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CMF Question

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Comments

  • ritajean
    ritajean Member Posts: 4,042
    edited May 2015

    Sue...you may not even need the shots. It all depends on what your counts show. If they get low, they will probably give you the shot. Some get by without ever having to have them at all!

  • vanmama
    vanmama Member Posts: 74
    edited May 2015

    I've had some pain but it's been totally manageable.

    So late this afternoon, I decided I had enough energy, so we hit the carpet store, Lowes, and Menards with a stop at Monical's for pizza. I'm completely worn out!

    We are moving to a house in the country near the small town we live in and it needs so much updating. We've had to hire so much done because breast cancer and farming got in the way! Got a little burst of energy and got a few things knocked of for the endless lists...

    Sure hope I sleep tonight because I'm not sure I did much more than catnap last night.

    Laura

  • mandy1313
    mandy1313 Member Posts: 978
    edited May 2015

    Amy: I had terrible heartburn from chemo. My doctor prescribed a long acting version of Pepcid AC (famatidine). It helped quite a bit.

    Sue: I never needed either neupogan or neulasta so maybe you will be lucky and won't need them either.

    All the best to everyone.

    Hugs

    Mandy1313

  • SueH58
    SueH58 Member Posts: 106
    edited May 2015

    Mandy, do you remember if your WBC count hovered in the 4-5 range?

  • Tobycc
    Tobycc Member Posts: 578
    edited May 2015

    Mine did: and went into 3's

  • socallisa
    socallisa Member Posts: 10,184
    edited June 2015

    My onc used ANC, Absolute Neutrophil Count

  • mandy1313
    mandy1313 Member Posts: 978
    edited June 2015

    My onc never told me--and for some reason I never asked (I asked about everything else). I am a vegetarian and I remember she was surprised that I did so well....

  • ml143333
    ml143333 Member Posts: 190
    edited June 2015

    My WBCs were always low, but my MO went by ANCs as well.  There were two times that chemo had to be deferred for a week so my counts to increase.

  • mandy1313
    mandy1313 Member Posts: 978
    edited June 2015

    Leavng for a month's vacation in Asia. So I don't expect to be on the internet much. For all of you gals in treatment, I hpe you do well and look forward to hearing you say, "I'm done with chemo."

    And for everyone, enjoy the month of June!

    Hugs

    Mandy1313

  • vanmama
    vanmama Member Posts: 74
    edited June 2015


    My ANC was pretty low. I think it's the number they were using to decide if I got chemo or not...

    Laura

  • SueH58
    SueH58 Member Posts: 106
    edited June 2015

    Did anyone notice any swelling in the feet during CMF treatments? Trying on dress shoes for my daughter's wedding (as opposed to my usual sloppy old clogs) and my feet feel swollen. Maybe it's my imagination?

  • AussieSheila
    AussieSheila Member Posts: 439
    edited June 2015

    Sue, I had my last infusion two weeks ago and last week had feet that looked like I had on a pair of Miss Piggy slippers if you know what I mean. I couldn't even wear my heel-less crocs for days and the tops of my feet had indentations and felt bruised when I got home from the Drs office to see if I was in major trouble. I was carrying about 6 extra lbs of water so I will watch that particular s.e. the next time before trying to squash my feet into shoes again.

    Finally they went down after I spent a lot of time on the John emptying my bladder. This week, I have swollen legs but my feet are quite normal tho' they feel a bit 'tight' and stiff on top and around the ankles. I am having a hip replacement next week and I don't want to have to spend my days with my feet in the air not able to walk again afterwards when I start the CMF a month later.

    Apparently this s.e. is normal for some of us.

    Sheila.

  • ml143333
    ml143333 Member Posts: 190
    edited June 2015

    Sue-when I was having infusions, my MO always asked me about swelling in the legs and feet. I never really had any so I didn't ask why. Maybe you should give your MO a call?

  • SueH58
    SueH58 Member Posts: 106
    edited June 2015

    Sheila, thanks for the info. What a drag to need a hip replacement at this point in time. I had one a year ago and what a blessing. Was bopping around immediately. I'm curious as to what your WBC count is--good enough to not have to worry about surgery-related infection?

    Did you say you were done with CMF or needed to resume after surgery? Be sure you have a raised toilet seat, especially if you'll still be drinking liters of water!

  • AussieSheila
    AussieSheila Member Posts: 439
    edited June 2015

    Sue, I'm not sure what my WBC count is but am going for a blood test at the hospital the day before the hip replacement. As with my right hip replacement in February, the oncs and the ortho Dr have allowed a month each side of the surgery for my body to get over the chemo so that I heal normally. It seems that chemo lowers the immunity and wound healing can take longer than normal. It doesn't help that my daughter is now in hospital after having two mini stroke events on Thursday and yesterday...I could live without the worry, believe me.

    Sheila.

  • SueH58
    SueH58 Member Posts: 106
    edited June 2015

    Hi Laura. How did you last treatment go. I think you're a week ahead of me---I had my 3rd yesterday. So far so good.

  • vanmama
    vanmama Member Posts: 74
    edited June 2015

    My 3rd treatment went ok except that my whites and neutrophils were low. I had a couple of Neupogen shots but here I am a week later and still feel tired.

    I just have no energy, and the other side effects come and go. All in all, I'm still doing very well.

    Laura

  • ritajean
    ritajean Member Posts: 4,042
    edited June 2015

    Oh Sheila, I am so sorry to hear about your daughter. I hope that she gets along O.K. You sure don't need that extra stress right now! Hang in there and just go one day at a time.

    Sue...so glad to hear that your last treatment went well. That's what we like to hear!!!!

    Laura....Unfortunately, fatigue comes with the program. Overall, it sounds like you are doing pretty well. Hang in there! The chemo just wipes out our immune systems and we are left with nothing to fight all the bacteria and viruses that surround us....as well as the fatigue caused by the low counts.

    I have to see my onc on Tuesday for the usual "check-in" and I always get nervous. I went into the cancer center last week for the blood work and all the results will be back on Tuesday. Wish me luck. I am a worrier.....always have been and see no chance of changing at this stage in my life although I do try!

    It's a nice day today so I'm headed out to work in the yard, trimming and attacking a few flower beds.

    Hugs to all of you!

  • SueH58
    SueH58 Member Posts: 106
    edited June 2015

    Rita, I'm confident you'll get an A on your exam. Please keep us posted.

    Sue

  • ml143333
    ml143333 Member Posts: 190
    edited June 2015

    Rita - wishing you well!

  • socallisa
    socallisa Member Posts: 10,184
    edited June 2015

    Hey, Rita, let us know what is up.I can't get a mammo because of my broken arm. They can't get a clear shot because I can't lift it up...

  • ritajean
    ritajean Member Posts: 4,042
    edited June 2015

    Got a good report today! Now I can take a deep breath and move on with my life for another 6 months until I do this agan. I still don't think I will ever shake this nervousess that I face when these appointments roll around. If any of you have a solution for that....let me know! :-)

  • ml143333
    ml143333 Member Posts: 190
    edited June 2015

    Great news!!!!!

  • suladog
    suladog Member Posts: 837
    edited June 2015

    congrats Rita!!

  • socallisa
    socallisa Member Posts: 10,184
    edited June 2015

    Good to hear Rita. I don't think we ever get over the apprehension.

  • amyfsw
    amyfsw Member Posts: 51
    edited June 2015

    such good news rita. I'm sure the anxiety is bad, but totally normal. Lots of deep breathing.

    Amy

  • amyfsw
    amyfsw Member Posts: 51
    edited June 2015

    round 3 tomorrow. Such fun. Looking forward to lousy weekend. Drinking water like crazy.

    Amy

  • vanmama
    vanmama Member Posts: 74
    edited June 2015

    Round 4 for me tomorrow! I'm really interested in seeing my labs to compare to round 3...very low last time so there was a question if I would be able to do it. MO agreed to it bit I got a couple of Neupron shots, and haven't had it checked since.

    I am getting frustrated because my SE's just keep on cycling around. Today my tongue is burning again...aargh! Tomorrow we start all over

  • ml143333
    ml143333 Member Posts: 190
    edited June 2015

    Amy and Vanmama - good luck today!  I hope that this round will go well...just remember...every infusion you get is one closer to being done!

  • SueH58
    SueH58 Member Posts: 106
    edited June 2015

    I have everything counted out -- 2 weeks before round 4, then only 1 more before my final, celebratory treatment. Makes it seem like less than 3 more.

    Ladies--found a fun new drink. It's called bai'5 bubbles. A sparkling, antioxidant infusion. The blood orange is really good. It is has antioxidant value of a cup of green tea. That 12 ounces went down fast! :-)