by the thinning hair but you'll be OK. Like Mandy said, treat it kindly and you'll get through this. You only have a few more to go!
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Sue - don't panic! What you are experiencing sounds completely normal. I lost massive amounts of hair, but no one else said they even noticed. Treat your hair nicely. Use Nioxin and be gentle. It will all work out! Mandy
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meeting new MO thus Wednesday and round 4 on Friday. Really hoping I like new doc. Played tennis twice this weekend but needed big nap afterwards. Feeling positive and glad I'm almost 1/2 way done. Just booked mini vacation for end of august. NH lake cottage with comfy screenporch. Gotta have something to look forward to!
My hair has thinned a little and feels quite soft also. Praying it doesn't get worse.
Be we'll everyone!
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Amy good luck with your new MO and with round 4 on Friday!
Good for you - playing tennis not once, but twice! Who cares if you needed or wanted a nap?
Vacations are always nice to look forward to. I hope you will have fun planning and then going on your trip.
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Amy, good luck with the new onc. Let us know what you think.
Hugx
Mandy1313
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met with new mo. Much better. .chemo 4 will b on friday. I got new prescriptions for reflux and stomach issues, not just a suggestion to go to ER.
Just went for massage. What a nice treat.
Feeling better overall
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Hi Amy!
Your new onc sounds good to me. You are in the home stretch!!!
Hugzzz.
Mandy1313
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Sorry if I asked this before, but did my fellow CMF'ers gain or lose weight on CMF? I hear so many folks on AC and TC gain weight, probably due to the steroids. But I've actually lost weight while on CMF, probably due to my healthier diet and more moving around. I wonder what is normal for this regime.
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Sue - unfortunately, I gained weight but am slowly losing it. I continued to eat healthy when I was hungry while on CMF but still gained weight. My MO thinks it was my reaction to all of the steroids for 6 months.
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Mandy - you had steroids with your CMF treatments? I'm not getting steroids. That may be the difference.
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Yes - I had intravenous steroids before and after the chemo infusions.
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I.get steroids before my chemo, too. Makes for a lousy night of restless or no sleep and high blood sugar for a day or two.
Had #5 of 6 yesterday. My whites were at their lowest so it was a question of whether the doctor would agree and he did. Had to have a couple of shots of Neupogen and was warned not to have any raw food for 72 hours. The nurse didn't warn me of other stuff but maybe that's because I've done this once before and I know what to avoid.
Hope everyone is handling chemo well. I swear it's just time-released pellets the put in my veins because my side effects come and go the whole 21 days before the next chemo!!!
Oh, and I lost FOUR lbs between yesterday and today! Must have been all those bathroom trips last night!
Laura
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Funny how different Drs. use such different protocols for the same regimen. Laura, just one more to go. I'm one behind, and rooting for you.
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had round 4 yesterday. Get steroids with chemo each time. Just waiting for side effects to hit, probably tonight and tomorrow. Peed every hour last night. Feeling tired but glad I'm half way done. Here's to a day of heavy drinking, water, of course. Lol!
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Awesome, Amy! Interesting your SEs don't hit til almost day 3. Lately, mine have set in almost immediately, and most significantly on day 2. Oh well, different in every body....
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Sue- Im on CMF too...some hairs has fallen out from my head...but not a lot...(mostly when I wash it)...Im sorry hon...it does suck...I hate it too...but most my doctors say on CMF we wont lose it all..it just thins out...
Vanmama- I too am going thru horrible fatigue....and I have a 2 year old to watch most the week ( he goes to day care 2 days a week)...it sucks....the house is a mess...I have no family here in town to help. Im gearing up for chemo #3. But thank God..I only have 4 more zaps to go!
The major sucky thing Im up against is all my time on the books at work has been used up so my disability has been cut in half..it is going to be hard to pay bills...crap! I have some money in savings...but I didn't expect this..for some reason I thought with such a serious medical condition, I'd get a full paycheck...was I wrong...
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Oh....regarding the steroids..I had one too my first chemo...but...it through me into a panic attack as I was getting the drip and then went home all wired up and manicky-like...and couldn't sleep the whole night (maybe one hour)...so they stopped the steroid for the future chemos...thank God...it also ( I think) gave me weird over breathing for like 4 hours...I was breathing real heavy...
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no steroids for me..
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Hey, guys, I think my hair has stopped falling out. AND, my hair dresser said she sees all kinds of new hair growth in the temple area where I seem to have lost it. Woo hoo!
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My chemo 5/6 was last Thursday afternoon. I pretty much didn't sleep at all between the steroids and the bathroom trips, the SE's started in on Day 2. That's the earliest since this all started. They have just cycled around--bathroom issues, really really sore tongue, sore throat, more bathroom issues, nausea, and now I'm wondering if I have a cold or something...my throat is hurting bad enough to not want to swallow, my ears hurt, headache, a loose cough, AND my voice comes and goes. I don't have a temp. I just went back to work today but only stayed 1/2 day. I didn't call the cancer center since I have an appointment with my MO tomorrow.
My hair still seems to be thinning on the sides but it's not noticeable to most people. I cut my hair short so it just looks like a different hairstyle.
One more to go! 10/17 was the day I was given my official diagnosis, so I am hoping that by that date this year, things will be on the upswing...
Laura
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Glad to see you all fightin the fight!!! Will lift up all of you, for your special circumstances.
I was told average weight gain wass 15, and that is exactly how much I gained. I stopped chemo April 1 and have lost it. I know others that gained that also lost it
Keep the faith, and congratulate yourself
Mircann: don't worry about a dirty house: you have so much on your plate. Friends around to help?
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Vanmama, Mircann ad everyone else actively going through treatment - you got this! Just focus on you and getting through treatment. Don't worry about the weight gain, the dirty house, or whatever else. You can lose the weight. Your house will get cleaned. Your family and friends want you...so do what you have to do to keep you around!
My cancerversary was this past weekend, 7/11/2015. It wasn't a day that I celebrated, but I date that I remembered. It was the date one year ago that I was diagnosed with this horrible disease, but I had to be thankful because I am here and done with active treatment except daily medication.
Remember that we are all here for each other! I lift you wonderful ladies up in prayer!
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let's all gang in there. Everything about this just really sucks, but hopefully over soon. Feeling quite fatigued and lost so much hair this morning. Trying not to dwell on it. Only washing every 2 to 3 days and minimal styling or brushing. Finally getting appt with genetics counselor for brca tests. Praying its negative. Took 3 months to schedule appt with sloan. Crazy system!
Last night my husband handed me to exercise bands and suggested I start using them. That my arms looked flabby. I told him, yeah, maybe next week. Honestly! 1 minute he praises me for handling all so well, then tells me I look fat! I could have punched him! Instead, I fell asleep!
Be we'll ladies, and virtual hugs all around
Amy
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Amy, someone commented that they lost the most hair after treatment 4. I found that to be true as well, but now 2 weeks post #4 the hair loss seems to have subsided. So hang in there and rest through the dreadful fatigue.
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You gals are all handling the chemo very well! Some will gain weight...some will lose. Some will have side ffects on the second day while others will have them on the 4th day and some are lucky to have no side effects. It is indeed a journey and you are marking those treatments right off your calendars. Hugs to all of you who are in the process of kiicking this stuff!
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Hey Ritajean, I see you're ER- but PR+. Are you an HT?
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hey everyone. 14 years ago I finished my 6 months of CMF. Sending hugs to all. .💕
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Thanks and CONGRATS
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Congratulations, Lisa! What wonderful news to celebrate!
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