Illinois ladies facing bc

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  • wendyk13
    wendyk13 Member Posts: 1,458
    edited November 2007

    Morning Girls and Happy Frosty Saturday!

    Hey Rita...was talked to my dh last night (he's a principal in Bartlett)..why don't you get on the sub list for your school district?  They always need good teachers and you can work as much or as little as you want, pay is good, no weekends or nights and you would be out early enough to play a round of golf!  Just a thought for you.  Oh...the way it works in Kane County...just need to go to the Regional Board of Ed in your area, bring your credentials with, you get a short test (which Tom said is crazy-easy) and then you are good to go.  He suggests then go to a school (or 2) that you really want to work at and get on their personal sub list.  He said you sound great and fun and he wishes he could get you on his list...just thought you would like to know!

    Funny story girls....had the tech out yesterday to clean the furnace.  My ac last summer was dripping some water so he checked that too...seems I had a "booger" in my drain line from the AC.  I love these technical terms.  But then the fun started....came upstairs and hit the thermostat to turn on the furnace to check it out and ....nothing.  Started hitting all the buttons.....nothing. Up and down and up and down,more hitting of buttons...nothing.  Got the info manual for him, more button hitting....nothing.  2 hours later...I was watching him hit more buttons and I said....I love this part...."Why are you hitting the reset button instead of the clear button?  That means the HVAC unit will NOT turn on for 5 minutes and you just have to wait.  Every time you hit the reset button, it "resets" itself."  He said and I quote  "Oh....".  Waited 5 minutes...furnace came on.

    Men.

    Hope everyone is doing well....Hugs to you all and a special big one,albeit gentle, to you Pat!

  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited November 2007

    Momof4 -

    Welcome! A friend of a friend, had IBC and had all her treatment at Northwestern and was very happy with the Dr.s, etc. And...I think that's where Maggie Daley (Mayor's wife) is getting treatment. Best wishes to you, at home and abroad!

    Wendy -

    LOL OMG - I thought things like that only happened at my house! Geesh...I guess that's why they say you should always watch everything a service person does...instead of leaving them unattended! Hopefully you won't, but if you ever need service again, let me know, a good friend of mine is an HVAC dude. His company just came out and serviced our unit (it wasn't cycling properly) and it only cost $80! They could have totally ripped us off, because we had no clue.

    Girls...speaking of leaving them unattended...I have a real sticky situation...I think the last time my window washers were here, they stole some of my rhinestone jewelry! I was looking through a box of it last weekend, and noticed that a handful is missing...11 of my so-called "pairs" of earrings now each only have one! They were in a small box in my closet...they cleanded the mirrors on my closet doors...I try to follow them around the house, but there's 6 of them, one of me, and I have three floors of windows! I am really upset. That takes a lot of nerve. I don't know if I should call the company? What would you do?

  • [Deleted User]
    [Deleted User] Member Posts: 2,728
    edited November 2007

    Good Morning Everyone:  Well its the week-end and I can at least pop in and say hello to all of you.  Just sitting here enjoying my coffee and not having to go to work.

    LauraGTO:  If that is true they stole your earrings, you should report them.  Ha if someone came to my house - they wouldnt find much of anything to take.  This is serious though.  If they did it to you, they are doing it to others.

    Wendy:  Hahahaha i wouldnt know what a reset button is.

    Mom of 4:  I too am a nurse and Im in agreement with Wendy.   To me there are 3 choices.  UIC, RUMC, or Northwestern.  I myself would choose Northwestern.  Also wondering if you have been seen by a surgeon.  I have heard from others with IBC that only a biopsy will diagnosed it.  I would insist on a biopsy and not wait. 

    I dont know, for some reason I dont like Loyola much anymore.  Last time I was there it seemed pretty uninviting, cold, and dirty. 

    Nicki

  • wendyk13
    wendyk13 Member Posts: 1,458
    edited November 2007

    Hey Laura.....

    I was actually sitting right there when he was pushing all the buttons on the thermostat....just figured he knew what he was doing.  HA!!!!  To give him a break however there ARE lots of different thermostats some of which I am sure require a push of the reset button, just not mine!

    And I would call the company but I would also be prepared to call a different window cleaning company next time!  Your earrings, etc and most assuredly gone, tho.

    And I agree with Nicki re: Loyola.  My last boss closed his private practice and went to work for Loyola in the GE dept.  2 years later couldn't stand it and left for Rush.  DH had his cardiac ablation there a few years ago as it was one of the few doing it and it was a horrible experience...hospital was dirty, staff not very interested except in the fact that my husband was still bleeding and they were late getting out on time, they kicked him out at 9am the next morning, still oozing from the groin where they had placed the catheter and the security was so tight with guards all over the place...must be a reason for that!!!!  I would never go back there, but that is just my opinion.

    Just watching FoodNetwork....who in the heck has time to make their own marshmallows to put on the sweet potato pie!  Hey...wake up...JetPuff, $.99 at Jewel!  Martha Stewart I am soooooo not!

  • [Deleted User]
    [Deleted User] Member Posts: 2,728
    edited November 2007

    Wendy:  Hahahahaha last year I was on South Beach Diet and I tried to make my own sugar free marshmallows for my sweet potatoes.  What a royal pain in the neck.

    Nicki

  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited November 2007

    OMG, Wendy, I can totally relate to your experience there...

    I had my first Mast at Loyola! Horrible experience...I only went there because my cousin Cheryl, at the time, was doing a fellowship in...of all things...ONCOLOGY. That hospital was terribly depressing. I felt like a number...not a patient who had just had a breast and 11 lymph nodes removed. I had horrible pain for months afterward and I swear, to this day, I think 11 different student Dr's each removed one lymph node from me, (as it is a teaching hospital)...perhaps the cause of my severe pain. When I repeatedly complained of the pain, they told me Mast's don't cause much pain and that I should see a Psychiatrist. And then...this is the worst part. I told the Drs I wanted the pain under control b/4 I went home, and one of the residents asked me if I was afraid to go home due to an abusive spouse situation. OMG - I told her she was totally out of line, but she said she sees it all the time! A lot of their patients are homeless and drug addicts and I think that the majority of their patients are in really bad situations...not only poor health. They wouldn't let my dh spend the first night of my Mast. with me, but they let the entire family of the person in the bed next to me, spend the night with her. They all slept on the floor and they talked all night. I felt like I was in a homeless shelter. I prayed for the strength to get dressed and escape and hail a cab to take me home. When the person in the other bed went home, they replaced her with a woman who kept vomiting in her food! I finally left the room and spent the next two days in the visitors lobby. I just couldn't deal with the thought of the germs from her vomit. She had lung cancer and she coughed constantly without covering her mouth. My dh got a face mask for me from one of the nurses. I laid in bed, in agony with the frickin mask on! I feel bad bashing them, but honestly...it was the most horrific experience of my life, and I hope I never have to go through anything like that again. My second Mast. was at Good Shepherd...night and day difference. I was actually treated like a human being. My dh stayed the night with me. The pain wasn't as bad and I went home two days later. I look back and still shake my head in disbelief! So.......my vote is definately NOT Loyola. When I see their TV ad campaigns that claim "We treat the human spirit" I LOL!

  • kater
    kater Member Posts: 447
    edited November 2007

    Wendy I couldnt tell if you meant Rush was bad like Loyola? I liked my surgeon but when I was in recovery I was really really angry. At first they were nice, asking me if i had pain meds, and they gave them and my blood pressure went down.

    Then it went up to 169 over something (i bet i forgot to write this down)..I was going to memorize every minute, for one hour and 15 minutes i had noone come by me and no pain meds. My blood pressure was in the 160/? range...

    I was so angry! I heard the girl flirting with guy next to me and she told him to come back for next surgery on a Monday, best day for it she said. Yeah right. Not for me!

    And in the background there was a guy looking to rent an aptmt or condo, he was leaving  Rush in two weeks, he said can you believe that, they want me to work over time and I'm l eaving in two weeks...something like that..

    The guy who took me to room (oh that was the excuse, they complained that the surgeon didnt write order for me to go to room)...was very very careful not to jar me. I asked the nurse when I got to a room, to tell me who he was so I could let someone know how good he was.

    She seemed to only be concerned about leaving her shift...

    The girl next was very nice and was very nice about explaining the drains, etc.......And the pharmacy was really nice, they let me get pain meds from them and they even brought them up and we gave a check.

    But..........after I decided to have surgery there, I didnt even get to talk to the surgeon...two nurses told me I was giong to have sentinel node biopsy (famous for pain)....and 1030 the night before my surgery the doctor finally called me beacuse I was emailing him, i needed tylenol 3 liek someone told me i should get for hte pain.....and he said, you are having axillary disection cause we know where the tumors are....

    I would think several times before having surgery there again. The person who was supposed to be so great and helpful was the opposite. We were waiting to decide lumpectomy or masectomy, we had my mom tested for her BRCA. The surgeon said we can do it today, after he left the helpful nurse said, oh i dont have time today.

    She made us go all the way back to chicago a week later and we thought we had to wait 5 weeks for results (surgeon said that was okay)...what did she say when we talked awhile? "i dont usually tell anyone this but you can rush it for $1500." I said why wouldnt you give people that option?

    Because most are so upset about the 3000 that I dont even tell them.

    I was really disgusted.

    Good news was that 10 days later it was negative. So I just got a lumpectomy.

     Again, I will keep going to that surgeon, I think, cause i really liked him and felt he had done the surgery a lot....and was good...everyone said the scar looked good that saw it later...(drs.)...but nothing else makes me want to go there!

    Although they WERE really good at blood draws. I think maybe they used fine needles or something because it never hurt. Around here locally they had really been hurting me the past couple years prior to dx.

    They also did not approve of my power port. I had the friend who had chemo there and never had a port....apparently cause they are careful how they draw the blood but i thought the actual chemo was hard on your veins.

    ttfn

    kater

  • wendyk13
    wendyk13 Member Posts: 1,458
    edited November 2007

    Morning girls....cloudy here but in mid 40's so much better than yesterday am when it was 25!  My husband's relatives in Florida are complaining that it is only 72 and they are chilly.  Wimps!

    Kater.....I don't know anything about Rush so can't make any comments.  But I LOVE Delnor...spending 5 days there for my back taught me a lot about what I would want in a hospital, and they have it in spades.

    Laura...on my gosh!  Terrible experience for you at Loyola.  You are so right....I felt like my husband was a number, and it wasn't a one!  I doubt unless they actually come up with a 100% sure cure for Atrial fibrillation that he would ever go back there.  Horrible place.

    Nicki....sugar-free marshmallows?  What the heck do you make them out of then?  And what is the point?  Eat everything in moderation...that is my diet...and then of course put a piece of tape over my mouth if there is salami or fannie mae in the house as I have NO will power.

    Well.....now that I'm thinking about food...time to eat!  Have a great day, girls.

    Hey Pat......Hugs and Smiles!

  • ritajean
    ritajean Member Posts: 4,042
    edited November 2007

    Hi gals!  I have a few hours before I have to go pick up a car load of junior high kids from Church to take Christmas shopping for needy overseas children.  This should prove to be an active and intersesting afternoon.  I may need to break open a bottle of wine when I get home!  :-) 

    Wendy...I have thought about "subbing" but thought I wanted something different in my life.  I really do enjoy the work I do with the junior high youth group at church and really loved teaching when I had my own classroom.  That is still an option.  I think you just have to present your certificate, proof of registration, be fingerprinted, and get a TB test in McLean County....none of which are real problems of "biggies."  It may come down to that since I'm so picky about when I want to work and I do understand that service businesses do need weekend help.  It's still in the back of mind as an option and I might go ahead this next week and hit the County Supt. office to begin proceedings.

    Laura.....you had a terrible experience the first time around.  I would have been crying the whole time.  I didn't do well with the surgeries.  I think they happened too fast and then when I had unclear margins and they had to go back in, I just lost it.  I would never have handled your situation.  You are indeed a tough Illinois gal.  :-)

    Nicki.  I am still giggling about you making sugar-free marshmallows!  Isn't it strange what we'll try in the name of "dieting!"  LOL  I can remember eating those Quaker cookie/cake discs that tasted just like cardboard in an attempt to follow a diet.  It's no wonder you lose weight.  LOL

    Thanks gals for giving mother of four sons some feedback about good places for diagnosis, treatment and surgeries.  It's so terrible when you don't know where you should be.  Wish I could have helped but I'm a little too far south to answer that one!  Like always, you all came through with good advice and interesting stories!

    Well, I need to get a few things done around here today before I tackle the youth this afternoon. 

    Everyone have a good Sunday.

    Rita

  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited November 2007

    Hi Girls -

    A quick post...I hope you are doing well! I am very busy...I lost some productive time, as my Mom was here overnight. She visits us occassionally so we can spoil her rotten. DH cooked us a FAB dinner, and Mom enjoyed a Jacuzzi bath afterward. We do everything we can to make her feel like a queen when she visits us. I took her to Costco and OM Lord...did they have some FAB stuff!

    The weather today was great! Nice and warm....just the way it should be! LOL

    Be well, neighbors!

  • ritajean
    ritajean Member Posts: 4,042
    edited November 2007

    Hello everyone!

    Just a quick note to tell you that I talked with Pat again.  She has received the nightshirt and just loves it.  It fits perfectly and is so comfy.  She was pretty emotional when she got it and told me that she hasn't worn it much because she puts it up on the foot of her bed where she can see it.  She thought that Laura's design was awesome and I have to agree with her on that. 

    She is feeling better as far as the pain goes.  They have taken her off the morphine and are giving her methadone about every three hours.  Hospice is now there so she's getting extra help.  She tried to sit up long enough to get on the computer to thank us all for the shirt but couldn't do it.  She is hoping that they can find her a used laptop so she can just lay in bed and get back on.  Her mother and son continue to help her also.

    She also asked me to thank you all for the cards.  She has really appreciated them so much.  She especially mentioned the card from one of you who likes teddy bears and had written little comments even between the lines. 

    Well, I think it's time to quit for the day.  It started out so lovely here.  I walked my 3 miles early in the morning and by 11:00 it was raining and has rained off and on all day.

    I hope everyone is doing well!

    Rita

  • kater
    kater Member Posts: 447
    edited November 2007

    Maybe someone can print the picture or Laura can print out the shirt for her to put up and she can still wear it then!

    re: Shirt for Pat 

  • wendyk13
    wendyk13 Member Posts: 1,458
    edited November 2007

    Morning girls......

    Rita, thanks for the update on Pat.  And I agree with Kater....maybe send her a picture so she can see the shirt, and wear it at the same time.

    Laura....glad you had some time with your Mom.  I miss mine so much, especially at this time of year.

    Beautiful day yesterday, wasn't it?  Ah....if only it would stay that way until next Spring!

    I'm off to exercise and run errands....hope everyone is well.  Hoping that everyone has a fantastic day!

    Hey Pat......hugs and smiles!!!

  • ritajean
    ritajean Member Posts: 4,042
    edited November 2007

    Morning ladies! Wendy, you were up and moving early today!!!!

    Hey that's a good idea about sending a picture to Pat.  I never even thought of that.  I was just so touched by how much she liked it. 

    Wendy....I know what you mean about missing your Mom ....especially this time of year.  There's not a day go by that I don't think about my Mom sometime during the day, but this is really a hard time for me, too.  It will be my first Thanksgiving and Christmas without her and she added so much to the holidays because she loved them so much.  Then, too, I will be having my first year tests the first week in December and it would be so nice to be able to talk to her about that.  There just isn't any replacement for a Mom, is there?

    Well, I need to hop in the shower and get to the bowling alley.  Some things are just too important to miss!!!  LOL

    It's supposed to be another exceptionally warm day.  Enjoy it ladies!!

    Rita

  • zap
    zap Member Posts: 1,850
    edited November 2007

    Dear Rita:

    Thank you for updating us on Pat.  How sad this all has become.

    I loved the shirt Laura created for her.  Hard to know what else to say.

    Hope all of you are doing well and starting  to think about the holidays. 

    Susan 

  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited November 2007

    Rita & Wendy -

    I'm so sorry that you're missing your Moms. My Mom, over the years, has been a fill-in Mom for many of my friends and my siblings friends! If I could, I would clone her and send her your way! I hope fond memories of your moms will help you through the holidays.

  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited November 2007

    And btw - Pat is very tall - the night shirt we sent her was extra-long...designed especially for tall girls!

    Pat -

    If you log on...I hope you're comfortable. Now you REALLY know that we really are thinking of you!

  • JanClare
    JanClare Member Posts: 267
    edited November 2007

    Hi All,

    Gosh, have I missed you all.  It's been a crazy couple of weeks.  Not only have I been working, working, working, but there was something wrong with my computer and our cable connection- so my computer was literally crawling!  Frown  I've spent so many frustrating hours just struggling to get out my reports (two of my accounts have on-line reporting services that I have to use), that I had no patience for anything else on the computer. 

    Rita, thank you for the update on Pat.  Pat,  I'm hoping you are having a good day.  You are in my prayers.

    I haven't been able to go through all the posts, but I'm adding my Thank You to Laura for the wonderful job she did on the nightshirt of Pat.  (Laura, you are such a caring and creative person- a very special ladyKiss)

    My medical update- All my medical tests have come back negative/ normal. I've had another couple of late night vomiting episodes, but at least it seems like my dizziness and heart fluttering has disappeared. My primary doctor is convinced that I have CVS- cyclic vomiting syndrome, and that it's caused by my subconscious brain sending out the wrong signals to my stomach. It's a brain disorder, not a gastric one. It is probably stress related and my sleeping problems add to it. Ironically, one of the medications that they give for CVS is Inderal, a beta blocker, which I've been on for years for Mitral Valve Prolapse. So, I've also started taking Lunesta every night, and, I admit, it seems to be working. I'm feeling better since getting more sleep.

    I also had my 3 month check-up with my onc, and so far, everything looks clear.

    I hope to be able to catch up with everyone and stay on line now! 
  • [Deleted User]
    [Deleted User] Member Posts: 2,728
    edited November 2007

    Dropping in quickly to say good morning.  Hope you have a wonderful day.

  • wendyk13
    wendyk13 Member Posts: 1,458
    edited November 2007

    Morning Ladies!

    Isn't it nice to have Nicki back with her graphics?  Always makes me smile first thing in the AM!

    Jan.....glad you are back and everything with you is still negative/normal/clear.  Hopefully your stomach issues will now straighten out completely in time for you to TOTALLY enjoy the holidays.

    I agree with everyone....Laura is so sweet and so caring...what a dear!

    I think I miss my Mom more this year than the past few as we opened the niches and placed my Mom and Sister as well as my Dad after he passed on 10/1 so the service at the cemetary was like burying her all over again.  And I kinda liked having my Mom and Sis in the house with me.  Funny anecdote to that service tho....the whole group of us were standing around at the niches and here comes the 3 cemetary workers, walking down the aisle, VERY reverently carrying the 3 urns...all dressed in their brown coveralls.  They stop at the niche and what do we hear.....beep, beep,beep...coming down the aisle, very slowly.  Beep, beep, beep.  It was one of those contraptions that Home Depot uses to get stuff off the top shelves.  So it pulls up to the niches, and it starts to go up with the 3 guys on it...now it is going beep, beep....squeek-squeek-squeek....beep, beep.  OK...my sister and I are standing there and we made the mistake of looking at each other.  The giggles started.  We were sooooo bad by the time they closed the niches, the tears were literally running down our faces and we were shaking, trying to hold in the laughter.  Everyone else (even my dh) thought we were just overcome with emotion and everyone was trying to comfort us which of course just made it worse.  I will never be able to go into a Home Depot again without collapsing in laughter.  My Mom would have LOVED to see Joanne and I laughing hysterically....she loved a good joke.  Hope I didn't offend anyone but it was funny, especially if you spend a lot of time at warehouse places as we do!

    Hope everyone else is doing well....hey Kater....did you get that US yet?  C'mon, OK?  Need to get that checked out!

    Pat.....hugs and smiles always!!!!

  • ritajean
    ritajean Member Posts: 4,042
    edited November 2007

    Good morning everyone!  Can you believe that Thanksgiving is just a week away?  This month has just cruised by........and then it's only a few more days and we'll all be meeting in Long Grove!  I'm really looking forward to seeing everybody again and to meeting those of you that I haven't met. 

    Today's a busy day for me.  I need to go over my lesson plans for the youth group this evening and walk so that I don't neglect it.  This afternoon is the monthly Bunco session with the gals!  Anyone else out there play Bunco?  We all throw in $5 and have some pretty good payoffs if you win.  Tonight is youth group and after that we have a teacher with a birthday so we're going to go out for appetizers and I still need to get a birthday cake and some balloons this morning.  She hasn't expected anything yet so hopefully she'll be pleasantly surprised.

    Jan...so glad to hear that the tests were negative and that things have improved.  I hope you'll be able to join us in Long Grove on the 26th.

    Wendy...how funny!  I loved your story.  I needed a good giggle this morning and your story and Wendy's graphic gave me a good start to the day!

    Oh gals, I forgot to tell you that I'm coming into Chicago Saturday on a day bus trip to see Jersey Boys.  I can hardly wait.  A bunch of the bowling and golfing gals signed up for this months ago. 

    Well, gotta run and get this day started.  Hope everyone is doing well.  Hugs to you Pat on this bright Illinois morning. 

    Enjoy the day!

    Rita

  • kats
    kats Member Posts: 162
    edited November 2007

    Good Morning Ladies-

    Rita-Sounds like you have a real busy day. I use to play Bunco with a wild bunch of ladies when I lived in DC. I started as a sub, then got hooked.

    Pat-Sending warm hugs to you. The nightshirt sound lovely.

    Wendy-My daughter and her husband were house hunting in your area this weekend. They toured a townhome on your street and a duplex on Kane St.

    Nicki-So great to see you and your graphics.

    Laura-Sorry to hear about your experience with the window washers. Did you ever say anything to the company. I had only one experience with getting anything stolen from my house, it was when were had movers packing up our house when we moved from DC back to IL. My sons Star Wars stuff was taken....pretty sad that those toys were considered our valuable stuff Surprised

    JanClare-Great news about your medical tests Laughing

    I can relate to those who are missing their Moms. 16 yrs ago when we moved back to IL, DH & I bought the house right next door to my parents house (the house I grew up in from junior high)and now that they are both gone it gets hard to live here at times Cry

    Looks like it's going to be another sunny fall day.

      

  • wendyk13
    wendyk13 Member Posts: 1,458
    edited November 2007

    Hi again...

    Kats...just a short note to you re: houses.  The house next door to me has been empty for over a year due to the poor market and the fact that it only has 3 bedrooms (one is really only office-size). It has a finished bsmt. tho with a 3rd full bath.  The sign was taken down but it is still empty and I don't see it listed on realtor.com.  The last price was $299,900.  If a sign goes up, should I pm you?

    Rita....do you EVER just sit down?  I am such a lazy butt compared to you.

    Laura...you asked once re: return visits to drs...saw my rad onc this morning and his usual protocol is every 3 months for 2 years, then every 6 months for 2 years, then every year.  He wants to see me in 3...but then is going to fast-track me to every 6 since I see my primary every 6 for my thyroid.  So I'm guessing every 3 is about normal for us.

    Hugs everybody!

  • kats
    kats Member Posts: 162
    edited November 2007

    Wendy-Thank you for the offer (I sent you a pm). My daughter and son-in-law made an offer on the duplex on Kane St last night. We'll see how it goes.

    Rita-Have fun seeing Jersey Boys, it sounds like a great show.

    Pat-Thinking about you and sending (((Hugs))).

    Tonight I have a teachers conference at my granddaughters school. Her report card was good which we are extremely proud of (she's bipolar and has ADHD) so keeping focused and on task is hard for her. I know there will be talk regarding her social skills....gulp!!!

    It seems our weather is turning more winter like but I can't complain we've had a really mild fall up until now.

    Mary

  • zap
    zap Member Posts: 1,850
    edited November 2007

    Hi all:

    Mary, you sound like such a caring and loving grandmother.  I hope the news at school was good.  It is hard to be a kid today even under the best circumstances. 

    I have a question about dx.  I was afraid to ask questions when I was diagnosed.  I was a happy camper in denial. I never understood the "Grading System 1-2-3.  I know it is somewhat related to aggressiveness, but I do not know how they can  know how aggressive it is.  Is this really exact or a good guess on the part of the doctor's call?  How do they know?  Also, I had 4 rounds of chemo and not 6.  Can you think of any reason why I had 4.  I know I should ask the doctor, but I almost feel silly asking  15 months later.  Also, I saw my records and they were thick.  Has anyone ever asked for a copy of the records?  Not exactly the best reading material for a curl up by the fire read, but I should probably face the music eventually.

    Thinking of you, Pat, today and yesterday and I will also tomorrow. 

    Susan 

    Thanks,

  • kats
    kats Member Posts: 162
    edited November 2007

    Susan- Thank for the compliment, my DH and I are quardians to our granddaughter. Very strange to be going through this again.

    As for understanding the grading system here's info I got right here on breastcancer.org that explains it pretty well.

     "Grade" of cancer cell growth: Patterns of cell growth are rated on a scale from 1 to 3 (also referred to as low, medium, and high instead of 1, 2 or 3). Calm, well-organized growth with few cells reproducing is considered grade 1. Disorganized, irregular growth patterns in which many cells are in the process of making new cells is called grade 3. The lower the grade, the more favorable the expected outcome. At the same time, the higher the grade, the more vulnerable the cancer is to treatments such as chemotherapy and radiation. Therefore, women with a "high" or "grade 3" breast cancer can also feel hopeful about treatment. 

    For more detailed info take a look at this site: http://www.imaginis.com/breasthealth/histologic_grades.asp#grade_system

    Hope this helps.

    Mary

  • zap
    zap Member Posts: 1,850
    edited November 2007

    Oh, Mary,  that really helped.  Especially the url showing the graphic on the cells.  I am smack in the middle (grade - 2).  Do you think that the earlier you find it, the lower the grade?  Or does that have nothing to do with it?   I am just trying to figure out why this was never caught on a mammogram or by a SE.  It seems that I am finding out that so many cancers are not seen on a mammogram (as mine was not).  I am approaching a February date for an  MRI to see what is going on.  I had a biopsy, a mammogram, and an ultra sound and the cancer  never showed up.  A second biopsy on a rather pathetic looking nipple did show the cancer (one year after the first) and the MRI finally showed it hidden behind the nipple.  I have very dense breasts and I am considering (weakly at this time) a a double masectomy as I feel all the technology failed me.   I need to come to grips with this by February.  I know now my breast cancer surgeon will not support it in theory, yet would do it if I insisted.  I feel I am right in the middle of the unknown.  Thanks, Mary, for sharing that information.

    Susan 

  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited November 2007

    Susan - it's a very "individual" decision whether or not you want to know all the details of your dx. I just happened to be the type that wanted to know EVERYTHING from the very beginning. It's all about what you're comfortable with. I have copies of every blood test, all the pathology reports, every note about all my surgeries, and every record of my chemo, radiation, node dissection, etc. I know - down to the mitotic value of the cells that my cancer was made of. A lot of girls would rather NOT know. If you decide you are ready to "pick through it all", you may want to post your path stats and get advice based on that. My bc happened to be a combo, gee...lucky me (multi-focal) of ILC & LCIS...based on the research I did, that combo put me at a 35% higher risk of having it appear in the "other" - remaining so-called good breast. None of my Dr's. suggested a Prophyl - UNTIL I questioned it! That is when I realized my knowledge of my stats was to my advantage! The words Dense Tissue, is a very sore subject for me. I wish I had known, prior to my dx, that not only do lumps have a tendancy to NOT show up, but it also puts you at a higher risk of developing bc! That's the other reason I had the Prophyl. So...peace be to you with whatever you decide is best for you. But also, sometimes, ignorance is bliss.

  • Mich101
    Mich101 Member Posts: 489
    edited November 2007

    Hi everyone,

    As mentioned in earlier posts, we were going to try to get together for dinner when Rita and her friend are up visiting in Long Grove.

    The date is Monday Nov 26 in the evening(6:00ish?). Laura had a suggestion of the Long Grove Cafe, which serves steaks, seafood, kabobs, burgers, salads etc. Looks like its priced from $10 and up. How does this sound to everyone-looks really good. Also, either post or pm to me if you plan on attending. With Thanksgiving coming up, please try to let me know by Wed. the 21st so I can call in a reservation. We'll have a great timeSmile!!!

     Hope everyone is doing well.

    Michele

    (Headcount)

    1. Rita

    2. Mary Jane

    3. Smerf (Pat)

    4. Michele

    5. Laura

  • kater
    kater Member Posts: 447
    edited November 2007

    Count me in, Kater.   Please let us know the address and phone no of restaurant.