Illinois ladies facing bc
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Good Morning Ladies,
I'm back..the garden theme was just an idea cause Laura lives in the forest. So please wear what you feel comfortable in and enjoy yourself at the party. I am so tired from moving and traveling. Who needs the gym for a workout when you can build up your arms by lifting futons and boxes up three flights of stairs. Need a sauna...make sure that there is no air conditioning and you will sweat and melt those pounds away ..lol I need a vacation after this move in...after cleaning and unpacking I have to do it again for my son in 2 weeks. Oh well.....
Looks like everyone has been busy vacationing and enjoying life with family and friends. Life goes on..so enjoy yourself. Don't let this bc take over your zest for life. Going through tx is hard emotionally and physically but this is only a temporary thing and the end will be here before you know it. So hang in there for all those in treatment.
For all the others out of treatment..take control of your life..enjoy yourself...have fun..you only have one life so live it to the fullest..I know for me I have been having the best summer ever..I am making up for last summer when I was in treatment and so depressed. This disease is in the past and there is no looking back for me. Yeah !!!!!!
Well I have to run now...off to ck with the work guys..we are almost at the end hopefully soon.
I hope you all have a dry Monday. lol Will ck back later...
Remember be healthy ..be happy..
Blackjack
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Yipee, Mary Jane is back. Sounds like you had a wonderful time. I am going to have to start writing down dates ( leaving and returning ) as Wendy and now you Mary J, seemed to have been gone half the summer....hmmm, about the same time I was gone for rads, but I did get to communicate a little from the motel.....just couldn't do quotes. Anyway, though I work hard or think I do with puzzles and other things.....my brain must be all full up. I have heard you only have so much room...that's ok I guess, but I wonder just what IS in my head because I don't seem to be getting that much benefit. Oh well, a little something else to fret about.
Hmmm, I used to use Nice & Easy in younger days. That is a thought if I ever get my hair back. It may be getting ready for some other kind of spurt. Seems like when it started to grow it got itchy......then another round of the same produced more hair, and a lot more color to it, and now it's itching again. We will see what happens now. Hopefully....I'll be happy with whatever it is.
I am wondering Laura and everyone.....do we under value young people because we think they are not experienced enough? I think to some degree I do.....but probably it is the fact that they are which often makes them good. They don't worry about mistakes and failure with the same trepidation as we do. I can see a vision of something turning out not so good----because it could go wrong in so many different ways.....but it can only turn out right in a very narrow field which is much harder for me to visualize. Anyway Laura I'm so glad things turned out well and you and your niece are great inspiration to the rest of us. Eventually I'll get my budget back on track, but I think I'll be thinking Nice & Easy when the times comes instead of the expensive salon.
My skin is coming along fine....a little peeling etc. but nothing to get excitable about. It is going to be a super hot day, but I have avoided being out too long or doing much outside which I think has kept skin discomforts to a low level. I'll certainly be inside today and I think finishing up in here in my computer room. Dh was home yesterday and that usually ends up one way or other disrupting any plan I'm foolish enough to make---and I was once again foolish enough to think I could make a plan.....ahhh, some things I will never learn I guess.
Hope you all stay dry? and not too hot and Becky, Leesa, and all the Julie's, hope you are all doing fine.
Jackie
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Good Morning all:
I am going to have another grandchild! Hip hip hoorah!
Susan
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just a fly by post to say:
HAPPY BIRTHDAY, GINNY!! Hope it's great!
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HAPPY BIRTHDAY GINNY!!! Hope you have a wonderful DAY!!Wow Susan a new grand baby!! When?? How many will this make for you?? We have 8, thankfully we're only raising 1!!
My boss is doing better each day. I kinda feel like a mother watching a child trying something new....I patiently watch, at the ready, to help if needed! But at least she is making progress! I will get my weekends back before long!
Hope everyone in treatment is able to deal w/ all the SE's. It can be the pits!!
Back to work
will check in later as I have time!
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Ginny, Happy Birthday, dear friend. I hope you are enjoying your vacation and having a wonderful day! BIrthday hugs...coming your way!
Rita
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Hello everyone! Wow! The weekend got completely away from me. It sounds like you've all been finding some neat things to dol.
Welcome back, Mary Jane! Glad your trip went well!
I've got a few questions for you Chicago gals. In mid-September I am meeting one of my CMF friends in Chicago. She's from Canada and we went through all the treatments at the same time. Her husband is going to be in the states at a convention at the Wyndham in downtown Chicago and she's joining him. I doublt if I ever make it to Canada and want to be sure to get to see her. I don't want to drive in the city by myself and try to find parking, etc., so I'm thinking about taking AMTRAK up that day. It brings me into Union Station. Is Union Station ANYWHERE near the Wyndham? Would a cab be the best way to get to the hotel? Is there a "have to do" place for lunch anywhere near that area and is there anything else that we should do during the afternoon?
Wendy....as for making that mammo appt.........good for you! I go Thursday to see the oncologist and get the results from my bloodwork. I know that nervous feeling that just doesn't seem to disappear yet. We can do this!
Wendy the Younger........congrats on finishing that last AC today! You are now on the downhill slide! Anyone got any good tips for her about the Taxol. I didn't do that so can't tell her much about it.
Jackie...you're going to have the cleanest house in town! Gosh I wish you lived closer!!!!!
Laura...thanks so much for the birthday list! That's so convenient! What a good idea! Hey, you sound so much more relaxed now! It appears you made a great decision.
Susan! Congrats on your wondeorful news! One can never have too many grandchildren....and speaking of grandchildren, I'm going to have mine next week while their mother is in Chicago working. I'm already hunting for fun things to do!!!
Julie Chicago...glad that the last treatment went better for you. They're all different and you just have to take them one at a time. You can do it. In fact, you're about done!!!!! Hugs to you!
Jules...hang in there. You see proof on this thread that there is live after treatments! :-)
Karin...always good to hear from you. Your boss is lucky to have you around! You're one special lady!
I hope everyone is staying cool today! Hugs to all of you.
Rita
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If it is the wyndam on Michigan ave it is only about 2 miles... The one on Saint Clair street is about 3 miles......easy to take a cab in that area.
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Oh there are tons of things to do and eat in that area. You are right downtown!
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Hi all,
Jule- My kids are 6 and 4. Timothy, the 6 year old is known as "Tim the Tornado" and that pretty much describes him. Elisabeth just turned 4 and is fortunately a wee bit calmer! I've been enjoying them at this age, aware at how quickly they are growing and changing. We have not really talked to the kids about what's going on with me. Beth can't really understand and my one attempt to talk with Tim didn't go so well. He backed away from me and told me to "get away from him"- that he didn't want to "catch it." It caught me at a bad moment and I retreated in tears. I know he doesn't understand, but I have not really been able to try again. Chemo weekends, we tell them Mommy has a "tummy ache."
Not really lying either--- diarrhea just started and here I was worried about constipation (chemo last Friday). I had a terrible battle with a C-Diff infection while on A/C back in 2000 and I'm praying that this is not that again. I have some Immodium- may give that a try....
Laura- congrats on the great highlights! I'm fantasizing about when I can go back to them.....hair is shedding badly after first CMF....I'm told it won't all go... but Rita--- I'm beginning to doubt...this is getting scary...
Wendy-- I think about the cicadas and their lullaby in a different way now....!
Big thunderstorms rolling into Palatine now. Great lightening show I'm enjoying....
Hope everyone has a good week....
-julie b
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Hey Girls!
Just needed to get excited some where! My AC days are over. I have until the 22nd before I start the Taxol & Herception. I am looking forward to the chemo holiday that will follow the next couple of days! I wanted to take the time to say a special thank you for your support so far.
ILLINOIS LADIES RULE!!!!!
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Abundance has a little to do with manifestation, and a lot to do with appeciation.
-- Alan Cohen0 -
Morning! I won't say good as I am sitting with my laptop hooked to the phone line as we have no power since 7:30 last night....and DH was told when he drove past the workers on 31...lightening hit the transformer so maybe no power until sometime on THURSDAY. And I just went to the Jewel yesterday and filled up the frig and freezer. Great. Wonder who I send the bill to...my insurance or ComEd!!!!
Happy Birthday Ginny! Your card will be late...
WendyTY....Yay you!!!!!!! AC gone, gone, gone!
Susan....congrats to you on the new grandbaby!
Rita...I don't know DT at all anymore but someone will help you with LOTS of suggestions.
Just wanted to check in....don't want to run my battery down too much and I need the phone line. Cell is working tho, but I only have 2 bars left on that...should have charged it yesterday just like I should have done the laundry yesterday instead of moving in the guest bath which is so pretty and girly...and I can't use it now!
Hope everyone up here survived the storm...it was a doozy.
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Good morning everyone
. Sure is toasty outside already this a.m. A great day for staying indoors and doing hmmm, more housework...yes. The great task of filling wastebaskets full of what I shouldn't have been keeping several years ago---just didn't realize.....the space you take up with what you SHOULD not be keeping is too full to allow you to keep what you REALLY want or should. Of course, I always knew that....when did I get so lazy as to just keep MOST of it. Well.....just add that to the list of what I'm re-learning since I got cancer. What have I learned so far:How many very dear and precious people there are in this world who will love and help you even when they have never met you.
How many of the friends you have always had will stand up to help you get well.
How many people will shy away, including some family members.
How precious your life really is, even if this had to be the reminder.
That everyone I meet and talk to is an important person, even if I don't know why.
That you can forget the importance of making everyone you know feel special just because they are who they are---just because they are alive, like me.
That you can easily become complacent, drifting and not defining your life by all the joy that surrounds you in abundance.
That you can forget to share the positive with all those you come into contact with including who you share your life with at home.
That you can get caught up in things that you hold on to and never use.
That you learn a lot about yourself when your ill and confined at home alone.
That I really am about as strong as I always thought I was.
That LIFE ----- every life, no matter what or whose has a personal significance that is a treasure to be respected, even those I don't quite agree with.
That in looking back I can see where I've been to help me determine where I want to go.
There are many things not included here as these are just off the top of my head after I looked out of my window.....and I think I will as time goes on and I get back into the pattern of working and changing some of the structure of my existence, see and feel many, many more. And I welcome that with all my heart and soul.....because I do need to repair some of me --- I think there are parts that became a bit obscured through the years with all the slings and arrows of life and I've forgotten what I wanted to be when I grew up. Hmmm, hope I haven't freaked anyone out by admitting that.
Ok...onward and upward. Big congrads, HUGE to WendyTY......you did it and got your 4 A/C down and done. What a feeling huh??? It's just my opinion, since I had Taxotere and not Taxol, that probably anytime when you don't have to have combined chemos it is more than likely better. And I love your saying: ILLINOIS LADIES RULE !!!!!! Yes they do because the are TOUGH !!!!!
Julie Chicago that is so sad that you cannot at this point share your illness with your kids. I'm sure it's difficult, but they now won't be scared of losing you forever or just as bad try to grow up too soon to "take care" of you. No matter what you SAY or don't right now, they will be old enough later to understand and appreciate the need to be less than candid at this point. Your job is just to get well so you can be their 200% Mom again.
Big, big Happy Birthday Ginny
and HensonChi, nice to see you here w/o the bump.
Ok, I'm off and running....some of this I posted last night and apparently forgot to hit the submit button, so WendyTY....sorry I'm late. Have a stunning day all and stay out of the heat if it's hot your way. If not, then enjoy the beautiful outdoors. Talk to ya'll later.
Jackie
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Wow! You must have really gotten some wham-banger storms in the northern part of the state. We played golf in the rain this morning but didn't have any of the real threatening weather. We probably wouldn't have played under normal conditions but it was guest day at the club and people had brought their friends to play. There was lots of prepared food for lunch that we didn't want to waste so everyone stayed around and toughed it out! LOL
Jackie...I loved your list about what you are relearning! We all need to remember to think about those types of things!
Well, I need to get to work and get something accomplished here. Just wanted to check in and see how everyone was doing. I'll be back later!
Rita
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Hi everyone - just a quickie to say hi!! My phone lines were knocked out since yesterday a.m. (yes, I am a dinosaur & I have dial up, lol) - so I couldn't get online.
Wow, how about those storms? Hope everyone is safe & sound.
Ginny - Happy B-day one day late (sorry I am tardy!) Hope you had a wonderful day.
WendyTY - CONGRATS on finishing AC !! Wahooooo - enjoy the "chemo vacation". You are one tough chick, you did it!!!!
WendyK - Ug, your power is out. Sorry - I know how much that stinks. Although it sometimes sparks us to get creative in ways to entertain ourselves. Nonetheless, I hope you don't have to wait til Thursday for restore.
zap - congrats on the coming of another grandchild
Sorry I'm not responding to everyone today - but I send you all big hugs & love.
I won't be seeing you guys on Saturday - my sis is visiting from CA, and she is staying with me Friday night & Saturday we take her to the airport. Darn. When's the next dinner in Schaumburg ?? Anyone? In a couple of weeks maybe ???
My other drain came out yesterday - 4 weeks with that little sucker. And got ANOTHER fill - PS said it was okay to do it early - so I said "sure, pump em up"!! Took my first real shower today. Heavenly.
OK, must run - Have a great day everyone. Love, JulieR
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jackie - your list was great! Thanks for sharing.
juliechicago - I just cannot imagine how tough it must be when kids are involved...but it sounds like you have alot to thankful for. Hope you're feeling better today...post treatment.
julieR - Drain, drain go away...DO NOT COME ANOTHER DAY! lol The first real shower is great! My dh sponge bathed me in our bathtub up until the time when I could make it to the shower...
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Well...I've been trying to keep busy...had a little bout of depression but pulled myself out of it by painting my first floor guest bathroom and spending the entire weekend pulling Buckthorn...a WHOLE half an acre of it! Man...that stuff is wicked...I hired some landscape dudes to come and haul it all away...can only imagine how much $green it will cost. But I really have an intense sense of accomplishment...I'M A TRUE BORDER COLLIE...always MUST have a "project"! LOL
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rita - nice that you snuck in some golf...we had really bad storms here yesterday...gave me a chance to re-assemble the bathroom...how did your bathroom turn out? Any photos?
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Have a nice evening...thinking about all of you.
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Congrats WendyTY!
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Ah....electricity! DH refused to spend another night in the dark and heat so he went off to the Holiday Inn in St Charles and left me home as I refused to leave. Power came back on for a few minutes at midnight, then off again....then on around 1am, then off again...came back on at 3:14 exactly and stayed on. Lost pretty much everything from frig and some stuff from the freezer. What a mess! And I am sooooo tired and crabby as I had only about 6 hours of sleep over 2 nights. I guess I should be grateful that it was only (only out) for about 33 hours!Rita....golf in the rain??? You are a dedicated player! Do you ever play in the snow with those orange golf balls?
Laura...if you are still depressed I have a basement with your name on it! Glad you found a way to pick yourself up tho. I thought your buckthorn was all gone....
Jackie...thanks for the list! I read something yesterday that I loved...
"Summer.....she is a purse filled with blue days to spend as we wish". Isn't that nice? Loved that one....
JulieR....Yay! Drain is gone! I only had one, for a week but I hated every minute of it. And the bird baths. Showers are so lovely...we just don't appreciate them until we can't take one. Sorry you won't be able to make it on Sautrday...but next time!
JulieB...I agree with Laura...this must be so tough with little kids! Thankfully they are still young enough that they won't remember much at all. How's your GI problem? Any better with the immodium?
Well...off to take a nice looooong shower. I have PT again today, but the only appt I could get was at 4:45pm. This was the week I was going to go the gym every am but that storm really blew that idea away....maybe I can sneak in a nap later tho, but then the grass needs mowing with all this rain! Never ends..........
Have a great day, ladies!
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Hi everyone this very wettish morning here in southern Illinois. We got the thunder, lightning, tornado warning sirens going off everywhere last night. Pretty dramatic. I had candles, flashlights and everything needed if the power was lost but we did fine. Guess it's going to be one of those 'no hair' days for me. As yet, I don't feel comfortable w/o something on my head though gosh knows, it sure would be cooler to let it all hang out. I probably should think about a slight trim to even me out which would probably help. I'm sure though....like probably lots of you, the thought of purposely cutting my hair at this point seems a harsh thing to do. It's only maybe an inch and a half or so....but with a noticeable scraggly appearance, especially around the ears. SIGH --- hair problems already, but mind you I'm not complaining too much.
Going today for my after treatment tests....blood and chest X-ray. Then will swing over to University Mall in Carbondale ( where the Women's Breast Center is now located ) to see Donna Crow. She is the nurse Avon Patient Navigator who helped me during my 6 mos. of chemo. I really got to where if it was super important....I talked to Donna first. She was much more knowledgeable than the V.A. chemo nurses and would give full explanations for things. I might have mentioned ( it would have been a long time ago ) that one of the reasons Donna is so good at what she does is that 8 years ago she had breast cancer too and with the same tx so many of us received.
Anyway, Donna is going to test my arm for fluid and hook me up with the right people to get a sleeve.
I heard something interesting a couple nights ago, but I do think it's an exception. The gal who grooms my dogs had cancer a few years back. She ended up having 32 ??? lymph nodes removed. Went back to work a couple of days after her mastectomy and node removal and never wears a sleeve.....never tested or fitted for one. I was amazed to hear this....anyone lifting dogs all day.....saddling horses and doing heavy work.....and no lymph problems. I do think if all this is so----she would definitely be an exception. Even with only three nodes removed I would not feel safe w/o the sleeve I don't think.....especially as I checked with Donna and she said her studies in the last couple of years still indicate you should have one. She has one and still has occasion to wear it.
Well, it will be another sort of long day.....but not a bad one as I can come home and work after we are done in Marion/Carbondale. I also go back to work tomorrow at the office and that will be a good thing. Getting paychecks again is definitely something to look forward too after two months of no money. .
All have a good day and I will be checking back in later.
Jackie
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So sad....something has come up and I won't be able to make it on Saturday...bummer! Little family crisis that needs some handling and will be away from home for the next 4 days or so! And Laura...here I was ...all ready to help you pull some buckthorn in my pretty new dress!
"Talk" soonest!
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Wendy, I hope everything will be okay, and we will miss you Saturday!
Jackie...Congrats on being a rads grad. I know you are enjoying getting back to your life now.
JulieR...So glad you are doing well, and great news about no chemo!
Susan...What exciting news! Another grandchild will be so much fun.
I'm playing catch up here, and I'll do some more later. Have a great day!
Pat
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Hi Fantastsic Illinois Ladies,
I have been MIA for awhile. We have had so much company-Australians, from the states, and conferences. Plus two of my sons and their families came to Ramallah, West Bank/Israel for vacation.
I get back August 12th. Will miss the party the 9th, but sign me up for anything after the 12th.
I scheduled my abdominal MRI to evaluate the lesions on my liver and pancreas. I looked up some stats on that. 10% of incidental pancreatic cysts are cancer, 50% are pre-cancer, and 40% are benign. However, that is not considering my brush with BC and IBC. I am already getting freaky.
My DR. appointment and dianostic mammogram are not until the 21st however. I will be in panic mode for a couple of weeks.
The fun goes on.
Glad to see all of the activity, and everyone seems to be doing well with treatments. Keep it up.
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Hey Sharon....so glad to hear from you. It won't be long and you'll be in the states again! I hope I get the chance to see you this time.
I understand your panic mode. Still the percentages appear to be in your favor! Still, I know that the "unknown what ifs" can drive us crazy. I have my onc appointment tomorrow and I've been a mess for over a week! LOL I'm not a good one to give advice on the "don't worry" issue although I know it certainly does no good to worry because the worry isn't going to change anything.
JulieChicago....hope you're pretty much back to normal now and ready for a couple weeks of chemo holiday. How is the hair doing? Thinking of you........
Smerf......hey there gal! I've missed you! Glad to see you back!
Laura...I'm happier, too when I have a full schedule or a project in process........except for that bathroom project which turned into a gut wrenching nightmare. Yes, the bathroom is done and one of these days I'll get out the camera and take a few pictures. I like it now that it's done, but NEVER AGAIN!!!! LOL
Can you believe that it's already August? Gosh it seems like summer just got started!
This next week I will have my little guys. Their mom will be testing airplanes in Chicago and I'm lucky enough to get them for four days. I can hardly wait! I've been planning all kinds of fun things to do with them! Being a grandma is so much fun! (Let's hope I'm saying the same thing at the end of next week! LOL)
Well it's been a busy day here and I'm ready to collapse in my recliner. Hope everyone is having a good week.
Rita
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Pat and Sharon....a big hello. Been awhile. I'm home again ( fairly late ) from my tests. White blood counts are just a little low, platelets too, but not dangerously so, and chest x-ray was ok. Will repeat these tests in 3 months. Sugar was 3 points past normal, but they didn't think anything of that. I think it has been like that almost since I started chemo.....can't remember what was said that far back.
Going back to work tomorrow. It should be a rewarding if hectic day as I haven't worked in two months now. I did get a compliment today....my boss was talking to the other secretary and told her that since they have dealt with my replacement for two months he was thrilled it was time for me to come back........that he had definitely under-appreciated me until he saw how things were while I was gone. Lois was nice enough to tell me and she too ( we are a good team ) is happy that I will be back....she was not thrilled with my replacement either. So, that does feel good. I had "waking nightmares" that they might not care if I came back at all..
Your absolutely right Rita---summer has just begun. Wonder who snuck so much of it away when we were not looking.
Got my arm measurements for a sleeve. Donna tested for how much water??? was in my tissues and said I had the lowest reading of anyone she had ever done. Could probably get away with going on the plane sleeveless but I think I'm done with in your face risky behavior. Well, actually I didn't realize what was risky for me before because I never expected to get cancer in the first place---but now that I have, my responsibility level is different so I will most definitely send away for a sleeve and use it.
Well, time to get back to work. Talk to you all tomorrow.
Jackie
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Do the thing that is next, saith the proverb
And a nobler shall yet succeed:
'Tis the motive exalts the action;
'Tis the doing, not the deed.
Margaret Junkin Preston0 -
Hi gals!
I'm home from the oncologist's office wearing smiles. Things checked out o.k. The blood work was good and my tumor marker was 14. I asked him what it was last time and he said it didn't matter. Anything under 31 was favorable and that tumor markers were like weight. They could fluctuate up and down a few points either way but once they got over 31 we are in "iffy" territory.
(This made me wonder if mine had fluctuated and he didn't want me to hyper-ventilate over it).
Do any of you really understand the tumor marker issue and the numbers? I guess I should do some research there. Please share any info you have on that....how about you smerf?
Since my surgeon will be seeing me for a mammo and exam the first week in December, I don't have to go back to him until March. I guess if he thought there was something to be concerned about, he would have me back in there in three months regardless of the fact that the surgeon would be checking me about the same time. I've made myself half-sick for the past week worrying about this appointment. Why do we do that to ourselves? If that is the "new normal." I don't like it!!!
Hope that all you gals doing chemo are having a good week.
Becky, do you have to do rads? And if so, when do they start?
Jackie, hope you have a good day "back to work!" Did you ever think that you would be excited to go back to work????? There's another thing that's changed!!!!
Mary Jane...can't wait to hear all about your vacation.
Well, I wanted to share my good news with all of you. Now I need to get busy and start uncluttering the bedroom where my little boys will sleep next week.
You are all such fantastic ladies. I think that Wendy the Younger said it perfectly "Illinois Ladies Rule!!!"
Rita
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HI Everyone,
I'm really looking forward to Saturday, Laura you'll have to e-mail me your address. It feels like the summer is flying by, I can't believe it's August.
My son comes back from Zurich this weekend, I haven't seen him since June, he'll be in for just a few days, then back to San Fran. The younger boy is going to Vegas this weekend to apply for a job. The baby is graduating high school this year, so we'll be looking at schools soon, they've grown up so quickly.
Anyone have any info on the State of Il breast and ovarian cancer insurance, it looks like I need it and have started applying, but I'm wondering does it just cover cancer? what if I need other tests? I also need to start some pt, will it cover it? Any info would be greatly appreciated.
I'm so glad everyone is finishing treatments or surgeries, everything we finish brings us closer to DONE.
My dear Sharon, I'm sure everything will work out fine, I will be praying for you as you did for me, if anyone is needed on this earth it's you, and I believe God still needs you healthy and here!
Jackie, I'm so proud of you.
Julie R. don't you just love Dr Madry, and his staff, I think you're in great hands.
Wendy, I wish you could make it Saturday, I really miss you.
To everyone: Thank you for being my friend, confident, support and my heroes.
Love
Leesa
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