Illinois ladies facing bc

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  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited June 2008

    Jackie - My thoughts are with you! Hang in there...you are a trooper...and remember ILLINOIS GIRLS ARE TOUGH. But also remember...we have our moments...we are here for you!

    Wendrew - I'm so happy you have appts scheduled...you're right on track and I'm wishing the very best and quickest resolution.  

    Rita - AHHHHH..you have inspired me to try to relax and enjoy quiet moments...I am not good at that...I possess this internal "thing" that makes me feel as though I ALWAYS HAVE TO BE DOING SOMETHING. Why is that!  Can't wait to see you on the 28th! And...my foot is better. I'm only wearing the boot occasionally because it has totally screwed up my knee. I go for another x-ray in a week...if it's healed at that point...I can kiss that nasty boot GOODBYE! LOL  

    JanC - New boobs, new kitchen, new garage...fasten your seat belt girl! I would love to walk again...but Dr's orders prevent me from doing that. BUMMER... I feel so out of shape and flabby - the first time I have felt like this in my 48 years on this earth. If you need any advice or just opinions with your remodel choices...let me know...I designed and contracted our house.  

    Susan - Thanks for the info! Wow...I will look into that...BIG TIME. Up until recently we have been told that round-up or Garlon is the only way to go. I love a more natural remedy.  

    IRENA - Best wishes to you...glad you chimed in...we have not forgotten about you!  

    blackjack - How are you feeling? How did your post op appt go?   Wendrew - I'm sending an MRI machine salesman to your house...LOL He'll explain how to use it, so once it's delivered...we'll be good to go! LOL How's your back doing?  

    Leesa - Bummer...I'm sorry you have to deal with all this crap! But your attitude will help you through this AND SO WILL WE! Keep smiling, sister...I know it's tough!  

    JulieR - Man...you do have a lot going on girl...I remember back to then...it's somewhat of a whirlwind...I worried about the timing of my surgery as well because it had to be postponed due to the development of a HUGE Hematoma caused by an invasive biopsy...rest assured...few (if any) Dr's would put themselves into an issue of liability if time was of the essence. 

    Jule - 5 left! Best wishes with the computer too!   

    Becky - good luck with #2! Your journey will be a roller coaster of emotions and fears and anxiety. You will deal with each and react as best you can. Some highs and some lows. But try to remember that you will also have none of the above SOME DAY SOON....  

    Connie, Mich, smerf, kater, karin (hey where have you been?), Sharon, Joanna, kats, MaryJane, Ginny, Sabrina, Nancy...hi there!   ------------------------------------------

    Girlz - Hi there... DOES ANYONE NEED A MAGGIANOS FIX? I was wondering if anyone is available to meet for lunch next Friday (it happens to be officially the first day of summer)? We still need to bring the manager a photo of us all...he asked for one the last time we were there. And...I think it would be great to send a letter and a photo to Let Us Entertain You Corp...telling them how awesome the Schaumburg crew has been to us. Wadda ya think? Have a great day...

  • wendyk13
    wendyk13 Member Posts: 1,458
    edited June 2008

    Hey again...since I now need to be around all day today and keep an eye on what's going on in my yard, I will try and catch up.  And will someone PLEASE tell me why men ALWAYS need to adjust themselves?  Do they think this is sexy?  Yuck.

    Laura....send that MRI guy!  I did find out that the MRI centers charge about HALF what hospitals do.  I am going to ask my neuro about going to the place right next door to his naperville office.  I just figured that if I needed surgery it would be nice to have the films instantly available.  But Delnor's price is ridiculous!  And of course, I don't even have the radiologist bill yet!  I wuld love to have lunch a week from Friday!  My inj is on Wed am and hopefully it will work!  But even if it doesn't I start PT on 6/23 and I think that's what will help the most.  Sitting doesn't bother me.  And yes....we should print out a copy of that photo of all of us on the stairs...and we should send a copy to Lettuce!  What a great idea!  Do I smell a free lunch????

    Karin....I agree with Laura...I know you are busy but you've been so quiet lately.  Are you OK?  Can we help with anything?

    Becky...another one done!!!!  Just keep thinking...small numbers!  You can do small numbers of ANYTHING!!  Keep your eye on the prize!

    JoAnna...how are you feeling?

    Kater....get any sleep last night?  Don't know how you do it....I'm in bed by 9, and never see 10!

    Jan...how are the boobies?

    OK...now the crew (now that the big boss is gone) are playing tag.  Good thing I am paying for the project, not by the hour.  Men!  Just little boys, aren't they?  And I REALLY need them to stop with the hand down the pants....moving stuff around.  Really yucky.  DH had informed me that sometimes you just need to move them, but usually it is done behind closed doors.  Like Elaine once said in a Seinfeld episode..."I don't know how you men walk around with those things".

    OK...now they are playing frisbee. Oh well...there seems to be some Thin Man movies on so I guess I will make some more coffee and pull down the shades.  This is just silly.  I guess I have to say it again...MEN!!!!

    I will look for the swan story....

  • wendyk13
    wendyk13 Member Posts: 1,458
    edited June 2008

    Here's the swan story...and yes, I did kill a squirrel and there was the big dragon fly up the nose in the parking lot of rads story....

    Funny thing happened at rads today that I thought you guys would get a kick out of. Remember me telling you about running over a squirrel and then getting a big bug up my nose in the parking lot at rads? Well today I come out after getting zapped....mind you, there is a beautiful pond on the hospital grounds with a swan family...walking toward my car and right behind it is Mama and Papa swan and 8 little swan babies, just sitting there. Well I do remember swans can be very nasty so I tried clapping my hands and yelling "shoo"...nothing. I walked closer to my car and the parents reared up and came towards me, flapping their wings. I backed up...we tried this for almost 10 minutes. I can't get to my car and even if I could I couldn't back up. So there I am, running around a cancer care parking lot, yelling "shoo" at a bunch of swans. Other people are pulling in, once again staring at the crazy cancer lady, screaming in the parking lot. It struck me as so hilarious I just sat down on the pavement and laughed and laughed! Finally I did get the idea to hit the panic button on my car alarm and that did startle them enough to move a bit and I just ran for the car and threw myself in on the passenger side and slammed the door.

    How completely wierd...first the squirrel, then the bug now the killer swans. I don't think I even dare to go back to rads tomorrow!

    You know....that was over a year ago...funny how fast the time has gone.  And that is scary....Laura, this should teach you to slow down and smell those roses!

  • conniehar
    conniehar Member Posts: 585
    edited June 2008

    Hi girls - just real quick.  I got a message today that my MRI was "completely normal".  Yippee!!

    Getting ready to leave work so I will try to check in later.  Hope everyone is doing well.

  • ritajean
    ritajean Member Posts: 4,042
    edited June 2008

    Wonderful, Connie!  I've been waiting to hear this good news!!!  SUPER!!!  CELEBRATE!!!!

    Rita

  • Becky--IL
    Becky--IL Member Posts: 19
    edited June 2008

    Thanks for the positive thoughts on my 2nd treatment. It went well yesterday, feeling ok so far, just wait and see how the next several days go.  Hopefully the se's will be low. 

    It's day 15 now since first chemo and starting to see the hair falling out.Cry  I know will will grow back but right now it's very upsetting.

    Hope everyone has a good evening. Will check back later.

    Becky

  • tdbear
    tdbear Member Posts: 286
    edited June 2008

    HI ALL!!! I know I've been MIA again....Just not enough hours in the day and not enough computer time!!!!

    The owner @ my work decided to re-do a lot of things here.....Before we got the supplies.. You know, like starting to re-model the bath before you have even picked out a tub or sink!!!

    Add in that my gd is out of school, w/ nothing to do for almost a week. ( not much worse than a bored 16 yr old!)

    Next week is my almost 2 year check up w/onc. Not really looking forward to that. Hopefully will have more time to catch up w/ you all this weekend!!

    EVERYONE have a DRY and fun weekend!!

  • zap
    zap Member Posts: 1,850
    edited June 2008

    Connie:

    I am so happy!  Just so very happy for you!

    Susan 

  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited June 2008

    Connie - YIPPEE...You are dancing with NED! Isn't NED just great!

    Becky - It breaks my heart when I read about the start of you girls losing your hair. I remember...it is quite upsetting...IMO because it's indicative of all you're enduring. I'm sorry...you will reach a moment when you accept it, and you'll find solice knowing it's a side effect of much appreciated/available treatment. The one thing that helped me ALOT...I kept reminding myself that I was GETTING ALL NEW CELLS! Brand SPANKING NEW cells...maybe this will help you as well.

    WENDREW - OMG - I SOOOOOOOOOOOOOOOOO remember that story! CRIPE...I am ROFL...you are so frickin funny...I can't stand it. Just a thought...it is possible that the garden doods aren't really "adjusting"...perhaps they have embedded ticks...ya know working outdoors and all...hmmmmm! OMG....forgive me! LOL LOL LOL Playing tag and Frisbee?...OMG help me...CSL (can't stop laughing)!

  • Mich101
    Mich101 Member Posts: 489
    edited June 2008

    Connie-Yeah! Great News!

    Rita- One of my sons has a job, the other, not yet.

    So far they are just hanging out with friends (swimming, girls, volleyball, paintball, frisbee, more girls,etc.)It's nice that they now can drive themselves/friends around. Although I worry about the usual: who, what, where, when......

    Karin-glad you checked in.

    JulieR-I was diagnosed in Oct 06 and did not have my surgery until Dec 06 because of waiting on results, 2nd opinions etc. I too thought am I waiting too long? But I could not bring myself to decide lump or mast. until I had my questions answered. I had a uni. mast w/ lat flap recon.

    Hugs to everyone else even if I haven't addressed you personally, I read all the posts.

    Wendy-you crack me up!

  • lisamed123
    lisamed123 Member Posts: 87
    edited June 2008

    Becky,

    Regarding the hair loss - get a good wig.  Unfortunately, you get what you pay for.  I went to a place in Willowbrook, Illinois called Naturally Yours for my wig.  The woman there who helped me pick out a wig is a hairdresser and she had bc five years ago.  I think she is now 44.  I cut my hair the style of my wig about 2 weeks before my hair started falling out and that helped tremendously with the transition.  I had really long hair and now have a chin-length bob with banks.  My wig was sewn to fit my head and was trimmed to my specifications and some of the volume taken off the top so it did not look so "wigish".  I have strangers telling my how much they like my "hair".  It takes a couple of days to get used to the feeling, but now it feels fine and wear it about 10 hours for work and my commute.

    Lisa

  • illinoislady
    illinoislady Member Posts: 39,778
    edited June 2008

    I so loved the stories Wendy.  About the swans and the other animals and bugs--my first time to hear them.  They are hilarious.  Also your take on the workmen.  I figure those guys knowing ladies might just be checking them out from behind the curtains may only be "proving" what he-men they really are--nothing like a locker room jock is there???

    Becky, Bren, Jule, Wendy the Younger.....just hang in there.  So much about this is not easy and losing your hair is a most difficult part.  After all, basically it has been with you your whole life and it helps define who you are---but by willingly losing it you are helping to save your own life. You will get use to the idea even if part of you continues to detest having had to do it, but you will go on and I think in many ways become a better and stronger you.  You will have accomplished this miracle of giving yourself contininuity  and hopefully like me figure that the price hasn't been so high after all. 

    Before I forget, Connie--how fantastic about your test.  May the next 55 be just as good as this one. 

    Wendy, I will get back to you this week-end when I can write more.  This machine seems to get better with use, but still a bit rugged for me.  Hey, I have to gripe about something don't I so you can be sure it's me. 

    I am really enjoying reading the posts and glad that I don't have to catch up on ALL of them when I get home. 

    Denny will pick me up tomorrow at the hospital.  The treatments are going fine.  Very quick already.  Aloe Vera Jel is doing fine but it's early yet.

    Well, need to go in case anyone else needs this machine.  See ya.

    Jackie

  • BustersMom
    BustersMom Member Posts: 260
    edited June 2008

    Good evening all of you wonderful ladies!    

    My very nice surgeon hunted down today's CT Scan & Chest Xray results and called me at home tonight. 

    Both came back clear - although he mentioned a "cyst on my liver that is nothing to worry about."  Well - then don't tell me about it.  doh! 

    Surgery is scheduled for July 8th (PS couldn't do the 2nd/3rd). 

    Guess I get a few extra weeks to enjoy the warm weather - gotta put a positive spin on it, right?

    LauraGTO, RitaJean, Mich101, WendyK - thanks for the reassurances..  knowing that everyone had several weeks (or even 2 mos. for michele) makes me feel better.  

    Connie - glad to hear your MRI was all clear!

    JanClare - wowie, $7k boobs!  I hope they buy you dinner ;)  Seriously, congrats on getting them.  I would do the same thing!

    Becky - I'm following your story too.  Sorry to hear about your hair & the distress it is causing.  I'm a couple of months behind you so I'm listening & learning.

    Everyone else - I hope you are doing okay.  Tomorrow is a DFD (Doctor Free Day!) so I plan to do some things around the house & just chill out.  Hoping to get to the Chicago Botanic Garden on Saturday morning; the forecast is looking good for Saturday.

    Big hugs eveyone, thanks for all of your thoughts & just taking the time to read my posts.  I think I'd go loco without you guys.

    JulieR

  • wendyk13
    wendyk13 Member Posts: 1,458
    edited June 2008

    Morning!  Wow....big storms!  My new landscaping made it thru...only thing that happened was one of my big pots tipped over.  Those guys tho yesterday?  So funny.  They do good work tho and really clean-up after themselves.

    Jackie...YAY!  You get to go home today!  I am soooo happy for you!

    JulieR....YAY!!! Scan is clear!  What do they think is causing your tummy problem?  I've always wanted to go to the Botanic Gardens and tomorrow does look like a fine day.  Enjoy!  Can you make lunch at Maggiano's next Friday?

    Connie...YAY!!!!  Good MRI!!!!! Double Yay!!!!!

    Karin...glad you checked in, oooh a bored 16yr old...that can be very, very bad.  You have my sympathy....

    Becky....I do remember how I felt when I pulled out that first handful of hair.  It was so awful I just cried and cried.  And there isn't really anything I can say or do to make it any easier for you.  Just hopefully knowing that you are not alone and we do know what you are going thru and it does become "okay".  REally it does.  And no, I didn't believe it either.  But it will be OK.  You don't have to like it but you will be OK.  I confess I am a bit of a girly-girl and am always picking up the newest hair stuff.  I must have saved hundreds and hundreds of dollars on junk to make my hair perfect.  And no...I didn't save that money...I kept buying new little wigs from wigs.com!  It was fun (really, fun!) to go to my "wig" room and decide who I wanted to be for the day...they were all the same color but different lengths and styles.  And your "hair"?  Well talk about good hair days!  Your "hair" is always perfect!  I am now back to complaining about my hair...funny I guess.  But I do know how horrible this is for you and hugs, honey.  Just hang in there...

    Susan...can you make lunch next Friday at Maggiano's?  I would so love to meet you!

    Lisa...Hi there!  I don't think I've seen you post here before!  Just wanted to say that I too found my wigs very comfy and wore them ALL the time.  Funny thing tho...all my hair is growing at it's normal rate normal EXCEPT where the wig hit my hairline...almost no growth!  My suggestion to you?  Take your wig off when you can, as soon as you can...and massage that area along the hairline.  Not sure if this will make a difference but it will get the blood flowing.   Just a thought....

    Rita, MaryJane, WendytheYOunger....how is the weather down by you?  No flooding I hope...this weather is crazy!  Almost the middle of June and I have yet to pull out the sprinklers.

    Leesa....how are things by you?  Is that blood clot doing any better?

    Blackjack...boating this weekend?  Looks good, weather-wise.  How are the lake levels up there?

    To everyone I have missed....hope you are all well...Pat...enjoy those kids and Kudos to your son for his doctorate in Math...wow, I'm impressed!

    Tops down, fist up!

  • tdbear
    tdbear Member Posts: 286
    edited June 2008

    Hope everyone has weathered the storm and flooding....I chringe every time the news says worst tornado weather in the mid-west..

    short visit I have to take DH to Dr...are all men babies when it comes to Dr's??? Then off swim suit shopping for gd. And with her body shape that could take a LONG while.

    Everyone have a wonderful day

    psss Wendy did you plant garlic too haven't heard about your vamp's next door!Wink

  • BustersMom
    BustersMom Member Posts: 260
    edited June 2008

    WendyK - lunch at Maggianos?  YUM!!!  That sounds great :)

     I'll hope for better tummy times by then.

     Awaiting the c-dif results today - and if that comes back okay, well I guess it's all about the stress (?) 

    Speaking of the storms, our power was off, on, off, on through the nite - finally I gave up on resetting the clock, LOL!   Guess we have a bit more rain coming today.

    Hope everyone is doing well today.    Take care, JulieR

  • zap
    zap Member Posts: 1,850
    edited June 2008

    Hi all:

    My brother comes in with his two adopted kids from Vietnam and they will be here during your luncheons (Maggiano and Starved Rock)  I want to go to one but am not certain if most of you are going to Starved Rock  or Woodfield.  Wendy, are you going to Starved Rock?  Let me know as I would like to go to at least one.

    Yes, my brother (age 64) has two adopted children from Vietnam.  They are 6 and are not of the same birth mother.  I adore them.  He has had them since infants.  He went to an orphanage in Vietnam to pick up one baby and he returned home with two.  They live in DC and come during summer so I can trek them about Chicago.  This year they will see my grandaughter (age one) for the first time as Anne was just huge with child last summer.  I have trouble figuring out their relationship to her.

    I know that I can do one luncheon.  Is there anyway we can get a head count on who is doing what luncheon. I hate picking one over the other but I need to be with the most ladies at one time!

     Keep dry.  The news I see on the flooding is heartbreaking! Jackie, enjoy your reprieve from those rads!

    Susan 

  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited June 2008

    Hi Girlz! Hope you are having a Good Friday!

    So happy about next Friday!...can't wait...

    Susan - Wow...that's amazing about your bro! Hope to see you at one or both get togethers!

    karin - Glad you checked in...how did the swimsuit shopping go? 

    JulieR - One more thing...When I had my ct of the chest, abdomin and pelvis several spots showed up in my lungs and several Hemangiomas (similar to cysts) showed up on my liver, all of which they SWEAR are just cysts (and you better believe I made them raise their right hand). It took me quite a few months to NOT think it was mets, but that was 1.5 years ago...it's a frickin' roller coaster...but there is a straight away in your future!

    blackjack - thanks for being our reservationist! You are good!

    -------------------------

    Everyone...have a great evening! TGIFF (thank gawd it's frickin Friday!)

  • zap
    zap Member Posts: 1,850
    edited June 2008

    Yes, I want to chime in on this "cyst" business.  I had some scan or mri and I had a cyst  on my kidney.  I was told that.  I freaked and was told it was harmless and common and that cysts are common.   I think, in retrospect, that they have to tell you what they see.  I would agree, that we might be better off not always knowing.

    Hey, readers, I have a great suggestion.  It is Change of Heart by Jodi Picoult.  I am with a book club with my school and that was the suggestion for our next summer read. I am so hooked.  If anyone would like to read the book, let me know as I was stunned at the sticker price ($26.85) and I would  love to send my copy to you.  My club meets June 26 and I can send it just before that date.  Oh, this is a page turner!

    Susan 

  • Jule
    Jule Member Posts: 85
    edited June 2008

    Hi all. I think that I have to take notes to get to everyone!  Maybe that is the chemo brain thing though huh?  Most of my hair is gone...what's left is very light but it is better than all the really dark stuff and white hair that I had showing at first. I went to Naturally Yours in Willowbrook last weekend after making an appointment, and the woman was wonderful. I brought a close friend who made me smile and encouraged me throughout, and if you can do that I would. She actually cut my hair really short (about 2 inches) so that the wig would fit better when most of my hair fell out which was by Tuesday. I actually asked my husband (what does dh stand for byw?) to cut it the rest of the way a couple of days ago and he couldn't. I am dealing it with it okay as the wig is great and the hats are fine until my 6 hair old (wearing a very sad expression) said that he was looking at pictures from before when I had my long hair. Of couse anything is long now, but I used to have hair to my shoulders as of about 5 weeks ago and that is how he is always seen me. A bit sad, but I think I played it off as nothing.

    I was able to work the last couple of days with a lot of help from co-workers that helped proof read these damn emails!!

    Wendy...thanks for the laugh about the swans...I remember a similiar story about myself and geese so it made me smile. About the adjusting...because I have asked about it...I'm told it is about the testicles and the underware that the men choose to wear. you know...boxers, briefs, whatever...I guess some have better control than others:) Gross huh....drives me nuts...I have suggested how stupid it would look if women adjusted their clothes so frequently. Men typically just laugh!

    Zap I would love to read the book, but I am just now working back to reading the newspaper as I am not focusing long enough. The sleeping pills help mind you, but still not totally there.

    Becky how was the 2nd chemo? They called my name Wed and I just sat there looking at them.  I brought my laptop to do work and whatever with wifi, but they didn't have it there. The receptionist suggested Panera about 3 blocks away, and I asked her if would be a big deal if I pulled the meds along behind me. She said sure, and the nurse was a bit horrified by the idea although they did assure me that they would be working on this for me:)

    Julie R: Did you see that the Morton Aboroteum has the big bug display? It looked neat from the expressway?

    Connie: Congrats on your results!

    Laura: Only 4 left to go now! I am definitely counting them down. More nauseous this time, but not getting sick.  The metallic taste did not come until today which was nice. I think because I was sucking on the ice the whole time while getting the meds? Who knows?

    Have a good weekend to all. I am worried about the weekend as last time the worst days were 4 to 7 but hopefully with the sleep medicine it will be better.

    To everyone I forgot, thanks for listening and sending hugs out to all.

  • BustersMom
    BustersMom Member Posts: 260
    edited June 2008

    LauraGTO and Zap - thank you so much for helping to calm me down about the cyst business.  Phew.   Much better now.

    Jule - yes, I did see the big bug display!!  Totally cool... didn't know they were putting those up & was totally surprised when I saw them. 

    Keep me posted on Maggiano's please :)    Can't wait, yipeee!

    Have a great night everyone.. sleep tight!  JulieR

  • wendyk13
    wendyk13 Member Posts: 1,458
    edited June 2008

      Morning everyone!  Beautiful day!  Life is good.

    Julie...how's that tummy today?

    Jule....sorry about your hair but you really do seem okay with the whole thing.  My hair too was very long and at my age who did I think I was kidding???  I really like it short now and I think I am going to keep it this way.  By the way...DH means "dear husband" or "dam* husband", depending on what stupid thing he has just done!  Can you come to lunch next Friday?  You could tell them at work that it was a breast cancer support group...which it is!!!!

    Susan....I am going to the lunch at Maggiano's - that is if the steroid inj I am getting on Wed doesn't screw up that sciatic nerve anymore than it already is!  I don't think a long car trip and then a hike thru the woods should be on my list of things to do right now!  Wow...how cool about your brother!  We would love to see some pics, if you get a chance...and I would love to read your book!  If you come for lunch you could bring it and I am a faaaaaaast reader so I could send it on to someone else, or back to you by Saturday!

    Karin...I too would love to know what suit dg (dear granddaughter??) ended up with....she didn't go for the thong did she?

    Becky...maybe you and Jule could swap pics of your what I am sure are very pretty little bald heads...and then have a race to see who's hair grows back the fastest?  Hey...we have to have some fun with this crazy mess! 

    Jan....how are those new foobs?  Had to laugh re: JulieR's comment.."are they going to take you to lunch?" LOL

    A few of you wanted to know re: my vampire-neighbors.  Well...new stuff.  If dh or I come out, for any reason, they run in and close the door.  If I go out for the mail, if I go out on the deck...last Tuesday I went out with the mower while she was in back cutting our hill...and she saw me and left the mower right where it was and ran inside.  Since I have been home so much I have been spending lots of time reading on the deck so we have a little prairie growing next door.  And it has rained pretty much every night so they haven't come out at dark to mow or do anything.  They have lived here for over 2 months and I can't even introduce myself...I feel like such a shlub but I don't know what I can do about that.  But at least the night activies have stopped.  But now of course...we have the pool people.  But that is another story for another time.  Suffice it to say that I am a few houses removed and I am soooo thankful. 

    Jackie...how's the house? Still standing I hope!

    OK....nuf of boring you all speechless!  Have a wonderful day...looks to be a beauty!  Have I told you guys how wonderful vicodin for breakfast is?  Really makes for a wonderful start to your morning!  And don't worry....I actually only take one in the am so I can do my stretching and exercising and then MAYBE a half late in the day.  Don't want to be jonesing for drugs in addition to everything else!

    Tops down, fist up!  And one fist on the steering wheel..and that goes for you, Rita!

  • maryjane8
    maryjane8 Member Posts: 68
    edited June 2008

    Hi ladies,

    It's a beautiful day here. I'm still in my jammies, which Daughter #1 commented on just now when she stopped by. I informed her that I've been up since 6, working around here and felt no need to shower and get dressed until later in the morning! Shish. When she lived at home (she's 30), she stayed in her pj's all day on Saturdays!

    So sad about Tim Russert... No matter your politics, he was a gentleman and a real family man.

    We're leaving this afternoon for St. Louis. My sister and brother-in-law are taking us to dinner this evening. Tomorrow, aforementioned daughter and her family are taking us to the Cardinal ball game for Fathers' Day. Yes, it's true. I'm a Cardinal fan amongst all you Cub fans. Yikes...

    Jackie, I imagine you are enjoying being home this weekend. Rita and I will see you next Monday. Can't wait to meet you! JulieR, I don't know if mine were cysts or not, but when I had my presurgery testing, they said they saw spots on my brain and lungs but decided it was nothing to worry about. Of course, I did worry.  But almost 14 years later, I guess they were right! Leesa, Jule, and everyone else doing treatments, hope they go well. Pat, has the dust settled or are you still working on your bathrooms? Susan, that is neat about your brother and his children. I have been on a Jodi Picoult kick lately too.  Just finished Picture Perfect. (Why can't I get that second word in italics?????) Blackjack and Wendy, hope you are feeling better. JanClare, have you started on your remodeling project yet? Hi to Connie, Mich101, Joanna, Kater, Sharon, Rita and everyone else I haven't mentioned. I am going to start taking notes while I read. I can't remember who is doing what by the time I write.

    Oh, my friend's mom opted for the mastectomy. They will decide treatment after checking the margins and the tissue testing.

    Have a good Fathers' Day and a great weekend!

    MJ

  • wendyk13
    wendyk13 Member Posts: 1,458
    edited June 2008

    Happy Birthday, MaryJane!

    Best wishes for a wonderful day in St. Louis with your family!!!!!

  • zap
    zap Member Posts: 1,850
    edited June 2008

    Wendy, I think we have more in common than the bc "incident" in that when you menioned steroids for the disk, I was brought back to that a few years ago.  I had a herniated disk in the cervical spine, very close to the brain stem.  It hurt like heck and I ended up in the er.  The gave me the steroids and I then went to the neuro-orthopedic  (or whatever they are called) who said I was not a candidate for surgery and we would try the conservative method.  Now it is acting up again as he predicted it would.  Not pain, but my hand goes numb and my arm feels weak.  So I know I need to go again and I sure do not want to.  I know it is the disk because when I raise my arm over my head, the nerve is free and the pain and numbness goes away.  Like everything else, I just wish it would go away. I wonder if I will now be a candidate for surgery.  What are they saying about you?  Is this the original problem or a new disk problem?

    So, on luncheon day you will know wwho I am. I am the lady with her arm in the air!

    Mary Jane, I really feel I have discovered someone with Jodi Picoult. What a fantastic writer.  I am going to pass my copy around to the BC Ladies when I finish it.

    Julie with the little guys. I am not going to say I feel sorry for you, because it is clear you are one tough lady and you can manage just fine, thank you.  Anyone who would even suggest going  to Panera with the IV to get wireless is tough in my book. Bringing the laptop is great.  I wonder why I didn't think of it.  Your kids sound so tender and sweet.  I cannot imagine going through this with small children.  Fists up, girl!

    Happy day to all!

    Susan 

  • ritajean
    ritajean Member Posts: 4,042
    edited June 2008

    HAPPY BIRTHDAY TOMORROW MARY JANE!!!!  ENJOY YOUR DAY!  In honor of your birthday, I will even root for the Cardinals that day.....since they are not playing the Cubs!  Have fun!

    Susan, Mary Jane lent me Jodi Picoult's book, Salem Falls.  I am reading it right now and can't put it down.  Of all her books (and I've read most of them) the most unforgetable was My Sister's Keeper.  It was one of the first that I read and I've never forgotten that book.  If you haven't read it, hunt it up and be prepared for a real emotional jerker and a completely unexpected ending.

    Leesa...hope you're doing better now!

    Karin...so glad you popped back in.  I'd been missing you! 

    Blackjack....hope you're doing better now!

    Jackie...hope your first week went well with the rads and that you didn't climb the walls in the motel room.  We will get you out of there for awhile on the 23rd.  I will contact you next weekend for directions and info.  Looking forward to meeting you and giving you a real-live hug!!!

    Wendy...hope you get some relief soon! 

    Hello to everyone!  I hope you're all enjoying a good weekend.  We are leaving in just a bit to go to a couple's golf outing.  There's a cook-out at the club afterwards and lots of good fun! 

    Treat all those wonderful men of yours to a nice Father's Day tomorrow!!!!

    Catch you later!

    Rita

  • Becky--IL
    Becky--IL Member Posts: 19
    edited June 2008

      It's day 3 after getting 2nd tx. Been very nauseas this morning but it's been getting little better as the day is going on.  The hair is going more and more now. Actually hurts like I read some of the ladies mention. I do have one wig and a few hats.  Trying not to be depressed about all this but I cant seem to help it right now.  Just a lot of emotions going on in me. Sometimes I feel like everyone is going on with their busy lives as usual and mine has just stopped. I feel angry which hubby sees most of that. I see him just come and go about his business as usual, occasionally asking if I need anything and then take off again for a while to do whatever.  People mean well but they havent gone thru bc and to keep hearing "don't worry about the hair, it grows back or many women have gone thru it I am not the only one etc. etc."  Just makes me angry. If I am not crying, I am angry or down in the dumps.  Tired of being in the house but then don't want to go out around a lot of people.  I am just a mess right now, lol.  Not coping as well as I thought and as well as I let on to everyone around me.  I do know this will pass, just doesnt feel like it at the moment. I am scared I might stay in this frame of mind. Maybe I am being to hard on myself and should just let myself go thru all these bad emotions, that's it's ok and I won't always feel this way.  I am just not a happy person to be around and I don't like it but cant seem to help it. I just want to feel and look healthy again.  This totally sucks and I hate that I am not handling it very well the last few days.  I am grateful that I have family and friends that care about me and that things with my health could be a lot worse than they are. Hope some of this makes sense to all of you. It helps to be able to vent some, thanks.

  • smerf
    smerf Member Posts: 476
    edited June 2008

    Hi Becky,

    Ys, i think you are being a little hard on yourself at this time. I felt everything you have described during chemo. I even told my husband that I sometimes felt jealous when I would see him ready to go out the door in the mornings. He looked rested and healthy, all dressed in a nice suit and tie. It seemed like he could escape for awhile, but I never could. It did get better in time, and I am certain that it will for you too. I told my hubby that I just needed to go through all the phases at my own pace, and to just give me a little break when I was emotional in any way. You are grieving for your loss of health, your hair, and sometimes just control over what is happening in your life. No one understands unless they have been through it. Vent here as often as you like, we always care.

    Big hugs to you, and hang in there. You can get through it, and you will!

    Pat

  • tdbear
    tdbear Member Posts: 286
    edited June 2008

    Becky,  I think we all had that confused, mad, hateful feelings during our tx. And you are more than welcome to vent on us anytime!!! That's what we're here for! A BIG (((((HUG))))) for you! You might try Wendy's cure for the blues, a ride in a convertable "tops down fist up"!! At least you wouldn't have to worry about it messing up your hair!!LOL I only wore my wig to work, and hats when shopping.....maybe that's why my neighbors don't come out as much during the day....I blinded them w/my bald head!! LOL Just be carefull not to sunburn your head!!

    Back to house cleaning will check in later

    K

  • zap
    zap Member Posts: 1,850
    edited June 2008

    Becky, just stopped in.  My daughter would force me to walk!  I felt like hell and I was so mean to her and my husband.  They piled me into a car one day and we walked the woods.  I had to use porta johns a few times (that is like visiting hell for me), but they held my hand and pulled me along.  I actually felt better.  I will always remember that.  Something just kicked in and I felt better.  I am not sure it will work, but maybe give it a try.  I also think that the chemo does something to the brain and you really are depressed.  I always felt  that my head was bloated on thetwo worse days.

    Maybe I will get a convertible and  ride with my arm raised up sorta like the State of Liberty.  It sure relieves the disk problems on the left side.  Holy moly, there is always something.

    Getting ready for my brother.  I haven't seen the kids since last year.  Poor sweeties, I was bald then.  They were a bit awed at first, but soon realized Aunt Susan was still in there.

    Susan