Illinois ladies facing bc

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  • wendyk13
    wendyk13 Member Posts: 1,458
    edited June 2008

    Evening Everyone!!!!!  Humid today....but I am soooo not complaining!

    WendytheYounger.....a booby ID card?  I LOVE it!!!!!  Always wondered if they set off the scanners.  And I would love to hear more sexcapades...I have one of my own and it involves a 4-poster bed.  Glad your report (only one node) was so good! Hugs,honey!!!  And those thingies on your legs....you mean the squeezy things that prevent blood clots.  Gosh darn it...I swear I am losing my mind.  I KNOW what they are called...I had them for my back surgery last August....Pat, Blackjack...HELP!!!  I know what they are called...just can't spit it out.  Yikes....chemobrain never ends!

    Mich101....I'm WendytheElder, you are now officially "MicheletheOther"...I love this too!!!!!  And yes, I know I run the words together and no, I don't know why. And tuff!

    Jackie...loved your quote from Helen Keller.  REminds me of this group and how alone I felt at first and now...I have a new family to love and cherish and take care of, and I know they feel the same about me.  I will never be alone with this disease...ever...and that is so comforting.  I know that whatever may happen down the road, I have you all in my corner...and I am always in yours.  Please know that.

    Well....now to my news on my MRI.  I DON'T HAVE THE FRICKIN' RESULTS!!!!!!  I will not go into great detail but know that when I called..again...and again...I was told that "Doctor" hasn't reviewed the films as yet...and I should just "take it easy" and "listen to my body"  I started with "That is totally unacceptable to me".  I will not bore you with the rest of what I said (I was polite tho)but DH was home at the time...he just sat there with bulging eyeballs.   I guess the cancer survivor/kickass/tough Illinois girl + Nurse kicked in.  That being said...pain is leaving my foot and calf..still a bit in the thigh, mostly butt...classic sciatica.  So whatever I am doing + judicious use of meds is working.  Ahhhh...who needs doctors!

    Hope everybody is doing well and enjoying the weather...Blackjack hope you are feeling much better.  Hugs to everybody!

  • bren51
    bren51 Member Posts: 9
    edited June 2008

    Hi everyone - I'm so sorry I haven't been here in awhile.  I tried to read everyones posts to catch up. 

    Rita - I did not get your pm (privage message right?)  How do I get that?  Duh!!!!  And how do I send Laura one?  I mean I didn't get anything on my private email????  HELP!  And I'm so glad you got good results from Mammogram.  I wondered about scar tissue, I asked the nurse yesterday, "how am I going to feel a lump since the area around my tumor is so hard" - she didn't answer, just looked at me. 

    To Jule & Julie R & Becky who are just getting started.  (and if I missed anyone I'm sorry) I'm new in the group also.  I started chemo 10/4/07 & ended 3/28/08.  I'm finishing up 6 1/2 weeks of radiation tommorow!  I wish you all the best through treatment.

    I loved the pics of everyone - you all look great!

    Wendy the Younger - so glad your surgery went well & you are home & in the loving care of your parents (hey take advantage of being babied!)

    Jackie - I'm sorry about your friend and hope you are feeling better.

    Wendy #1 - what started your foot problems?  Hope everything is getting better.

    I've been struggling to keep a positive attitude and have been bummed out - I'm excited to be ending radiation, but  am worried about the Femera I'm suppose to start taking in a couple of days.  I have also been diagnosed with osteopennia (beginnings of osteoporosis) and onc. wants to do infusions of a medicine called Zometa.Has anyone taken Femera? 

    I'm not sure I want to take it.  I dont know if the drug lowers the risk of reocurrence enough to risk the side effects.  Any thoughts from anyone?  I'm still dealing with side effects from chemo and not sure I can handle any more at this time.

    Take care everyone.

       

  • wendyk13
    wendyk13 Member Posts: 1,458
    edited June 2008

    Hey...just checking back...

    Brenda...if you are looking for a PM...look right under where it says "you are logged in as..."....at the "my home" section it will probably say (1) which means you have a pm!  Just click that...also...when you joined bc.org and filled out stuff, there was a box you could check about whether or not you wanted them to send you an e-mail when you had a PM...I did that (and I just had to do it again????) as I always forgot to check "my home" to see if I had a PM.  I hope that helped!

    I don't actually have foot problems...I developed a herniated disc at L5-S1 (lumbar area) right after rads last year...turns out I have degenerative disc disease..and no, totally unrelated to bc or rads.  The pressure on the sciatic nerve travels down the down the butt,thru the back of the thigh, side of the calf into the foot.  Wow...more then you ever wanted to know!  And no..no worries...nothing to do with bc. Just me being old and decrepid. (can't wait what spellchecker will do with that!)

    Just really checking back re: Blackjack and Connie...hope you are feeling great and all the news is good,good, good!

    Hugs!

  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited June 2008

    Wendy the Younger - You are a real trooper! Hang in there...your attitude is awesome. I am wishing the very best for you. Your prognosis is great!  

    Jackie - Thanks for the compliment...although actually, I don't mind at all that I looked like George! LOL Thanks!  

    WENDREW - OMG - You ARE SO FRICKIN FUNNY! I love the comparison photos! See...I told ya so! LOL LMAO! You totally got it! And, it doesn't really bother me that I did look like him...everyone thinks he's cute! LOL On a less comical note...your words echoed my feelings about never feeling alone with this disease. You wrote exactly as I feel. I just know your results will be good...you too, have a FAB prognosis and survival. I just know everything will be okay with your results. I just luv ya....  

    Brenda - CONGRATS! YOU ARE A RAD GRAD! You can now enjoy the best months of our weather. btw...Follow Wendy's structions...if you still can't PM - post and we'll be more specific. Or let us know...and one of us will call you and talk you through it.

  • ritajean
    ritajean Member Posts: 4,042
    edited June 2008

    Bren...so glad you are back!  I thought you'd deserted us or we'd run you away! 

    To send a PM to Laura, go back to one of her posts.  Click on her name LauraGTO above her avatar (picture).  You will see a place where it will say:  send a private message to Laura.  Click on that and begin typing.  Submit your message when you are done.

    As for the Femara...I don't take it.  It's a cousin to the Arimidex that I take, which also does a job on bone density.  I feel that the benefits from the drug out-weigh the side effects at this time.  As for the Zometa, I have a friend who has had one treatment of it for multiple mylenoma (smoldering bone cancer) and is getting very good results.  It actually builds the bone tissue, not just strengthening what is already there.  She has not had breast cancer

    but I'm sure she'd be willing to talk to you about the drug.  I can send you her email if you want it.   It is such a hard decision to make...as if all these other decisions haven't been hard, too....and I still have "downers" now that it's all finished.  It happens to all of us.  We want to be back to our "old lives" before bc and it just doesn't work that way.  Please keep posting!  If you don't have anything planned for June 28th...a Saturday...mark it on your calendar and ride up to Starved Rock with me to meet all the gals for lunch and the scenic attractions.  It's just a day trip and I'd be glad to have you along!  I'm also trying to get Wendy the Younger to join us! 

    Rita

  • bren51
    bren51 Member Posts: 9
    edited June 2008

    Thank you! I did it!!!!!

     I successfully read my pm from Rita and sent a pm to Laura (which as I said to Laura) someone earlier suggested I pm her, but I can't remember who or why lol! chemo brain. OK, time to quit whinning, bite the bullet and do what my doctor says I need to do. I just needed a kick in the b*** from someone whose been there.

    Rita - I have a very bad habit of closing myself off sometimes when I'm dealing with something tough.  I'm working on that! I would love to talk to your friend about the Zometa, thanks.

    Sweet Dreams to every one.  Bren

  • blackjack
    blackjack Member Posts: 771
    edited June 2008

    Hi Ladies,

    Just thought I check in to see how everyone is doing. As for me, surgery went well except that I didn't think that a gallbladder could give you so much pain. I can't really sit up for too long because of the stitches. So I am taking those lovely pain meds....to help me.

    Wendy..don't worry about that MRI result..it will be fine..what is this foot problem. Are you and Laura comparing notes about feet. lol The compression boots are on your legs during OR and after to prevent blood clots in your legs. They alternated pressure on each leg to circulate the blood, like a private massage. lol

    Leesa..how was chemo..hope all went well today.

    Rita..glad to hear that your md appoint went well.

    Laura..how is your foot doing?? feeling better

    Oh I hope everyone is doing well..getting very dizzy now must be the meds..gotta go..take care..will ck back later

    blackjack

  • illinoislady
    illinoislady Member Posts: 39,778
    edited June 2008

    Beautiful night going on even if it's a little sultry.  I thought I'd try a quote  with a little fun in it......I've been working most of the day and still have a ton of things to do before I can truly sit down for the night.  SOT ( same old thing ) going on...the day before I go to work is always catch up and it never comes out very good.  My better half was feeling stressed so I ended up doing a lot of the work he should have had done last week and nearly pooping myself out....

    Now, I'll have to get my kitchen cleaned back up--it's part way done and some ironing so I'll have something ready for the morning.

    Glad WAM and Brenda checked in...I was wondering if I needed to worry. 

    Looking forward to getting my permanent markers/tattoos Friday.  On the way home we will go through Mt. Vernon and I'll pick up my glasses. 

    Got the Aloe-Vera Jel the Radiologist said to get----seems sort of plain and ordinary, but it may work just fine.

    My hair is looking rather light...starting to worry it could end up my early years natural color of lt. Dishwater blond and really---I want it to be red or at least have lots of red highlights.  Now, I am starting to be rather anxious for all of it to hurry up....mainly as the few summer scarves and hats I have all seem rather warm to me.  You may recall that I mentioned---I only wear my wig when I'm working or going out in public now and then.  My family is fine with my not wearing anything so that's good, but I end up having to put something on more than I would like. 

    Who did I mention too that I was always bi***ing about something? 

    Your welcome Laura...and you were cute and you looked about 22 as does Wendy and a few others.  I'm a little jealous here but I won't gripe too much---I am who I was meant to be and beauty and brains is not a part of it...but I have always been pretty much ok with that. 

    Gotta run....Ya'll have a wonderful day tomorrow.

    Jackie

  • leesa
    leesa Member Posts: 57
    edited June 2008

    Hi All,

    Michelle, please let me know if you need anything, I love you and I hope you have an easy recovery.

    Pat, thanks for keeping us informed of Michelle's, condition, your are wonderful and I love you too.

    I'm kind of foggy and pooped, chemo didn't go as well as last time, I had that stupid Taxotere reaction, so they wouldn't let me finish it, only half the treatment, I have to go back tomorrow for my carbo, and I may never get to start the avastin, this was the drug that was to stop the recreation of cancer cells in my chest wall, it's more effective with the taxo, and my blood clots arn't small enough to go off the lovenex, and the avastin caused bleeding. I'm bi*^y and crabby,

    Love and kisses.

    Leesa 

    ps whats that saying about not complaining about the storm but learning to dance in the rain. 

  • leesa
    leesa Member Posts: 57
    edited June 2008

    Sharon,

    I'm so sorry about missing your birthday, I had computer issues and I'm just a big dork.

    Happy belated birthay, my dear friend

    Love

    Leesa 

  • Jule
    Jule Member Posts: 85
    edited June 2008

    Hi everyone. I went to see my onc today to do follow-up, and the tumor is getting bigger. It feels bigger (just from a physical exam) and she told me that this is normal and that it should start going down after the 3rd treatment. I only have 6 total! Does this sound right?

    On another note, I changed my tx days from Thursday to Wednesday in the hopes that my worst se would fall on the weekend as last time I felt bad from Sunday through Tuesday. I am hoping that this will work, and she told me that my se would probably follow a similiar schedule. Has anyone else had the same experience?

    Finally it's day 14, and my scalp feels a bit odd and my hair feels a little weird. I am worried about waking up with hair all over the place. It probably doesn't work like that right? My husband said that doesn't make sense, but he doesn't know either.  I just want to get some sleep but I really don't want to wake up to that at all. I also noticed that other body hair was coming out tonight which I thought would happen later if at all.

    Sorry to be a complainer, I just want to know what is going to happen so I can be prepared.  

  • maryjane8
    maryjane8 Member Posts: 68
    edited June 2008

    Hi Ladies,

    It's hard to believe it was just a week ago we had such a nice evening together. Just wanted to say hi. My only news is that the buyer on my Mother's house backed out so we are back to square one. Oh well, another one will come along. It was really hot and muggy here today and we've had about 3 inches of rain in two days. A tornado was sighted a few miles from here yesterday morning, but so far we haven't had to run to the basement!

    Sending good wishes to everyone having treatments this week.

    MaryJane

  • kater
    kater Member Posts: 447
    edited June 2008

    Hair Loss: Jule

    I took a long walk brushing my hair and letting it blow in the wind as it brushed out. It was a happy memory!!

    I never noticed the body hair, I guess it went along well with all my cat and dog hair around the house....8-)

    Kater

  • wendyk13
    wendyk13 Member Posts: 1,458
    edited June 2008

     Morning All!

    Blackjack....see the lounge chairs on the sand?  You are in the right one and if you look very close...you'll see me in the left one, martini in hand!  Aaaaaahhhhhh....love the way those beach boys are rubbing that oil into our shoulders...feels soooo good, doesn't it?  All kidding aside...hope you are doing well and the pain is more tolerable today.

    Jule....that's exactly how I knew my hair was dead....it wouldn't "do" anything...just very dry and dull and crispy.  I simply pulled gently in the shower, with the drain covered and it started to come out.  Took a few days for it all to pull out.  Didn't hurt.  And I refused to shave it off, but that's me.  I too don't remember when the body hair went...just noticed one day that I didn't have to shave anymore.  Don't do what I did tho.....got so used to NOT shaving under my R arm that I had had a few rads before I noticed that it had come back!  I took care of that and then apologized to the rad techs about my fur ball!  So....keep checking...you never know!  And Jule....we know how hard this is going to be and nothing we can say will make it better so I won't even try.  Mine came back all gray (but I'm 55) but so much thicker and with body and a bit of a wave and I like my hair so much better short that I am keeping it this way.  And PLEASE come here and complain and b**ch and vent and yell and scream.  That's what this group is here for....you are part of our little family...and we so totally get it.  And I can't comment on whether a tumor gets bigger while on chemo as I did chemo after the tumor was out.  It doesn't sound right to me, but it could very well be exactly what does happen.  Maybe post your question under the chemo thread?  Someone will get back to you on this.

    Compression boots?  That doesn't sound like what I thought those squeezy leg thingies were called...I remembered compression boots but I thought there was a more "technical" term.  Truthfully I like leg squeezy thingies better....everyone can instantly picture what I am talking about.  Kinda like saying "jumpy thing" when talking about an outdoor inflatable play yard....jumpy thing is so much better.

    Jackie.....my tatoos are gone...my body absorbed them.  Just a word of warning tho.  I do bruise easily and I was totally horrified the day after I got marked.  I thought those 3 huge black and blue marks were the tatoos!  Not so...actual marks were soooo tiny they had a hard time finding them every morning and actually wanted to redo them...I said sorry, out of luck boys!  So they used a sharpie and put little clear stickies over the marks every Monday morning.  I say....should have done that in the first place!

    Brenda....Yay!  You learned to PM!  Took me weeks before I figured it out.  We wanted you to think about PM'ing Laura with your personal stuff (address, phone #'s, e-mail, BD, Dx date etc) ONLY IF YOU WANTED TO!!!!  Then she would send you a copy of all our personal stuff.  We don't post anything like that here as this is a public forum.  You don't have to do this....totally up to you.

    Leesa....you are such a trooper and so not a dork!  I wish Mr. Chemo was treating you better.  Are your clots still shrinking tho?  You need anything?

    Boy....I am so late this morning...time to get moving.  Everybody I missed...hope you are all well (as well as you can be!) and please have a wonderful Thursday!  That new show starts tonight..."Swingtown"...sounds interesting but just hope I am still awake at 9pm!

    Love you guys....tops down, fists up!

  • ritajean
    ritajean Member Posts: 4,042
    edited June 2008

    Wendy the Wise, I rode around all day yesterday with my top down and my fists up....just thinking about you!  LOL  It was so much fun!

    Bren...so glad to have you back.  I sent you another PM so that you can "practice your PM-ing skills."  You are now officially a "rad grad!"  That part of the journey is over.  Don't be surprised if you still have problems with all the unknowns that still hang over our heads.  It is SO normal to still be anxious and so hard to make decisions about Femara and similar drugs.  You will make the right decision for you and we'll be here to help you try to find the "after bc you."  Please check in often.

    Wendy the Younger...you escaped and found the computer!!!!!  I WON'T TELL!!!  If it didn't bother your arm too much, try it again! 

    :-)    I think you still need to tell the gross story from the gross nurse about the "bubble juice!"

    Hey. did any of you others get a personalized boob card like Wendy the Younger or is she just special?  This is the funniest card.  It looks just like a credit card but actually has a picture of a naked boob on it.  Must make her feel like the "boob goddess!"

    Michele, Starved Rock is just gorgeous.  I haven't been there for several years so I'm anxious to get back.  There are many walking trails and the scenic views are lovely.  There are walk-outs in several places with seats where we could sit and view the scenery and talk.   Check out their website to see if there is anything special that you don't want to miss while you are there.  It is truly an Illinois natural wonder.

    Kater, please give us an update on JoAnna.  I didn't know that she was having trouble.  Was her visit to the hospital routine or did something come up?

    Leesa...so sorry that they had to stop the chemo.  You hang in there honey.  This is just another one of those d*** speed bumps in life's road.  PLEASE keep in touch and let us know how you are doing.  We're all here for you!!!

    MaryJane...so glad to see a post from you.  Wow!  That tornado was pretty close to you.  We had the terrible wind and rains but nothing that severe. 

    Jackie...tomorrow's the tatoo day!  In what city will you be staying while doing the rads?

    Laura...you are much cuter than Curious George.  He doesn't wear lipstick or earrings!  LOL  I really do like your hair that short.  It accents your lovely eyes!!!

    Well, I'm back to my walking routine and I need to get out there and walk before it gets too hot (not that I'm complaining about the heat...oh no, never after this last winter!!!). 

    Have a good day, gals!

    Rita

  • illinoislady
    illinoislady Member Posts: 39,778
    edited June 2008
    Brother, as you travel towards your goal, keep your eye upon the donut and not upon the hole

    - Maxwell House Coffee Billboard, 1946
  • illinoislady
    illinoislady Member Posts: 39,778
    edited June 2008

    Ok---I want to hear about the bubble juice.  Sounds like something that would still have you laughing.

    Leesa I'm sorry that you are having to struggle so with your chemo.  It is not so pleasant at times, but to not even be able to get a full tx must really be difficult.  My heart goes out to you. 

    Wendy, I bruise easy too so hmmm, wonder what I will look like after tomorrow.  Very anxious to get started and hope i get a little more of the schedule and what I'm doing.  I like lots of time to prepare and the holding vital info to the last minute is making me crazy  ----  and not to mention putting a few burdens on my co-workers and boss here at work at they don't know what to do with the schedule so far.

    May baby sit a friends cat over the week-end.  I'm not thrilled, but she is in a bind.  I will have lots to do---specially if I do end up starting on Monday so I'll be 'home' working and can easily do it.  Just that she hand feeds the cat ( not at my house does it happen that way ) and so we will see.

    i never had compression boots when I had surgery....just those very tight white stockings---still don't know how they got those on me, but they were very tight. 

    Gosh, I'm trying not to whine, but it's sure been hot and muggy very early here.  Last year we did not turn on the air conditioner until the 1st. of August.  I'm wondering if we are not going to have to break down this week and do it.  Not what I thought would happen, but that pattern that came this year ( feast or famine thing ) is still playing out.  A week and a half ago it was still on the chilly side..now we are broiling just a bit.  Well, with all the moisture we have had and sounds like we will continue to have it's no surprise. 

    Hope you all have a fantastic day.  You are all in my thoughts.

    Love,  Jackie

  • conniehar
    conniehar Member Posts: 585
    edited June 2008

    Hi girls -

    Leesa - so sorry you are having so much trouble with chemo. 

    blackjack - sorry you are in so much pain - I hope it gets better soon.  I'm headed to Vegas on Sunday so I will hit a slot machine for you!  Maybe I will have better luck since you are always the big winner.

    Julie -  I haven't heard that about a tumor getting bigger before it gets smaller, but maybe it's just tissue reacting and revolting.  Yes, you have a few days before all your hair falls out.  Mine started on a Sunday and even by Thursday it was still not bad - I had a little bald spot in the front but otherwise it looked ok. I had it shaved off on that Thursday.  Yes, your se's should move if you change your chemo day.  Good luck!

    Jackie -  my hair was white when it first started coming back in, then it changed to a dark gray and finally it is back to my normal dark brown.  I was quite worried with that white peach fuzz at first.  Glad to hear it's coming back - that's exciting!

     I have a boob card for my implant (Mich101 has one too), but it is just a dark maroon card - no boob pictures.  I guess I got the G version.  I didn't have one with my expander though.  And BTW, I never set off any airport security whistles with the expander even though I was also told it might happen.

    Hi to all those I missed.  Thinking of you!

  • tdbear
    tdbear Member Posts: 286
    edited June 2008

    Happy Thursday all! My what a busy group!! Hard to keep up with you all! Laughing

    Leesa Sorry to hear chemo is so hard on you! And it's kinda hard "to dance in the rain" when you feel like your drowning!! But there is light at the end of the tunnel....get out your glo stick to help you find the way!Wink

    Jule, from what I hear it is very normal for tumor to grow as it sucks up all that chemo get it big and fat on poisin!! I tried brushing my hair a LOT as it fell out but I had to shave my head...longish hair falling out made it hard to cook & clean house!!LOL Guess I'm one of the lucky ones, body hair came back but not very much.... no need to shave, it's so sparse can't tell it's there even!

    Bren Congrads A RAD GRAD!!!I was on femera for about 6 weeks, only se I had was bad body aches, got pretty bad so am now on aromasin( been about 2 years now). No problems..Just the never ending hot flashes!! But was told it's not really the rx causing that..just adding to them!! 

    Wendy The Younger....A boobie card?? gross bubblie juice....we just have to hear more. Maybe you can scan the card & post it for us all to see... 

    Blackjack hope you are feeling better!!

    Laura If you don't rest that foot you'll never graduate out of the "boot camp"!!

    Sparker glad you popped in. Sounds like you are keeping busy. As grandma raising a 16 y o grand daughter I know all about the bored teenager "symdrome" Summer is sometimes to long LOL

    Jackie hopefully by now you've got your tattoos and you'll all scheduled, think the hardest thing about this journey is not knowing & waiting!! I still have my tattoos look like  black freckles. Not that anyone else can see them.

    Rita, hope you are enjoying plenty of golf...to cold & wet here. Weather this year is way not normal!! ( falls into the "Weird the new normal") LOL

    Connie have a wonderful time in LV!!! Win big!!!

    BIG (((((HUGS)))) to everyone especialy the new gals!!

    Do we have a "head count" as to how many members we have? Think I've lost track of a few (lost in chemo brain ! LOL)

    Back to work  before someone figures out I'm not working on the books!!!

    Have a wonderful day!!

    Karin

  • bren51
    bren51 Member Posts: 9
    edited June 2008

    Hey everyone - thanks for the congrats on being a rad grad!!!  Now onto the next chapter.  Karin- thanks for the info on Femara, I guess if se's are too bad I have the option of switching.

    Jackie - Good luck with radiation- so much easier than chemo.  My advise is to use the heck out of that aloe vera or my doc had me use aquafor (over the counter).  Also tattoos weren't bad - I had same experience as Wendy - magic marker in the beginning which freaked me out when I went into the dressing room and had a long mark down my neck lol!  I was praying I didn't have to walk around with that for 6 weeks (which I didn't!)  Also - color of hair - my hair started coming in white & fuzzy so I shaved it again - then it started coming in really dark- now I got a little salt & pepper thing goin on (but I am 54 - even though Ididn't have any gray prior to bc).  No biggie to me.  Hopefully my hair will come in thicker & the new med I'm taking wont make me go bald again lol! 

    Jule - when I started feeling that weird feeling in my hair - it felt like someone was pulling my hair- it really bugged me so I just shaved my head and got it over with.  It was emotional at first but believe me not having to do your hair isn't all that bad really - especially with everything else you have to deal with. 

    Wendy - TY for reminding me on why I was to pm Laura - I will do that w/all the info.  LOL -

    Well girls- I wore capris to work today - and as I was talking to a co-worker (we were checking out my feet & ankles and were commenting that the swelling is really improving) and as I put my hand down on my leg I realized that my legs were hairy!  And I have a really cute (young) radiation tech lol!  Need to get out the razor!  I'm not going to be one of the fortunate ones whose body hair doesn't come back!  Not complaining about having to shave though!

    For those who are just in the beginning of this journey my heart and prayers are with you.  Some days seem to never end when you dont feel well (I know, because I had a very rough time through chemo) - but now that I am through it - I promise you that you can do it and you will get through even the toughest days.

    Keep the Faith - Bren

  • WendyTY
    WendyTY Member Posts: 94
    edited June 2008

    Okay...back by popular demand with another story - "Booby Juice".  Although, I have to warn you all that it is pretty damn gross but brief.  If you have a weak stomach, you may choose to skip this story.  I could have done without it.

    I will preface the story with a little personal background.  I do not have a strong stomach.  My fear of needles and tests are absolutely insane.  I'm not sure how I will make it through chemo.  But, I will!  Thank God for my mother and her wonderful care.  It took a long time before I could even look at my drains let alone the scars. 

    Here goes...

    Once again, I was in the hospital sitting in a recliner with the suction machine making the wonderful sucking noise...slurrrrr and the wonderful aroma of hospital cleaning supplies.  The shift change had just taken place.  I now had a nurse from the oncology ward for a couple of hours. 

    The new nurse walked into the room and examined my drains.  She then proceeded to empty them while she was talking to me.  Quickly she asked if I have a "weak stomach".  Not waiting to hear my answer, she begins to tell me a story about a gentleman patient she had in the past. 

    She went on to tell me that she walked into this patients room to find him drinking from his drain.  Yuck...

    SurprisedFrownFoot in mouth

    Why in the world would she think that I would find this story funny I will never understand.  She is lucky I didn't puke on her.  Now looking back I wish I would have. 

    I knew then and there that I wasn't going to get great care from her.  Maybe it was her way of saying "do you need anything now, because I won't be back again". 

    Enough of my terrible stories. 

    I'll post a picture of my "boobie card" when I figure out how to do it.

    Take care and smile:)

    Wendy the Younger

  • maryjane8
    maryjane8 Member Posts: 68
    edited June 2008

    Hi girls,

    The mother of a gal I work with just found out she has bc. She's 76. The surgeon (not a specialist) didn't get all the tumor and recommended she have a mastectomy. She doesn't want to have any treatments. She's meeting with an oncologist Monday, but is adamant about no treatments. I know it is totally her choice, but I kept telling her daughter (my friend) to have her mother go to a breast cancer doctor. I said she didn't realize how insidious this disease is and she can't just go by what a general surgeon says. I know this isn't my business and I hope I didn't upset her, but at 76, her mother could live a lot of years if properly treated. Oh well, don't know what I expect anyone to do about it. Just wanted to rant I guess.

    Tomorrow I'm going to a funeral. The husband of a former teaching colleague died Monday. She left to have her hair done, came back and found him dead. Oh my.

    Aren't I cheerful? Bet you wish I'd go back to not posting. Frown

    Sorry.

    MaryJane

    Jackie - Rita and I are planning a road trip to come see you during radiation. Where is it, Carbondale or Mt. Vernon or .....

  • ritajean
    ritajean Member Posts: 4,042
    edited June 2008

    Hey Mary Jane....want me to send you the address and number of my breast surgeon in Peoria for your friend's mom...just in case she decides to give this a try?

    Yes, gals...Can you believe it??? It's really true!  LOL  I was sitting right there when that nurse told Wendy the booby juice story.  YUCK!  We couldn't believe that she felt the urge to reveal that to us.  Just like in the teaching profession, there are some people who should never become nurses!  I've met a few a teachers that I could say the same thing about!!!  Guess that's the case in all professions!

    This darn wind and rain is playing havoc with my golfing days.  Oh well, at least I'm getting some work done around here that needs to be done!

    Here's an uplifting story!  I've been hunting for tickets to the Cub game for July 12th, my son's birthday.  The Cubs are playing a day game that Saturday at Wrigley and my son is a die-hard Cub fan. (wonder where he got that from).   Except for the really high-priced tickets for sale on the Internet, I wasn't having much luck.  In May at the scholastic bowl state tournament, I had asked the young gentleman who bought my business and who lives in the city if he knew of any ticket sources where I could purchase tickets for that day.  He told me just to show up the morning of the game and purchase tickets from the scalpers....something I wasn't too excited about doing.  Yesterday he emailed to see if I was still looking for tickets.  He had found me four tickets to the game.  When I asked the price, he said, "They're on me for all you've done to help me the past few years."   It looks like we have plans for another trip into Chicago!  There are lots of good people out there!  I know that sometimes I focus too heavily on those frustrating and insensitive individuals that cross our paths and don't look closely enough at all the good people right around me.

    Leesa...hope you are feeling better today, hon!  Hang in there. 

    Julie R....any more news about you and what lies ahead?  I've been thinking about you!

    Bren....PM me your email address and I'll send you contact information for my friend who has had the Zometa treatment.  I had coffee with her yesterday and she said that she'd be glad to answer any questions that might have concerning the drug and her treatment.  I don't want to post her info on this open site, though.

    Connie...any MRI results yet?  Win, win, win in Vegas! 

    Hugs to Blackjack as you recover!  Hope you're feeling perkier every day!

    Hey Pat...is that bathroom finished?

    Laura...has this been a good week for you? 

    Hi Sharon...still enjoying your time in the states?

    Kater...you still didn't give us any clues about why JoAnna was in the hospital.  Is it something that you can share?

    Hi to everybody else!  I'll be back later but need to get moving today.  Who has exciting weekend plans?????? (beside that Connie who's heading for one of my favorite places!!!)

    Rita

  • illinoislady
    illinoislady Member Posts: 39,778
    edited June 2008

    Good morning everyone,

    Have to be quick here as I have to get ready for my big day---get permanent tattoos and hope like heck to get my FULL schedule---like vouchers for the motel and van information.  I really and truly do dislike being kept in the dark till the last possible moment.

    I will be doing the rads at Carbondale Hospital cancer center for now.  They have a satellite center in Marion, but are putting in a new machine so they might switch me once the machine is there---but they aren't going to tell me that now, of course.

    Well now Wendy the Y, I almost wish I hadn't asked.  I don't have a weak stomach actually but that is a pretty nappy story to tell anyone.  I can't imagine  any patient  deserving to hear things like that.  Something you might tell your co-worker or even the Dr....but another patient.  Totally un-called for and quite disgusting.  Your tummy must be moderately better  since you didn't give her any decoration for her uniform. 

    Your right Rita...she needs another profession if she can't learn to hold her tongue.

    Mary Jane your friends mother could live many more years, but I'm wondering if she has other medical issues and this last thing just overwhelms her.  Maybe she feels it's a way out from some of these other issues.........just a thought.  I hope your friend is able to talk her Mom into going to a cancer clinic/specialist and really find out HOW things REALLY are before she MAKES a life altering decision like no treatment.

    Rita, I loved the ticket story---there are a lot of Roses among the thorns---and we really have to have the thorns to bounce off of and to REALLY get big time how fantastic those Roses are.  It would all be so subtle.  The Thorns help us learn and grow and keep reminding us of what we DON'T want to be.  We all have our place in the world and I'm glad all of you are in this place...just not the reason why so much. 

    Blackjack, Leesa, Jule, Bren,Wendy the Y.....hope you all have a marvelous Friday....and start feeling great. 

    I'll talk to you again when I get home.  Hope to have much more news.

    Love, Jackie

  • blackjack
    blackjack Member Posts: 771
    edited June 2008

    Good Morning Ladies...

    Hope everyone is enjoying this very blustery day...The wind is whipping my poor flowers around... My poor fish couldn't eat  today because of the food being blown around too.

    As for me...the healing process is taking way too long for me. I am in really slow motion and can't get around very fast. I wish they would have told me that I would have instant wt loss from this....lol

    Anyway.. I hope to be better by next week so I can start summer school work. I think I am turning into a lazy butt...lol anyone we know. 

    Wendy.. I do really need that beach chair and drink...you can join me anytime honey.

    Leesa..hope all is well with your txs.

    Jackie..good luck today on your tattoo's. I only had sharpie X's as I refused to be tattooed..they stayed on the whole time so no problem there. I hope they give you nice accommodations for your txs.

    Rita..good day for golf..no rain by you. Nice to see that there are nice people in this world.. Hope the Cubs win that day for you.

    Connie..good luck in Vegas...Oh I do wish I was going too lol  Win big!!! Ck out the new hotel next to the Venitian..it is so beautiful..lots of waterfalls inside

    Jule R, Bren,Kater,MaryJane, Wendy the Y and everyone else I missed hope you have a great day.

    Smerf..Bathroom day off today yeah!! time to shop and lunch

    Will ck back later

    Remember be healthy..be happy..

    Blackjack

  • maryjane8
    maryjane8 Member Posts: 68
    edited June 2008

    Hi ladies,

    Thanks Rita and Jackie and Kater (by email) for your comments on my friend's 76 year old mother. Rita, I would like to give her your doctor's number just in case. Jackie, the mom has dealt with chemo before. She had colon cancer but I don't know how long ago. That may be what's making her so adamant against it.  Kater, I'll tell her what you said about it possibly being easier on the 50+ age group.

    Hope everyone has a good weekend. We may be going to the lake tomorrow and Sunday. Our boat is at Mark Twain Lake.

    Mary Jane

  • BustersMom
    BustersMom Member Posts: 260
    edited June 2008

    Wendy - you look cute as all heck in that photo!!

  • illinoislady
    illinoislady Member Posts: 39,778
    edited June 2008

    Hi all,

    I'm finally home...it's about 5:30.  Long day but I am tattooed now.  Got to tell you, it doesn't feel real swell when they do it.  The tech said they used a needle somehow and once they inserted it they put some ink ( a very small dot ) in the skin so that if the marks were erased they could still do the rads. 

    Well, I hope to tell you I want those pencil marks gone....they are all over me.  Still, I guess I'm never really prepared for some of these things as I thought the tattoo would be a little pinch but instead felt like a fair sized gouge.  Maybe I'm more of a baby about things than I ever knew....or maybe I finally got to the point where my tolerance for pain and distresas is no longer high as it once seemed to be. 

    Anyway...the good news is--ta-da, I start Monday at 11:30.  The bad news is I can't pick up the packet for vouchers etc till Monday.  This is just what I hoped to avoid, of course.  The lady at the lodging section I think could have probably easily made up this packet ( how big could it be ) and there sure wasn't much happening at her office that I could see.  Clean desk and no one in the waiting area, so I guess she just decided not too cause' it was Friday.  Never been that easy for me.  So, I'm still in the dark even if one big step closer. 

    I think we are due for some rather ominous weather...says thunderstorms, and tornadoes possible.  I hope it's not too bad.  Denny does not get off work until 9:30 or 10:00 tonight.  We will see how it goes.

    Well that's my news...not stunning but here we are--none too wise, but looking forward to getting things underway.

    Take care all.  Some time this week-end I'll try to p.m. my cell phone number....if I can figure out how to use the silly phone.  I'm not too good with the things and Denny will have to try and teach me. 

    Have a safe, good evening.

    Jackie

  • wendyk13
    wendyk13 Member Posts: 1,458
    edited June 2008

    Hi girls.....

    That booby juice story....why would that nurse even want to tell that story as I think it makes the nursing staff look like idiots for not explaining what the drain was all about.  Good lord!  Where has common sense gone?

    Julie...I look cute?  Where?  What picture?  I need copies!!!!

    Rita...I had to laugh at one of your posts when you were out in your convertible...tops down, and better make that "fist" up.  I've heard that it is better to have at least one hand on the steering wheel!

    Blackjack...you can't afford any weight loss!  What on you on for the pain?  Vics?

    Jackie...waiting to hear about your trip to the tatoo parlor!

    MaryJane....how awful for your friend!  I have my next hair appt 6/17 and my dh will be off of school by then...maybe I will just take him with me!

    Well....I DO NOT have bone mets and whew, that is a good thing but I have a reherniation at L5-S1, same place as last time.  This time I have decided, since I am pain-free for most of the day (if I don't move around a lot) I am going to start with a series of epidural injections with a few weeks of PT thrown in to see if we can quiet down that nerve and move the disc off of the nerve to alleviate the pain.  This could work perfectly, or not at all....or anywhere in-between.  Since I get such good pain relief from 1/2 a vicodin + some advil + good back exercises (while trying to correct my horrible, lousy posture) I figure that this just might work out Ok for me.  By the way...got my "pre-bill" from Delnor for the MRI...$5,011.26.  Yikes.  That goodness for insurance! 

    Connie....have a great weekend!

    Brenda...if you want to practice, you can send me PM's, but I think you have it figured out!

    WendytheYOunger....have Rita take a pic of your booby card...she knows how to post pics.  I take it you are feeling better as you have been allowed more computer time!

    HAve a great evening everyone...this wind is nutso!  But none of it reaches our bedroom windows so I am thinking about putting on the AC for sleeping...it was very warm and humid last and it was uncomfortable.  But no rain...and anyway....I AM NOT COMPLAINING, GOD....PLEASE DON'T SEND SNOW!!