Illinois ladies facing bc
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So quiet here lately....maybe like me, you are holding the lives of the people shot in Tuscon in your hearts and wondering what will become of us all. We need peace and tolerance.....that is my prayer tonight.... that we receive peace and tolerance in our hearts so peace and tolerance can begin with us.
Love to all in treatment.
Susan
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Laura....thanks for sharing the beautiful video. This young lady in my extremely humble opinion is the epitome of having mind, body, and spirit in unison. You can un-lock so much of what you are and so much natural ability because we all have these abilities......but living in the world as it is tends to dull us down......and make it very difficult to reach that total unison that unlocks all of what we could do. The video is a huge confirmation to me. Thanks so much.
Susan, we do so much need peace and tolerance, respect and love. You are sharing a beautiful prayer as well. May it be.
Hugs, Jackie
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Laura...thank you for sharing such a wonderful video. We are all God's creations on this earth and yes each and everyone of you here are beautiful women.
I agree with both Jackie and Susan their needs to be peace in this world. I just got done watching the Arizona Memorial with our President and it was soo sad and touching at the same time.
We have way to much violence in this world. I hope and pray that one day we all will have peace and harmony in our lives.
Hugs to all in treatment. Sweet dreams girls....
BJ
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Laura, interesting that her Mom was an atheist. Last week I attended the wake of my sisters friend who died of cancer. Her brother had a board up of all the pictures he had taken of regular pictures actually polorieds? that had angels in them. I am a Catholic and I do believe their is a God, I dont know what I think of all these "holy places or these pictures", I do believe that sometimes God gives us hope. I think that young girl does that. So thanks for posting it.
I actually slept through most of the reports about tuscon but was just sickened at what our world is going through. That nine year old girl just broke my heart. I cannot imagine how many people are affected through this one disturbed young man.
Love you all. Sleep well. Onward
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lago...nice dream of me in AZ.. it is weird as I was just commenting to someone aobut the beautiful sunsets on facebook.. whoaaaaa!!!!
I am thinking of all those in TX, having appts of sorts and doin any type of recovering. I am goin for a oopenhectomy in a few weeks and am glad that decision is finally made!!!
Be well for today and take each day one day at a time and be with a grateful heart no matter where you are in this jounrey. It is impt to fight it all and know you are never alone!!!!
Hugs,'
Donna
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Morning ladies
First of all, thanks Laura for posting the video. Amazing talent.
I've been dealing with new insurance and getting my prescriptions filled since Friday! Sadly my Nuelasta co-pay is more than 3X as much but I guess $100 is better than $4300 (full price). They also refuse to cover pantoprazole (generic Protonix for heartburn)… but will cover the more expensive Nexium. This is why insurance is so mess up. When they make a deal with one drug company they aren't allowed to use another drug companies product even if it's less expensive.
Anyway I am finally off to see the Lymphedema specialist today in Evanston. I had to wait a month to get an appointment. I hear he is THE guy to see. I guess he's experienced. He received his medical degree when I was 3. (Don't these doctors ever retire
) Hope everyone is doing well. Carolyn haven't heard from you in a few days. Hope your doing well. Marina seems things are going well. Webu I'm sure we will chat in some of the other threads… we bumb into each other everywhere here.
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BTW my chowder was delicious but to rich for my chemo stomach.
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In a full heart there is room for everything, and in an empty heart there is room for nothing.
Antonio Porchia0 -
Day 2 after vaccine.. feel like I have the Flu..
should be better by the weekend.. just keep thinking this is normal.. Lago, you sure sound like you find the good Dr's.. I have to keep track of them all for future!!
Carolyn, how are you feeling?? Everyone else, hope all is well!!!
OH- my new discovery- 100% pure Cacao!! As most know, I don't use sugar, and this has 0 grams!! Plus it's LOADED with anti-oxidants and all the good stuff.. even more so than dark chocolate!! So yesterday I had a hot chocolate with some Agave and I was in heaven.. I think that's one thing my taste buds have refused to give up!! Sweet tastes and Carbs!!
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Hi Gals - Had my surgery Jan 7th, we decided to do T/E on right and fix all those other little things I had spoke about on previous posts...huge success! Congrats to Dr. Neil Fine of Northwestern and his wonderfual staff for taking GREAT care with me...so happy, recovery now and feeling great...I now feel really good about myself, this T/E (2nd time around for me)did exactly what he said it would do along with some alloderm, my right is almost the size of my left and I cried when I removed the bandages, a LOOOOOOG time coming here for me girls and I thank god just to be a live everyday!
Enjoy your week ladies...back to rest! ((((hugs)))) to all!
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So what is the deck reading, Wendy, or do I really not want to know.
Onetoughwoman, you sound like you are doing very well. Removing the bandages is pretty tough, though. Marina, I hope you are resting. The travel alone is hard on you. Have you ever considered wearing a mask on the airplane. I wear turtle necks and pull them up. The only place I am a germaphob would be airplanes as it seems I always get sick after a flight. Onward, sleep is the best medicine. I think our bodies need so much sleep when in pain or stress. Carolyn, hope all is well. Think about you everyday and often within a day.
We have an extra room upstairs since my girls moved out. I reread the The Secret Garden (one of my favorite children's book) and I am creating this garden setting for me and my grand children in this room. I have wicker chairs there and the place is loaded with plants, small trees and flowers along with lots of books. I think I need one of those things that makes a fountain with water sounds! I will do yoga there. I think I am getting a bit dotty, but it is very peaceful and I feel like I am outdoors. The cat loves it too!
I also think I am preparing for that eight week working stint when I leave the house and it is dark and I come home and it is darker! Maybe I need a canary.Jackie, I love the quote. When I was watching the memorial and the president spoke of the young girl my heart was bursting with grief. I know it was a rallying point for the parents, but how painful the next days and years will be for them. As a teacher, I wonder how her teacher is dealing with this. We had a child die (natural causes) and we kept his desk in place for the rest of the year.
Have a wonderful day.
Susan
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Good morning!
Talked to Carolyn - we are getting together for lunch on Tuesday - let me know if any of you would like to join us. Babysitting my friends son this afternoon...craft projects here we come. Hopefully after that I will go skiing.
I'm glad you girls liked the link I posted...truly amazing. Makes ya wonder...
zap - I hear ya. It is so sad to think of her family. Their hearts are broken forever.
Stephanie - Glad to hear you're doing so well.
lago - Let us know how the LE appt goes.
Gotta run!
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Chatty group as always. Thanks for the link, Laura. That is so inspiring to see such a young girl have such a grasp on life.
I am in such a series of follow-up visits these days. So far, everything is going grand. When I saw my breast surgeon down at Northwestern this week, she really urged me to start planning my exchange surgery with my PS so I am off to NW again this afternoon to start that discussion with him. Right now, I feel cluelss, but there are some good threads on this site that are so helpful. I will be spending my train ride down there coming up with my list of questions for him.
My DH has been trying hard to make these follow-up appts with me, but is working today. Last week, he fell asleep in my ONC's exam room waiting for the young PA to stop by. This week he caught another little nap in the my BS's lobby. Had to give him a kick when he started snoring. Can you tell he does not stress over these appointments? As we left my BS's office, he asked, "so, what, if anything, did we just accomplish on this visit?" Got to love him! I have to give him credit though as both times he had just returned from flying a Beijing trip and he really needed those naps.
These follow-up visits have gone very routine, great blood tests and all good news so I am lucky. However, next Monday I am scheduled for PET/CT scan early in the morning. I've always had back issues with disc problems so I was able to get my ONC to agree to order these scans so that I can rule any other problems out. Don't think that I will start stressing over them until they are done and have to wait for results. Arrrgh!
Laura.... I used to ski alot with my husband and when I could brag at the end of the day that I didn't fall all day long.... he always had to chime in and say, "well, then you were not challenging yourself!" So, take a little gentle fall today, just for me! The snow will cushion your landing.
Thinking of all going through TX yet this week. Check in later to see how all went.
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Marina I was half kidding when I said "the guy" but I was actually told that by nurse unratched. Sounds like a lot of us have good doctors!
Onetoughwoman I am so happy for you. It's about time. So glad this worked and you are please.
LE apt went well. Dr says I do have mild LE in left arm and some cording in the right. I don't need wrapping but he is sending me to a LE therapist to get the swelling down. He said to wear the sleeve on the LE arm for 6 hours a day. If it is uncomfortable, causes swelling, etc. I should stop. If it doesn't reduce the swelling he recomends I stop. He spent a lot of time with me (about a good hour).
So I have the names of 3 LE therapists (one is an MD as well) to check out. Need to see who is in-network.
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lago - If you can, find out if the therapist is LANA certified (Lymphology Association of North America). They have to complete a 138 hour course (in addition to their schooling) and they are VERY well versed specifically relating to LE after bc. And they are great at getting cording under control (I had it too).
Joan - I will fall! Your dh sounds like a great guy! In fact, tell him I'll fall twice! lol Best wishes with the scans.
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Thanks Laura. My LE doctor specifically recommended a few. He is the the president of LANA and was one of those who started LANA. I'm not too worried about his recommendations. I checked that he was part of LANA before I went to him.
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lago - Of course, silly me - I should have realized you - our resident MD - would know all about LANA. lol
When I had LE, my therapist was LANA certified - she was fabulous. The wrapping technique was amazing and she was very patient with me while I learned how to do it and she got rid of the horrid cording. It's good you're staying one step ahead of the LE beast. That's key!
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I just ski'd to our mailbox to retrieve the mail. LOL Life in the forest...is good! Sweet dreams all.
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I'm not the resident MD. I'm googleberg.
BTW the LE doc said I had long arms… yeah like I don't know this. Nice to have a petite body with long legs & arms until you need to buy clothes. Only thing I get to fit right is sleeveless shirts from the petite section.
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GOOGLEBERG! I love it! And BTW...you have LONG everything. Legs, arms, eyelashes. LOL I always wanted LONG everything! LOL0
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Ha, thanks but not so many lashes anymore.
Actually they curl better on chemo (probably because they are drying out and about to fall off). Before chemo they wouldn't stay curled. I do get some help. I use l'oreal telescopic explosion mascara
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Good Morning All! Have tried to post and lost some of my posts and then gave up; Then I somehouse locked up the computer and couldn't get to the besight.
MakMak - Glad that your back - am praying that you stay well from that baby you were sitting next to and that this treatment works for you.
Oneward - would you believe that just now the flowers that you sent me are dying? They lasted a very long time. I'm taking that as a good luck sign for me.
Onetough - glad to hear that you have successfully come through surgery.
lago - I finally got my nails done yesterday and mentioned - after all these month that since chemo and radiation that something is growing underneth the nails. Was told that I probably have a fungs growing. Stying tried to gently remove it's still there. At least it feels better than it did before.
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Can't make it to lunch on 2/17. Laura and I are going to lunch on 2/18, If anyone who had emailed me that they were from the Darien area and would like to join us, please let Laura know.
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I seem to be doing pretty well - except that I can't sleep at night. I end up during the day falling asleep while watching TV. I next see both the Neuro and ONC on 1/25 so I'll have more info on next steps. I think that I forgot to mention after my last hospitalization that my ONC told me that I can't be in the clinical study that I was so excited about. Apparently you can't be on steriods and unfortunately, I'm on steriods. Oh well. Maybe there will be another one or I'll just have to do the regular chemo.
Good lock to everyone starting out treatment today. I'm thinking about you. Hope everyone else is feeling feel.
Love to all,
Carolyn
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Another Sunrise, Another New Beginning.
- Jonathan Lockwood Huie0 -
Happy morning Carolyn. All be well....another marathon day at HoH today....first have to take Dh to get eyes dilated. Busy as a bee -- a rather cool one, today. See you all later.
Hugs, Jackie
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Good Morning my beautiful ladies,
Yesterday I got online and found Nu-brow, they sell real human hair stick on eyebrows. I will let you know how they work. For me, it's been the worse thing to deal with.
I have now picked out one week in Ft Meyers Florida and looking for another place in florida for the week before I begin radiation. Joan any suggestions?
Carolyn, I am amazed that they lasted that long. My offer to take you somewhere still stands.
Have a good day.
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Day 10 after last TAC and I am pretty much out of the swamp! Looks like I will be doing rads, one more onc to see next week. Scrapin' this weekend. 50/50 for the lunch Monday. May be checking out a college with DD but if not will try to come. Can't do lunch on Tuesday because... I'M GETTING OUT MY PORT! Yay. Lago, that's your last chemo right? Yay again. Prayers and warm thoughts to all but especially those getting treatments. Hey onward, are you going to the lunch on Mon or Tues? Hugs.
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I'm not sure about Monday either. I do have my first LE therapy in the morning. I'm going to play it by air.
Laura, my nickname has been googleberg since 2000. I like finding information.
Carolyn sorry you have the nail issues. What ever you do don't go to the dermatologist I went to. My regular one was on vacation. This new one seemed nice enough but I think was put off when I wanted to see my original one.
<rant>When I called a few days ago about my thumb still smelling his resident called me back to get the info. Then the following day the resident called me back and said the doc suggested I come in for re-evaluation if I'm worried. He only there on Wed & Thursdays. Glad he waited to the end of the day on Thursday to get his resident to call me back. I'm seeing my original dermatologist on Thursday instead. </rant>
Yes Adey Tuesday is my last. I'm trying to get excited about my last 2 weeks of issues like constipation, taste changes, tiredness, spacey, achy muscles, finger nails from hell, swallowing issues… sometimes I think it might be better not to know what coming.
I've been pretty upbeat for most of this but the last couple really limited me. I guess I just felt to achy and tired to exercise so I think that's what's getting to me. I know I'm almost to the finish line with this phase. Waving to everyone else
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Susan - I love your Secret Garden idea. I might have borrow it one day when (and IF) I ever have grandchildren.
Laura - I meant to mention to you that my DH and DS have done the Warrior Dash and Muddy Buddy several times. They always have a blast at those things. They're signed up to to both again this year, with a few friends including the 14 yr. old son of one of the friends.
Carolyn - Glad you were able to treat yourself to a little manicure TLC! Sometimes these little things can make such a difference. Take care and I hope you get those sleep issues resolved.
Onward - Have you ever been to Sanibel/Captiva? We had one of our favorite family trips there several years ago. Very beautiful and relaxing area. Also, I've not been there, but I've been told that Siesta Key (near Sarasota) has the best beach in Florida. I'm more of a cruiseaholic, but one day I plan to visit Siesta Key and check it out myself.
Adey - Love your avatar pic.
I think the DH and I are going to the Gold Class cinema tonight. The kids gave us a gift certificate for Christmas because they know we love the place. If you ever want to treat yourself to a movie night with lots of pampering, I highly recommend it. http://goldclasscinemas.com/index.htm
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Seems like there are several ladies reaching their finals. Adey.... done with chemo and on to rads. Onward... almost down with chemo and on to rads. And Lago... one more. And makmak... 1/3 done with your trial. Wooo hooo ladies!
I met with my PS last evening at NW. I really do like him alot. He just seems so confident about this whole exchange surgery. Answered all my questions, took his time and said "lets get on with it". So I am set up for March 18th. I am glad to have a date that I can now make other plans around. Of course, i feel like I have that one more hurdle to cross... the scans on Monday.
Of subject just a little..... My neighbor who is a very young 70-year old was just diagnosed with uterine cancer and returned home today from surery at Rush. I had sent her a note of encouragement and mentioned what a super support group I had found here. She is so much in need of the same type group for herself. Rush gave her a list of their onsite seminars, and Gilda's Club. Does anyone have any recommendations I can give her?
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Joan I hear great things about Gilda's Club. I have a feeling the person she spoke with at Rush was Erin Scheinder (LCSW). If not she should contact her. She is the clinical navigator for American Cancer Society at Rush. phone 312-563-24090
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Thanks Lago. I'll ask her when we talk this evening.
Carolyn... you sound good. Hope you feel better too. Wish I could join you guys for lunch on Tuesday, but already overbooked. Have fun.
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Joan, I forget where you live, but if you are near Grayslake, your neighbor may want to take advantage of the Cancer Wellness Center there. I occasionally visit the one in Northbrook (not for a support group but yoga and meditation classes). This is the link:
http://thecancerwellnesscenter.org/cancer-wellness-center-grayslake/
Look over what is offered and see if she would be interested in any of these activities. You can place her on an email list for monthly offefings IF she is interested.
Susan
Susan
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