Illinois ladies facing bc

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  • smerf
    smerf Posts: 476
    edited May 2012

    Good morning all,

    Want to thank you all for the birthday good wicshes. Love those cakes, and the smurf cake was something special!

    I've not been online much since mother's day because all my kids have been visiting, and we all went to Madison for my youngest's Master's degree graduation. Really busy time here, but winding down. We all came back Saturday night, and everyone left after brunch yesterday, except the new graduate. She'll be on her way back to Madison shortly, and then I start cleaning up! Lots of fun, but I'm ready for normal to return. Now she has internship until December, and then finished with school, but must take the OT licensure exam. Whew!

  • smerf
    smerf Posts: 476
    edited May 2012

    Oops! Make that wishes! I can spell, but I can't type!

  • kjiberty
    kjiberty Posts: 687
    edited May 2012

    Invisible:  Sending prayers your way!

    Valerie:  Did I mention my son is getting married in Homewood on 9/15?  If all goes well,hopefully I will be done with chemo and radiation! 

  • joan888
    joan888 Posts: 711
    edited May 2012

    Invisible.... hope that you are recovering nicely. We are all thinking of you.  Have fingers crossed for good skin healing.

    My PS removed my last drain today so I am so excited and relieved.  I set the office record (by two weeks) for keeping a drain the longest.  Not a record to be proud of other than I guess it shows you how much patience I can have if I really need to.  I go back to see him in a few weeks and then I can reschedule my next adventure..... back surgery!  Looks like I should have that on my calendar for sometime mid-July.  Not looking forward to it at all except that the sooner I get it done, the sooner the recovery starts.

    My appt today was at NW downtown.  It was amazing how quiet it was downtown as so many people had been staying away from the city with the NATO Summit going on.  I think you could have thrown a bowling ball down Michigan Ave at rush hour.  Really sad for all the business it ruined for the downtown merchants.  Oh well, its over and things can get back to the normal rush, crowds, noise, etc.

  • hawk
    hawk Posts: 255
    edited May 2012

    Invisible - I am praying for your skin to heal and a beautiful outcome.

    Yay Joan for no more drains!

    Since nothing major happened, I am headed back downtown to work tomorrow :-(  Working from home was so nice.   

  • spunkyboobster
    spunkyboobster Posts: 563
    edited May 2012

    Invisible-hoping and praying all goes well and you heal beautifully.

    Joan- you record breaker, glad that nasty drain is gone. 

    Smerf-I went to Madison, and it's still one of my all-time favorite places.

    Took my test downtown today, and as Joan said, it was so quiet it was eerie.  Although when the protestors passed the building I was in I could hear them way up on the 16th floor.

    Have a restful night, all.

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2012

    Hope sees the invisible, feels the intangible, and achieves the impossible. -Charles Caleb Colton

  • valerie0118
    valerie0118 Posts: 60
    edited May 2012

    just had my 3rd of 10 radiation treatments this morning.....have another one this afternoon.  The fatigue is already starting to set in.  They thought I wouldn't feel it until later on this week.  I really could use a nap but I'm at work!

    Invisible, Sending up prayers for your quick recovery!

    kj, You did tell us!  If you are up early and not too busy, maybe we can meet for lunch.  I'm praying for you to be all done with chemo and rad so that you can enjoy the day!

  • lago
    lago Posts: 11,653
    edited May 2012

    Speaking of invisible… she got good news in her path today! Hopefully she'll pop in and share

  • lemondrop1967
    lemondrop1967 Posts: 85
    edited May 2012

    Hi all! Joan, yay for getting rid of that drain! Invisible, hoping for a smooth healing process for you. Robo, I am also constantly hot, then cold, hot, then cold - drives me nuts; I just want to be comfortable for 5 minutes. Valerie, hope you can rest tonight. I am FINALLY starting my rads today after a 1.5 week delay. Part of the delay was insurance issues (required pre-authorization because my RO ordered a more targeted type of rad to avoid excessively radiating my apparently oddly-located heart). Further delay due to DH having a very painful kidney stone and as a result being basically useless for 4 days, leaving me to deal with EVERYTHING (and there has been a lot going on). I won't say I am excited about starting rads, but at this point I just want to get on with it. Am 3.5 weeks out of chemo, and have no eyelashes, half my eyebrows and no hair growth on my head, though annoyingly the hair on my legs seems to be coming back. Well, off I go to my appointment. Thinking of you all.

  • invisible2
    invisible2 Posts: 70
    edited August 2012

    Hey - Happy Tuesday! I got my pathology back today. No surprises and all nodes were negative. We are breathing a little easier. Now I have to hurdle my way thru the recon and the meeting with the MO. Crying today - but tears of relief. Thank you all for helping me get this far.

  • hawk
    hawk Posts: 255
    edited May 2012

    Yay invisible2! Great news on the path report!

    Lemondrop1967 - my thoughts are with you as you start rads.  Parying it will be easy for you.

  • Madismommy719
    Madismommy719 Posts: 377
    edited May 2012

    Yay invisible!!!!! Awesome news! :). Yay Joan on ditching the drain!!!!!



    Lemon... Hugs to you as you round 3rd base in this crazy journey.... And, My hair took forever to sprout, it'll come.... I was shaving my stupid legs long before I had peach fuzz.... Really isn't fair at all!!!



  • lemondrop1967
    lemondrop1967 Posts: 85
    edited May 2012

    Great news, Invisible!

  • joan888
    joan888 Posts: 711
    edited May 2012

    Gosh, is this nice living without that stupid drain.  I feel like I lost 5 pounds.  Wish it were true.

    Invisible.. great path report.  Lemondrop... hope that rads go easy on you. 

    My PS gave me a script to go back to LE therapy, etc.  I am thinking of changing LEPT.  Although she works with two LANA certified therapists, she is not certified yet herself.  Was trying to remember the name of doc that someone mentioned they had seen for LE.  Not Dr Marga.  I would love to go to one that comes highly recommended down by NW, but not sure I want to deal with the trips back and forth that it may require.  LE flared up after this lat surgery so need to get it back under better control.

    I got my back surgery rescheduled for Friday, July 13th.  Hope it is a LUCKY day.  Just anxious to get it over with and get on the recovery road..... once again.

  • kjiberty
    kjiberty Posts: 687
    edited May 2012

    Invisible:  Yeah!

    Lemondrop:  How soon after your last chemo were you supposed to start your radiation?  My BS said it's usually about 4 weeks frm last tx.  I just want it all OVER with.  At this rate, with two more treatments, I will be done with radiation mid-September, which is the DAY BEFORE my son's wedding--that's, of course, if all goes as planned,but we all know how that is... 

  • spunkyboobster
    spunkyboobster Posts: 563
    edited May 2012

    Lemon-Good Luck with rads

    Invisible-Exhale, so glad to hear your good news

    Joan-happy you have a date for your back surgery.  I'm sure Fri/13th will be nothing but good.

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2012

    Joan...I was born on Friday the 13th.  It is the best day there is and the best one for you too.

    (((((Invisible))))) we knew you could do it.  We are still in your corner all the way.

    Lemom.....thinking about you.  Hope the rads go fast and no problems at all.  I think most everyone finds them more boring than anything. 

    Karen -- everyone here will be hoping things stay on track for you.

    Hope today was fantastic and tomorrow will be better.  See you in the morning.

    Hugs, Jackie

  • Adey
    Adey Posts: 2,413
    edited May 2012

    Good morning gals!

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2012

    This was the first thing I saw this morning.....I was taken with the date at the end. 

    The Best of Sixteen Things

    1. The best law: The Golden Rule.
    2. The best education: Self-knowledge.
    3. The best philosophy: A contented mind.
    4. The best theology: A pure and beneficent life
    5. The best war: To war against one's weakness.
    6. The best medicine: Cheerfulness and temperance.
    7. The best music: The laughter of an innocent child.
    8. The best science: Extracting sunshine from a cloudy day.
    9. The best art: Painting a smile upon the brow of childhood.
    10. The best journalism: Printing the true and beautiful on memory's tablet.
    11. The best telegraphing: Flashing a ray of sunshine into a gloomy heart.
    12. The best biography: That life which writes charity in the largest letters.
    13. The best mathematics: That which doubles the joy and divides the most sorrows.
    14. The best navigation: Steering clear of the lacerating rocks of personal contention.
    15. The best diplomacy: Effecting a treaty of peace with one's own conscience.
    16. The best engineering: Building a bridge of faith over the river of death

    -Pennsylvania School Journal, 1936

  • invisible2
    invisible2 Posts: 70
    edited August 2012

    Hello all!  I just wrote an entire post a few minutes ago and lost it before I could post it.  I read through all the recent posts but must confess I am still having a hard time concentrating/comprehending things.  Everything still feels a bit muddled and I am taking very few pain meds.  I thank you all for your kind words and support.  

    I got a 'stay' from the PS and won't need surgery tomorrow.  He is still not happy with the skin condition but saw enough improvement that he is willing to give me one more week to heal on my own.  If he doesn't feel it's right he will schedule me for surgery next week.  I am following all orders...and doing nothing to hinder my healing.

    Drains:  Okay, I finally get it.  I never really understood how they worked and why they were such a pain.  Boy do I get it now.  I have four that will remain in place until at least next Wednesday.  I am never quite sure what to do with them.  

    Surgical Bra:  The one I left the hospital in is so uncomfortable!  The PS told me I could wear my stretchy tank tops (kind of lightweight spanx type things) instead of the stupid torture chamber they called a bra.  Huge difference.  Of course the drains still get in the way Smile

    I am currently living in my husbands old soft shirts.  They are comfy, hide the drains (a bit) and are easy to get in and out of.   

    Hopefully I will get this one posted before I lose it.   

  • lago
    lago Posts: 11,653
    edited May 2012

    Invisible Have you tried pinning the drains to the bra? That's what I did. I sleep in men's XXX "bad ass" tee shirts. They were great after my surgery. Granted they look like a dress on me.

    Still waiting on the job but he's now interviewing even more people so I'm not getting my hopes up. Recruiter did send my stuff out to another place. At least they are still sending my stuff out.

    BTW Joan I forgot to congratulate you on being drainless. 

    Lemondrop Hows it going?

    Waving to the rest of the gals here

  • doxie
    doxie Posts: 700
    edited May 2012

    You guys all make me smile.  What a nice community of women.  Good health and thoughts to everyone.

  • kjiberty
    kjiberty Posts: 687
    edited May 2012

    Back at ya doxie!  PS--My daughter owns a wire-hair!

  • stjude10
    stjude10 Posts: 230
    edited May 2012

    Just stopping by to say hello to all the IL gals

    Sounds like there are a lot of good things going on with everyone

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2012

    Invisible....isn't that the pits....losing your whole post.  I use to do that a lot.....because I always felt I should preview my post......to check and make sure that I said things in such a way that I didn't leave anyone out, say something nutty or hard to understand the way I worded it, and found all the mistakes.  Well, somehow, they just often disappeared on me...............so I quit worrying about all the above and just hit submit after I've used the spell checker. I have made a couple of not so good errors a time or two, but these gals here are quick to forgive. 

    Good news that you get a week's reprieve for your healing.  You know what they say:  " What a difference a day makes ".  Well a whole week's worth should do wonders.....well, close to it anyway.  Prayers and healing vibes headed into the universe. 

    Lago.....you are so philosophical about how things are going. It even makes me feel calmer tonight. 

    Hope all had a beauty of a day.....very warm here, but no humidity.....I love it that way.  See all of you lovely ladies in the morning.

    Hugs, Jackie

  • illinoislady
    illinoislady Posts: 46,506
    edited May 2012

    Inspirational poem of the day

    Quote | For some of us who are down today and feel like they just want to give up and forget everything, please don't. You're a much stronger person than you think and you can do anything.

    Beginning today I will no longer worry about yesterday.
    It is in the past and the past will never change.
    Only I can change by choosing to do so.


    Beginning today I will no longer worry about tomorrow.
    Tomorrow will always be there, waiting for me to make the most of it.
    But I cannot make the most of tomorrow without first
    making the most of today.


    Beginning today I will look in the mirror and I will see a person worthy
    of my respect and admiration.
    This capable person looking back at me is someone I enjoy spending time
    with and someone I would like to get to know better.


    Beginning today I will cherish each moment of my life.
    I value this gift bestowed upon me in this world and I will unselfishly
    share this gift with others.
    I will use this gift to enhance the lives of others.


    Beginning today I will take a moment to step off the beaten path and to
    revel in the mysteries I encounter.
    I will face challenges with courage and determination.
    I will overcome what barriers there may be which hinder my quest for
    growth and self-improvement.


    Beginning today I will take life one day at a time, one step at a time.
    Discouragement will not be allowed to taint my positive self-image,
    my desire to succeed or my capacity to love.


    Beginning today I walk with renewed faith in human kindness.
    Regardless of what has gone before, I believe there is hope
    for a brighter and better future.


    Beginning today I will open my mind and my heart.
    I will welcome new experiences. I will meet new people.
    I will not expect perfection from myself nor anyone else: perfection does not exist in an imperfect world.
    But I will applaud the attempt to overcome human foibles.


    Beginning today I am responsible for my own happiness and I will do
    things that make me happy . . .
    admire the beautiful wonders of nature, listen to my favorite music,
    pet a kitten or a puppy, soak in a bubble bath . . .
    pleasure can be found in the most simple of gestures.


    Beginning today I will learn something new; I will try something
    different; I will savor all the various flavors life has to offer.
    I will change what I can and the rest I will let go.
    I will strive to become the best me I can possibly be.
  • DeborahC
    DeborahC Posts: 24
    edited May 2012

    Good morning.  Thanks Illinois lady - you have started my day off perfectly.

    This was just on the Today Show - will put a smile on your face

    http://today.msnbc.msn.com/id/26184891/vp/47549293#47549293

    The Tutu project.

  • Adey
    Adey Posts: 2,413
    edited May 2012

    Good morning lovelies.

    DeborahC-  Thanks for the clip.  (c:

    LAGO

  • Rene23
    Rene23 Posts: 290
    edited May 2012

    Hi ladies! 

    Thanks for that link, Deborah.  I watched that this morning and wanted to share it too.  I really like the pictures he takes, and I found it moving to see him doing what he can do handle and support his wife's cancer.  

    Invisible - Glad to read you got through the surgery and are doing well.  Drains are annoyance, but thankfully, temporary ones.  

    Joan - Yay for you finally being drain-free!

    We are heading to the Michigan City area this weekend.  We wanted an easy getaway that we could drive to and and I hear it's beautiful there. Going to check out the beach at the Illinoid Dunes, also - casino!  I don't gamble often, but I do enjoy donating some of my hard-earned cash once or twice a year. :)  I read about an outdoor European Market that's held in Chesterton on Saturdays.  That sounds interesting too.  Any suggestions from any of you who've been there before? 

    I'm way behind on all the posts in here, but just know that even though I don't post often, you guys are always in my heart.  If the n/western 'burbs gals get together for a walk, I'd love to join.  My work schedule has been so all over the place lately with everyone taking their vacations.  Let me know if there are dates picked though and hopefully, I can work it out.