Illinois ladies facing bc
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Navy - A couple of my bc sisters are on teams, one in Indiana and one in Canada. Okay, if you don't want to dragon boat race, how about a 1 day commitment:
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removed because no longer relevant
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On a long journey of human life, faith is the best of
companions; it is the best refreshment on the journey;
and it is the greatest property.
Buddha0 -
I'm playing cach up again, and electrician working here today to update our system. He will be turning power off a little later....great, it will be cold!
Hugs until later
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smerf - If you have a fireplace that's not-electric - build a fire!
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Laura.........Have you done the Warrior Dash before???? I am kinda worried that you've lost your marbles!!!! That race is pure torture!!! I don't think my knees would hold up(remember my fall down 3 steps last summer?) My neighbor girl did it last year. She is 25yrs old and a marathon runner. Said it was fun but tough. I guess people really get into it with funny t-shirts and costumes and such. But one thing I will do is come out and cheer you on if YOU do it. Dollinger farm is about 8 or 10 miles from my house. Heck I'll even bring you a beverage to celebrate when you cross the finish line. Let me know what you decide.
Hugs to Carolyn. And a special thanks to her sister for keeping us IL gals in the know of what is going on.
Navy
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Navy, My DIL sighned up for this Warrior Dash! I'm with you, I'll come out and be a cheerleader!!
salty
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Sorry I posted in the wrong thread. i thought this was the IDC thread.
Diagnosis: 12/2003, IDC, 1cm, Stage Ia, 0/5 nodes, ER+/PR+, HER2-0 -
The essence of life is not in the great victories and grand failures, but in the simple joys.
- Jonathan Lockwood Huie0 -
Good morning! Looking forward to meeting the Northern Illinois Girls in a little while.
Will report about it later. Have a nice day!
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Chemo done. Port out on 1/18! Next step deciding on rads...
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Adey - congrats on finishing chemo and getting ready to get the port out!!
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Awesome Adey… I'll be doing my last chemo the day you get your port out. We can both celebrate again!0
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Lago - you were posting earlier (yesterday, I guess actually) about hoping you wouldn't loose your eyebrows or eyelashes on Taxotere. I never lost any eyebrows or eyelashes (of course, my hair is blond and you couldn't see them anyway). Maybe they won't go.....! My hair is getting "close" to an inch long, with a mind of it's own.....
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Thanks Marcia. I have lost some lashes but like I said the eyebrows seem to be hanging on. I have heard some people don't lose them. Given my nails are going through hell maybe I'll be spared the eyebrows.
Have already had a podiatrist do some nasty on my left big toe. Now I my right thumb nails started to drain & smells like my sister's feet. I see the dermatologist tomorrow. I hope he doesn't want to abuse all my fingernails.
So happy your hair is getting longer. Too bad it has it's own idea of what it wants to do.
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Lago - You should be able to skip some of the SE's. I guess most of my mine were "internal" shall we say? My stomach wasn't happy no matter what...
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YEA Adey! So glad the chemo is behind you now!
Oh Lago, I am so sorry that you're having such a time with your nails. That sounds simply horrible. Hopefully the dermatologist will be able to prescribe something to clear the problem up. It seems like even a strong antibiotic or some type would help with that seeping infection. Hugs to you!
Hey Joan....hair color is no problem at all anymore! Hair coloring products now are so good that you can't tell who colors their hair and who doesn't. I remember my Grandmother went through a phase when she had "blue" hair. It seemed to be the rage for elderly women of her times. You took one look at that color and could tell it was a "dye job!" LOL
Jackie... I like your quote today. Life IS all about those simple joys, isn't it?
I finally have the Christmas things put away and the house almost back to normal. I love the holidays but it's good to get back into the regular routine. My poor stomach is finally beginning to settle back to normal, too. Did it take you other gals several days to recover from this last flu bug or am I just a wimp?
Well I'm off to spoil my two kitties. I'll check back in later.
Rita
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Lago, that sounds very uncomfortable. I hope the dermatologist does something great to fix that issue. I had taxotere and lost both lashes and eyebrows......but hold on.....they grew back so quickly that I barely had time to mourn their loss. I used the eyeliner to create the illusion of having something. I have to wear glasses most of the time so that helped to draw attention away.
Joan, you hair is not coming in curly! Rita is right about colorings, although as you can see from me I do not bother with that. I was gray in my twenties and maintaining color was such a chore I just gave up.
Adey, you made it. I hope you are celebrating a bit.
Jackie, your quotes give me peace and direction. I may forget to thank you, but do know that I glean strength from many of them. My only resolution this year is to be a damn better person and your quotes keep me on the right path.
January marks my fourth year on arimidex. I think Wendy and Rita are about the same. I am just hoping there is SOMETHING after the five years. I have been one of the luckier ones in that I have no side effects (maybe weight gain
) now and it gives me what is perhaps a false sense of security. Would like to hear from the rest of you who are on arimidex. Are you worried about ending it? I know I have another year, but you know how it goes.Take care and love to Carolyn and WendyTY. Love you both.
Susan
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ADEY CONGRATS! Sorry you couldn't join us today!
lago - Have you looked into taking a daily pro-biotic?
Marcia - 1" long! Wow...good for you.
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Lunch today with Joan, Marina and Jan was FABULOUS as usual. We ate and talked for 3 hours! You girls are lots of fun to be with. So happy we can get together often.
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>>>>arimidex Would like to hear from the rest of you who are on arimidex. Are you worried about ending it?
Zap, I read that here, had not thought about how I would feel until I read the fears in a cancer group. I think forge ahead, think about side effects (going away when we stop) and that we are over the hump until something else jumps out at us...? I started Dec. 2007 so I guess the end of 2012? I'll be done. I just ordered my next year's supply from Canada drugs, onco told me generic was okay, so instead of 2000 it was around 1000 this year.
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Char2010 wrote: mammo/mris'
My Mammo showed nothing as well. But my diagnostic mammos are only done on the affected breast every 6 months, still 12 months on the unaffected breast.
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embarrassed to say I was back in the hospital again. For some reason they just can't seem to get the level ov the dizapane correct. This stay was the worst stay I've had by far! I was in a diffirent ward and they just didn't seem to follup with what needed to be done, Also wan't happy with thw Neourologist. Also found out I may not be able to be part or the cliniichal struduy. I have to be ott of a certain drug.
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kater - I know NOTHING about Arimidex. Hope others chime in. Are you gearing up for tax season?
Carolyn - No need to be embarrassed...it may take a while to work out the kinks. Just keep hanging in there, dear. If you're up for some company next week, let me know. I'd love to visit you at your sister's house. If you're up for going out to lunch I'll be your chauffeur, and if not, I'll bring lunch. We can have an indoor pic-nic!
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Kater - So it sounds like you are not doing MRIs?
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Great time at lunch today with Laura, Marina and Jan. We are good at these 3-hour gab sessions. Always learn so much from each other. BTW... I did stop and buy some hair color at Osco on the way home but think I will wait a couple weeks to use it.
Adey... congrats on finishing chemo! Yeh, yeh, yeh!
Carolyn.. glad you are out of the hospital and sure hope that they got your meds stabilized.
I see my ONC tomorrow for follow-up so I am working on my list of questions for him. It may be a looong appointment. DH wants to go along and I am sure he will have a few questions of his own. Oh, fun!
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Hospital was supposed to have my pick line chanced on Mondey. They never got that done in the 4 days I was there, The nurse just put some take on it and consequently I ended up bleading last night, Thank God we've got friends that at nurses. They came over right away and frixed thinks up but I am really irritated at the hospital, Sorry I just had to vent.
Laura, visiting me would be wonderful. I so appreciate it. I will talk to my sister and possibly have her give you a call for the date, time, directions.
I am trying to read all the posss on the board; howver with the brain sweeling sometime I read thing that don't make sense. Please know that I am thinking and praying for all of you.
Love,
Carolyn
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Morning all.....26 on my deck BUT....DH said he heard on ch 9 that a deep freeze is heading straight for us in the next week/10 days bringing temps to below zero, for a high. Now...DH most always gets things wrong so I am hoping that this is one of them!
Carolyn....I do feel for you. We all can fight as hard as we can but we do need the medical people in our lives to do their part as well! Thanks to those nurses in your life who jumped in and took care of things. Tweaking anti-seizure meds are not always easy but hopefully this last trip to the hospital did the trick. Hugs, sweetie! (or as I mistyped to WendyTY...Bugs to you!)
Ah.....the end of chemo....I so remember that day. I still had to go every 3 weeks for my herceptin but it was a short infusion with no se's so that was ok with me. Congrats to you girls! Do the No Mo Chemo Dance!
Fingernails...perfect example of how chemo affects everyone differently. MY fingernails grew like crazy and hardened. I had absoutely PERFECT nails (I did carbo/taxotere)...the best they ever looked in my life! About 4 weeks after chemo they started thinning and breaking and peeling, most probably due in part to Herceptin. Now....almost 3 years since finishing H, my nails never improved at all. Last spring I went to acrylic nails as I was beset constantly with hangnails, peeling and slight infections which I figured were really bad. No more issues now...except that my toenails do break and peel as well but no too badly.
Lashes/'brows....I never lost all of mine at the same time. Yep...eyeliner!!!! Unless someone is right thisclose, you can't tell you don't have lashes. But beware...these hairs have their own growth cycle..you may continue to shed them one more time...or for some of us, 4 times!!!! But...they grow back almost within 4-5 days.
Arimidex....my 5 year mark will be August 1, 2012 so I have a bit to go yet. I am not worried about that....yet. I am hoping that by the time I get to that point, there will be more research into this, or at least some stats. But for now....I am trying not to think ahead.
Mamm/MRI's...Kater and I have the same onc/rad onc. I did ask re: MRI yearly instead of mamm but since the ONLY reason my bc did not show up on mamm was because of it's location almost under my arm I continue to have them. I am now at yearly tho for 3 years following completion of chemo I was at every 6 mo for the affected breast. I did altho have an MRI prior to surgery to make sure there wasn't anything else lurking...which there wasn't. MRI"S, tho both my docs were fine with ordering them...warned me all about false positives, in which case it would need to be bx'd. So I decided to stick with mamm's and I am ok with my decision. I will however ck with both of them prior to my next mamm which is scheduled to be done end of Sept.
I am glad tho that I waited re: zometa that my onc wanted me to start. The opinion out of the SABC was that only in cases of osteoporosis, not extremely mild/early osteopenia (me) should this be given, and only one infusion yearly to start...in order to prevent bone mets (not treat them). I do not fall into this category for now. I will have another bone density test before I see my onc in early July and see where I am. I only had the one density done so no one really knows where I started, what arimidex has done to my bones. I have increased strength training and cardio....a whole less time yakking at the gym this past year and I have raised my D level so I am hoping that will keep my bones OK. If I drop to the osteoporotic level...I would probably do the zometa.
Time to get to the gym....for those of you needing a kick-start to exercise, do what I do. Put on a bathing suit, turn on every light in your bathroom and don't suck in your stomach. Trust me.....you will be driving to the gym within 15 minutes...works every Jan for me! And I use the Tape Diet...
Stick a pice of scotch tape over your mouth...you would be surprised how well this works! Or get yourself one of those fancy-dancy toothbrushes that take forever...and then spend 2-3 minutes flossing/rinsing. You will be so tired after all that and not want to repeat it you will not eat for a loooooong time afterwards...and your dentist will be thrilled!!!
Have a great day all! Bugs to everyone!
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zap I will be on the 5 year Arimidex after chemo too. Glad to hear there are folks that didn't get SE. I can understand being uncomfortable with stopping. You might look into some of the natural ways people reduce their estrogen (through diet). BTW fingernails are not that uncomfortable this round… last round was hell.
Laura I've been doing a pro-biotic for several years now due to IBS.
Carolyn sorry you had to visit our condo in the south loop again. Glad you're home. I'm be checking our condo briefly in a few hours but not staying ;-)
Wendy my fingernails don't seem that brittle, well maybe some of them but because I have worn clearn nail polish and kept them short they don't seem to be breaking.
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OK well time to get ready for the dermatologist appointment. My regular guy is on vacation. I had a feeling. Hope this new guy doesn't do a Guantanamo on my thumb. ;-)
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Hi Joan: That I can deal with. Thank you so much for the pic. Of course that would only be ok if by then my FACE HAS GONE DOWN TO ITS ORIGINIAL SIZE...lol. the steroids are changing my face to balloon shape. If it doesnt go down and I have your hair, I will be getting people that think I am wc fields.....
Ade, call when you are up to it.
Carolyn, prayers are with you. Sorry you didnt have a good visit this time. : ( Caryn
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