TIME TO CIRCLE THE WAGONS GIRLS
Comments
-
Hey Liz ... Thanks for the happy dust!
Too late to say good morning .. so, what's for dinner?
I've got a meatloaf in the oven, with biscuits and fresh sliced tomatoes. Vanilla ice cream and chopped strawberries for dessert.
Off to the periodontist for my 3-month torture tomorrow. Yippee.
Deb - Hope you're starting to get your strength back today.
Slonedeb - Praying you're getting some relief from the pain.
Madison - hope you've been able to rest and never, ever again have to go through that again.
Nicki - Hope you're feeling better and all goes well tomorrow at the doctors.
Nico - Hoping chemo is being kind to you and no more nosebleeds.
Shokk - Hope Dolly passes you by and that you are safe.
Hi Lisa and Neesie!!
I'm missing many, but need to check the oven, feed the dogs and get back to work.
Lots of love to all the CG's from A to Z.
Bren
PS - Edited for typos
0 -
Madison -
Please keep us posted!!
Valerie
0 -
Hi Ho.....I'm off of work for a few days. DH is taking me to see our military daughter. The onc said he may have some results Thursday and/or Friday, wtih other results not known for a few weeks.
I'll check on everyone via Blackberry.........
Thanks for all the prayers and good wishes. I can feel your support.
Hugs, Madison
0 -
Hey CG's,
The boards are quiet today. Hopefully everyone is off doing something FUN instead.
Or maybe they are already snuggled down around the Circle and dreaming sweet dreams.
Those of you who are still awake, stop by my wagon and have an icy beverage, we can
chat awhile and enjoy this glorious evevning. The stars are magical and the fire is still crackling.
Prayers and warm healing wishes to those we hold in the center.
Nico
0 -
Hugs Madison ... glad you get to visit with DD this weekend. Keeping you, Slonedeb, Bill, and Deb in the center of the Circle.
Nicki ... hope all goes well today with your appt. Will be thinking about you.
love,
Bren
0 -
Hugs and Prayers to All,
I do not have time to catch up on all as I have to get to work.
Alaska Deb, glad the transfusion worked.
Madison, I hope you get your results today and they are good.
I picked blueberries yesterday so I'll be making a couple of crisps. Stop by and bring some ice cream and ice tea. We'll swap, stories and hugs.
Debbie
0 -
Debbie..yummmmmmm I just love blueberries and we cannot grow them in S. Cal..
Madison, have a good time with your daughter...is she back from deployment??
0 -
Debbie,
BLUEBERRIES!!! My favorite. I'll be there around lunch time and bring the ice cream and iced tea.
Nicki, you're in my thoughts and prayers today. DebC, hope all is well in my favorite part of the world.
Gearing up here for chemo tomorrow, the first of 6 taxol/cytoxin. Any advice to keep se's to a minimum? Neuropathy scares me!
Nico
0 -
Hi Nico,
Good luck tomorrow .... check the chemo forum, especially the first two topics on the page. You've been bumping those topics, and thanks to your efforts, they've been "pinned." There are great suggestions in those two posts. I'm sure other gals will be along to help you with this. I believe Deb is on Taxol right now.
Keeping you in my thoughts,
Bren
0 -
Hey girls-
I am woefully behind on everything, including reading everyone's news!
Madison - so glad you get to see DD! Hope you have a blast.
Liz - I think I resemble your happiness fairy, but it has WAY more hair than me!
Debbie - I love blueberries too! We have great wild ones here, but the crop has been bad the last 2 years so I don't have any in the freezer. I bought a big box at the store and only got to make blueberry pancakes before the kids scarfed them all! I need to buy more
Hey Bren - How's life treating ya??
Nico - Neuropathy sucks, but it is manageable. My feet give me quite a bit of problem these days. I have been on either Taxol or Abraxane for 5 months now. I am not familiar with doing the cytoxin with the taxol, will you do it every other week or every three weeks? The first time I did Taxol I did 12 weekly doses. I tried all the things I had been told....Glutamine powder, keeping your hands and feet cold during infusion, using heavy hand cream. In retrospect, I'm not sure they did much good. I guess they work for some people though, so it would be worth giving a try...I do know that the neuropathy is cumulative, so hopefully with only 6 treatments you won't get bad symptoms. Some people have no problem with it at all....I'll hope you get lucky.
Hope everyone has a good day
Hugs
Deb C
0 -
I am one of those who has had neuropathy now for seven years, but I take Lyrica for it and it helps alot...
0 -
I took Taxotere and got neuropathy in my feet and finger tips. My last treatment was 3/11/08 and it is mostly gone. I still feel a little in my thumb tips. And sometimes my feet bother me at night if I have been on them all day. I am not sure if this works with Taxol, but I wore ice gloves and put my feet on bags of ice during the infusion. That helped reduce the SE but not eliminate them.
Hang in there Nico. I did not find Cytoxin too bad and I here Taxol is not as bad as Taxotere. Don't you just love taking a drug with "toxin" in it?
Debbie
0 -
First of all I want to thank everyone of you for your support. I sure needed it since Monday.
I am going to work earlier in the mornings. For some reason starting at 7:00 am is making me feel stronger. I cant explain it. I get all my paperwork done and after morning report I can just go to the hospitals and dont feel rushed.
I saw my PCP. We went over everything. By time I got there my husband gave me a list of things I had self diagnosed myself with. Brain cancer, aneurysm, stroke, parkingson, alzheimers, sinusitis, and TIA's. I do love my PCP. He ordered an MRI of the brain. Said the pins in my finger should not interfere and he prefers that over a brain scan. He said its protocol when someone comes in with symptoms like I have been having. He also said he thinks the brain scan is going to come back absolutely normal. He wrote out a prescription for the test and he made me look at it. He said look at the diagnosis. Its doesnt say r/o brain cancer, its doesnt say rule out stroke. All it said was Ataxia - and he believes my gait is abnormal because of having 2 injuries so close together.
He did all kinds of blood work. Repeated my CBC, thyroid, CRP, CMP and cholesterol. I was fasting. Didnt eat anything until I saw him. I asked him what he really thought was going on - he said he thinks its anxiety and mechanical issues from my falls. He told me I think way too much about cancer and need to let go of that fear. We will deal with what we have to deal with when we know what we are dealing. He also ordered an x-ray of my ankle, although believes if it is broken, by now its in the healing stages.
I had such a hard time last night, I just cant tell you. From headache to chest pain. I got myself a piece of cheese and instead of putting it in the refrigerator I put it in the cupboard. Both of us were looking for it like crazy and when I realized what I had done - that was my breaking point. I just started sobbing.
He increased my xanax and Im feeling pretty confident that all this stuff just happened. So Im feeling pretty relaxed right now. I cant answer everyone of you - Im sharing the computer tonight.
Have a wonderful evening.PS: Debbie: What a pleasant surprise to see you. Welcome to this wonderful circle of love. Seeing your post made me smile.
Nicki0 -
Nickie - Thank goodness for kind intelligent PCP's. Glad your feeling more relaxed!
Buy the way I do things like your cheese episode all the time and end up sobbing too. I'm trying to learn to laugh at myself instead.
Xanax lollipops are available in my wagon any time you need one.Nico - I also developed neuropathy in my feet from taxotere. Ice, creams, B6, glutamine - none of it helped. I tried neurontin and it helped a bit but I couldn't take the side effects (dizzy spells). That scared the crap out of me! Anyway the good news is that I am now 20 months post chemo and the neuropathy is just about gone. It has been improving steadily for the past 6 months. I've actually noticed the most improvement since I've started exercising.
Good luck tommorrow.Hugs to all,
Sue
0 -
Nico - I received taxotere and in order to prevent the neuropathy my doc had me place my hands and feet in ice during the infusion. It really helped. I had no neuropathy. Maybe it will help you too. Good luck.
Boo, Liz, SoCalLisa, - good to see you again.
SloneDeb, Madison, DebC - Keeping you in my thoughts and prayers.
Hugs to everyone in the circle!0 -
Hola Odalys...como estas?
0 -
Hugs to everyone. I will try to catch up when I get home from work.
Nicki
0 -
Hey DebC .... Junie's having problems with bears ... so if you're reading this .. can you pop over to this link and give her some pointers.
http://community.breastcancer.org/forum/7/topic/709647?page=1#post_996977
A dear friend of mine sent me an email with an article Tony Snow had written about cancer ... so, in his words ...
let today be a day of love and grace.
Bren
0 -
Hello Sisters, the circle looks pretty good to me today. Wish I could just sit down in somebody's wagon and talk. Know what I mean? Just quiet friend time. No agenda... just rest and the comfort we get from being with friends who are like family.
A busy day for me today. Waiting to hear back from my insurance company on my appeal. I hate having something so important in the hands of someone who doesn't know me and doesn't care. My breast surgeon feels the MRI is important enough for me to involve an attorney if I get turned down again. We shall see.
Think I will mix us up some fresh lemonade and chocolate chip cookies. Stop on by my wagon.
have a great day..... .Love and hugs, Pammy
0 -
Sounds good Pammy!
Let me know when the cookies are ready!
love ya ...
0 -
Good morning circle girls............Pammy!!!!!!............I would love some lemonade and cookies........actually I was in line before Bren...........(still taking steriods so Bren I would hate to have to shove you out of the way)..........Pam just wanted to tell you I made your peach cobbler (Bren I made it with can peaches) and it was so good and so easy............I loved it...........hey Boo Sue its so good to see you...........SoCalLisa you look so good in the "get together" pic.......what have you done to lose weight?..........I know you play tennis but did you change your eating habits or are you just eating smaller portions.........(maybe if I wasn't making Pam's peach cobbler I would do better on the weight thing)..............Ola Odalys........Puppy I hear you are doing better and better...........Debbie welcome to the circle.............DebC hope you have a nice weekend planned with your family..............are the bears in town for the summer?.............Nickster you have got to be glad it's Friday........be careful out their on the highways of Chicago............ok ladies I have got to get some work done.......going to try and slip out of work a bit early today...........Shokk
0 -
Oh and one more thing big hugs and prayers for Madison.............Shokk
0 -
Good Friday morning everyone..
Shokk, I have lost about thirty pounds so far...twenty more to go...I just cut back on my fat intake..so no cheese, pizza, etc...I try to keep the fat under 20 gms a day...and exercise, but mainly a little old ladies' doubles tennis, walking and Curves a couple of times a week...when I was on Arimidex, I could not lose weight and when I finished up with the Arimidex I didn't lose any weight with no dieting, but I could finally lose it with this diet..go for leaving work a little early..what the heck!!
Madison..I hope you are enjoying time with your Air Force daughter..
Pammy could you make some low fat cookies for me??
0 -
Lisa..........I've been meaning to tell you that you look great!! I'm not so sure you need to drop 20 more..........you'll be a skeleton!
Saying Hi to everyone........just came home from DD's house and ate way to much......they have all these different restaurants in the big city........far cry from my little bump in the woods!
Hoping all have a great weekend!
Neesie
0 -
Nikki, you are just stressed and it makes us do crazy things. I remember when I was dx w/ bone cancer. I kept parking my car with the PRNDL in drive. The car won't start in drive. Also, I misplaced my instant coffee and called my mom and told her someone broke into my apt. and stole my coffee. I was absolutely serious. I found it with my cleaning supplies under the sink along with the coffee cup I also thought was stolen.
Debbie
0 -
I'm in Georgia visiting my military daughter but wanted to jump on line to tell you I received a call from my onc's office this afternoon and so far all the test are okay. Whew!!! They think (at this time) that the bone marrow has to recuperate from the radiation............I will call his office on Monday for more information. I do know that being away from my office has helped with some of the stress that has been making my stomach hurt like heck. The other test will take two weeks.Thanks so much for your prayers and support.
hugs
0 -
((((((Madison))))))
0 -
Good Morning Wagon Circle:
Madison: I didnt have much computer time this week, but have been checking in everyday to see if there was any news from you. I just sat down with a cup of coffee and was so happy to see a post from you. Waiting for test results is always the hardest part and Im glad the first part of the BMB came back good. Had to be a relief for you. It sounds like you are enjoying your time away and getting lots of rest. That is just what you needed. It must be nice being with your daughter, give her a big hug from me. I just hate that you have to wait another 2 weeks to get the final results of the other tests being done. Still calls for a little happy dance for you.
Debbie: I know a big part of it has been stress. I have had so many people tell me stories about doing the same thing. My PCP even admitted he has done things like that. Im really much calmer. Had to get over the initial panic and fear. Im sending you big hugs. Didnt know you had bone cancer and breast cancer. I love your signature, dont why I didnt notice it until today. All my big tests are scheduled for next week, so I have decided to just enjoy each day. Its going to be a beautiful weekend here and Im gonna work in my garden, swim in the pool, and treat myself to a pedicure.
Neese: Glad you enjoyed time with your DD and the food too lol. I laughed about your bump in the woods. Here in Chicago those big restaurants are everywhere. Some are walking distance to my house. All different cultures too. There is a Vietnamese restaurant down the street that is awesome. Although my preference will always be a big plate of Italian food.
DebC: I am so behind in reading and posting. Im so glad you felt better after the blood transfusion. You are such an amazing person, doing chemo ongoing with no stop date must be so hard. I had one round of taxol and couldnt take the bone pain. Another bc friend who just started taxol mentioned the same thing happened to her and she was told she was having an allergic reaction to the solution! I sometimes wonder if thats what happened to me. Despite me wanting to quit chemo at that point, my onc switched me to taxotere. Still got neuropathy but not as bad. I also got neuropathy post chemo but as time goes on it seems to be getting better. I feel so blessed to have had the chance to meet you as you are such an inspiration to me and others going through this journey. I always look forward to your posts and hope to see you at least pop in this week-end.
SoCal: Its incredible how much weight you have lost and how good you look. When I saw that picture of those big pants I just about died. They would probably fit me just fine! Im starting a diet again. Low fat, only good carbs, and monitor the calorie intake. Of course I need to include exercising on a regular basis. I dont know if I mentioned, I finially found a curves about 4 miles from my house and once I get things straightened out on the medical end for me Im gonna join. I know when you see this post your gonna go "dang that girl gets up early." Why? On a Saturday when I could sleep in do I get up I will never know. I saw the pictures from your get together luncheon and recognized all but one person. Its so nice you all get together and share that special friendship. I especially love when you go for your walks because the pictures you capture are awesome.
Liz: I just got to see your green guy sprinkling happy dust. That was really cute. Brought a smile to my face. I was just thinking in one week - there are many of you who will be sprinking happy fairy dust at Pinkstock. I bet your getting excitied. Wondering if your stopping at Ohare Airport before you get to your final destination? I feel such a sense of pride that so many of you are getting together. Hoping work isnt keeping you too busy. Im really enjoying my job more and more. I started going in at 7:00 am and Im feeling so much stronger as a result. I dont know why, but I was thinking that most of my career I worked 7:00 to 3:30 as a nurse. So Im back into one of my old routines. Anyways sending my best wishes to you for a wonderful week-end.
Bren: Thanks for your well wishes and putting me in the middle of the circle. That felt strange as I havent been there too often. I think by now you know my PCP appointment went really well. I dont know what it is about him, but he is able to calm me down . Your posts are always so supportive and have such a calming effect for those who are in a stressful situation. Im glad I have had the opportunity to meet you and just wanted to thank you.
Sue: Hello to you my long lost friend. It seems like forever since we have talked to each other. I sure hope life is treating you good. My PCP is great. We have worked side by side in the hospital atmosphere for years and he knows what to say to calm me down. He was trying to tell me that fear of the unknown is worse than knowing. And hes right. But we all know its hard after having breast cancer not to have those fears. Im gonna keep myself busy so that Im not totally consumed by negative thoughts. So its you who have been hiding those xanax lollipops in your wagon. I would like a grape flavored one please - as that was always my favorite tootsie roll pop.
Odalys: A big hello to you. Didnt realize you had taxotere also. Makes sense putting ice on your hands and feet during the infusion. I alway go adriamycin and received some good advice when I was a newbie here. I was told to drink something cold or suck on a popsicle during the infusion to prevent mouth sores. And it worked! Thats why coming here is so good - we are able to get advice from those who have gone through the journey before us.
Pammy: Its so good to hear from you. I love your idea. You can come to my wagon and just relax and talk all you want. I need to laugh today. We know its the best medicine. Remember my wagon has a pool, so we can sit on the deck, relax and talk, when it gets to warm we can jump in for a swim. The deck is wonderful with lots of shade. Make sure to bring those picture albums you have been working on. I would love to see what you have done. I bet its been very cute and creative. Today I will bring the cookies and we can have our own tea party.
Shokk: You have been given a special gift. The ability to make people laugh and smile. I always love reading your posts. I could actually picture you pushing people aside to get at those cookies from the steroid hunger. When I was getting Decadron I craved sweets. Couldnt get enough of them. Yes Im glad its the week-end, I feel so rushed now during the week. But its a good feeling. Keeping myself busy like a busy bee.
Sheri: Algebra, Economics, and Spanish? Oh my! For some reason I always thought teachers specialized in one subject. Though History was your major. Always gave you lots of respect because History was one of my worst subjects. I was always drawn to the science side of things. July is almost over and with August, everyone is getting ready with back to school stuff. I guess when your a teacher this is a busy time - getting prepared. Hope you have a wonderful day.
Colleen: My dear friend, you have stayed away much too long. I know I mentioned this before, but I planted 3 Gerber daisies. One for DebC, one for Fancy and one for you. They dont like the sun too much and your looked a little sad, then we got a good rain and there are two beautiful flowers in bloom right now. They are working on Sheridan road so I havent had access to my special beach. You know I always think of you when I go for walks there, along with Pammy. I have had an ataxic gait and have been falling down alot. Thats the reason for the MRI of the brain. Because I failure herceptin Im considered high risk. At first the thought sort of freaked me out, but Im doing much better now. Its scheduled for next week - my PCP is getting it approved from my insurance. Anyways, I miss you lots and Im sending you a big hug.
Slonedeb: Thank you so much for your kind words. Seems like you are always thinking of others when you are going through such a hard time yourself. Believe me, you are in the middle of the circle and we are all praying for you. My stuff is so minor, compared to what you are going through. It was good to see a post from you. Im sending a guardian angel your way to keep you safe.
Puppy: Well this has been a very long journey for you. Im glad to hear you are getting better and hoping you will come out and play with us. Sure do miss you around here. Im hoping the spirits are protecting you and keeping you safe.
Jankay: Where are you today my sunshine sister. I know your awake and getting ready for breakfast. Could sure use a giggle today. Im hearing through the grapevine things are finially going your way. I hope thats true and life is being kind to you.
Iris: Im thinking of you today and hoping everything is going well. Everytime I see a teddy bear I think of you. Yesterday I went to one of the hospitals and they have a program for children. Bring you broken teddy bear in, they will fix it and put a bandaid on it. Of course I immediately tough of you. Enjoy your week-end and know that you are loved by many.
Well, I have tried to say hello to everyone, but there are so many people in the circle. Im hoping you all are having a good morning. I've got the bbq lit and we will be having grilled meals today. Nothing like having breakfast cooked on a grill. Made to order. Can even whip up an egg white omelet for SoCal that will be out of this world. Have a wonderful morning. Sending lots of love to so many.
Nicki
0 -
OK, Nicki..I am here visualizing your egg while omelet..it smells great...
now on to non fat pizza....lol.....
0 -
Good Morning Circle Friends,
Madison .. Thanks for checking in and letting us know how you are. Is the radiation the doctor is referring to from breast cancer rads? I was giving that a lot of thought after you posted. Is that why it takes so long to recover our energy after radiation? It's no wonder your stomach is so upset. Especially with the BMB. Glad you are able to visit your DD this weekend. Hope she is well and in the U.S. for awhile.
Slonedeb ... Keeping you in my thoughts. I know you've been in such pain lately and are having difficulty walking. I pray your doctors can help you. I worry about you every day.
Lisa ... Saw the pic of your granddaughter in another thread ... she's so cute!
Nicki ... See you're right behind me this morning .. have a great Sunday! Praying all your tests this week are negative!!
DebC ... I know you've had a rough week ... You, your family and Babe are in my thoughts. My wonderful Bobo is so old, and I'm so afraid of losing him. He's been by my side through the darkest times of my.
Nico ... I hope your chemo treatment on Friday went okay and you aren't having bad side-effects. I didn't have chemo, and it scares me to death ... I never want to go through that.
I know I've missed most of the CG's, but its time to get busy with the day. Tim leaves in the morning and there's always a rush of things to get done.
Lots of love to all from A to Z.
Bren
0
