Life After Breast Cancer
Discussion List
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Gardening, anyone?
I'm still under a ton of snow, and it's only 9 degrees today, but I just signed up for our county's Master Gardening program. Now I can't wait to dig in the dirt. I have little knowledge and hope these classes help. I love flowers and plants but do not have a clue what to do with them. I'd love to hear from others who…
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Bra after reconstruction, 5 years out
Hello! I haven't posted on here in ages but wanted to reach out to ask if anyone else if having issues feeling comfortable with their foobs in a bra. I have over the muscle, direct to implant reconstruction and they are pretty small, measure out to a 32c. I have a very lean chest and almost zero body fat on my chest. So…
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So...whats for dinner?
I thought it might be fun to start a thread on what we are having, making or had for dinner. Sometimes it is the best tuna steak you ever had, sometimes it's a can of soup. But we all do it every night in some form or another. Maybe we can give each other ideas on what to make, or bitch about what we had, or the fact that…
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Medicaid Application/Renewal Survivorship Anxiety
I am a 39-year-old cancer survivor, and due to my BRCA mutation, extensive family history, and the fact that my cancer was triple negative, my oncologist has me under observation for the foreseeable future. I originally lived in Wisconsin, but moved to Texas in early 2019. I was transferred from the Wisconsin Well Woman…
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Immunotherapy for hormone positive, HER2- breast cancer
I like to keep up with medical trials and research for breast cancer and was wondering if anyone knew anything about using keytruda for hormone positive, HER2- tumors. It seems there are some trials going on right now with it but I can't get an inkling on how it's going. Any news that anyone knows about? Just wondering if…
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Pain almost a year after lymph node removal
I had a lumpectomy and three lymph nodes removed last August. I went to PT off and on for a seroma, cording and the onset of lymphedema. The cording is a lot better than it was. But I’m having more pain/tenderness in the back of my arm and underarm again. I stretch every day and try to drink a lot of water. Just wondering…
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CT scan before mammogram
Hi everyone. Just wondering due to high calcium i had a ct of neck chest abdomen and pelvis 3 months ago. All fine calcium normal now. Question is can I feel alittle less tense about my mammo tommoro as my chest was fine a few months ago? I am 6 months out from my last kadcyla.
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TUMOR MARKERS
Hi, wondering. If mammo is okay but markers slightly high what is the protocol?
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Hair loss 3.5 years later
so I finished chemo 3.5 years ago, my hair grew back and was never as thick as it was pre chemo but that was actually a gift from chemo (it was waaay too thick before) I was very happy with my chemo curls and all of a sudden it began thinning several months ago. In talking with two individuals who went through chemo at the…
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Research News: Cancer Prevention Lifestyle Reduces Risk of Recurrence, Death in High-Risk BC
Cancer Prevention Lifestyle Reduces Risk of Recurrence, Death in High-Risk Breast Cancer May 26, 2023 Following cancer prevention lifestyle recommendations before, during, and after being diagnosed with high-risk breast cancer cuts the risk of recurrence and death. Read more…
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Recovery and Exercise Stamina Issues
Wow, I still am having a hard time maneuvering around the forums since the .org blew them up. I have no idea if I'm posting in the right place, but here goes.. I'm seventeen months past my treatment plan, and doing pretty well. But I don't seem to be able to build up exercise stamina. As in, I'm now doing a lot of…
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After menopause…
post hormone + breast cancer, and post menopausal - along with the weight gain and joint pain and all the wonderful things that go along with a hormone depleted body —- how do you cope? I’m so sick of the weight (I’ve tried everything) and exercise Is challenging because joint and muscle pain along with fatigue. Is it…
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Book Lovers Club
I've been receiving marvelous book suggestions on another thread and it was recommended that I start a Book Lovers thread. This is not for BC or health books -- this is pure escapism!!! I've collated the suggestions (with snippets describing the plots) I've received thus far. Please post your recommendations too!!
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For 5 or more years Survivors: Did you make any lifestyle changes?
Looking to learn what do survivors do to avoid recurrence? Any lifestyle changes you made? Like not eating sugar, followed any specific diet or did any changes that you think helped avoid recurrence? Thank you!
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20 Years Cancer Free - A message of hope
Hi there I hope this message is allowed. 20 years ago I was diagnosed with breast cancer. I had ducal carcinoma with one infected lymph node. I had four rounds of chemotherapy - followed by mastectomies and another four rounds of chemotherapy. Treatment was tough. I was a young mom with two little ones at home that needed…
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Increase in CA 27-29
Hi there, I am a little bit more of a year out of treatment but in the last check up the level increased from 19 to 26 which really scared me. I got the results after the Dr visit, I messaged him but did not hear back. Your thoughts? Have somebody experienced something like that before? Thank you!
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Period after chemopause
I went through AC-T chemo 7 years ago at 40 which put me into chemopause. I have been taking aromatase inhibitors since then. I am now 47 and am having my first period. Did anyone else have this happen? I have a call into my oncologist and ob-gyn. Just wondering if it has happened to anyone else.
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Is anyone else an atheist with BC besides me?
Hi I am newly diagnosed and I know alot of people rely on their faith for support and find great peace with that, however I am a atheist and was wondering if anyone else here was also. thanks
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Thin Slices of Joy
I finished active treatment less than a month ago, and wow, you just don't bounce right back up. Before all this started I have had sciatica for a couple of years, and it worsened during treatment. In trying to recover from both, I've been feeling frustrated. Now, I'm tired of the pain, fatigue, and frustration. Oh, and…
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After BC Treatment, Personalized Survivorship Care Needed
After Breast Cancer Treatment, Personalized Survivorship Care Needed May 18, 2021 Survivorship care plans need to be personalized to meet breast cancer survivors' differing needs. Read more...
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Moved to one-year for oncologist follow ups today
Heck yes!!!! Celebrate good times. The photo was my first international trip taken this year. More to come. 🤸💕🤸
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Follow-Up Care Should Be Based on Cx Characteristics
Breast Cancer Follow-Up Care Should Be Personalized Based on Cancer Characteristics Mar 14, 2023 Considering information on stage and receptor status can help doctors personalize breast cancer follow-up care. Read more...
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Interview Request: Problems with follow-up care after treatment
Breastcancer.org is working on a new special report about problems with follow-up care after initial treatment for early-stage breast cancer. We're looking to do phone interviews with people who live in the U.S., were diagnosed with breast cancer in the past 10 years, and have personal stories to share about things that…
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Who else is a Genealogy Nut??
I have been doing my family history for a few years now and I KNOW I am not the only one on here that dabbles in genealogy. Lets share our stories, our research queries and maybe along the way we can help each other with research. Or maybe we'll find out we are related!! My family roots go from Nebraska back to Scotland,…
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Nipple Tattoo?
Has anyone done this? Did it last? Was it worth it? I’m thinking about this after listening to this TED Talk. I’m “flat” with nipple grafts. I have a few areas where the cells didn’t survive so it’s a bit splotchy and uneven (but I’m so glad I chose to have nipples!
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Research
Count Me In has joined hands with Stand Up to Cancer. They are requesting data from people who have been treated for cancer. They remove identifying information and make the data available to researchers. Hopefully, this will speed up efforts to understand and treat cancer. Currently, the data is in virtual silos with a…
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Possible Link Between Inflammation and Cognitive Problems
Possible Link Between Inflammation, Cognitive Problems in Older Breast Cancer Survivors Sep 30, 2022 Chronic inflammation seems related to thinking and memory problems in women age 60 and older who received breast cancer treatment. Read more...
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No Hair 5 Months Post Chemo
I finished chemo on March 30th, and my hair is still really, really thin. I don't see any signs that my missing follicles are waking up. Did anybody else have really slow hair regrowth? I need a glimmer of hope here! Thanks! Mary
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Scans after Treatment
I finished my chemo and radiation in August 2019. I had one CT scan in January 2020 to check on a lung nodule that turned out to be fine but that is it. I just wanted to know if everyone else gets scans every year. I know having a CT would expose me to more radiation, but I don't know why they wouldn't do an MRI once a…
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Finding an Oncologist you like?
I am 6 years from my diagnosis. I had to change doctors due to my husband change of job. Anyway, today I saw a new Oncologist it has been over 2 years since I had been to an Oncologist. This one was terrible...she made me feel like I am just a statistic. She did tell me I am Cancer Free she is the 1st Oncologist to tell me…