CMF Question
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Hello ladies,
Work went exceptionally well today, I took my anti nausea drug at 5:15am and waiting until I got to work to pop my cytoxan at 6:30. Had my water bottle and nibbled all day long, had no nausea at all
.Lisa, as of yesterday afternoon, after I posted about being plugged up, I too could have been the poster child for Immodium! Hoping that there is some happy medium in the future. Now I don't know if I take anything, or wait and see. I think I'll wait and see. I'm sure the intestinal tract is doing a jitter-bug with the meds.
Will be eating a lite dinner and off the bed soon, that 5:00 wake up is literally for the birds. Hoping for another se free day tomorrow.
Thanks gals, Carol
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Carol, so happy you had a se free day today. You go girl!!! Just listen to your body.
Hugs and prayers,
Candie
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Carol, each treatment can be a little different. You will learn quickly what works for you with food and medications. Just listen to your body and take one day at a time. Before you know it, you will be finishing the crossing line! You kind of get into a rhythm, so to speak, and really woop it up on your "chemo holiday" (days in between infusions, when you feel more normal). Glad the emla cream helped you! It was a life saver for me too
Take good care everyone!
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Hi gals!
Carol, hope you're still having se days. I always enjoyed those "chemo holidays." Keep in touch and let us know how it is going.
Hello to all you other CMF gals........It's always good to see your posts and hear how well most of you are doing! We need those positive posts and vibes!
Hey Melanie...how DID your Christmas go?
And Harley...where are you? I assume you did get your shopping all done and those packages wrapped on time (no help from me, of course.)
Gotta run, but wanted to stop in and chat for awhile.
Catch you later.
Rita0 -
Hi Ladies!
Popping in to say hello and Carol, hoping your are having good days!
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Hello all, doing quite well, at work as I type. Going for infusion tomorrow, hoping it goes as well as this last one. Planning on a long weekend to regroup.
Only need to figure out the "fiber issue" if you know what I mean. Seeing what alot of other ladies are dealing with on the other sites, I'm feeling pretty lucky.
Carol
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Carol, I found these fiber bars, Gnu Bars http://www.gnufoods.com/ that are available at most health food stores--Quite tasty and healthly, also.
Two of those a day plus the colace daily, and sennokot s (sp?) on infusion days and the following three days and the constipation from hell I had after the first tx never came back.
Will be thinking of your tomorrow--all will go well!!
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Jane, first off I love your screen name! I got scared to take stool softener as I had the oppposite effect over the weekend when I was taking them. I have been trying to be a little more natural since then. I'll check into the bar you recommended. I've had a fiber one bar this morning, it has chickory root in it which is suppose to be a laxative. I also noticed that the tapioca pudding I had last night had chickory root as well.
Kinda sad, but I'll be cheering up a storm if something works before tomorrows txt.
Carol
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he he he on the screen name--that "bad boob" had had cysts and problems since my teens.
After biopsy of the left was "bad" I got the MRI results that the right boob was okay, hubby said "Well, at least we are only dealing with one bad boob" and it injected some humor at a time it was really needed.
We really are so different in out reactions to drugs--
Have you tried the old tried and true prunes and other dried fruits? Those might help "move" things along in a more gentle and natural way than the stool softner and give you some good nutritional benefits also.
I needed a high-powered Uzi submachine gun!!
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Jane, I'm going to try a good long walk when I get off work, and if prunes are still needed so be it!!!! Thanks for the idea!!!!
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Carol...
So glad this is the only problem you're dealing with right now. Good luck tomorrow with the infusion. I'll be thinking about you!
Rita
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Good morning,
Jane, I needed that same machine gun...lol
Carol, I had a very hard time in the beginning. I figured out that I had to take colace frequently. I started it 2 days before 1st infusion of the month and took it til 2 days after 2nd infusion. I also made sure I had something "wet" with every meal. For instance:applesauce,cranberry sauce,canned fruit,yogurt. All that finally got me ok. I never had trouble with constipation, so i was frazzled by it. I am a regular kind of gal...lol... Good luck with your infusion.
Waving "hi" to all
Hugs and prayers,
Candie
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Carol...thinking of you today and hoping all goes well.
Candie...it's always good to see a post from you. You add so much to this thread and always have such good advice to share. Have a great day!
Rita
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Candie, kinda nervous this morning on my way to work and still the fiber, prunes, stool softener yada yada havn't kicked in. I'm really hoping I can clean myself out so to speak before I go for my infusion this afternoon. I too in 44 years have never had this problem, boy I feel for people who have lived their lives with it.
Rita, thanks for the note!
I'll report back later gotta go (to work)!
Carol
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Oh Carol...I wish I could help you. I always used senakot (hope I spelled that right) and it always did the trick for me. Hang in there.
Rita
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Carol, hope all went well today.
Rita, always good to see you posting too. Thank you for the compliment and you also add so much to this thread.
Have a great night,
Hugs and prayers,
Candie
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Just wanted to report that all is well, 2nd txt was uneventful at this point. Whew!!!! Finally the prunes kicked in today, thank god as my stomach was getting that nervous feeling this afternoon. I talked to my onc and the pharmacist, I'm going to try some Smooth Move tea in the evenings. My onc also gave me a scrip for a med to keep liquid in the bowels (hopefully nobody is eating). I'm sure I'll get it figured out.
Jill, I believe your going in tomorrow (Friday) for your txt. I know you will find this txt a walk in the park compared to past txts. I have basically had no nausea (I take one Zofran) in the early morning and that has been all that is needed. I actually don't even really know if I need that, but I don't want to screw with a good thing.
I'll be thinking of you, and hope to hear how your doing.
Take care and thanks again to my fellow CMF friends, what a treat to have a support system like you all!!!!
Carol
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Jill, just want to add that I did munch on ice chips during the push's. Also I'm drinking about 100 plus ounces of water, seems to be working.
Carol
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Jill...Thinking about you as you head for your next treatment. Please let us know how it went.
Carol...You are so ON TOP OF THINGS! Glad you're feeling better and that your treatment went well. It's old stuff now! LOL Hang in there. Hopefully the next few days will go well for you and you can enjoy your chemo holiday until the next one rolls around.
Rita
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Carol and Rita,
Thanks for thinking of me! They accessed my port yesterday for the first time since my surgery. THANK GOODNESS FOR ELMA!! Everything went fine. I will be getting Aloxi (?spelling) through my IV for nausea and it should last for 3 days. They said I should'nt need anything after that but gave me a script for anzomet just in case. Started Wednesday on my 100 ounces of water and stool softner last night (already working). Will give you an update this evening. Have a good weekend
Carol- Glad everything went well for you.
Lets get this party started!!
Jill in AZ
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Carol--just be careful with the Smooth Move Tea--it contains senna leaf (all natural, but powerful!) and I had tried it years ago and a quarter cup of it had me in horrible cramps and diarreah for days--My sister had recommended it as a weight loss help and boy was I painfully crampy and miserable and needed to be near the bathroom every fifteen minutes--if you try it, go really, really slow--for me, the colace and senokot-s were gentle compared to that tea. That tea is not a stool softener, but definitely a full blown laxative. http://www.tealand.com/SmoothMove.asp From their website:
Contents: Active Ingredient: 20mg. Sennosides A & B per cup from senna leaf.
Senokot-S (from the label of the bottle in my hand) contains only 8.6 mg. Sennosides per tablet--so a cup of that tea is going to be stronger than TWO SENOKOT-S!!
Then again I was not on chemo at that time--I don't want to scare you, just be careful Carol--I would start with a quarter cup of tea and see how it goes, because the diarreah and cramps from hell can be just as bad as the constipation from hell. Senna is natural, but packs one hell of a punch in tea.
Glad to hear you are doing well.
Jill, hope today went well. Give us a full report.
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Jane, thanks for the info, I did have a cup last night (made it pretty weak). This morning no big problems although I finally cleaned myself out yesterday afternoon
!!! I appreciate your info, I looked like a fish out of water when I went to the drug store looking at laxatives. I picked up some Miralax today, suggested by my onc. I will start that regimen and see how it goes. Its suppose to be non cramping etc. The doc gave me a scrip for it, I went I line to read about it and found it is now OTC. If I can get that figured out I'll be really doing good.
One last question, did anybody get a super dry mouth at night? I wake up in the night like I have chewing on a cotton sock. I know its not dehydration with the amt of fluids I drink.
Jill, hope all is well with you this evening, looking forward to hearing your report,
Carol
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Jane, hope you had a good nap..glad you are taking care of YOU!
Carol, I had dry mouth. I found using Biotene mouthwash periodically during the day helped get that under control. The dry mouth is from the chemo...I forget which one,tho. As a matter of fact, I still get it occasionally from the arimidex and I still use the biotene and it still works.
Jill, hope all went well
Rita, waving to you
Have a good restful night,girls
Hugs and prayers,
Candie
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Hi all,
Just got home, everything went fine. Before txt I had consumed over 100 oz. of water! So I was ready. First the anti-nausea drip, then the Methotrexate,5-FU and then Cytoxin. Chewed on ice for 45 minutes. I was freezing cold by the time I was finished. Love the nursing staffing!! They are so nice. DH and I stopped at Walgreens to get the prescription filled for anti-nausea (anzomet). $760 for 10 tablets!! (that is the list price) we will have to wait and see what my insurance is going to pay. My dr. gave me some samples to get me through until Tuesday. The nurse said that I should be able to get through this with minimal SE. I hope so. So far I'm feeling fine.
I also told 2 of the nurses about this site and they had not heard of it. I was very surprised. I'm wondering how I can get information (pamphlets) about it to be able to share with others.
Thanks so much for all your supports.
1 down 5 to go
Jill
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Way to go Jill! Don't hesitate to take those anti-nausea meds if you need them and take them immediatey. It is much easier to ward off the nausea than to get rid of it once it starts. They also told me that I probably wouldn't need anything except the Aloxi and by the time I decided to take the compazine tablets, it was too late for that treatment. After that I found that I did much better if I took the anti-nausea tablets as prescribed, right after I got home from my treatment and continued for three days. Everyone is different, though, so hopefully you won't need them.
Carol...glad to hear that you're moving right along with this journey. See, it is doable, just not one that we stand in line to participate in!
Hi Candie...always so great to read your posts.
How's it going, Ginny?
I'm leaving Friday for Florida for a week. It is bitter cold in Illinois today and I can't wait. This is the first year that I haven't had a contract job during the winter and I can get away. It should be fun and I'm such a winter wimp.........definitely a warm-weather person. I envy those of you in the warm-weather climates!
Got get moving but wanted to see how Jill fared and how Carol was doing. Have a good weekend, dear sisters.
Rita
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It's me again........I haven't heard anything from Harley lately which is unusual. Harley, if you're lurking please post. If any of you others have any info on her, please let us know.
Jane, I also wanted to tell you to be sure and let us know when you get the results of the scans. Were you as nervous about them as I always get? My New Year's Resolution was to not worry as much about tests, little aches and pains, etc. It's a tough one for me!
HUGS!
Rita
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Good morning from the Pacific Northwest,
Jill, I'm hoping you had a se free evening and are feeling good this morning. I was shocked to see the price on the nausea meds. I'm taking (Zofran) every morning since its been working great. I sure hope your insurance kicks in to defer that ugly cost. Thats a ridiculous price. Make sure that you keep the constipation issue in check, I definitely waited too long last week to really address that situation. Had my Miralax this morning (YUM), actually I couldn't even taste it with a little juice.
Rita, have a great time in Florida. Taking your golf clubs? I've been watching a little of the Bob Hope Classic from Palm Desert, wishing I was in the warm weather as well. My dad winters in Florida to get out of the wet/cold weather up here in Wash. Been to visit him a couple of times over the years, but we prefer to go to Arizona for the dry heat. Right now any heat would be nice, thanks for encouraging us through our ups and downs!!!
Carol
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Hi Ladies:
I am new to the CMF group. I started with TC x 4 and had a couple of bad side effects, so this is the next treatment of choice. My onc is doing it a little differently than some of yours. I am doing cytoxan for 28 days and an infusion every week. Is anyone else doing it this way?
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