Illinois ladies facing bc
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Susan - Hope Your Day is Extra Special!
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Happy Birthday Susan - you are a very sweet, special person. Hope you had a wonderful day.
Blackjack-I understand what you mean about nursing homes. My aunt has been in rehab at a nursing home for the last 3+ weeks. I try to go see her at least once a week, and call her often. She is doing very well and should be leaving there the end of next week. It is very difficult to see some of the elderly just sitting in chairs, some not able to talk, confused. Thankfully my aunt will be able to go back to her home. She can still take care of herself for the most part. My helping her benefits me, I think, as much as it does her. Hoping things go well for you in your search.
Wendy- as far as the vacation planning goes, well, we probably will end up going to Fla. and staying at a friend's condo. (July/Aug) I would have loved to do a Carib. cruise, however, I don't know if that would be in the budget, so we'll see.
HAPPY VALENTINES DAY, my friends!!!!!
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Happy V Day to everyone.....and a Huge Happy B-day to you Susan and many, many more.
Jackie
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Just finished babysitting for 3 very active but adorable little boys so my DS and DIL could enjoy dinner out......Happy Valentines Day to all of you, a piece of my heart goes with each of you !
jan
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Morning! You guys know me....I already put up my St Pat's stuff! Yes...I know...I am annoying.
Hope you all had a great V day....we went to our fav place and had burgers for lunch, then DH rented "nights in Rodanthe" for us for a romantic movie night...and yes....he slept thru the whole movie. Oh well.....
Susan....hope your BD was great....any baby news?
Blackjack...do you need a nursing home, or would assisted living work? I have been thru the assisted living search....hope you had a nice dinner tho. You really need LV now!
Karin....and WHY are you having IV THERAPY!!!!!!!! What is going on? And that Nurse is an idiot. You can get LE from only one node removed! Rare, true...but it happens!!!!!! Direct her to this forum and have Binney set her straight. This is why LE comtinues to be such a problem. Thankfully I have a surgeon and a rad onc who warned me even before the surgery what could/might happen and what precautions to take.
OH...seems like DH wants the puter so I guess I am done for now...will check back later.
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Morning! You guys know me....I already put up my St Pat's stuff! Yes...I know...I am annoying.
Hope you all had a great V day....we went to our fav place and had burgers for lunch, then DH rented "nights in Rodanthe" for us for a romantic movie night...and yes....he slept thru the whole movie. Oh well.....
Susan....hope your BD was great....any baby news?
Blackjack...do you need a nursing home, or would assisted living work? I have been thru the assisted living search....hope you had a nice dinner tho. You really need LV now!
Karin....and WHY are you having IV THERAPY!!!!!!!! What is going on? And that Nurse is an idiot. You can get LE from only one node removed! Rare, true...but it happens!!!!!! Direct her to this forum and have Binney set her straight. This is why LE comtinues to be such a problem. Thankfully I have a surgeon and a rad onc who warned me even before the surgery what could/might happen and what precautions to take.
OH...seems like DH wants the puter so I guess I am done for now...will check back later.
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Being vulnerable doesn't have to be threatening. Just have the courage to be sincere, open and honest. This opens the door to deeper communication all around. It creates self-empowerment and the kind of connections with others we all want in life. Speaking from the heart frees us from the secrets that burden us. These secrets are what make us sick or fearful. Speaking truth helps you get clarity on your real heart directives.
-- Sara Paddison0 -
Oh what a beautiful morning -- it's too early for anything to go wrong so I can say that. Going to be cool though. Connie, I have been thinking about what you said and I was thinking how many years of my life I spent AND I didn't know anyone with cancer and probably was just barely only aware that it existed as a disease. Having said that...I think there was a time when people did not freely say they had it or talk about it.......but still the numbers are sobering and staggering and just very scary. I do hope ( if that is what it's going to take ) that some element or key is found ---- we may get back to what we do to our food and water --- which everyone has to have in order to survive. Sigh !!!! Hopefully....it will come soon.
Dh works today and did yesterday as well. Though he has done all right....I think things are very slow at the store. Seems like most people are either remodeling due to all the good deals they can now get, or just replacing something very old that just gave out. Course, no one window shops in appliances unless they are comparison shopping.
We were going to watch a movie last night but didn't. Recently ( and I just now got them ) I had a friend go on an ebay site she uses as she could get older movies that had been put on DVD. I wore out my copies of " Trip To Bountiful " and " Delores Clairborne ", though they were VHS. I do have eclectic tastes as you can see. I know when I sit down and start thinking about it there are going to be a whole lot more.....and knowing how it goes, about the time I've reestablished my supply of movies I'm happy to watch over and over......some new format will come along and I'll be skunked again. Probably will have her see if they have " When A Stranger Calls ". It is probably one of the few movies ( Psycho was the first I think ) that can till getto me --- even though I can't tell you how many times I've watched them. BTY --- there are a ton of comedies I also love. It's either scare myself to death or laugh my way there.
Inquiring minds want to know --- WHAT'S GOING ON KARIN !!!?????? You know too, I'm with
Wendy. There seem so many people ( sorry Jan, or anyone else who is a nurse ) in the medical/nursing profession who are 'blissfully' unaware of LE and will nearly fight for the opportunity to try and give it to you. My overnighter at the V.A. with my thrush went that way. Finally had to have the head floor nurse come in and stand there so the lab person would take the blood from the Rt. arm --- thank you head nurse as I was hating the idea I was going to have to be really rude and slap that lab person silly.Well, I hope you all have the most fantastic day. I'll be with you in the sunshine.
Jackie
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Nope....no baby news, but I think it will today or tomorrow (pretty safe bet as she is now 10 days overdue). Today the family is celebrating my birthday with lasagna and salad (my favorite meal). We live just 20 minutes away from Anne's hospital so it is okay. DH and I went to Northwestern to visit an art museum there. We then went to Carters to get a wardrobe for Adeline. Let me tell you, their sales are so great. I was able to get 10 outfits for $40.00. It was unbelievable. The only issue is that Adeline may go to the park and see five other kids with her cheap but adorable outfit. I suppose that would be fun for a toddler and a fun way to make a new friend. Before dinner,I am watching "Secret Life of Bees" with my two daughters while the men play pool or something less "chicky". That was one of my favorite books and I have not seen the movie. I am excited.
I want to thank you for my birthday greetings. It was so much fun logging on and finding them!
Connie, thanks for explaining about the overuse of antibiotics. I am plagued with urinary tract infections and just a few months ago, I had to take a stronger med as the first one did not kick it out. Hmmmmmm. "Plagued" is perhaps too strong a word; but I do get them a lot.
Wendy, I copied and pasted your post on getting me a red convertible for my birthday and emailed it to DH. When I awoke this morning, I asked him if I should look out on the driveway, and he said, "Not yet." Hmmmmm. With the economy the way it is and my impending retirement, I think not. I will have to return my laptop to the school, and so I will really need a laptop. Any recommendations?
So thanks ladies for all the well wishes. I just love you all.
Susan
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*laughing with jackie* no need to be sorry......I do IV sticks and blood draws everyday of my life....and I have been very very careful about anyone who has had the potential for lymphedema ever since my cousins first journey with bc 14 years ago, that was my first eye opener, now, that i am part of the gang im like a wildwoman if someone wants to come near my right arm and at work if anyone is giving anyone a hard time when a woman asks them to use the other arm they get my new lecture and my offer to do the stick......amazing how we become not only our own best advocate but also for all of our sisters. maybe there is indeed a reason why some of us get the things we get......*thinking bout that* i know 3 nurses on a very personal level who are very much a part of my work life with bc and my world is very small, imagine how many of us there are in the *big* world who are hopefully advocates for all of us.....every step every day......
I was touched by Connies words too.....and I have thought how suddenly I have become the *cancer expert* at work.....and how somedays I dont like being the cancer expert, actually somedays I hate it.....most days Im happy to be able to educate and to be the one a patient relates to best but sometimes cancer cancer cancer is the last thing you want to think about.....its an odd little world we are thrown into now....a competely new normal, never to be the same again. I guess my hope is to be able to slip back and forth between worlds with ease as time goes on.....the *normal* world and the world of survivor......
Susan happy belated birthday !!!! Im sorry I miss events like this but I dont even know where to find the dates that everyone celebrates.....*going back to the drawing board and checking to see what Im missing* I still need to find the class *grin* on how to post my picture....I did however learn how to post my philosophy finally.....please know that although I havent met any of you yet....and I dont post terribly often....you are all a part of the *best side* of the journey.....
jan
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QUESTION TO ALL CAN YOU ANSWER TODAY OR EARLY TOMORROW?
I also emailed the list that I have of our group.
Did you have ct scans (chest pelvis abdomen) before and after your surgery, before your surgery or any time because of the breast cancer?I am preparing bills to present to insurance company, I had a rear end accident and back pain before my BC was found..and I know I had extra tests ordered because of the lower back pain, but I need to have an idea if ct scans before and after our routine, I thought it was because of this pain and my mom's ovca history.
I understand that age, calcium, accident, menopause, chemo, etc. could cause pain AFTER the several weeks after the accident, I'm just trying to pinpoint the first pain that made doctors look for cancer elsewhere!
Thanks!
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swayze and cancer
Last night i stumbled upon www.abc.com episode, 20 20
where patrick swayze talks about his pancreas cancer diagnosis. It was interesting.
It must have aired before Jan. 15th as they mentioned his new series coming out on A&E I think Jan. 15 of this year.
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It was after I told them about pain and the bone scan showed things and the xray...that they ordered the ct scans as far as I recall. It was such a muddle back then in 2007!
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Happy Sunday everyone!
Blackjack - my mom is at Friendship Village in Schaumburg. She is in a garden home which she really enjoys, but my Dad was at the nursing home area before he died. They did a lot of research years back and were both planning on moving into a garden home there, but then my dad fell and broke his hip. He never got into their garden home that they were building, picking out colors, etc. He was at the nursing home there for about 3 months before he died. It seemed like the typical nursing home, but they treated him well. We did really become close to some of the nurses there as we were there a lot. They also have an assisted living area.
Kater - I sent you an email.
Sounds like everyone had a good V-Day. My DH had a training class, came home and fell asleep on the couch. I ended up eating macaroni and cheese for dinner! Oh well, there's always next year!
Hope everyone has a great day.
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Happy SUNNY Sunday!!! ( well at least for the moment!)
OK OK the IV therapy was for a headache. IV drugs twice a day for 5 days...( helped a little) The nurse put in the first IV and I think it went right thru!! By the next AM it was not usable. That's when another nurse said to use the other arm. Even with only 8 nodes gone I don't want to take the chance!
Susan you had my FAVORITE dinner!! lasagna salad AND garlic bread!! Only not worth the trouble making it in my house.....DH will not eat white cheese.....and GD will not eat meat!! What gud is a cheddar cheese meatless Lasagna???!!!
Jan PM (personal message) Lauragto with you e-mail address ect and she will send you a list of all the Gals in our "Illinois Gals are tough" club!! You too Hope4cure!
Kater, I had CT scans before I started chemo. But not before my mast. ( but then my mast was in 02 and chemo in 06)
Blackjack I hope you are able to take a few minutes for yourself today....A cosmo would be nice!!
The sun is still out so I think I'll go get my vit D for the day!!!
ENJOY!!!
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kater - It's tough to say what's routine and what isn't - alot depends on the bs and the Oncologists. From what I've read here on the boards...jmo...it seems as scans are done more often than not...others chime in. I personally was not told to get scanned after my dx (other than a breast MRI). I mentioned a pain in my hip, and then a CT was prescribed...
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Hi gals..........
Just a quick note before we head out to bowling! It's already been a busy day. We went to church and then to visit Dave's mother in the nursing home. She was a bit more coherent today. It really bothers me when she's in one of her confused modes as I think she's a neat lady.
Susan........happy belated birthday!!!!! I'm so sorry that I missed it. I need to get regrouped now and back into the swing of things. It sounds like you had a nice day.
I hope that everyone is doing well this evening!
Catch you later......
Rita
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Hi girls,
Hope everyone had a wonderful Valentine' Day with their sweeties. I did go out last night with freinds and dh. We had a fabulous dinner, lots of laughs and had the best cosmo's. yum yum. It was just what the doctor ordered to take my mind off things for a few hours. Today after spending all day looking at nursing homes got that dreaded call that both relatives have taken turn for the worse and both are in ICU. At two different hospitals. So it looks like they may not be going to the nursing homes. I am taking one day at time and I might have to postpone my trip to LV.
Karin...are you having migraine headaches...do they know the cause. Hope you are feeling better soon.
Connie... I did ck out Friendship Village and I liked it. They offered a lot of great services. How is your dd doing post strep infection.
Rita..welcome back and I hope you had a great vacation. Just think the golfing season is almost here for you. How did you like Sanibel..did you do any shelling out there on the beach. I will be down there soon looking for my beach chair and cabana boy lol.
Susan..glad to see that you had a great bday. Hoping to hear baby news soon.
Laura...any updates on the March lunch bunch craft day?? Red Lobster is still calling you. lol
Jan...just email Laura with your info and she will send it to all of us. This is were you will fine bdays, addresses ect. remember if you get out early Thurs. please join us for the lunch bunch.
Wendy...how did you like the movie? I have not seen it yet but would like to. Is dh better with the flu.
Mich101.. I agree with you that as we get older are relatives need us more. They nurtured us when we were young so now it is our turn to help them with the quality and dignity of their life. You just want the best care for them..because you love them so much. It is soo hard sometimes to see them soo sick. It just makes you cry.
Smerf...how is your vacation going.. I bet you are have sooo much fun. Can't wait to see you at the lunch bunch.
Well I am going to chill now with a Cosmo.. I really need one after today. I hope everyone has a wonderful evening and remember to hug the one's you love. Hugs to each and everyone of you.
Remember the lunch bunch is meeting Thurs. I hope to see everyone there.
Blackjack
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Morning all! Chilly out there....with snow/rain coming tomorrow. Oh well...still Feb. I guess.
Blackjack...I am so sorry for all your family's troubles. Hopefully you will still be able to make LV...you really need it right now. DH's virus/flu thingy went away as quickly at it came...he did get a rapid strep tho Thurs nite at Minute Clinic and it was neg. Now he has a runny nose, so who knows??? Works around too many little kids.
Jan...I know you got the list from Laura, as that is how I got your address! Just look at the list again...I have americangreetings.com and I put in all the anniv/bd dates, and they send me an email to remind me. I would never remember otherwise...and sometimes I still forget!
Susan.....too funny re: the convertible. I still think you should get one...maybe you could angle for one for a retirement gift???? Hey...how's the book? Any baby news?
Karin...migraines? Or? You have had a time of it with work, your nutty neighbors and now this. Hopefully you will find something to alleviate them all together. Oops...the headaches, not your neighbors!
I'm gonna get going early today....I think DH is off to get an iPhone today like mine so I will need to set it all up for him, and it took me a while to get everything I wanted on it...on it! Have a wonderful holiday today...Hugs!
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Hi Girls...good morning...have you noticed that it's staying light a little longer each day? Yay!
Busy day for me today...it's dh's birthday. Every year I make him his favorite cookies...they're called Monster Cookies... they are a manly, man cookie... each is about the diam of a coffee can... there's a gazillion ingredients: oatmeal, choc chips, m&ms, peanut butter (un-tainted), and more! They are a labor of love... lots of work... but he's worth it!
Also have a hair highlight appt... and several errands... will try to fit in the "Y".
Hope you all have a nice day...
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Neither genius, fame, nor love show the greatness of the soul. Only kindness can do that.
Jean Babtiste Henri Lacordaire0 -
Morning----thank goodness for the sun --- otherwise that chilly air would feel much worse. Actually there is no wind so it is much harder to notice the chill. It will go away soon.
Happy B-Day to Laura's fellar. The cookies sound fabulous. Sounds like a three day project to eat one.....calories and all that, but yum-yum.
Hope all are well today....especially if we have a baby to welcome, and Bj...take a few moments to think of waves and warm breezes......just for a bit visualize the happy, vibrant, energy you get from that water......then you can come to where you are and really be there......and do what needs to be done.
I'll be checking in later.
Jackie
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Just checking in real quick. Really rough TX last week, but 4 down and 2 more to go! The Nuelasta was the worst of it! I am just wiped out! I do plan on coming to dinner this week. I'm looking forward to seeing everyone and reconnecting. I am bringing my "project" for everyone to see.
Take Care,
Carol
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When it rains it pours......DD is finally getting induced at 8 tomorrow, two nights of packed parent teacher conferences I cannot reschedule and my car broke down. Oh my. The baby is 11 days overdue and I thought for sure she would be here before these conferences. We rented a car while the bummer one gets fixed. I am just taking one day at a time. We have others to help out, so we will get by. I wish my DD would go into labor on her own as she so wanted to do that....but the doctor says 11 days is the limit. She went to Woodfield Mall today to see if she could walk herself into labor, but no luck.
Have fun at the dinner. Carol,I am sorry your treatments are so rough. I think it is best to think that the treatments need to be rough to kill the cancer. I am due for my annual mri as my breasts are dense and mammography never picked it up on the cancer. I have the panic issues, so I need to order my two tranquilizers to see me through. I may wait until after our trip to Arizona in March for the mri. Just too much right now.
So have fun and be happy everyone. The next post, I hope, will be that baby L is born. This is becoming a saga!
Susan
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mich101 - That's so nice of you... I know you're busy with your own life, but I'm sure she appreciates it. Hang in there... I know it must be tough. When I was in highschool, I visited nursing homes on the weekends as a volunteer... it WAS tough. I promised myself that I would never let my mom be in one. But as it turns out... I'll probably be in one b/4 her! lol lol just kidding!
Carol - Awwwww...I'm sorry! But gawd ... I soooooooooooooooo know how you feel. Hang in there juicer girl! I will e-mail you the website - sorry... I forgot to. Have you been too ill to juice lately? Take care.
Susan - You had one he** of a day! Hopefully you'll have a cute little face to look at real soon... a saga - yes, but such a good one!
blackjack - I will get out the e-mail tomorrow. Hope all your ailing relatives are resting comfortably - and hope you're not too exhausted! A Cosmo and a hot bath for you girl!
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I'm back to complain and whine...
OK, so my temp has been going up and down between 99 and 100.4. I called the onc's office and I get "go to the ER" Yeah, like I want to be in the hospital for ANOTHER 5 days, like last month. The way my feet, knees, and hips are hurting, my WBC's should be sky high! So, I have elected to stay home tonight, because I have a blood draw at 10 am tomorrow. ARRRRRGGGGGG!!!!! OK, nurses, what you you have done?
What's that saying...? "if it doesn't kill you, it will only make you stronger"
Will chemo EVER be over with?! Thanks for listening to me b*tch!
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We are listening Berry Patch. I love your alias...brings happy thoughts of berry patches and fruit tastes.
Hang in there!
Kater
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Morning! I see we are getting some snow...oh goody! Just what I want....
Susan....See, it's all your DH's fault. I TOLD him to buy that convertible. Can't believe DD went to Woodfield to induce labor! Too funny....but just take little baby steps. You will get thru the next few days. Laura's so right...that cute little face will be worth whatever happens over the next 24-48 hours. Let us know soonest...
Carol/berrrypatch....I will speak as a former chemo pt...my temp always did the up and down for 2 days after chemo. I didn't even call them...just took tylenol and watched it. Our cut-off for calling them was 101 for more than 4 hours anyway. BUT....you've had some problems with this before and while I understand your reluctance to go to the ER....well...maybe you should have. What se's are you having from the neulasta? Is it just the bone pain/joint pain? I took Claritin for 3 days on my onc's suggestion and did not have any problem with it. The Procrit was the one that wiped me out for 2 days and put me in bed...I hated those inj's and finally my onc said...no more. My counts bounced back rapidly and my having severe flu symptoms for those days wasn't worth it to either of us. There's only 2 left sweetie...just two. Very small number. You can do this....I wish I could hurry it all up for you, but Susan is right, just think of all those stray cancer cells getting blasted to he**.
Blackjack....how are the Moms? How are the relatives? How are you? Don't wear yourself out...you need your strength for LV...hoping you can still take off. You need it.
Laura...belated Happy BD to DH. Those cookies sound yummy....is it a recipe you would be willing to share????? How did the highlights come out? I get mine on 3/11, just in time for my heel screening on 3/13 and my mamm on 3/16 - gotta look good for the medical community, you know....
Does anyone watch "24"? DH was working on something for school last night and I don't watch it and we forgot it was on....I see you can download it on the computer but was wondering if Fox replays it????
Jacks/Rita/WendyTY.....how is the weather by you? Are you getting lots of rain? No danger of flooding we hope.
Karin...how are the headaches? I have a friend who ended up in hosp. for IV's for 5 days...finally they subsided after 10 days....they couldn't really pinpoint a reason for them and they never came back. Hopefully you are feeling much better....
Time to scoot....lots to do today as DH and I goofed off yesterday...no phone for him tho...they were once again sold out of the black ones. The gym, Jewel, house cleaning, and finishing up all the tax papers so I can send them off to the accountant. Whew...that will be done at least. DH has a big meeting tonight re: all teachers in U46 getting national certification and he's really interesting in hearing how that could work in his district. HIs niece did that in Fl. So that means I don't have to cook dinner tonight...always nice!
Have a great day, my pets! Looking forward to Thursday night with all of you!
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Oh Carol You've had quite the time of it with the treatments but you're on the downhill slide now! Only 2 more! You can do it!
Laura, what a sweetie to bake special "man-sized cookies" for your hubby!
Susan, I'm thinking about you and your family as you await the arrival of that baby! It sounds like you had one heck of a day! Hang in there. That cuddly little bundle will be worth all the stress and worry when it arrives. I'm right behind you. Our little boy should arrive the end of March or the first of April. Then we can share more "grandma stories!"
Hope that the snow doesn't stick in your area. It's time for Spring!
I'm off for bowling and lunch with the gals. Then WendyTY and I are heading for the Mall again. I must admit that I feel better after our daily walks. So far, I haven't noticed a difference on those pounds that I packed on over vacation.
Have a great day!
Rita
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If we had no winter, the spring would not be so pleasant: if we did not sometimes taste of adversity, prosperity would not be so welcome.
Anne BradstreetCarol/berrypatch.....this one is for you. Spring is coming and your release from chemo. It's getting close and in some ways will probably seem a little harder......chemo can be pretty cumulative. Still---only two more.....and in a way my last one did not totally count as my 'need and enthusiam' to be done was so strong that my dread of having to go get it was different. I had the same issues but just knowing that you are at that almost magical point of not having to do this again helps you so much to complete your goal of the struggle of getting through chemo. My 6 mos. was h*** and I can say that now it's over ---- but as I have often said " It's amazing what you can do when you have no choice" and this was definitely one of those things. There is life after chemo.....and it will be all the more precious and wonderful -- not only because you won't be doing chemo.....but because you will know you were strong and brave and though maybe often rocky at the helm that you held on and stayed the course. You will be the hero of your story and an inspiration to those around you and to life itself. Hang on Berrypatch....the sun is going to shine so bright for you soon.
Some sun this a.m. but it seems the clouds are muting it down just as I start to enjoy the brightness......so no water yet....but I'm not holding my breath. Rain will come....not sure when, but it will come. This after we have partially dried up somewhat....sigh !!!! Just another little sidetrack on the way to Spring......hurry, hurry, hurry. Actually, we often have pretty good Februarys --- or have in years past, but who knows.
Well, I'm onward for the day. Denny has the day off and has graciously offered breakfast out -- which is good as I didn't get to the store yesterday so I'm short on a few b-fast supplies. I'll be looking back in later. I'll see ya'll later.
Jackie
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