Illinois ladies facing bc
Comments
-
Carol - OM - you poor dear! Try to be patient... ride the tide... and remember - it's okay to cry! The Neulasta should have prevented this... let us know how your blood counts are.
Rita - Sounds like you had a great time in FL... lucky you... a warm vacation at this time of the year is so uplifting. Have fun bowling today. And... I haven't forgotten... I will send the missing scrapbook pages soon.
Wendrew - Sure... later today I will post the Manly Man Monster Cookie recipe.
---------------------------------
No kidding: When my sister was preggo with her first child...a day after her due date - I took her to a mall and made her walk reeeeeeally fast! lol She was bitchin* the whole time... but honest - it WORKED... she went into labor 7 hours later. lol We still laugh about it!
0 -
I just got back from the onco a bit ago. My WBC was 5.2. Normal is 3.6 - 10.0. IMHO it should be SKY HIGH. Hemoglobin and crit are a little low, but I'll try to talk Sweetie into taking me for a big juicy rare steak, and that should fix it. Anyway, when they took blood, they also took a blood culture. They said to keep an eye on the fever, and if it is still going up and down in 48 hrs., they will put me on some antibiotics...NOT IV!!! YAY! I guess that my body is trying to fight off some bug. Onco also gave me a script for something a little stronger than motrin for the joint pain, which is gone now. I will be filling that perscription before my next treatment though!
I also went over to the rad Dr. and made an appointment for a consultation for next month. OK, yeah, this is light at the end of the tunnel! I'm sure that rads are not the most pleasant thing, but it's GOTTA BE BETTER THAN CHEMO!!!
I so appreciate all the support and encouragement that you guys are sending my way. I try not to b*tch and moan too much, but you ladies really understand where I am coming from. Someday, I hope to be as inspiring as you all are, having been through this special hell, and have come out on the other side with a brighter outlook. I know that things will get better, as my Sweetie says "One step at a time Baby, we'll get through this!" Thank you all my friends!!!!
Now, on a more positive note, I have just spent about an hour pulling fabrics from my stash to make a very complicated 2 color scrap quilt. I have a pile of about 100+ (really) fabrics sitting here staring at me. This will help with cognitive thinking, and coordination, cause I do have to go back to work on 4/13.
Laura - looking forward to recipe for Man Cookies!
Jackie - I have copied the quote from Anne Bradstreet, and hung it here in the sewing studio where I can study it, and make it my mantra! You always have such wonderful quotes!
I will see all you ladies at dinner on Thursday!
Take Care, Carol
0 -
Carol - sorry you've been having a rough time with tx!! Come & vent anytime - that's what we are all here for.
Hi to everyone else - I've been very lazy with posting lately. I've just been coming & reading most of the posts every couple of days.
Looking forward to seeing everyone on Thursday
Hugs, Juliet0 -
Happy belated Valentine's Day, ladies. I'm so far behind reading all these posts, life's been very chaotic lately. I'm sure you all know how that goes.
I was at yetanother dance competition with my daughter all day Saturday. My DH had a lovely VD meal planned for that evening (filets and crab legs), but he ended up getting sick - VERY sick. The stomach flu is really making the rounds these days. He was so ill that I found him passed out in the bathroom and I had to call 911. He was still vomiting and I was panicked that he was going to aspirate. He's a good foot taller than I am and I could NOT move him at all. It was pretty frightening, but he did come to, and the paramedics checked him out and didn't end up taking him to the hospital. It was about a 24 hour duration, but he's recovered now.
So now, I'm crossing my fingers that my daughter or myself don't get it! She has her Turnabout dance this weekend and would be devastated to miss it. She's a senior, so everything is a big production these days.
Susan - Good luck with grandbaby to be! I was 10 days late with my daughter and I was threatening to fling myself down the stairs if they didn't induce me.
Carol - Enjoy that big juicy steak, you totally deserve it. Also, this is one place where I don't think anyone has to apologize for b*tching or moaning. We all need to loosen the release valve every now and then.
Looking forward to seeing some of you this week!
0 -
Hi Rita!!!
Fun thread as fun can be here!!! Live in Crete IL!!! Was diagnosed with IDC AND DCIS Nov 21st,2008!! Had surgery at RUSH MEDICAL CENTER, Feb.20th!!!Goin on 5 weeks of post op. Met with Dr, Cobleigh well noted onocologist there and chemo is recommended. Having a bliateral mx,thought it was emough, but totally understand why i need it. I DREAD THAT PART!!!
Still having fluid and being still in a healing mode, chemo will be on hold for a few more weeks or so. Not sure of the protocol yet, as they will have be attend a inservice taping closer to the time i am to have chemo. I do know it will be a 9 week program and 4 treatments. NEVER thought i would do chemo and here i am preparing for it!!!
Great thread and praying all goes well for you and all here!!!
Healing Hugs,
Donna
0 -
Welcome DonnaDio!! Not a club anyone wants to become a member of, but this group makes everything bearable!! Post often & let us know how you are doing.
Carol, I had a low grade fever the whole time I was on chemo. Think it was worst first few days after chemo. I was on neupogen shots, I gave my self daily as my ins would not pay for neulasta.
As for my headaches.... it's not the same as a migraine. I've had migraines since I was little. This time lights and sound didn't make a difference. I'm leaning toward a pinched nerve as the only thing that helps the pain is muscle relaxers!
Susan baby here yet? My DIL and niece are both due May 5th!!
Time to get back to work!!
Everyone take care!!
Spring is around the corner!!!
0 -
Hello Ladies.....I HAVE BOOBIES!!!!!!!!!!!!!! I got my prothesis today. I feel like a real woman... It's weird cuz you aren't used to having something there and now there is.. I love it though. I got a 42c bra from ABC and Size 7 forms from ABC. It looks really good. I am going to work tomorrow and show them off....
I hate this weather. I am so sick and tired of cold, cold and more cold. I can't wait ti the end of April to go down to Florida for my sons wedding. I am going to enjoy the nice warm weather.
Welcome DonnaDio..Glad to have you with us. I have been cancer-free for a year after having been diagnosed first in 2006 and then again a year later almost to they day in 2007. It seems like it flew by but during the time it seems like forever. Good Luck with everything.
Rita and WendyTY .....time to go celebrate...Lets get together soon for lunch or dinner.
Susan...hope that baby has come...
Everyone take care....
Ginny
0 -
Hello everyone. I'm sorry to have not been around for so long. I've been having Cyclic Vomiting problems, so I've just been dealing with that, the two jobs, and my house addition. I have a tendency to crawl into my own corner and just sleep when things are not going well. The CVS isn't breast cancer, so I was also spending a lot of time with a CVS forum, trying to find answers. I'm now on Lexapro, which I'm actually taking because most doctors consider CVS actually a brain disorder- like migraines, and meds like Lexapro might help control the symptoms.
I'm going to try and catch up with everyone, so I'm wondering if it's okay if I come to dinner on Thursday?
My best to all who are in treatment and I hope everyone else is doing well!
0 -
Carol - I can't wait to see your master-"piece" get it? Hang in there... you are being so tough... a true Illinois Girl!
PJuliet - So happy that we'll be seeing you Thurs! I love Buster's new photo...sniff, sniff...
I STILL miss my baby boy! The pain of his loss has gotten better, but I STILL have my moments... Irene - OM - how scary... maybe you can have your special dinner this coming weekend?
Donna - Hi - welcome... sending healing thoughts your way!
Ginny - Congrats...that's great... good for you! Glad you checked in with us. Be well!
tdbear - Sorry you have to deal with that... but you are so upbeat and always just wanting to go on with each day - like a real trooper. Hang in there.
Hi JAN - I was worried about you!... passed your house the other night... used the porta-potty... really had to "go" (just kidding). Do you want to go together Thursday night? I hate driving at night... so I could drive to your house, leave my car and go with you? Sorry to hear you've been having the probs again...Hope the Lex works...
0 -
Carol -I also endured a low grade fever often during chemo. I think it is just the body's way of coping. I didn't have it the whole time, but for a few days after each treatment.
Welcome DonnaDio! This is a great group. Come and vent often!
JanClare - sorry you are having vomiting issues. I hope you can get it under control.
Rene - wow - how scary to see DH passed out. Hope the rest of you stay germ free.
Not much else new here. Sorry I can't make the dinner this time as I have an event to go to at DD's school.
I hear more snow is coming!
0 -
Hi. I hope everyone is doing good. It has been awhile since I checked it. Donna, welcome....you have joined a wonderful group of women that are very supportive. My thoughts are with you....let us know if you need anything.
So, I have been trying to get back in the swing without radiation etc. Does anyone take the Zoladex shots monthly? My doc just changed them from once every 3 months to every month now. With that and Tamoxifen daily, I constantly have either chills or night sweats.
I was diagnosed with pneumonia at the beginning of the month on the radiated side. I took the antibiotics, but started feeling bad again 1 day after I finised the antibiotics. I have gone back to the doc yesterday, got a breathing trreatment, and they are doing more tests. I think I should be feeling better at this point. I am a bit frustrated, because I basically had a week after healing from rads to feel good. I have been sick for about 3 weeks now. Any ideas or thoughts?
0 -
Manly Man Monster Cookies
1 cup peanut butter
1/2 cup softened butter
1 1/2 cups brown sugar
1/2 cup granulated sugar
1 1/2 tsp baking powder
1/2 tsp baking soda
3 eggs
2 tsp vanilla
4 cups oatmeal (uncooked of course)
1 3/4 cups m&m's (plain)
chocolate chips and nuts are optional
---------------------------------------------------------------
Cream peanut butter and butter. Add sugars, baking powder & baking soda. Beat in eggs and vanilla. Stir in oats and m&m's (and any optional ingreds.). I use parchment paper on a large cookie sheet. And I use an ice cream scooper full of the dough for each cookie. Press each one down just a little. But make sure to leave lots of space around each one - remember, they're manly!... lol Bake @ 350 for 15 minutes... although... in my oven...it's more like 25 mins. You can tell if they're done if the bottoms are moderately browned. Enjoy! Any questions... just call Laura@manlymanmonstercookies.com - NOT REALLY...just kidding! lol
I put an egg in the shot - to show you "scale"/size of each cookie. Oh and that's a post-it-note for dh that says Happy Birthday Honey! Picked him up a gallon of milk and he was a happy boy! lol
0 -
Oh Laura, from what you said- I just read back a little and learned about your Buddy. I'm so, so sorry- he was one special little dog. (((hugs)))
I'd be more then happy to drive on Thursday. Don't worry about parking at my house, I'll come pick you up- about 5:30, okay?
0 -
Jan - Thanks...yes... our little boy is gone... we are still quite devastated. We still think that his soft and fluffy little body will somehow just magically re-appear. It's hard to think that he will never be with us again...there I go again... tears...
BUT - on another, happier note... 5:30 would be great!. Thanks so much.
0 -
Welcome, welcome Donna Dio. This is the place to come to get a bit of fresh air, a place to lay your head down and rest....a place to vent when you need to....be afraid if that is what you feel and to ask questions and share your journey through the disease we were never going to get.
Hi to Jan Clare and hope your meds work really, really well. Jule, fingers crossed and healing vibes coming your way....it's definitely time to mend now isn't it ? Tdbear, Juliet Renee, Ginny, Connie and everyone here......hope you have had a good day today --- and I'm thinking Spring as hard ad I can for everyone. See you all tomorrow.
Jackie
0 -
Morning! Well...all I can say...at least for right now, it's rain.DonnaDio....welcome to the club none of us ever wanted to join! Please come often and vent, scream, yell...whatever. This is what we are all here for! We have all sorts of dx's. tx's, etc..and have a gal right now going thru chemo...so we have lots to offer you in the way of support!
Ginny....congrats on the boobies! We need pics.........Rita, WendyTY....you need to take her out for lunch and bring your camera!
JanClare....sorry your CVS is still causing havoc in your life. Hopefully the meds will help to control this. I did some reading on this syndrome when you first talked about it and it sounds like a very hard disease to diagnose and to treat...I will keep good thoughts for you!
Laura...cookies sound yum...is that reg. oatmeal, or the quick cooking one????
Rene...OMG! Jeepers...what a valentine present for you to come home to! You will always remember this one tho as the St Valentine's Day that your DH was so overwhelmed with love and desire for you that he just passed out from sheer exhilaration at the thought of seeing you! (did that work for you?)
Juliet...wondered where you were hiding! How are your girls?
Jule...sending a big hug your way....great...finally done with rads and now it's something else. Always something else.....
Carol...no hospital for you, you tough IL broad, you! Only 2 left, only 2 left!!!! YAY !!!! Rads will be a breeze...just irritating that you have to go every, single day! Is it at least close by you?
Susan...hmmmm...you didn't post last night...baby???????
Connie...sorry you can't make it tomorrow...you will be missed (but then we can talk about you LOL!)
Blackjack....how is your family?
Anybody else I missed...hope you have a great day. It's raining, but at least it's not snow YET...but I hear it will be turning over tonight and downright cold tomorrow. Oh well...it is still February after all. Have a great wonderful happy day...not much for me today except I get to send out the taxes (YAY...done!).....oops..just heard on ch 9..."measurable snow amounts" for the weekend. Blech.
Where is frickin' spring?????????????
0 -
Nobody has things just as he would like them. The thing to do is to make a success with what material I have. It is a sheer waste of time and soulpower to imagine what I would do if things were different. They are not different.
-- Dr. Frank Crane0 -
Morning Girls -
Wendy - I use the good ol' fashioned oats.
Jule - Yikes... sorry you have been sick. I don't get the injections, but I do take Tamoxifen. I have had HORRIBLE hot/cold flashes, head sweats and night sweats. I almost threw my bottle of them into the forest one night! I have been miserable with it. And to make matters even worse, the sweat has a real strong odor. How embarassing... somedays I take 2-3 showers. It's a pain in the butt. HOWEVER...and this may help you too...on Monday I started to take the Tamox at 9:00 at night instead of in the morning. It's only been a couple of days, but I have noticed sweats, etc during the night. Yippee! So...if you're not taking them at night... you may want to try it.
0 -
Hi, Warning--- this is long....sorry!
Well...I've had a pretty scary day yesterday---wrote this last night and it didn't post correctly...
Figured this is the one place I could share where it would be understood... I had my annual oby/gyn appt today. I switched obys last year (long story) and have met this doctor only once before. I liked her and was particularly pleased that she was well versed in breast and ovarian cancer care. I saw her before the reoccurence last March, however, so this appt I had a lot to cover with her. Her nurse came to get me. I could tell with one look that she had been through cancer treatment recently. She fronted it- said looks like you and I have something in common. Asked if she could hug me, started to tear up and told me a bit about her situation. Asked me a bunch of questions. This sisterhood we have.... So the Dr comes in, I fill her in on all that happened this year, ask a bunch of questions and we get on with the exam. I'm a bit uncomfortable with the breast exam--- so many scars....so I'm nervously talking while she does the breast exam on my real breast when I realize she's gone silent and her hand has stopped moving. Goes around again and stops at the same place. Probes and probes. You know the OH SH---- ! feeling? The one where all the blood drains from your face and your heart starts pounding? Julie, do you still do breast exams? Yes..... Have you ever felt this? Puts my hand on the spot. Oh F--- S---- No....... Please God, NO.....! Sorry- not very eloquent, but that's all I can think at the moment. I feel what she feels....it's something. Maybe not a lump, but a something? I realize the spot is near the nipple and the bottom part of the anchor incision (this breast was reduced and lifted- last surgery on 12/30). I suggest that it's perhaps scar tissue? That it doesn't feel quite like the other two lumps I discovered. She agrees that it's possible, but says-- and I'm reading her face during this-- that she would be remiss if she didn't tell me to get it checked out. I ask if she can write me an order to get it imaged at Glenbrook and she says sure-- so I'm imagining I will have to go back in a few days. She goes out, comes back, continues exam-- but then in about 10 minutes, her nurse knocks and tells me I have an appt in 15 minutes!! Turns out she knows a few nurses in the breast center and got me bumped to the front of the line. This sisterhood of ours..... I so need to write her a thank you note. Next thing I know, I'm in my car, heading over to the hospital. When I was a child, I used to have a terrible reoccuring dream. Same dream and I would dread its return. Remembered that as I walked into the Breast center...feeling very much like I was living my bad dream. They were expecting me there and for the first time ever, I didn't wait. They ushered me right in. The tech was very nice-- a bit on the too perky side- but this one actually had read my chart. Told me I had been here entirely too much and she was going to do everything in her power to get me in and out with the answers I needed. I have NEVER heard that before-- and I almost hugged her. I'm not a huggy person. So she gets me into a mammogram. Then ultrasound. I'm laying on the table, looking at the same pictures, the ones I realize I've memorized, the stupid pastel beach scenes, the unbearable pastorals....understanding they have been etched into my brain and I have seen them over and over in flashbacks, nightmares. And here I am, where I never wanted to be again.... I think about something I think Susan wrote about. In the last 20 minutes, I've been planning my funeral. I've been testing out how I explain to my boss that I need surgery again to have the other breast removed. I'm wondering if I will see my kids graduate grade school. I think, crap, my hair has just started getting back to normal. I'm thinking you stupid idiot- why didn't you have the other breast removed......
The radiologist comes in. One I had never met- and liked instantly. Straightforward, blunt, let's get down to business. Looked at the films, looked at the ultrasound. Tells me straight out with no forward that it's SCAR TISSUE. SCAR TISSUE. That he sees nothing of concern. One tear escapes, hits the pillow. Then I realize he's scolding me-- telling me I should not have panicked this soon after surgery, that there was no reason to rush in, that the breast goes through all these changes for a good year. I explain to him about the above appt, the concern in my oby's eyes.... He backed off. Softened. Said, well, it's actually ok, you needed a new baseline on this breast anyhow. Leaves. Tech hands me a tissue. She got it.
So I gather myself and go to the coffee kiosk in the lobby. I don't want coffee. I buy the biggest chocolatey thing I see. Big brownie with chips in it. Stuff it in my pocket. Go out to my car. I've learned to park in the farthest out spot I can find. Barely get in before the sobs start. Just sit there and cry my head off. Start driving home, stuffing brownie pieces in my mouth btw sniffles. Thinking I must look a sight, mascara running and my cheeks full of brownie. Think I must remember to write about this as there is only one group of women who could begin to understand this.
I realize very acutely that my world could have changed again very quickly in those 5 minutes that radiologist regarded the ultrasound. Yes, I think we need to do a biopsy....and I would be curled up in my bed right now. I'm having a glass of wine instead. I broke open the good bottle. But I'm not really celebrating. I feel like I dodged another bullet. I feel drained. So....I'm going to try and make it Thursday night and bask in your company. And try to sleep tonight. -j
-julieHi, Warning--- this is long....sorry!
Well...I've had a pretty scary day. Figured this is the one place I could share where it would be understood... I had my annual oby/gyn appt today. I switched obys last year (long story) and have met this doctor only once before. I liked her and was particularly pleased that she was well versed in breast and ovarian cancer care. I saw her before the reoccurence last March, however, so this appt I had a lot to cover with her. Her nurse came to get me. I could tell with one look that she had been through cancer treatment recently. She fronted it- said looks like you and I have something in common. Asked if she could hug me, started to tear up and told me a bit about her situation. Asked me a bunch of questions. This sisterhood we have.... So the Dr comes in, I fill her in on all that happened this year, ask a bunch of questions and we get on with the exam. I'm a bit uncomfortable with the breast exam--- so many scars....so I'm nervously talking while she does the breast exam on my real breast when I realize she's gone silent and her hand has stopped moving. Goes around again and stops at the same place. Probes and probes. You know the OH SH---- ! feeling? The one where all the blood drains from your face and your heart starts pounding? Julie, do you still do breast exams? Yes..... Have you ever felt this? Puts my hand on the spot. Oh F--- S---- No....... Please God, NO.....! Sorry- not very eloquent, but that's all I can think at the moment. I feel what she feels....it's something. Maybe not a lump, but a something? I realize the spot is near the nipple and the bottom part of the anchor incision (this breast was reduced and lifted- last surgery on 12/30). I suggest that it's perhaps scar tissue? That it doesn't feel quite like the other two lumps I discovered. She agrees that it's possible, but says-- and I'm reading her face during this-- that she would be remiss if she didn't tell me to get it checked out. I ask if she can write me an order to get it imaged at Glenbrook and she says sure-- so I'm imagining I will have to go back in a few days. She goes out, comes back, continues exam-- but then in about 10 minutes, her nurse knocks and tells me I have an appt in 15 minutes!! Turns out she knows a few nurses in the breast center and got me bumped to the front of the line. This sisterhood of ours..... I so need to write her a thank you note. Next thing I know, I'm in my car, heading over to the hospital. When I was a child, I used to have a terrible reoccuring dream. Same dream and I would dread its return. Remembered that as I walked into the Breast center...feeling very much like I was living my bad dream. They were expecting me there and for the first time ever, I didn't wait. They ushered me right in. The tech was very nice-- a bit on the too perky side- but this one actually had read my chart. Told me I had been here entirely too much and she was going to do everything in her power to get me in and out with the answers I needed. I have NEVER heard that before-- and I almost hugged her. I'm not a huggy person. So she gets me into a mammogram. Then ultrasound. I'm laying on the table, looking at the same pictures, the ones I realize I've memorized, the stupid pastel beach scenes, the unbearable pastorals....understanding they have been etched into my brain and I have seen them over and over in flashbacks, nightmares. And here I am, where I never wanted to be again.... I think about something I think Susan wrote about. In the last 20 minutes, I've been planning my funeral. I've been testing out how I explain to my boss that I need surgery again to have the other breast removed. I'm wondering if I will see my kids graduate grade school. I think, crap, my hair has just started getting back to normal. I'm thinking you stupid idiot- why didn't you have the other breast removed......
The radiologist comes in. One I had never met- and liked instantly. Straightforward, blunt, let's get down to business. Looked at the films, looked at the ultrasound. Tells me straight out with no forward that it's SCAR TISSUE. SCAR TISSUE. That he sees nothing of concern. One tear escapes, hits the pillow. Then I realize he's scolding me-- telling me I should not have panicked this soon after surgery, that there was no reason to rush in, that the breast goes through all these changes for a good year. I explain to him about the above appt, the concern in my oby's eyes.... He backed off. Softened. Said, well, it's actually ok, you needed a new baseline on this breast anyhow. Leaves. Tech hands me a tissue. She got it.
So I gather myself and go to the coffee kiosk in the lobby. I don't want coffee. I buy the biggest chocolatey thing I see. Big brownie with chips in it. Stuff it in my pocket. Go out to my car. I've learned to park in the farthest out spot I can find. Barely get in before the sobs start. Just sit there and cry my head off. Start driving home, stuffing brownie pieces in my mouth btw sniffles. Thinking I must look a sight, mascara running and my cheeks full of brownie. Think I must remember to write about this as there is only one group of women who could begin to understand this.
I realize very acutely that my world could have changed again very quickly in those 5 minutes that radiologist regarded the ultrasound. Yes, I think we need to do a biopsy....and I would be curled up in my bed right now. I'm having a glass of wine instead. I broke open the good bottle. But I'm not really celebrating. I feel like I dodged another bullet. I feel drained. So....I'm going to try and make it Thursday night and bask in your company. And try to sleep tonight. -j
-julie0 -
Good Wednesday morning everyone.....
JulieB - you have mail!
LauraGTO - I think about you & Buddy very often. I just completely understand. Any more thoughts on getting a new baby ? I often wonder what I will do when Buster is gone. It's a very sad thing. Just wanna send you a big hug hon!!!
WendyTY - I hear ya. I am sick of winter. And what, snow this weekend? Blech. I hadn't heard about that. I have a "countdown" hanging on my wall in the kitchen - it's a countdown to April 1st, which I like (hope!) to consider Spring. We've got like 40 days to go or so.
Rene - So scary about DH. Good for you for thinking fast & calling 911. I hope you all manage to stay well & not catch the dreaded bug.
DonnaDio - glad you found the group, welcome.
Hi to Jackie, Connie, JanClare, Queen Rita, Ginny, Karin - and everyone else too.
Looking forward to tomorrow & seeing some of the "locals".
My new girls are pretty good, thanks for asking. I guess I tried to do a bit too much the other day & I had a lot of pain... it's so hard to do "nothing"!! Wearing sports bras 24/7 is a little annoying - but it will all be worth it in the end. Not sure how different I will look to you guys ??? You'll have to let me know if you see a difference
Have a good day everyone, stay warm & dry. Juliet
0 -
Hmmm. I didn't post anything but the quote this morning and wondered why and I think I just got my answer. I'm am so sorry you had to go through this Julie. This is the gift as so many of the other girls have said that keeps on giving,
I can't really agree about what turned out to be minor scolding. The moment ANY Doctor indicates by look, gesture, frown or whatever WE are going to get very close to if not totally assume the worst. I had my moments ( but thank god they were basically moments ) during this last round of more studies on the right side.....which they had been doing for two years and no one bothered to tell me....and someone forgot to do at some point.....so I lived with a little fear for a month. You spend so much of your life getting exam after exam --- and even when they are something---they are not cancer. But then one day it happens and we are forever and ever changed Pulled out of a comfort zone most of us will never get back too,ever.
We all get to live on the edge now and it will take surprisingly little to make us teeter right off. I think though I wish it were not that way......that we just get to live with those times -- right or wrong, sensitive or seemingly in-sensitive.
And everything that happens helps you to learn and grow and find strength and resolve and move forward with hope that you have seen the worst. I am not giving in and I'm not giving up and now I truly know that I need to pray we all can meet this challenge or ones like it without fear and panic and paranoia. Oh so easy to say......and sending lots of healing hugs.
Jackie
0 -
Oh, ugh- I have NO idea why my post came out repeating twice. Making it TWICE as long. SORRY! It didn't post at all yesterday and now this. I think my computer is possessed.
-jb
0 -
That's okay JulieB, it's an important story & warranted being told twice
0 -
Wrote once already and went into cyberspace!!!Just wanted to say thanks for the warm welcome and love the energy and genuine sisterhood felt here!!! IT is beyond refreshing!!! i
I AM still in recovery from surgery and still retaining some fluid that weekly has to be drained. Chemo is not goin to be assigned until I am healed. Tomm. I start PT!Have some cording in right arm and obviously PT is so needed.
WOW Julie B..had me on pins and needles and glad you are ok!!!!Scar tissue has been a issue for others in the past and goin thru that had to have been a nightmare!!!!!Good you had the loving nurses assigned to you at that moment!!!!Goin for our check up or DR visit will ever be the same after our diagnosis as it is always..is it back, or am I goin to be ok etc etc..never feel like we are safe. That is why, we can be here at least to vent and support each other!
My girls are still swollen and bruised..my body still feels sore!!!Only has been 4 weeks !!!
Love this thread and thanks for the great posts!!!
Healing thoughts and Hugs..
Donna
0 -
Oh Julie honey......
You should have called one of us....I think we should make sure we have each other's #'s in our cell phones. Or maybe we shouldn't go to mamm appts alone anymore...and I am so not kidding on this point. If it's good, we go out for lunch/dinner...if not so good, we have a shoulder.
OK...I have an appt Monday 3/16 at 10am at Delnor.....who wants to come with me?????
Julie...so glad you are OK....
0 -
Julieb.....that was harrowing. I am so glad it came out okay. I guess we all just "seconds away" from that dread we all felt in the of our stomachs when we realized it was there and we couldn't wish it away.
Baby Lila Grace was born at 12:05 am and she is a beauty. All are well and happy. She is 8lbs and 12 ounces, but looks so little to me. Her "big" sister, who is only 15 months herself, gets upset when the baby cries! Oh dear!
I swear I posted this earlier and it is not here. Some posts must be skipping out.
Take care!
Susan
0 -
Welcome Donna! We welcome you with open arms. There will always be somebody here to offer encouragement and suggestions. The ladies on this thread are super and have a wide range of knowledge with very diverse journeys. There is always room for one more on our Illinois thread.
Susan! Congrats! Lila Grace has a great start....8 lbs. 12 oz. Wow! I'm glad that everyone is doing well, including the proud grandma!
Ginny...congrats on the new "ladies." We're going to have to get together so we can check them out! I bet you're glad to have them.
Laura, the cookie recipe sounds yummy. Thanks for sharing!
Jan Clare...so glad to see a post from you and so glad that you're joining the gals tomorrow night. Hugs!
I have to head out for the church for Wednesday night youth group so I'm out of here. How I wish that I could join you ladies tomorrow night. Have a great time and post pictures!
Rita
0 -
Julie - your story reminded me of my experience in January when they held me over for an ultrasound after the mammo. Didn't tell me they were just being extra cautious until the end so I thought I was a goner. I too started planning my next surgery, chemo, etc. while I was lying there. So glad it all worked out for you.
Congrats Susan on the beautiful baby!
Have a great night everyone!
0 -
OMG Julie, I am so glad that it was scar tissue. And I am so glad that you did not have to wait even 1 extra minute to find out! Honestly, my heart was POUNDING and my eyes were filling until I read that everything was OK. Wendy is right...I do not think that any of us...ever...should go alone to a mammo, ultrasound, MRI, bone scan; any test that could give us the dreadful news. We IL Ladies are tough, but there is a limit to what we should have to deal with without a sister by our sides. Wendy, I'll be glad to accompany you to your mammo if you want me to.
Welcome Donna! I look forward to meeting you. This is a lovely place to come to for cyber-hugs and understanding! And then you meet the ladies and you get lots of real hugs too!
Yay Susan!!!! The baby is finally here! Lila Grace is a lovely name! You must be so thrilled!!!!!!
Well, I'll see some of you tomorrow night. I am so looking forward to getting out of the house and seeing some friendly faces!
Take Care, Carol
0 -
Oh Julie. *hugs you tight*
I think we all can empathize with that cold dread whenever there's any whisper of MORE in our medical lives. I am SO happy that you got in right away and mostly, that it was just scar tissue. I'm surprised the Gyn didn't emphasize that possibility to you , at least as some measure of reassurance. Although, I do think it's a good thing that you did check it out regardless. I really hope you can make it tomorrow...
I am caught in that very weird and tight place where I'm panicked at getting anything checked out, but I'm too afraid not to. My legs are still feeling.. not right, but I'm putting off the EMG (to check the nerves) until after my surgery next week. If there is a tumor pressing on my lower spine - I'll deal with it in a few weeks, AFTER my boobs are fixed for the last time.
My common sense tells me that I have just been sitting on my a** too much in the evenings and that's why my spine is fighting back.
I neeeeed a pilates class! Oh yeah, and someone to kick my butt and make me actually attend.
Susan! Congratulations on the new granddaughter. What an utterly gorgeous name!
Laura - Thanks for that recipe, they sound delicious.
0
![[Deleted User]](https://us.v-cdn.net/6037276/uploads/defaultavatar/nF0ALO3I3QJM7.jpg)
