Illinois ladies facing bc
Comments
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Oh and one more thing...my resolutions this year: To stick to my resolutions! lol0
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Ladies HAPPY NEW YEAR. I have been catching up on posts. Had a hysterectomy and ooph in Oct and when I felt ok I went to see an orthopedic doc about the bad knee that had gotten put off the last 2 years by BC, herceptin, and the thickening in lining of uterus from tamoxifin which led to the hysterectomy. The ortho doc said right knee was bone on bone and needed to be replaced. When we started checking dates he had an opening on Dec 7. I am now at home recovering from the knee replacement. Have been having therapy at home a couple times a week and start outpatient therapy Thursday. The knee doesn't hurt now but the muscles etc in the leg sure do. They say it will be another month or so before I will be happy about having it done. I had my annual mammo last week and all was OK. Have my onc appt next Wed. This should be my last 3 mo visit and we go to 6 mo. The 15th will be my 2 year cancerversary.
MakMak it may be benedryl they will give along with the hereceptin. I did have a small decrease in lung functon during herceptin, but is back since I went off. It was never enough to worry about it. They just did a pulmonary function test every 3 months to keep an eye on it. It was nothing to doing that. You just go in and breath in a pattern they give you. They want you to be able to match when you come back for next visit.
Carolyn you will continue to be on my prayers. I hope the trial works out well for you.
I hope this year brings good health to all of you ladies. Hugs Annette
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Hi everyone. My newyear resolution is to stay as positive as ever. So far so good. When I first found out about the mestastis I felt as though this was my last Christmas, but I'm feeling so much better and hopeful. I think the doctors have given me some meds to assist with that. At any rate I am extremelly happy for the things that I have been able to do on my own.
Hope everyone in treatment is feeling well.
Love to all!
Carolyn
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Is it just me or has anyone else who finished radation been vartionly hungry and thirty? It's like I can't get enought to eat. I feel like I'm eating my sister out of house and home! LOL! This is probably a good thing but it so unexpected,
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Carolyn I'm not doing radiation and still doing chemo but I always attribute my winter appetite to the drop in temperature. I think our bodies want to keep warm so they say eat more and build up fat ;-)
Yes I think all of us start thinking worst case scenario when we get a diagnosis from this disease. It takes some time to digest and realize that there is much more time. This will not be your last Christmas. We both need to see each other with our real hair… and right now neither of us are in growth mode yet ;-)
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Smile.
Today would be a wonderful day not to take life so seriously.
Today may end up the way you prefer - and it may not.
Happiness is not about being a winner -
it's about being gentle with life -
being gentle with yourself.
Let life be a dance,
and choose the kind of dance you want for today -
perhaps a gentle loving dance.
- Jonathan Lockwood Huie0 -
Brrrr, the ground is hard outside once again. So hard to recall just three or so days ago it was 60 and we were thinking about tornadoes. Well we knew winter wasn't over but the respite was nice. Lago....I think you are right....the urge to eat seems easier than ever when the temps. are chilly and downright cold outside.
Glad you are feeling better Carolyn. It is easier to see the sunnier side of things when your body is not fighting itself and things are working with some unison. Your going to keep on, keeping on.
Annette...so good to hear from you and glad you got your knee fixed. You were a long time with something that sounds very painful.....bone on bone. Early congrats on the 2 yr. canncerversary. That is super.
Thinking of you all and hoping you are getting some of the great sunshine I'm seeing outside. It makes it seem like it is going to be warmer anyway.
Hope you all have a perfect day.
Hugs, Jackie
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A very healthy and happy new year to all.
I don't post a lot but I am most thankful for all of you.
Last TAC on 1/04/2011 !!!
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Carolyn - Keep hanging in there...you "sound" good.
Annette - Glad you checked in here. Hope you fully recover soon.
Adey - Last TAC! Woo-hoo for that.
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Have a great Sunday...although it doesn't "feel" like a Sunday. lol The holidays have my days screwed up! lol
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Happy New Year to all my bc sisters! We've dumped another year behind us and are starting another year's journey. I wish each and every one of you a wonderful 2011....filled with good health, pleasant surprises, hope, and hopefully the cure! It is due to arrive soon!
There are pages that I need to read to get caught up before I can properly respond to you gals and hopefully tomorrow I will get that accomplished. We had a wonderful Christmas, despite the flu bug that my son's family brought with them. Everyone except my DIL and Dave was treated to a nasty version of stomach distress and I am just now beginning to think about eating something. I felt so sorry for the little guys! They loved their presents but we were rather limited to what we could do while they were here because somebody was always sick....my son being the one that it hit the hardest. Hopefully everyone will be back to normal in a few days. It is really nasty stuff.
I'll be back tomorrow to get caught up and see how well all your holiday celebrations went!
Happy New Year!
Rita
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HI:
We are ready to go to zoo lights! Lego, I will look for your building when I go. My DD just showed me how to change my avatar. It's about time I've had this one for three years. Have a good evening and we'll get back to you tomorrow!
BlackJack, my DD lives in Lakeview- and likes it. Is your daughter using a realastate person to look for apartments?
Bye!
Susan
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Carolyn - I am so happy to hear that you are feeling better and are so up-beat. Good for you and best wishes for the new year.
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Susan....love the new Avatar. Don't know why because I'm usually the worlds worst, but changing avatars or posting pictures from the Internet work well for me. I'm very electronics and computer challenged.
Big high to Rita. Glad the flu is over with.....sounds like it was easy to make life difficult while that was around.
See you all tomorrow.
Hugs, Jackie
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Carolyn... so glad to see you posting and staying positive. Put me down with you for HUNGRY ALL THE TIME! I sure hope to be able to loose a few pounds now that the holidays are over. Going to have to wire my mouth shut!
Susan... great new Avatar. You look great. Adey... congrats on reaching that LAST treatment. I will never forget that day for me. Mandy/Fightinlikeagirl has her last TX on Monday also. Will be thinking of you two this week. Annette... sounds like you have been busy taking care of yourself and congrats on your upcoming cancerversary.
I am getting braver about going without my wig or scarf. The weather was milder while we were in Seattle so was able to try it a bit more. Still think it will be at least another month or two before I ditch them all for good.
Everyone have a great week. It is back to work for me!
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Hi there..
Carolyn, I will put my money on the steroids for making you hungry!! When I was getting steroids with my pre-meds and the next few days, I wanted to eat everything in SIGHT!! One more thing.. which I am thinking you already know.. but just in case.. IF your mets can be biopsied, please ask for this. With it being a recurrance, over 20% change biology and may be HER2+ or Hormone positive, in which case you may have added treatment options. In any case, there are many options.. I spoke to a girl today who is at 8 years!! (She did my Vaccine Trial 5 years ago) and speak to another who is at 13 years with Mets. We can do this too!!
Had the best New Year's Eve with all my kids.. my older two got into a very inappropriate conversation about animals, but it was so funny I ended up in tears laughing.. then we watched an oldie, "Out to Sea".. so cute... Today Gabs had her first swim lesson.. and that was too funny.. I forgot that they make you sing songs at these baby activity things.. and there was my DH, totally clueless.. he has no idea what the words of "The Wheels on the Bus" are.. but, Gabs had fun and took 2 very long naps!!
Still have my cough and sore throat.. starting to wonder what is going on after almost 4 weeks... hmm..
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Morning all.....Happy New Year to the best bunch of women around!
Too many posts to catch up on but....
Carolyn....you sound FANTASTIC!!!! Lago is right....this was NOT your last Christmas!
Rita...so sorry your Christmas was filled with the spirit of the almightly flubug! Not fair! Look at it this way...you are now all ready for that string bikini and your trip to Fl!
Marina....OK, and what exactly was the inappropriate animal story????? (The wheels on the bus go round and round, round and round, round and round......)
Jackie....I know, this weather is crazy! It was 62, and then it was 19. Yuck.
To you gals slooooooowly finishing up chemo....see? We told you it was "doable"...not fun, but doable! But then for us IL gals....we can do anything we put our mind to! Congrats! Do the "No Mo Chemo" dance!!!! We will all dance with you.....and dance, and dance and dance cuz life is great!
Time to scoot to the gym....made my yearly px appt for the last week in Jan so only have 3 weeks to get rid of all this holiday "cheer". It's been fun but now the piper must be paid...and not in fudge-covered oreos! And no, I don't have any left...cleaned out the frig and pantry yesterday....all bad stuff gone....frig stuffed with fruits and veggies!
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Just a quick hello. Nothing new to report except I too will join in the last chemo month group. Mine is the 18th. I'm now just getting to the taste bud weirdness of this round but otherwise feel much better (granted bloated and of course always hungry) ;-)
Marina It's so nice to hear you tell the stories of years of life to Carolyn. I think I was saying the same to you when we were leaving the party… and more years means medical developments in the meantime!
Susan Love, love the new avatar! <sarcasm> I did wave out my window last night at you but we face west so I'm sure you didn't see me </sarcasm>
So Joan how long has it been since the last chemo? How much hair do you have so far?
Jackie, will have to check in later for the daily quote of course.
Wendy, you are making me feel guilty about the gym. I will at the very least go for my power walk today. Maybe even start some strength training on my lower body again. I was doing so well yesterday with my salad for lunch… and then the DH wanted pizza for dinner. Thank goodness Lou Malnatis has low fat cheese that tastes good. At least I'm not eating as much fat.
and of course hi to Char, Rita, Laura, Adey, Nana, Rene, Donna and who ever else I might have accidentally missed.
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Good Morning Ladies - It looks like we will have a nice sunny day and I think I am in a mood for a long walk (I hope I still feel that way when it is time to do it).
Carolyn - I bet the hungry feeling is from steroids. When I was a on chemo all I wanted to do was eat and I had no taste buds at all - so everything tasted like cardboard.
Lago - happy to hear that you are getting to the end of your chemo treatments.
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Good morning Illinois girls!
Hope you all had a nice weekend. And again...HAPPY NEW YEAR! Yesterday, I bought a pair of cross country skis. Now, of course, I want snow! lol There's some great trails not far from me. Can't wait to break them in.
lago - the 18th! Woo-hoo!
Marina - Great news about your friends - 8 & 13, wow. Just keep doing, what you're doing. Speaking of animals - did you hear about Muddy Paws in Kildeer?
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A small group of us are getting together for lunch on Wednesday - in Wauconda. If ANY of you want to join us, please send me a PM.
Have a nice Monday. Keep warm! I'm tempted to start a fire. Brrrrrrrrrrrrrrrrrrr...
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" The greatest healing therapy is friendship and love ". Hubert H. Humphrey
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Happy, happy Monday -- no special reason though it sure helps the sun is shining bright. Glad everyone is feeling well. How are things with you Elf? Hope your holidays were/are fantastic and that we are all following Wendy's lead and behaving with the food. I have stashed goodies in the freezer ---- and if I'm really, really good ( in a millennium or two ) can get some out to nibble. Seemed easier this year to not overeat. Hmmm, did it really take that long for the steroids to wear off? Anyway.....hope you all have a marvelous Monday. Be checking back in later.
Hugs, Jackie
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Hi all! I came home from the hospital Friday and am doing pretty good. I have a huge tightness on my chest, but that is noemal. Atleast the pillows under my armpits are going down, lol. I did get a stabbing pain in my armpit earlier that took my breath away. Hubby looked but there was nothing going on. We just figurred it was something in there that wanted to be made known so that was it. Everyone have a great day!
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Paula, you can get those electrical stabbing pains. It's the nerves just trying to repair themselves. I didn't get any for several weeks after the surgery… and it was more like sun burn pain. Yes the tightness is typical too. You will find that every day you will feel better and better.
Glad to hear you are home. Happy healing.
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Lago, I saw you waving out the window! We were that bundled up group of people wearing the 3D glasses, pulling the wagon through the zoo with the big guy taking video pictures Okay, we didn't see you. We had a good time but it was wickedly cold and all I really wanted to do was snuggle with the sleeping apes and drink hot chocolate!
Wendy, good to hear from you and that you had a good holiday. You motivate me to do something with this body of mine. We have a treadmill downstairsin the basement but the basement scares me. I should ask DH to bring it up so whenever I look at it, I feel compelled to use it.
BJ, you are back at school! I have to admit that last night I was so happy that I was not going to work today. We enjoyed a few glasses of wine and I was so relaxed that I was just thrilled to be off today. That will change in one month when I do my 8-week stint. I do have mixed feelings as I have come to cherish my freedom. DD and I are going to New Mexico after that stint so I can use the money.
Marina, it sounds like you are having so much fun with your "babies" and that they are keeping you in stitches. Paula, I do recall getting those odd pains. That area never totally got back to normal and it still feels funny some times. To everyone else......stay warm!
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Hi everybody. Congrats to those finishing chemo. YAHOO!!!! Doing the No MO CHEMO dance for you!! Nice to hear from you Carolyn. Paula----I had that sunburn type pain in my armpit for several weeks. Then just numbness. After a few months I started having the occasional sharp zinger pain that would last anywhere from a few seconds to several minutes. I am 10 months post exchange surgery and still have that pain every now and then. Sad to say I am still numb too. But BS and PS say it is all part of the healing process and the nerves trying to regenerate. Nice new avatar, Susan. Hey Laura, what ever came of the Dragon Boat thing? I don't know why but that just popped back in my head!!! Scary.....not sure where I have been keeping it.(the dragon boat thought, not my head!) Keep moving Lago, you are almost to the finish line!!! Good for you, Joan. Going topless in Seattle, way to go!
Gotta go for now
Have a great day everyone
Navy
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Paula.. so glad you are doing well after surgery last week. If you are dealing with TE's, you will have to get used to that tightness in chest. I've had mine since last April and it is like walkiing around in a steel cage bra. Took a while to get used to it, but, oh well. I hardly ever even wear a bra these days.... depending on what I am wearing. Have to start thinking about scheduling an exchange surgery sometime this spring. No hurry though for me. Sounds like I can get advice on that from NavyMom.
Lago... its been 18 weeks since my last chemo. Hair is probably only 1/2 to 3/4 inch long and thicker on top and back than on the sides. It is still straight and I am not fond of the color... dirty dishwater blonde I suppose. I was actually hoping for something more like a pretty salt/pepper color.
Looking forward to seeing Laura, Jan and Marina on Wednesday for lunch. Anybody else?
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Happy New Year to all. Between being bandaged from lympodema, the past two treatments have me sleeping around the clock. So congrats to those of you finishing up on chemo, mak mak, glad you are feeling better, Carolyn, it was so good to talk to you again, keep up the positive vibe, and Joan, what do you mean you only have 1/2 inch of hair? After four months. Crap. I have lost my eyebrows and lashes and for whatever reason I would stay bald if I could have those back. Can you wear false eyelashes if you have none of your own?
Today I see the first of three radiologist onc's. Any suggestions on what to look for. I believe I have to have 40. Yuck. The gift that keeps on giving.....Onward
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Good morning! Rise and shine Illinois girls!
This might help (turn up the volume):http://www.youtube.com/watch?v=vSEVv9JfXaw
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Paula - Did you have Lymph Nodes removed?
Navy - I sent an e-mail to the St Charles Dragon Boat team and am waiting to hear back. Is it something you're interested in? I think Joan said she was.
Joan - My new hair was the color of pencil lead. I hated it. Nothing a little die can't change. lol
Carolyn - Hope you're doing okay. Hugs!
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Have a nice day!
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onward, I haven't lost all my eyelashes yet but I know eventually they will go. They look more like spider legs with mascara on them. But, the eyeliner works great. I've have alway worn eyeline. If you aren't wearing any I highly suggest/recommend it. It will make your eyes appear bigger and bolder. I use a bobby brown dark shadow, wet a thin brush and paint it on.
But I do hear you about the eyelashes and brows. My biggest fear from the start of chemo is the brows would go. So far I still have the brows but I'm still worried.
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Laura let me speak for all the other Illinios gals ;-):
http://www.youtube.com/watch?v=jY1RoGn1qqU0 -
Hey Laura....There was a gal with TN BC on the video that the Discovery Channel ran a few months ago. She was on a Dragon Boat team. I cannot stir my brain to even remember what state she was from. But anyway, The whole thing seemed interesting to me. Not that I would want to commit to it but it seems like a cool experience at least.
Have a good day everyone
Navy
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