Illinois ladies facing bc

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  • lago
    lago Posts: 11,653
    edited June 2011
    Thanks Laura I will check that out. I just think bloating is what my body does everytime the mess with my body. It will eventually go away. BTW when are you going to post pictures of your "goat"
  • illinoislady
    illinoislady Posts: 46,506
    edited June 2011

    "Man imposes his own limitations, don't set any."

    -- Anthony Baily

  • joan888
    joan888 Posts: 711
    edited June 2011

    Lago... I got the post-surgical bloat with all 3 surgeries the past year and also with each of my 6 chemos.  I always spent the first 2-3 nights peeing every hour or so.  Grrrrrrrr......  Takes a week for me to get all those fluids OUT.  Laura... hadn't heard of the pepperming tea remedy.  Let me know if it works, Lago.

    I am trying to decide if I can swing a golf club and join my ladies league later today.  PS told me 6 days ago to wait a week.... Does 6 days make a week?  Probably not.... but it is a perfect day for golf.  I did start cycling again last weekend and am about to head out this morning before getting in to the office.  Gotta love this weather!  So distracting from work. 

  • lago
    lago Posts: 11,653
    edited June 2011

    Wow that's fast. I think I was told no major sports for 6 weeks.

  • illinoislady
    illinoislady Posts: 46,506
    edited June 2011

    The past is gone and the future is but a figment of our imagination...embrace the ubiquitous, magnificent gift of the present moment! ~ Susan Steinbrecher

  • mommaof4
    mommaof4 Posts: 10
    edited June 2011

    Hi girls, I'm newer to all this but so happy to find the Illinois forum... Thanks Lago :) I was originally diagnosed with dcis in Apr. I had my BMX in may at Northwestern which showed microinvasion, neg nodes but have isolated tumor cells in 1 of the 3, still have a positive margin, grade 3, and I found out I'm HER+ Ugh!! Sooo, I go in for my port placement next Tues and start TCH chemo on the 11th of July. I am scared to death! So sad about losing my hair... We live in the Naperville area. I'm married and have 4 children, the youngest is 7. Thks was all such a crazy surprise- I'm 41 and no family history of bc :(

  • Adey
    Adey Posts: 2,413
    edited June 2011

    Hello all! 

    Welcome mommaof4.

    Lago- Can't wait to play with my new squishies in September.

    Hope everyone enjoys this beautiful day...

  • CorinneM1
    CorinneM1 Posts: 317
    edited June 2011

    Mommaof4, I am right behind you.  I was(am) also at Northwestern and just had my BMX on Thursday.  I am waiting my Oncotype test and meetings with oncologists to determine what treatments I should have.  I expect to start chemo late July, early Aug.  We should stay in touch as we might just be chemo cocktail friends. :)

  • Madismommy719
    Madismommy719 Posts: 377
    edited June 2011

    Hi momma, sorry you are on this journey but welcome!!!



    I was originally Dx with DCIS and told surgery would "take care of it all" and was surprised a week after my BMX to find out it was actually IDC and in my lymph node too, BOO!!!!

    My upcoming hair loss is going to very hard on me too! :(

    Have any of your doctors mentioned the Living Well Cancer Center to you? It's here in Geneva where I live but I see you're in Naperville, not too far. The resources/classes offered there are amazing.....plus, there's a boutique where we can order wigs, skin care products, etc.....and lots of FREE stuff handed out. All you need is a Dr. note that u are infact a cancer patient. :0)

  • lago
    lago Posts: 11,653
    edited June 2011

    Welcome newbies. Sorry you're here but this group is great. I highly recommend you go to a Looks Good Feel Better session before you lose your hair. I learned so much about what kind of wig to buy, how to put on make up to hide the redness (if you get it) or apply eyebrows etc. They show you different ways to wear scarves. The one at Rush even gave away wigs. They have them at Northwestern as well as other places.

    Also, till I find work I can meet either one of you at Northwestern since I live in Lincoln Park. If you need some hand holding from someone who just finished chemo in January I would be more than happy to help. Just PM me.

    Adey my PS is making me play (massage) with my boobie prizes 2x a day.
    Not really all that fun because I'm still a bit sore and swollen. Yes they are squishy.

  • illinoislady
    illinoislady Posts: 46,506
    edited June 2011

    Good afternoon and welcome to  mommaof4 and Corrinne.  Sorry you have to be here and we all keep hoping and praying some day soon we won't need the welcome mat.....but its out there for you and we are glad your here. 

    The start of the journey is a tough one and can feel daunting until you figure out what you and your Oncologist agree is the best plan for you.  You have some excellent women here who are delightful as well as resourceful and are some of the best hand holders, bar none.  Hope you will make yourself at home and feel free to ask questions, gripe, cry, vent frustrations or whatever it takes to find you strength. We will be here for you.

    Hugs, Jackie 

  • Adey
    Adey Posts: 2,413
    edited June 2011

    Booby prize!

  • lago
    lago Posts: 11,653
    edited June 2011

    Just perusing my Norstrom catalog of stuff I'd never wear. Check this out:

       http://resources.shopstyle.com/sim/8a/9a/8a9a1650bafb062f07bdbfd220a72acf/hunter-nordstrom-boots-verbier-rain-boot.jpg  
    Hunter boots with wedges?! That is so wrong

  • illinoislady
    illinoislady Posts: 46,506
    edited June 2011

    Could I please use the phrase " uglier than sin ".  If that is what passes for style I'll be thrilled to just pass.

    Jackie

  • Madismommy719
    Madismommy719 Posts: 377
    edited June 2011

    Darn it, I was going to buy a pair of those for all of us!!! ;-)

  • lago
    lago Posts: 11,653
    edited June 2011

    I belive the term is "fugly"

  • Adey
    Adey Posts: 2,413
    edited June 2011

    I'm tellin'... you almost used the F word!!!  (c:

  • illinoislady
    illinoislady Posts: 46,506
    edited June 2011

    If I say it three times quick will it still almost be "the word". 

    Just kidding....but they have not gotten any better looking since we last spoke.

  • joan888
    joan888 Posts: 711
    edited June 2011

    mommaof4 and CorrineM... welcome to our little group of Illinois gals.... well, seems like the group is growing.  So glad that you found us.  I had my BMX at Northwestern in April 2010 and my PS who is doing my reconstruction is there also.  I chose to do my chemo closer to home here in the burbs.  Seems that I am at NW every month or so with visits to BS and PS but I am very happy with how everything has gone there.

    Lago... I got that Nordstrom's catalog yesterday and was surprised at those boots also.  Not for me for sure.  But if madismommy insists, I'd llike mine in red.  Maybe we need to start a new trend so that Elf will come back with her purple sparkle shoes.

    Lago, hope that you are recovering quickly from your exchange surgery.  Don't have too much fun playing with yourself!  I can't believe how quickly I am back at most everything.  I am just two weeks post exchange and I have been cycling everyday since last Saturday and loving the opportunity to get in some more vigorous exercise.

    Everyone is probably gearing up for the big holiday weekend.  Looks like we are in for HOT weather.  I am supposed to walk in the local parade, but if it is seriously over 90 degrees, I will be sitting on the curb waving as the parade goes by and praying that my LE will not flare up.

  • illinoisnative
    illinoisnative Posts: 33
    edited June 2011

    I think I've found my people!  Hee!

    I was just diagnosed in November of last year with IDC.  I had a lumpectomy, finished 4 rounds of chemo, and am currently going through radiation.   I'm 36 and live in Elgin.  I just found out a childhood friend of mine who grew up down the street from me (Barrington, IL) was also diagnosed with BC.  She's the same age as me.  I can't believe it.

    I look forward to posting with all of you...and, yes, those boots are ugly.  No other way around it.

  • joan888
    joan888 Posts: 711
    edited June 2011
    IllinoisNative...and welcome to you also.  Like I said, our group is growing.  You are out in my neck of the woods.  I hope that chemo was not too hard on you and that you are tolerating rads okay.  Yes, come here and join the chat with this wonderful group of ladies.
  • Madismommy719
    Madismommy719 Posts: 377
    edited June 2011

    Hi IllinoisNative....welcome!!! We can celebrate with you when you finish that last RADS!!! I think I'll buy you some really good lookin' boots I saw somewhere!!! :0)



    I've got a high school friend and another friend I've only known about 6 months (who just turned 30!) also diagnosed this year along with me. When is the madness going to end?? :(



    Nice to meet you....wish it wasn't this way, but glad you're here!

  • wendyk13
    wendyk13 Posts: 1,458
    edited June 2011

    Morning! Well...after 2 months of pain and one cortisone inj I now have a R hand/thumb again. Jeesh...



    No way I can catch up but I read several times a day. So glad the surgeries went well for everyone and the treatments too are not treating you all too terribly bad. I am bummed with all you new members tho...not that I don't like new buddies, I just don't want to meet you here. Whatever we can do to help, we will do that.



    Just wanted to say to Madismommy that I am just down the road from you in S Elgin, went to CDH for surgery, had chemo/rads at Delnor. If I can help with anything, just PM me.



    Will return later to chat more...just savoring holding a cup of coffee in my R hand. Have a great Thursday, my pets! I am sooo glad to be able to chat with you again!

  • wendyk13
    wendyk13 Posts: 1,458
    edited June 2011

    Sorry...Illinoisnative...u are thru the worst of it but again....verrrry close to you as well if you need anything!

  • [Deleted User]
    [Deleted User] Posts: 4,011
    edited June 2011

    Wow...so many new Illinois girls...SIGH...BUT WELCOME TO ALL OF YOU. The girls here are awesome. You've found a place of comfort, encouragement and knowledge.

    -----------------------------------------------

    Update: My LE has slowly but surely (due to manual lymph massage, sleeve, gauntlet, night sleeve, etc.) is almost gone. Although...I can't get too smug or confident because the upcoming hot weather just may kick it into over drive again. I am so thankful for reprieve! AND THANKS AGAIN FOR ALL THE CARDS AND E-MAILS! You girls are sooooooooooooooo thoughtful!

    Why is it "always something"? Yesterday I was volunteering at my new church by doing some gardening. There's a group of bushes called Barberrys...lots of thorns! I bent down to clip the bottom growth and a branch brushed against my eye. OMG! The pain was horrible. I left the church and went to my Dr's office. They did a stain/flourescent test. Sure enough...SCRATCHED Cornea! FRICK! So off I went to an Opthomoligist @ Good Shep Hosp. They did more tests and found that I have 3 scratches on my Cornea. They covered my eye with thick gauge and tape. Driving home with one eye, was not fun! Last night it was quite painful. This morning, unbelievably, it's feeling almost normal. Have anti-biotic drops, 4x a day and have to go back to Opthomologist this afternoon (he's concerned about developing an infection). CRIPE! Frick...CRIPE! lol so much for volunteer work @ a church. lol

    ----------------------------------------------------

    O'l one eye says: hope you all have a nice day.

    For those recovering/going thru treament, etc. HUGS and best wishes!

  • Adey
    Adey Posts: 2,413
    edited June 2011

    Good morning newbies and oldbies!

    Laura-  WTH?!  Good news about the LE, sorry about the eyeball.  My DD did that to me with her finger nail once... youch!  (c:

  • illinoislady
    illinoislady Posts: 46,506
    edited June 2011

    I believe the single most significant decision I can make on a day-to-day basis is my choice of attitude...When my attitudes are right, there is no barrier too high, no valley too deep, no dream too extreme, no challenge too great for me. Charles R Swindoll

  • illinoislady
    illinoislady Posts: 46,506
    edited June 2011

    Good morning and welcome IllinoisNative.  Wish all you new ladies did not have to hunt us down ( for the obvious reason ) but we are here to walk beside you.

    So good to see you back Wendy.  I'm getting used to  not getting good Elgin/Chicago weather-deck reports but I didn't get used to your being gone.

    Laura ---  Glad the eye already feels better, but a scary thing.  I guess we are getting to where everything we do we need some sort of DIY protection. Gloves, eye goggles, wet suit....but seriously do take care.  Glad the LE decided to give up for awhile.

    Lots to do today...Bonnie ( old little orange cat ) to the vet today for re-check and Maggie and animals of course.  Ferals too, then trip to Mt. Vernon V.A. for a session with their nutritionist, and my things to do list here...always waiting and thrilled when I check something off.  I'll be looking in later.  Stay cool.

    Hugs, Jackie

  • lago
    lago Posts: 11,653
    edited June 2011

    Laura that's great. I swear we are not the same schedule. Mine resolved this week too but I too am concerned about the increased heat. My fingers are crossed for both of us.

    Well it looks like it's going to be a great forth weekend. No need for boots!

  • Madismommy719
    Madismommy719 Posts: 377
    edited June 2011

    OUCH Laura, just reading that made my own eyeball hurt!!! I hope it heals quickly!!!



    Wendy, you are very close to me....I did almost all my initial testing at Delnor and my BMX at Valley Ambulatory, at 64 and Randall. So, have you gone to any of the programs at Living Well?? Someone told me there's a class there all about hair loss and how to handle it, etc....I definitely need to check that out in the next couple weeks.... What happened to your hand???



    I just left a voicemail for the scheduling girl at my BS's office....I have to schedule an auxiliary node dissection and will have my port put in at the same time I suppose?? NOT looking forward to this AND and terrified of lymphedema risk....but I've had every doctor I've seen tell me it's important that I do this..... And I have inquired a couple times about the Oncotype test and was told it's not useful to me????