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CMF Question

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  • b445
    b445 Member Posts: 980
    edited December 2007

    the Gamma Knife Rads will be done tomorrow.

    Thanks for all your Prayers

    Hugs & Prayers

  • ritajean
    ritajean Member Posts: 4,042
    edited December 2007

    Cheryl,

    I am SO glad that they will be able to do the gamma knife rads.  I will be sitting right there beside you in spirit, holding your hand.  You will be in my prayers.  We've prayed for a miracle....and maybe this is it!

    Thanks so much for letting us know.  Hugs and good vibes to you, dear friend.

    Rita

  • Harley44
    Harley44 Member Posts: 2,126
    edited December 2007

    Cheryl,

    Oh, that is good!  I'll be praying for you!! 

    I have been reading all the posts, and I just want you to know that I will be there in spirit, also, along with Rita, holding your hand...

    God Bless,

    Harley

  • ritajean
    ritajean Member Posts: 4,042
    edited December 2007

    Harley...we're quite the dreamers, aren't we?  Perhaps that's part of what keeps us going!  LOL

    I hope we hear some news from CY's family tonight.  I will steal over to the Circle site and see if they post there.

    Hope you're having a good day............and all of you other CMF ladies, too.

    Rita

  • Harley44
    Harley44 Member Posts: 2,126
    edited December 2007

    Rita,


    Yes, I suppose that you are right.  But, if it keeps us going, it can't be all bad!

    I know I felt better when I had my mast., because I had another website group of women who were pulling for me (I hadn't found bc.org yet!), and they were all holding hands and saying prayers, and I think that is why I got through it without much trouble.

    I will also try to pop in at the Circle to see if there is an update.

    Hugs

    Harley

  • candie1971
    candie1971 Member Posts: 2,467
    edited December 2007

    Hi,girls,

    Well, the colonosocpy and endoscopy weren't bad cause I was asleep--lol.

    They found 3 polyps in my colon...so they got rid of those.

    Found 1 polyp on my esophagus (don't like that one) and I have a hiatle hernia. I knew it had to be something cause I have been having burning and pain in that area along with acid reflux. The Dr sent those out to be tested, tho he said they are not cancerous. But I won't feel better til I get the results on Dec 18. I sure hope they don't find any cancer. He will tell me what we will do about the hernia at that time too.

    Yes, what a difference a year makes. Last year this time I was still doing chemo. I actually had my last treatment on Dec.19. I didn't bake either so I am so looking forward to it this year. I had a quiet Christmas at home with my daughters and some close friends. My parents,sisters and their families decided to go to my sister's. I was hurt that they didn't come by me but oh well. My mom thought my dd's should have went to my sis's to be with the family...I said..."what am I,chopped liver". Well, this year we are going to my sis's cause that's what my parents want. They want all the grandchildren to be there. My heart won't be in it but I willdo it cause they are 79 and 84 and they will be happy we are altogether.

    My dad still doesn't realize that I went thru chemo...he is a sweetheart and I wouldn't want to upset him.

    Well, going to the circle to see if there is any word from Cy.

    Have a good nite...love you all.

    Hugs and prayers,

    Candie

  • 3ofus
    3ofus Member Posts: 201
    edited December 2007

    Yes, we are all holding your hand in prayer, CY.  Hope everything went well and you are having a good rest!  (((more hugs)))

    Candie, you feel asleep?  Well I won't be so afraid whenever I have to do that procedure Wink Good that the dr. didn't think the polyps look like cancer!  That is very promising! Saying a prayer that you get good news soon. Hernia, not so nice--sorry.  I guess this is life after bc, lots of tests and worry!  That "one day at a time" philosophy means more and more.  Hang in there Smile

    Boy family can really cause us heart ache!  I know, I have a lot of family heart ache too Frownand it really was amplified during bc treatments and also during Christmas.  Some turn their back on us when we really need them; I just decided to concentrate on those who love and support me, and not let those who are not supportive and loving to take anymore of my time, heart or energy away from living today happily. I guess something I am learning from having bc.  It has been a painful lesson, but a good one. Don't forget to protect "your heart" candie!  Blessings!

    ((hugs))) to everyone here.  Got to go, we are having a Christmas dinner party here at our home tonight. 

    Ginny

  • ritajean
    ritajean Member Posts: 4,042
    edited December 2007

    Hi everyone!

    Ginny...hope your dinner party goes well.  I'm doing the New Year's Eve party this year at my house for our golfing group.  It feels good to be back in action.

    Candie...Christmas always seems to bring out the best in families, doesn't it?  I, too, discovered the family members who preferred to ignore me during the treatments.  Funny, though...most of them are drifting back now that things are looking better.

    Well, gals, my yearly mammos came back O.K.  The lumpectomy breast did show a suspicious area around the scarline but they are still saying that it's just radiation damage.  To be sure, I have to go back for another mammo in 6 months for comparision.   Then Thursday I see the friendly onc for the blood work.  Hopefully everything will come out O.K. and we can proceed with Christmas this year.

    Candie...sending prayers that your results will be B-9! 

    Cheryl...still thinking of you!  Rest and regain your strength!  The holidays are near and you want to be back in shape to enjoy them!!!

    Well, I'm back to finishing my Christmas cards!

    Take care ladies.

    Rita

  • Galigirl31
    Galigirl31 Member Posts: 103
    edited December 2007

    Hi All Laughing,

    Rita, I am quite sure that what they are seeing is just scar tissue.

     I still have my damn drains in.  It has been a week and a half and they are still not ready to come out.  I am hoping for Monday.

    They are now saying that I should probably have a hysterectomy.  I will see that surgeon on the 28th.  We'll see. If I do it it would probably be in March.  Hey, why not?  A fifth surgery sounds like a great idea.

    Happy Holidays!!!! Enjoy the warmth of those around you that deserve to be in your presence.

    -Melanie

  • Harley44
    Harley44 Member Posts: 2,126
    edited December 2007

    Melanie,

    I am so sorry that you may need a hyst. ---  YET ANOTHER SURGERY!!   GRRR.....   BC SUCKS!!

    I hope those drains come out SOON! 

    Rita,


    I am SURE that what they see is just scar tissue....echoing Melanie's thoughts exactly!

    Wishing us all a very Happy and HEALTHY new year!

    Hugs

    Harley

  • ritajean
    ritajean Member Posts: 4,042
    edited December 2007

    Oh Melanie...you poor girl.  I can't believe you don't have those darn drains out yet!  YUCK!   I'm glad you don't have to meet with the surgeon until after Christmas.  You need to just enjoy the holiday and then consider that next surgery.  Wow!  What a year you have had!

    Harley....How are those cookies coming along?  LOL

    Candie...Any results yet??

    Cy...hope you're still holding your own.  You are a pure inspiration. 

    Hang in there, gal.  The tables are turned and it looks like things are going more your way!  YEAH!

    Catch you all later.......

    Rita

  • RaeMN
    RaeMN Member Posts: 36
    edited December 2007

    Wow, I am so glad I finally found out how to get here again.  I thought this site was completely gone.

    Now I am trying to get caught up on everybody.  It was 2 years for me, I can't believe it!!!!!!!!!

    I am wishing everyone HAPPY HOLIDAYS.........

    We have made it this far.

    Rae

    DX. 10/06, ILC, 1.5 CM, Stage 1, grade 1, 0 nodes.

  • ritajean
    ritajean Member Posts: 4,042
    edited December 2007

    Rae, 

    Welcome back!  Wow!  I love to hear from gals who have survived after CMF......It was just one year from diagnosis for me last month and I'm still a relatively new survivor.  Have you had any problems after your treatment?   Did you do rads along with the CMF?

    So glad you found this thread again!

    Rita

  • RaeMN
    RaeMN Member Posts: 36
    edited December 2007

    Was hard to find....doesn't seem like the beginning of this thread was when I was just starting treatment. 

    Yes, I had 6 doses of CMF, followed by rads.  Actually, rads was almost as bad for me as chemo as my skin opened up so rads for me was a really long drawn out affair.  Then, followed up with Tamoxifen for 5 months....couldn't stand it.  As chemo threw me into instant menopause, my oncologist started me on Aromison in June.  No side effects except for a little hair thinning. 

    Everyone hang in there.

    Rae

  • ritajean
    ritajean Member Posts: 4,042
    edited December 2007

    Rae...sounds like we had the same regiment.  I started on Arimidex right after rads and had a little trouble at first with insomnia but am doing pretty well otherwise.  Glad the Aromison is working for you now.  I think we're lucky to have something we can take to try to keep the beast away!

    Come back and post often.

    Rita

  • b445
    b445 Member Posts: 980
    edited December 2007

    Popping in to say thank you for all your support and prayers. With family in town I propably won't be on as much.

    I thinking of you all and wishing you the best the Holidays can bring. Smile and think of the children they are the true insperations for us all.

    Hugs & Prayers

  • socallisa
    socallisa Member Posts: 10,184
    edited December 2007

    CY..good to hear from you..it is good your family is there

    Lots of Hugs and S. Calif. sun...

    SoCal 

  • SCMartin
    SCMartin Member Posts: 112
    edited December 2007

    Hello CMF friends, It has been so long since I have posted but I follow this thread and keep up with all of you. So many of us will have a much different Christmas this year than last year. I can't believe I have been on Arimidex a year now and finished radiation a year ago. Cy, my prayers are with you as you continue this fight. I wish you all a Merry Christmas and I will post more and I  am happy to read about how well you are all doing. Lots of love, Susan

  • ritajean
    ritajean Member Posts: 4,042
    edited December 2007

    Susan!  So good to hear from you!  I had wondered about where you disappeared!  Wow!  You're about a year ahead of me if you've been on Arimidex for a year now.  I've been on it almost 4 months.  I finished all treatments, etc. in August.  You are so right.....this Christmas will be quite different from last year....AND AREN'T WE GLAD!!!!  Please reappear more often.  We have missed you!

    CY...stop in when you can.  I am so glad that your family is there and it sounds like this last "bout" hasn't kept you down.  You are indeed our inspiration.  I hope you and your family have a wonderful holiday season and sincerely hope that 2008 will be lots kinder to all of us!  Keep that smile on your face, hon!

    Melanie...hope those drains are out and you're feeling perkier!  They are a big PAIN! 

    Harley...hope you got your shopping done since I wimped out on you.  As for the cookies, I took the easy way out and bought a bunch of homemade ones at the cookie walk at the church. 

    Today is Bunco day so I'm off to roll the dice!

    Hope everyone is doing well!

    Rita

  • Harley44
    Harley44 Member Posts: 2,126
    edited December 2007

    Rita,

    Well...  I see you took the easy way out and bought some cookies!  I may have to do the same thing, since I am ALMOST finished my Christmas cards... finally!!  It takes me so long, I think, because this year was such a rough year, and I like to write a personal message in each card... it can take a very long time!

    Good Luck with the bunco!!

    Hugs

    Harley

  • ritajean
    ritajean Member Posts: 4,042
    edited December 2007

    Harley,  I sent a Christmas card to anyone who sent cards, brought food, took me to treatments, etc. this past year and put a personal note in each one.  It took forever, but I'm so glad I did it.  It just seemed like the perfect time to express my gratitude and to thank them.

    We are leaving tomorrow afternoon for Tennessee to take presents down to my Dad who lives on the Tennessee/Alabama border.  It looks like another snow storm is moving in so I hope we get out of Illinois before it reaches us.

    I'm a little less anxious now after my yearly visit to the oncologist today.  He said everything looks pretty good.  Our cancer center does not do the tumor markers so I won't know for sure about them for 5 days but he seemed very positive so I'm not going to worry too much about them this weekend.

    I'll be back next week!  Everyone enjoy the weekend and your pre-Christmas activities.

    Hope you're doing well Melanie!  Hi to all of you!

    Rita

  • Harley44
    Harley44 Member Posts: 2,126
    edited December 2007

    Rita,


    I think that is a wonderful way to send thank you notes to all who helped me through treatment this past year, in the Christmas card.  But, some other people, who live far away, and we always exchange Christmas cards, are also on the list...  on those, I just wrote:

    We hope this card finds you well.  This has been a rough year for us, but we think of you often, and would like to keep in touch. 

    My neighbor told me about this line, and I have used it alot, it saves me alot of time. 

    I'm glad that your check up went well.  BTW, do we count from our dx, or from our surgery, when we say we are cancer free for 1 year??  Just wondering.  I can't wait until I can also say that I went for my yearly check up...  my last onc visit, the nurse told me that they won't need to see me for THREE MONTHS!!  YIPPEE!!

    HUGS
    Harley 

  • ritajean
    ritajean Member Posts: 4,042
    edited December 2007

    Funny you should ask that questions, Harley.  I asked my onc what date was actually considered the anniversary of a year out of cancer and he said it goes from the date of diagnosis, which actully put my first year on November 21st. 

    I'm going to borrow you line for the Christmas cards.  That's excellent!

    We're off to Tennessee.  Talk to you early next week when I get back.  Everyone have a great weekend.

    Rita

  • Harley44
    Harley44 Member Posts: 2,126
    edited December 2007

    Rita,

    Hope you have a great weekend in Tennessee! 

    Happy Friday, everyone!!  Have a great weekend!

    Harley

  • 3ofus
    3ofus Member Posts: 201
    edited December 2007

    Just a quick "hello" to everyone.  We are having quite the snow storm.  It looks so beautiful and I'm sure we will have a white Christmas finally this year! 

    Hope everyone is doing well.

    Rita, if the anniversary is from diagnosis (mine was Sept.25, 2006) that would make me 1year and almost 3 months!  Looking forward to saying 4 years, God willing.

    Everyone ready for Christmas...?

  • DianeB
    DianeB Member Posts: 22
    edited December 2007

    CMF 5fu was recommended to me too.  Did anyone do cytoxan orally and the mf portion IV? My treatment would be once a week for 6 months.

  • socallisa
    socallisa Member Posts: 10,184
    edited December 2007

    I did that chemo DianeB..

    I had it over six years ago...

    I had my IVs on day 1 and 7 of the 30 days with the oral cytoxan every day for the first 14 days...with oral cytoxan it is important to drink alot of water every day!!!!!!!!!! 

  • ritajean
    ritajean Member Posts: 4,042
    edited December 2007

    Hi Diane!

    I can't help you as all my 6 chemo treatments were by infusion, so I'm glad that SoCal Lisa popped on.  There will be other, too who will show up to help you.  There are a great group of gals on this CMF site so come back often and visit us.

    Rita

  • 3ofus
    3ofus Member Posts: 201
    edited December 2007

    Hi Diane, I started with the same protocol as SoCalLisa.  In other words two infusions a month of MF and cytoxan pills everyday for 2 weeks---duration 6months.  I changed midway to all infusions. 

    If you have any questions, need any advice... please let us know and we will be happy to help you.

    You have our support.

    Take care!

  • ritajean
    ritajean Member Posts: 4,042
    edited December 2007

    Good morning everyone!  I hope today finds you all busy and happily scampering after the perfect last minute packages for those important people in your lives.  I thought I was done but then found a few things that I just "had to buy" yesterday so still have a few things to wrap!  THEN I'm done.

    Diane...hope you're getting a few of your questions answered. 

    Ginny...always good to read your posts.  Did you get the card I sent?  The postal worker did not like the way I had it addressed so I hope that it found you.

    Harley...got that shopping done now? Ho Ho Ho!  It's almost Happy Santa day!  Hope you're enjoying the holidays!

    Melanie...hope you're doing well.  Check in when you can!!

    SoCal...neat picture that you posted on the "Circle" and I loved your holiday sweater.

    CY...always thinking about you and hoping that you're improving!  Enjoy this season with family and friends.

    Rita