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Watch: Beyond Treatment: How to Get the Follow-Up Care You Need
Follow-up care after breast cancer is essential. Getting good follow-up care can make a big difference in your long-term health and quality of life. In this Breastcancer.org webinar, you’ll find out how often you should see your oncologist after your treatment ends and get other practical advice from our expert panelists…
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Bonded by Breast Cancer Weekly Virtual (Zoom) Meetups!
Hi All, We are now offering TWO moderated Bonded by Breast Cancer Virtual (Zoom) Meetups each week! Join with others you've created a connection with at Breastcancer.org, after active treatment is over. • Mondays, 8 pm ET (NEW! begins July 24, 2023). Register in advance! Monday Meetup Registration • Fridays, 1 pm ET…
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So...whats for dinner?
I thought it might be fun to start a thread on what we are having, making or had for dinner. Sometimes it is the best tuna steak you ever had, sometimes it's a can of soup. But we all do it every night in some form or another. Maybe we can give each other ideas on what to make, or bitch about what we had, or the fact that…
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Looooooong term lingering symptoms...?
Hello I was diagnosed in 2019 with Stage 2, Her2+ breast cancer in my right breast. Mastectomy, chemo and herceptin treatment followed and was successful. The planned herceptin treatment was interrupted just over half way through thanks to the pandemic, but no recurrence - so far, so good. Thanks to the pandemic, I never…
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I am not grateful to my oncologist and care team
I am facing my last treatment for triple positive breast cancer next Thursday. I had heard that ending treatment can be difficult and I have been trying to prepare myself by building other support outside my care team. However, I find that the biggest problem is the reckoning with what has happened to me. There have been 5…
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Neuropathy getting worse years after treatment?
Hi, I am new here so I hope I am doing this correctly. I had cancer and treatment in 2013 and had taxol. I had bad neuropathy for a few years after, took gabapentin which helped reduce pain and went off the medication because I was ok. I have had the neuropathy- mostly pain-sometimes since then like once a month. The last…
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When you're all done.........but still undone by cancer
I'm just wondering if anyone else feels like me. I was diagnosed in 2018, had the DMX, followed by chemo, and then monoclonal antibodies, finishing up in September, 2019. I'm still on letrozole and trying to get my feet on the ground after pretty much shutting my career down while I was in treatment. During 2019 I was…
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Shoulder dysfunction after treatment
Hello all, I finished my last radiation treatment on April 27 and promptly dislocated my right shoulder (the side where I had my mastectomy and radiation) in the hospital parking lot when a car backed up and tapped my hip (seriously didn't hit hard enough to justify the word hit). At first I seemed to be recovering well,…
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Gardening, anyone?
I'm still under a ton of snow, and it's only 9 degrees today, but I just signed up for our county's Master Gardening program. Now I can't wait to dig in the dirt. I have little knowledge and hope these classes help. I love flowers and plants but do not have a clue what to do with them. I'd love to hear from others who…
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Implant exchange 10+ years later
Hello fellow survivors. I’m now 10 years out from my reconstructive implant surgery and it’s time for implant exchange. Since surgery, I’ve moved more than 4 hours from my plastic surgeon and am considering seeing a surgeon nearby. So, I’m wondering do I need to look for someone who specializes in breast reconstruction…
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Xeloda (Capecitabine)
Has anyone with Triple Negative Breast Cancer taken Xeloda that went through chemotherapy and then had a double mastectomy and lymph nodes removed? I am going to have radiation but, my oncologist wants me to take Xeloda but, I want to hear some feed back.
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Why am i still smoking?
Two years out of stage 2 er+ pr+ Gave up drinking dont miss it but can not shake the cigs although only one a day... maybe two. Anyone have any help/ words anything?
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Advice on MRI over 5 years post treatment
Hello all. Just curious if everyone is still having MRIs? My oncologist and breast surgeon have different opinions on this and I'm leaning to just doing mammograms at this point. Concerned about all that contrast dye accumulating. I am a TNBC 12 year survivor and tested negative for the BRCA genes however my mom had breast…
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Finished Verzenio but having problems
I finished act chemo, Masectomy, radiation then two years of Verzenio - September 2024. Still on Zoladex and Femara. Since stopping verzenio, the most concerning issue is slightly elevated alt and ast - 50 and 70 at this point but ultra sound and mri without contrast show no Mets. Also, It has taken about 5 months for my…
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Is anyone else an atheist with BC besides me?
Hi I am newly diagnosed and I know alot of people rely on their faith for support and find great peace with that, however I am a atheist and was wondering if anyone else here was also. thanks
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Wish you still had cancer?
Is it common to have the thought that i wouldn't care too much if i had a recurrence? That i want to stop my meds? Does anyone ever think this? Is it weird to bring up? I've been looking at my life since diagnosis, treatment, remission, and daily preventive maintenance. Maybe treatment and losing my hair was much easier…
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7 yrs after lumpectomy
I finished br treatment in 2017 and my oncologist moved away so I haven't been to a cancer Dr since. I have had regular mammos, that have all been normal. Now, 7 years later, my left breast is considerably bigger 42 DDD than the rt, and I have been having terrible lower back pain on left side. I'm thinking that I should…
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Thyroid Cancer
I wasn’t sure where to post I could just use support. I finished treatment in October 2015. IDC, lumpectomy, chemo, rads. Actually the last couple years I’ve really felt my body heal from everything I went through. I was in a good space mentally and physically. The last few months though I’ve been having trouble…
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Her2+ treatment and latent cardiac dysfunction/abnormal GLS
Hello. I was treated for stage T1cN1aM0 triple positive starting in March 2015 with lumpectomy, TCH chemo and left-side radiation including a 'boost' to the axillary. No recurrence to date, thankfully. My oncologist states my lifelong risk for a recurrence at 2%. I have had inherited mildly high cholesterol, now in…
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Transitioning to a Different Normal After a Breast Cancer Diagnosis
Transitioning to a Different Normal After a Breast Cancer Diagnosis October 11, 2024 Grief counselor Kelly Grosklags helps Melissa Jenkins moderate a special Virtual Community Meetup on moving to a different normal after being diagnosed with breast cancer. A breast cancer diagnosis is a trauma, both physically and…
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Sports bra recommendations
Hi there, Does anyone have suggestions for a sports bra they love? I had a lumpectomy, some lymph nodes removed, and radiation last year. Overall, I'm doing really well but the surgery area is still sensitive. I bought the only "sports bra" that our local bc garment store had to offer. It's perfect for day to day (comfy…
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Neuropathy?
Hello everyone, Breast cancer 17mm discovered in November 2023, Her2+++, surgery in December 2023, 3 chemo ec then 12 taxols (finished in June 2024), 18 radiotherapy sessions and on Tamoxifene since August. I still have neuropathy in my 2 feet and 2 fingers on each hand. It gets worse with the cold. What bothers me are the…
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HORMONES
I had breast cancer in 2011 and had double mastectomy and completed chemo in 2012. Several years after I had to go back taking compounded Progesterone and Estrogen because I had so many issues physically and emotionally since getting medically put in Menopause at the age of 40 in 2011 and now I'm 53 yrs old. I also take…
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Book Lovers Club
I've been receiving marvelous book suggestions on another thread and it was recommended that I start a Book Lovers thread. This is not for BC or health books -- this is pure escapism!!! I've collated the suggestions (with snippets describing the plots) I've received thus far. Please post your recommendations too!!
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DIM- for menopause weight again
Hello, I've heard so much about DIM. I think I got BC from taking clomid to get pg. So anything- even supposedly natural- that talks about hormones frightens me. I've done a search on this sight and saw a lot of ladies who take it, but they were mostly still IN treatment or deciding to take it instead of AI. Has anyone…
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No Hormones, then what?
I'm 53, had bi lateral mastectomy o 6/2022, Been on Tamoxifen off and on because of suicidal thoughts. Oncologist said I had no other medication choice since I was still getting my periods. I went the drastic route and chose to have full hysterectomy and also remove my ovaries. I am just about 5 weeks post op and I feel…
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How has normal, day-to-day life changed for you after diagnosis? Share your “different normal.”
We're using the phrase "different normal" instead of "new normal" here. A person's transition out of active treatment into this "different normal" varies. All people and situations are unique. There are no right or wrong answers or timeframes. Share your experiences here!
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Are there side effects when you come off hormone therapy?
Hello - I've been trying to find women who have finished hormone therapy to ask about your experience. What was it like for you to stop taking your medication after 10 years? I expected some anxiety, and I have moments of that. But I was pretty excited to see how I would feel off exemestane. It seemed like it might not be…
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Double Mastectomy 10 Years Later
Hello Ladies! When I was diagnosed in 2014, my son was a toddler and I could not afford the recovery time. I so wanted to get both breast done. I actually wanted to go smaller. I have always had big dense breasts. Now I've put on a ton of weight from menopause and my breast are out of control as well as each shaped…
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Breast Cancer Survivors Have Higher Risk of Other Cancers
Breast Cancer Survivors Have Higher Risk of Other Cancers Jul 9, 2024 The risk of ovarian and prostate cancer was much higher than average. Read more…
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Need to hear from any long term grade 3 survivors
I am doing quite well and have gotten through all active treatment. The last step is my 3-D nipple tattoos. Anyway I am struggling a little right now. It's not bad but I could use encouragement. My original diagnosis was a grade 3, hormone positive tumor. No lymph node involvement and no LVI but that grade 3 haunts me…
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Anxiety about coming off Tamoxifen
Hello! I haven’t posted in a while, but I have been on Tamoxifen for almost 5 years (May of 2024 will be 5 years) and my oncologist has talked about me coming off in May, and all of the sudden, the anxiety is real….. I feel like this drug has been like a security blanket for the last five years. I also understand that…