Illinois ladies facing bc
Comments
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Also...
Donna - How is your detox going? I'm envious...can't wait to start mine!
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Oh Laura you poor thing. I am so sorry you have to go through this. Dont forget to try and get gloves also when you get your sleeves. Because if you got LE it will move on down. They didnt give me gloves at first and I had to go back. The place is kinda far from me, I got both the full glove (which I hate) and a partial glove. I love it. all of your fingers are exposed to move freely. It covers your knuckles. I then ordered on my own a glove that has the very end finger tip cut out. Good luck today. Love Bud
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Laura, just popped in to tell you that my FIRST PT on my hip made me nearly cry. I think thatthey have to break up a lot of stuff. The very next one was so much better! She warned me this was not going to be a massahe that we get at the spa, and she was right. They must be so strong to do that. Different body part but hopefully like me, the subsequent ones were so much easier.
DC is gorgeous today! I hope Illinois is sunny too.
Have a great weekend!
Susan
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HAPPY BIRTHDY BLACKJACK!!!!ALL the best!!!! You are such an inspriation here and glad to know you. Look forward to someday meeting you in person!!!!
Jan clare..Would be so awesome if you and Laura could make it to our lunch April 23rd!!!
Well.. off for errands and a massage and some shopping with a good friend. Met with a real estate guy yesterday and looks like we will be starting the selling house process soon!
See you soon and ALL GOOD thoughts to those in tx and having appts!!!!
Donna
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Connie-Thanks for thinking of me - I'd love to know how your sister is doing with the Fosomax. I still haven't filled my script
nor can I get into a routine to do weight bearing exercise 0 -
Think that it's fun, that you're guided,
and that all is well.
Think that there's time, that life is easy,
and that the best is yet to come.
Think that the reasons that elude you
will one day catch up,
that the lessons that have stumped you
will one day bring joy,
and that the sorrows that have crippled you
will soon give you wings.
Think that you're important, that you cannot fail,
and that happiness always returns.
And think that you're beautiful.
Mike Dooley0 -
Mind is the master power that molds and makes,
And we are Mind, and evermore we take
The tool of thought, and shaping what we will,
Bring forth a thousand joys, a thousand ills,
We think in secret, and it comes to pass -
Our world is but our looking glass.
-- James Allen0 -
Laura.. the detox was pretty harsh.. but i have changed it to a longer period of time and it is working better!!!!Which one are you doin? Mine is a colon cleanse.. by blessedherbs.com.0
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Morning! Beautiful day yesterday....gloomy today but will be nice all this week with very little rain after tomorrow.
Hmmmm....cleanses, huh? Yeah....no thanks. I do see those commercials where they show you the 15lbs of "stuff" that you can clean out of your intestines tho! Yuck. I figure with my 500 mg of magnesium does a pretty good job on a daily basis! OK...moving on....
Laura....how's the LE?
Budders....how are you feeling? Better now that you have started a conversation with someone? How's that dead corn looking, or it it plowed under by now???
BJ,,,,how's your Mom? How's your MIL? How are YOU???
Not much going on around here....but I will say the further out I get from all the Vit D I was taking, the better I feel so I am guessing that my body just didn't like that amount. I've been getting my vit D the old fashioned way....watch me now get skin cancer! Only kidding, only kidding. I sit in the sun around 8:30am and I don't think the risk at that time of day is very high.
Hey, the sun is peeking thru the clouds! Yay! Have a great Sunday, y'all!
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Something light-hearted today in view of the fact that we have had such great weather the past two days -- loaded with pollen but hey it's spring.
I keep six honest serving-men
(They taught me all I knew);
Their names are What and Why and When
And How and Where and Who
Rudyard Kipling0 -
Gorgeous looking day outside. Dh has one of his somewhat rare days off on Sunday. I bet I could find some things to do -- that really should be done. Need to clear the ground for mowing. I could not get into the mood when we were having those terrific winds.
Like females everywhere -- I have always got something to do. My trouble is finding the energy most of the time. My work always comes last so is done long after I've had my energy bursts. I'm an early morning type worker --- by 2 p.m. a whole lot of things are being forced to an extent. I still do it, but it has become work by then.
Hoping everyone is feeling chipper. I'll be checking in later. Computer is working better I think. It was acting strange all the while we had those winds. Thought I'd have to take it in for a tune-up, but now seems much better. Still down-loading at dial-up speed almost and Charter says they will send a technician out if it keeps up. Have a great day.
Hugs, Jackie
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Good morning Gals. It's sure been quite around here these past couple of days. i guess you all have been busy. the friend I met at the Onc office told me about the counsler at teh cancer clinic. DUH.....Why didnt I think of that?? She is free she is close to home and that is what she is there for. Wendy how much D were you on again? I forgot. what were your symptoms you were taking too much. Enjoy that sunshine. I sure do. We decided not to start any new baby chicks out this year. Just gonna stay witht the old hens we got. They are all laying just fine. Chicks are a little work. We will get another batch next year. Unless the school wants me to take in theirs. The kids always hatch some. Enjoy this wonderfull day. And for all of you sisters out there in treatment. You are constantly in my thoughts, and everyday that goes by ...remember your one day close to being done. Love Buddy
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Good morning!! Well I certainly enjoyed the beautiful weather yesterday as well. Wend for a long walk outside and then took the baby to my friend's daughter's 1st year B-day. This was only our second time out with her other than Dr's. so she was a bit confused. It's a 5 min drive so once she started fussing we went home. It was nice for me to see my friends as I haven't been out other than the grocery store in a month since the cold. Dare I say this.. Gab has slept from 9-5:30 for 3 nights now.. (we finally changed our swaddling tactic to a different blanket contraption which may be doing the trick)!!! It's been nice.. crossing my fingers that it lasts..
Wendy- I got my meet yesterday.. and NO it didn't come whole.. it comes in clear air proof freezer bags.. clear and nicely labeled.. Hoping the weather stays and my DH has time to put it on the grill tonight!!
Other than that.. a huge stressful project at work that I am doing my best NOT to freak about.. Not too successfully.. Grocery shopping and relaxing today..
Sure been nice to have a week off treatment.. back to it this Wed I go..
Hope everyone enjoys today!!
Marina0 -
Happy Sunday to all...what a gorgeous day it was yesterday. Sunshine and warmth..yeah. I hope you all were able to get out and enjoy the nice weather. I know I did. My fish are really stirring up in the pond and it looks like I will have new babies soon. I will open up the pond in May, just in time for Mom's Day. Boating season is almost here..the piers are in and the boats are starting to show up...ohhhhhh I am soooo excited. I have only 35 more days of school left..so who is counting. lol Then summer / playtime is here. yeah for me.
Well I gotta run..busy day today. I hope everyone has a great Sunday. Thinking of all of you who are in tx and wishing you a speedy recovery. To all of you out of tx rememeber to be healthy...be happy and enjoy life. Hugs to all of you.
Have a great day,
BJ
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Still in DC. My brother had a party for us and his adopted kids were the servers. These are the children he adopted at the age of 58 from Vietnam. My niece was dressed in Vietnamese atire and looked so beautiful. This is the one I took to American Girl downtown Chicago, so she is completely Westernized, but likes to dress up! We had so much fun!
Thanks for all the advice on Aleve and Buddy, we should be careful. I was becoming very cavalier about popping them and I appreciate the warning!
We are going to Annapolis tomorrow and more relatives today. The weather as better in Illinois yesterday than here, but it must have moved East because it is great today.
Got great news that my daughter and SIL sold their condo. It was so tiny with two babies. They took a hit economically, but perhaps they can make it up with a greatly reduced house. Hard times here.
Have fun!
Susan
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Been up and down mood-wise since Friday. Friday was a bad day physically, too. Was shaky - thought it was my blood sugar, but the company nurses checked it and it was fine. Saturday was a good day. Today I'm teary eyed and crying at the drop of a hat.
I thought I was managing work well until Thursday and Friday when I managed to say a couple stupid things. Plus now I realized that last week I was trying to handle work like I'm leaving to go on vacation....trying to tie up loose ends when I think I should be asking for help. I've been embarassed because I keep reading things over and over and I can't make sense out things right now. Majority of people don't know that my last day of work is next Friday and they keep coming over and talking about things that are going to go on the week of my surgery and it's getting me majorly stressed out. On top of this a person in our department is leaving and I have been in interested in that type of position but here I am with cancer - about to take a 4 - 6 leave of absence. And then lord knows how I'll feel with chemo and radiation.
This year is like a really bad joke.
Thanks for letting me vent. Carolyn
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Oh Carolyn....that is what we are here for --- because cancer is not fair and as you well see, it tends to rob you of much more than your health --- moods, jobs, friends, maybe even some relatives.
At the same time.. I always think if a door closes and I am attentive to it, something else will crop up if I keep my eyes and heart open. Also, you may still ( even with the rather large baggage ) be the best person for the job so it could still work out. Hope I'm not putting something out there that you can't conceive....but chemo and rads went well for many here...with minor adjustments they kept going to work. Easy for me to say roll with the punches as I missed some work along the way, but it is possible to do. Here's hoping that you start to feel a little less weight on your shoulders.
Big hugs, Jackie
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Here's a friend to help you through, Carolyn:
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Thanks Jackie.
I took a nap in the hope to stop crying and that worked. Additionally, my little cat curled up next to me, put his head on my stomach and started purring. It was just what I needed. He is sooo perceptive.
Hopefully this week will not be so much of a roller coaster ride. Maybe I'm getting it all out this weekend.
Carolyn
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Carolyn....It is so understood where you are at and totally can relate! There are so many array of emotins and ups an downs and it is just hard! Takin a nap was a great idea as it is a good and healthy escape. Your kitty and you had some god bonding too!!!lolo!!!Animals know how we are feeling!!!Just know, tomm is another day and it usually feels really good after the kind you have been experiencing. Hang in there and know , this too shall pass.!
Hi Budders!!! Bet the chicks are cute as ever!!!!Hope you get things set up now with the counsleor!! It is a good thing to do too. Wendy..like Buddy.. want to know how much vit d you are on. I am on 5,000 units and now am doin it every other day. What are your symptoms or were?
Will check in soon and write more too!!!
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Good Morning Everyone!
Sorry I haven't checked in for awhile but life has me pretty busy these days. Today (Monday) is my last chemo cycle and I'm soo excited!
To those of you that just started or are in the middle, just know you WILL get through this! We all know that it's a long hard road but it's completely do able. Don't be afraid to ask questions or depend on the people that love you and the ladies on here are so wonderful... get to know them!
Marilyn
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Carolyn........Hugs! We all understand what you're feeling right now. Rest assured that the mood swings, the "weepiness", the fear of the unknown, and the loneliness and anxiety associated with this entire journey is normal. Of course you're emotional. Of course you don't want your life disrupted for the surgery and treatments. Of course this all seems so unfair...........and it IS! These feelings and emotions that you are feeling right now are exactly what prompted me to start this thread for the Illinois gals. I felt completely lost, afraid, moody, alone, obsessed with my situation, and unable to function properly. However, if it's any consolation, things do get better as the treatments begin. No matter how impossible this whole journey seems right now, it is DOABLE. Oh yah, we don't really WANT to do it, but we can. The gals on this thread will be here for you the entire way.....every single step in your journey. We'll listen, offer suggestions, and cheer you on! You can do it. It gets easier as it goes because once your complete treatment plan is in effect, you at least feel like you have some control over the disease and the situation. Take it one day at a time and soon those days will be behind you!
Marilyn.......congrats on finishing up your chemo today! YEAH!!!!!! No mo' chemo! I'm so glad that your life is busy and you're finishing this part of your journey.
Well, I've joined the group of joint-suffering gals. My left knee is giving me fits and the ball of my right foot is really hurting. I can't remembering doing anything to cause either of these but the knee pain started first so maybe the foot pain is a result of pampering the knee. For the first time in a LONG time, I dug out the Aleve this weekend. It makes me wonder if it's not compliments of the Arimidex.
Well, I'm hosting Bunco at my house on Wednesday afternoon and I have alot of errands and cleaning to get get done today. Grocery shopping..........YUCK..........ranks right up there at the top of the list so I need to get off here and get moving.
Catch you all later. I hope everyone enjoyed the weekend weather!
Rita
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MsMarilyn...so nice to see you this morning. Great big yay for you finishing chemo today. Can I just say Whew for you.!!!!!! I assume you will have rads too, but they are far, far easier for most then chemo. Just boring for the most part. It is nice to move on to the next plateau in dealing with this beast.
Susan, are you still having a great time in Wash, DC. Any time you can be with the grannies is good times. So glad the condo is sold. No fun to be in a place that you have outgrown. Better to sell at a loss then not sell. You are quite right....as long as the economy is still shaky....they have a great chance to get a good deal while buying up fairly good. Here's hoping for them.
Budders...how is it going for you? Which day were you scheduled to talk to the psychologist? Hope you like her and it goes well. Though now and then a very small black cloud slips in on me, for the most part I have to say that my life is pretty much like it always was. I get mildly edgy about appts.coming up, but try to adopt the attitude that I fixed it....and this test/check-up will prove it....so I don't stress too much. I am just hoping that you find someone that you connect too that can help you.
Carolyn...I hope your sun is out today. If not, hope this helps:
Laura, hope your arm is getting better and better. Hard to imagine going so long and then getting that nasty LE. Makes a person stop and think....but with only a lumpectomy and only having three nodes out I think with care I am ok.
Rita..your not working too hard are you ???? Hi to MaryJane as well ! Haven't forgotten about you.
Well, onward for the morning. Making some progress here though yesterday was sort of a lost day. That seems to happen when I work especially hard the day before....my inspiration gets stuck and I have to recover for a day. Sigh !!! Maybe that was always the case and I just don't remember it -- and well, my muscles were a bit sore too so that contributed. Hoping you all have a bright wonderful day. Hi to Bj, Connie, P Julie and all of you who don't get to come everyday. Thinking of all of you.
Hugs, Jackie
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Afternoon! Nice out....
MsMarilyn....No Mo Chemo!!!!!! Yay!!!!!
Princess Juliette....after today, only THREE MORE RADS!!!!!! Yay!!!!!!
Rita....I hear you on the joint issues. I am still not willing to call the onc and perhaps switch to another AI or to take a 2 week break. If I don't move my R thumb much I have zero pain...so.....I guess I will just see how it all goes. Let me know if you call your onc and he suggests something...and then let me know if it works for you. My fear is that I get switched to another AI and all the se's are much worse. I know it could get better but.....well, you know! If it ain't broke too bad...leave it the hell alone!
Carolyn.....Believe us when we say that once you get your plan and start it...it gets so much easier. It's just all the reading, research, waiting for appointments.....the waiting, waiting, waiting. Once you get rolling....you will feel so much better. We all did. As for the crying....well, it still happens to me. But...hardly at all anymore. Rita's right....none of this was fair, we didn't ask for it, we didn't cause it. We just drew the short straw I guess. Hang in there....your surgery is right around the corner, and then you will keep moving one little step at a time and you will get thru it. Not easy, not fun...but YOU WILL GET THRU IT!!!!! This we ALL promise you...
Budders/Donna....per my PCP and my very low D level (14, normal for my lab 18-72, most other labs 30-100) I was told to take in addition to my daily 2000 U to take a 50,000 U capsule twice weekly for 6 months, and then retest. So...I was taking 114,000 U of D3 weekly. My PCP is extremely conservative and I read that it takes hundreds of thousands of units, taken for a long period of time to reach toxic levels so I wasn't that worried. But then...I became severely constipated, extremely thirsty, joint pain, was wearing sunglasses on cloudy days, cloudy urine. All of which I found on the list of D overdose. So....I stopped taking it as I couldn't name any other thing that had changed in the last 6 weeks except for this pill twice a week. After almost 2 weeks off the 50,000 U pills my se's are slowing going away. I did check my blood sugar which was perfect and my hypothyroid is under wonderful control for the last year so that wasn't it. Now...I have no idea if this was all caused by the large amount of D....but I am guessing that maybe my body just didn't like that much all at one time.
Laura....how was PT today? 90 minutes, every day this week? Wow. Good luck! Do you have to keep the compression wrappings on 24/7?
Susan...still enjoying DC? Sounds like you are having a wonderful time....
Well...need to boogie as I have an appt with the retina specialist. Standing in the grocery store this am...and I bled into my R eye. So....have to go today to make sure my retina is intact. And yes...I know....not the arimidex, just old eyes. Well...you all know what I think!
Hi Ginny! Thinking about you....
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Wendy Oh my goodness thats so scarry. I am so glad its under controll. Your taking a vitamin trying to do good things for your body and it backfires at you. Thanks for sharing I will watch my intake.
jackie Yes I ment the counsler today at the cancer center. She was very nice and very thourough. Sh suggested a meditation group they off and some other programs. Being with other cancer survivors will be helpfull.
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Jackie - That KILLER photo is hysterical! lol
Carolyn - Hang in there... roller coaster ride - NO DOUBT! Hope you had a good day today.
One Eye Wendrew - I am so sorry that happened to you! Ouchy wow-wow! And not again! Hang in there...follow Dr's orders, missy! Or I'll have to have that woman's dog poop on your lawn! lol ; )
Donna - Keep going girl! lol The detox I want to do is called the Standard Process Purification. It's a whole body detox...not just Colon. It's 21 days...yikes!
Marilyn - Way to go! NO MO CHE-MO! Hope you told everyone at the ONC office "NO OFFENSE...but I hope I never see you all again!" lol Treat yourself to something nice...like a massage or a facial!
Rita - I hope your aches aren't chronic...you're way too active to have to deal with that. Wendrew swears by Magnesium...you may want to ask her about it. Best wishes. And please say hi to Wendy and MaryJane. Have fun at Bunco! Remember...what happens at Bunco, stays at Bunco!
Budder - It's great you're being pro-active. I hope it makes a difference. You know we're here for you 24/7 and we're FREE too! lol Hugs to you!
bj - You'll be boating before you know it.
EVERYONE...Hello!
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Thanks for all the concern and well wishes. It's nice to know you girls know how tough this cra* can be - although I have to admit, my dh is extremely compassionate and understanding. This past weekend was pretty bad...I have lots of arm pain from the "cording" still. PT is 90 minutes everyday. Have to keep this compression wrap on 24/7 - other than during PT sessions of course. Will get fitted for a permanent sleeve and glove next week, or whenever they feel I'm ready for it. It all sucks, but I know it could be worse. I felt better today than I have in days...just going to PT is a relief. It hurts like he** - but I know we're accomplishing something every time I go and I feel in control of the problem. I have been doing my arm stretching x-ercises faithfully, several times a day. I didn't realize how bad LE is/can be. I miss not being able to lift at the "Y". But I will continue to do legs and cardio...my arms are going to get so flabby! They were always my pride and joy! : (
Budder - Here's my compression wrap - this is the only way to keep it from progressing. It's uncomfortable but do-able and VERY necessary! I feel like the Michelin Tire Man!
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Laura Oh my gosh I cant believe your arm. Can you take it off to bath and re wrap. Re wrap that sounds so funny dosent it. I t really must be uncomfortable. Its hard to imagine 90 minute sessions. I sure am missing out on a lot. I loved the Bunco phrase. What happens at Bunco stays at Bunco. Sure sounds like your Bunco gets a little wild...Whoo hoo. My kinda Buno... I gotta throw this in cuz I heard it somewhere else. Laura your a SWELL friend. Get it Swell and we are both swollen. Ha Ha ok. I will stop now Bad joke..
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Budder..IF i did not get this Dr. for my sleeping issues and overall ickiness for months.. i would be doin the same thing as you!!!IT takes ALOT of work to heal after ALL you and all of us have been thru. IT is all very impt we get it all out so we are not stuck and we can move to a more peaceful and whole life!!!!GOOD for you!!!
Laura.. looking a pic, thought you broke your arm for a second!!!GOOD pic..lol. I have had no need for that yet . GOOD luck on your cleanse!!! Stay away from the booze Laura.. ok...hehehe
Jackie.. Your kittie is soooo adorable!!! Great pic!!!
Gettin sleepy and it is only 7:00...lolol
ALL the BEST to all goin thru tests and TX!!!
Donna
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Oops...better late than never -- can't believe I forgot the quote today so here it is:
To one who has faith, no explanation is necessary. To one without faith, no explanation is possible. ~
Saint Thomas Aquinas0 -
Hi All, Had a better day today. I seem to do better when I'm concentrating on something. Work actually seemed to help today. Had my performance review. Can you believe it? Performance review the week before surgery? LOL. It was was good. My supervisor knows I'm working as hard as I can under the circumstances. Told me everything will work out fine. Mom has been wonderful. We talked several time yesterday and today. She has a great way of calming me down. You guys are wonderful too. Thanks.
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