Come join others currently navigating treatment in our weekly Zoom Meetup! Register here: Tuesdays, 1pm ET.
Take our poll: How are you feeling as we near the New Year?
Anyone starting Chemo in Feb?
Comments
-
Hi all, just checking in. I had a rough week last week. BAAADD constipation, and some stomach cramps that were unrelated. And really tired and or down. And I had terrible sleep for almost 6 days in a row. But, I returned to my aerobics class after almost 3 months off. I was scared, not sure why, I think I was afraid I couln'dt get through it, but I did and it was great!!! Felt terrific, and finally "went".
Got to the bar WEdnesday,and my WBC and Neucolasts(?) were down, so I only got one of my cocktails, and a nupogen chaser. I was bummed, just like someone else mentioned earlier. Funny how something you dont want, but then can't have can really be upsetting. I get to shoot myself up again tomorrow, so all my little lazy cells should be working overtime by next Wednesday happy hour.
Any tips on boosting immune system and bone marrow, please let me know.0 -
Hang in there Marsha, you are pretty tough to keep going with the chemo! I feel like sharing this about yesterday at rads because when you think you have it bad there will always be someone else with it worse...
I know how lucky I am have caught it (bc) so early, met a man yesterday at rads that told me he had cancer in the brain in two places and a huge tumor in his chest that they can't take out because it could spread the cancer like wildfire. He'd already had rads and 27 doses of chemo for the one in the chest. They can't operate on any of his cancer to help him so he's depending on treatments to keep him alive. Looking at him you wouldn't know he was so sick, he never lost his hair and he looks healthy! He said it was his last brain rad and he was going on to chemo next.0 -
Hi all - just a quick note before I'm off to snooze. # 3 was completely uneventful, almost fun.
Its so nice when you get the same nurses and aides each time. 
DH didnt sleep well last night and was up and down, so I got up for the day at 2:00 am! So now with being tired anyway, and getting drugs that make one tired, it's naptime for this one!
Will write more later. Piper, Melody, hope you are feeling well too.
Carynn0 -
Marsha,
I'm glad you checked in to let us know how you're doing. You can't be up all the time; this is some hard S%%# we're going thru and you've been such a rock for all of us. You'll be in a play again, sooner than you think -- Fall is right around the corner (along with our new beautiful hair).
Linnie0 -
Wish this were a happier note: Last night around 8pm I began with what reminded me of labor pains....throbbing pain to my entire lower back and hips as if my back was splitting in half, and even some to my sternum area. My temp was 99.4. I took the Darvocet and ativan but by 1am I was writhing in pain so much that I considered for a moment going to the emergency room. But I remembered the only thing I had left to take for pain was Excedrin Migraine so I took 2. Next thing I know I wake up at 5:30am and the sheets are moist as if I had broken a fever, but the pain was much less. I had a dr. visit at 9 and by the time I was dressed and walking to the car, the pain returned and waiting to see her was terrible. Turns out its from the Neulasta shot I got just before last weeks chemo. She saw the pain in my face and give me a prescription for percocet which is oxycodone--strong stuff--. She also said if my count is low next chemo day the 29th, instead of the shot she'd rather just wait another week and let the count come up on it's own. Thank God! I love my doctor.
It's 4pm right now, the pain has returned but alot more tolerable. Still gonna take the percocet so it doesn't get out of hand.
I don't write this to alarm anyone, this is just my reaction to it. I had a hard time finding other posts saying the neulasta was this bad so I'm wondering , am I the only one with such a bad reaction to Neulasta??
Pat0 -
Another thing, I found it strange that I got the shot 7 days ago and it didn't hurt to get it like others have said and the bone pain didn't start until 6 days after shot. What's up with that??
0 -
Good afternoon!
For all of you having a bad third AC, there is hope. Mine was pretty rough, but I'm finally starting to feel back to normal on day 10! Ate some lasagna for lunch, took a walk around the block, and then ate some Ben & Jerry's Chocolate Frozen Yohgurt! Got to get my energy and weight back up in time for AC#4 next week ...
Tropicmom -- I finally felt well enough to get on the treadmill for 15 minutes yesterday. Let's just say that I, too, was reminded of the benefit of exercise on the inner workings of the bowels!
Pat -- I may be the only one without a reaction to Neulasta! I take Zyrtek for allergies. I've heard of some folks taking claritin to prevent Neulasta pain and I'm wondering if the zytek is helping me out here. I'm just surprised that the Neulasta pain took so long to manifest itself.
Caryn -- Did you get any answers from your onc about taxol vs. the alternatives?
-- Hillary0 -
Pat -- I can't remember if I posted it but I had terrible pelvic bone pain a few days after my first Neulasta shot. It even stopped me cold -- I couldn't take one step until it finally passed. I did post about the pain in my tail bone after my Tx #2/Neulasta.
Also, what you are describing with your taste and tongue sounds like the bummer I am going through, too. Doesn't matter what I try, I have "yuck mouth".
Re: Tx #3 worse for some, not worse for others I sure hope I fall into the latter because the SE's I had from #2 were so much worse than after #1 that I started questioning whether I really wanted to continue chemo - I will because I was told statistically it could boost my 10-year survival from 68% to 92% How can I pass that up despite the SE's??? So...Chemo #3 Tues. April 3rd come hell or high water
Ladies -- I just started seeing a counselor who specializes in cancer and chronic illness. I have only seen her 3 times and I cannot tell you how much she has helped me. Starting with the dx of cancer, maybe even the biopsy, the whole process brought up in me fears and disappointments and betrayals and moments of despair that I thought had been resolved in earlier years, including my childhood. I realized that all the Effexor, Welbutrin, Elavil, etc. in the world would not have brought me this discovery, although I continue to take the medications because I feel they help me as well. Anyway, I just wanted to share that with you -- I know some of you may feel the way I initially felt, that I can get through this on my own. More power to the ones who can. More power to the ones who can't. More power to us all.
Feeling like I need to accomplish as much as I can during the times I feel well enough to do anything -- anyone else feel pressured to do that? Love, Sybil0 -
Feeling like I need to accomplish as much as I can during the times I feel well enough to do anything -- anyone else feel pressured to do that? Love, Sybil
I do! My love is gardening and when I feel good that's the first thing I want to do, get out there a putter around with the flower bed and yard. And when I don't feel strong, I can at least sit on the patio and look at what I was able to do on a good day.
Take care, Pat0 -
LOL Sybil YES I feel compelled to do things every other week. I call it my "good" week, say Monday till the following Wednesday (9 days). Most plans I make are for that time and if I feel OK the other 6 days then great, will go out to lunch with friends or whatever. My parents are coming for a visit and I had to get the calender out to let them know which time would fall in my "good week" Ahhhhh the carefree days of living without really knowing it.........sigh.......Marsha
0 -
oh and by the way, I have 2 extremely funny stories to tell since my last treatment and one "amusing" one. I'll draw them out while I am feeling up again and try to give out a daily giggle to all. LAST a/c is next Wednesday and I can't wait!!!
OK "just amusing" is first and you'll have to wait on very funny. At #3, while the other poor girl is puking for 5 minutes I get up and walk around with my IV pole. Just restless, looking for a magazine or something to distract me when I walk by one of the other open rooms my chemo nurse starts shouting "That's her! That's Her! THAT is the flasher!" Took me a couple of minutes to realize what she was talking about and every one starts grinning real big. She told me later she tells the "flasher" story almost every day. Good Lord I am some kind of tabloid story in the infusion room! She said if she could bottle me, half her job would be done. HAHA See? See how much better I feel? I think I'll carry some balloons in with me on Wed that say Congratulations on them and tie them to my chair. Hugs all around..........Marsha0 -
Marsha; Ahhh yes...always leave a good or at least lasting impression on 'em. The balloons are a good idea. I stop at a great bakery on my way and pick up 2 huge boxes of cookies. The lab folks get one and the chemo floor the other. I get lots of thank you's.
Pat; I also find myself trying to get things done. Heaven forbid that my closets be disorganized if I were to get sicker.
Also, I have had very little discomfort from the Neulasta shot and it usually happens the next day and only lasts a couple of days. I got it yesterday and I still feel yuck today, but I have felt this way since the night of chemo #3. I have absolutely no appetite and they have me taking Zofran. I have never taken any meds after chemo except the Diflucan. I can't see where the Zofran is doing me any good at all. I bet I will feel great in a couple of days!
Carynn; I am so glad that #3 went well for you! I bet the last one will be a breeze also.
Time to hold the couch down....0 -
Hi everybody! Hope you're having a great day. Now that I'm somewhat awake, I'm enjoying the rainy Phoenix weather today:) I'm probably the only one here who secretly hopes it lasts all weekend!
Well, sailed thru round # 3 today. As I feared, not nearly as entertaining as round 2, but one amusing story to share, which I'll get to in a minute. Really no complaints, however, the fatigue is much worse, but bearable.
I love the setup at the Oncologists office. You always see the same nurses who then get to know your likes and dislikes. They cater to your every need and no matter how busy they are, they make time for any questions, or to make a big deal of any personal or medical milestone. One patient came in while I was there whose markers had improved immensely. The only thing he had done different was to indulge in a bowl of chocolate ice cream before his test. So all 20 of us patients agreed that they needed to go get ice cream for us all. While the nurses agreed, we couldn't quite talk them in to leaving to get it.
-----> Amusing story alert <----- While getting me set up, my nurse noticed a number of items at the bottom of my chart were not filled in from the last visit. She showed them to me and said that this is usually taken care of towards the end of the exam and before the start of chemo. I started laughing and said "Bead Boy" must have dropped the ball. She hadn't heard the story, so I had to tell the whole flash story again. She just cracked up! She said "Bead Boy is no longer with us!" He left, I believe, the next day. So while I'm sure I didn't really have anything to do with it, the story now goes that I drove him to a career change, or at the very least a new office. Guess he just couldn't handle getting flashed by a cute cancer chick (I still had hair then, wink, wink). What's funnier still is looking at Marsha's post, I guess you can insert your own Carynn & Marsha Mardi Gras joke here! The Flashers!
That's pretty much it. No nasty side effects, or migraines, just a hit by a bus type of fatigue. I imagine I'll be quite the couch potato this weekend (good thing it's race season), and hopefully back to semi normal by Monday.
Take care all. You make my day:)
Hugs!
Carynn0 -
Well, 6 days away from the AC#3 and I'm not feeling too bad. My mouth tastes like I've been snacking on tin cans and my appetite isn't great but I'm just ocassionally very very borderline nauseous. I'm down 3 pounds from last week...seems to be pretty consistent... a few pounds lost with every treatment. My mouth is gummy, and icky...I use the Biotene mouthwash regularly, and have since the first tx, so I can't tell if it's making a difference or not. I was a little concerned the other night when I spit bloody mucous after my nightly teeth-brushing. It wasn't from my gums, nor tongue ... I think my throat was raw. In any case, hasn't happened since so I'm not concerning myself with it.
I haven't had any reaction to the Neulasta (other than the intended boost to my WBC) but I was warned to watch for some of the SE's some of you have mentioned.
My biggest problem seems to be coping with the wigs (I have FOUR now). By mid-morning, I have a splitting headache... I close my office door, take the wig off for a bit, then start all over again... every couple of hours it just has to come off my head. By the end of the day I'm miserable -- my eyes sore, my sinuses aching, my head feeling like somebody has driven a knitting needle through from one temple to the the other. I don't know if I just bought the wig a size too small (my head is kind of largish) or this is the way it is.
Melanie -- bringing cookies...such a good idea. I think I'll do something similar for my visit next Thursday.
Marsha -- You're allowed to have the odd meltdown but I just can't imagine you staying down there. You're too funny! I do the same thing...one good week, one bad week...I even posted my schedule to my blog for family and friends considering a visit. The 5 or so days following treatment are my 'blackout' period.
Piper, Melody -- hope today went okay for you all. One more down!
Carynn -- it sounds like you did just fine. Oh, and that poor guy, I'm sure it had nothing to do with you.
Sybil -- counselling is a good idea. I've been thinking about whether I'd find it helpful or not. I think it depends on whether you are able to connect with the counsellor or therapist.
Now, I'm looking forward to my 'good' weekend, then the last AC. On to the next challenge. Dang, just when I was getting this routine figured out (eyes rolling).0 -
Hey Marsha, sorry for you down period, but I swear my meltdowns are cleansing. Since I believe I am the oldest here and could be your Mom, I want to be your Fairy Godmother. As such, I am waving my magic wand and before you know it you will be rehearsing for your show in Key West. You will be riding your new horse to your 2 jobs...AND.....eating bagel and cream cheese. How's that?LOL Sammie Kay
0 -
Carynn, good to hear you are getting along well with #3.
I am feeling almost guilty because I don't seem to have many side effects. But I am only on Taxol and when I start A/C I will be needing everyone's support. I know it will be much tougher than Taxol. Have a good weekend, get lots of rest.
Tropicmom, Linnie, Jan,Catherine, hope you are all doing well.
Wow, Pat...so sorry you have had such a hard time. You are right to take the pain med before the pain gets too bad. It is very important to stay ahead of the pain. And remember the oxycodone will increase constipation, so adjust your medicine for that accordingly. I am a gardener, yard person too. In fact I was watering today and got into cutting back a bunch of shrubs. It just made me feel so good to be outdoors and to be doing something.
Hillary, I had to laugh about you eating Ben & Jerry's and trying to keep your weight up. I am jealous. On the Taxol I am gaining weight and it is all in my stomach. I hate it. But I guess when I get to the A/C maybe I will lose the 6 lbs. I have gained. I sure hope so.
Sybil, You are so fortunate to live in an area where there is access to such specific counseling. I am sure that is very helpful for you.
Everyone take care. You are all in my thoughts and prayers. {{{{{{{{hugs to all}}}}}}}}
Sammie Kay0 -
Marsha -
I think my "camera crew" would LOVE to come and film you instead for sure! "How do you cope thru chemo"? You'll SHOW 'EM!! LOL LOL
Jen0 -
Whew what an evening this was. After my last post around 4pm the hip/back pains started up again so I took another percocet and laid down on the sofa. Around 6pm I awoke from a nap and was burning up with fever--101.4 to be exact! I took my first dose of the antibiotic they had given me in case I got to 101. I drank alot of ice water and ate a light meal for supper and by 9pm all the bone pain is gone and temp down to 99.2 and feeling SO MUCH better.
Thanks for listening
Pat0 -
Oh, SammieKay, what a lovely (and funny) note you wrote to Marsha... Everybody needs a Fairy Godmother... you are off to a great start...
Hugs to you for the smile you brought...
CatherineH0 -
Pat, hoping this is the last bad bout of pain for you... Wishing you some good sleep...
CatherineH0 -
The tin can/licking a lampost issue seemed to resolve on Day 13 after #3,and it is NOT back! I am wondering if it had to do with the nasty antibiotic I was on for the staph infection???
#4 went ok, i have to admit i had an extra down day, in the sense that I went home early on Monday from work, which I had never done before. I was exhausted by 2 p.m. But then I have been fine ever since.
Saw my surgeon on Tuesday, and she was elated (this was Dr. Doom and gloom, remember?) that she could no longer palpate anything that she could feel 8 weeks ago. She was actually happy and said I had a "fantastic result" from the chemo. I am delighted, even though she still proceeded to say she wants to do a lumpectomy, even if the 1 cm tumor is "gone". I am going to get a second opinion, because a lot of my research on the Web says that surgery is contraindicted when you are stage 4. especially with very small tumors. I am very confused, to say the least! And she said she was ambivalent about taking out the nodes- which she claims have shrunk over 75%. Why wouldn't she want to take those?
Since I have a month off, I was toying with the idea of seeing a counselor. Sybil, thanks for the encouragement. The 11 weeks since my biopsy have been whirlwind, and I am not sure I have dealt with any of the aspects of my diagnosis- things just happened too quickly.
Marsha, you are allowed to feel the way you were feeling. Mourning where you are instead of where you thought you would be (your old life essentially) feels like a normal reaction...let me know if you have any insights into this.
So, in summary, #4 was way better than #3 for all you hanging on to hope!
Love to ALL.0 -
Good Morning Ladies.
Had Round 3 Yesterday and It went great. Han a nurce try and move the chair I was sitting in and she feel right next to me We laughed and I said I did'nt know you liked me that much to fall for me and I stood up and we gave each other a hug and laughed. She said you are so funny I love you and erevyone was laughing in the place at us once they new she was ok. My surgery went good on Tuesday but Wednesday was a bad headache. it was a bed day with not much food or water, nothing stayed down. I slept all day and finally about 6 I had a boul of rice and was able to take my med. and then layed back down. I got woke up by the dogs at 3 in the morning to let them out and so I decided to get the dishes done and cleaned the house and do laundry. I was feeling alot better went back to bed at 4 and got up a 6 and finished my house work. I doing good today so I might clean the bathrooms and mop floors and do some other cleaning. Then I will be ready for my down days. You ladies have a good week end and enjoy the spring weather. We are suppose to get up in the 50s and that is nice for the U.P.of Michigan by lake Superior.
Theresa And Scott0 -
Good morning all ...
Anyone else notice that the bc.org clock is off by two hours. Check out the time of your postings ...
Leah -- I want to second something that Sybil mentioned. It's important to find a counseler/therapist/pyschologist/pyschiatrist who specializes in cancer patients. If you're at a comprehensive cancer center, they might have folks on staff. If not, get specific recommendations from your oncologist. My cancer center has one psychiatrist who only sees cancer patients and several therapists who see cancer patients as well as their families. I've really benefited from the pyschiatrist, who I see once every two weeks. She is very knowledgeable about what meds work best with cancer treatments and my oncologist feels that it is important to my overall treatment.
Marsha -- I realize why you didn't get my joke about "letting your hair down", In my chemo-cold confused haze, I had misaddressed it to Karen. I've edited it now. You can chuckle.
Sybil, Pat, and Marsha -- I'm totally in agreement about scheduling for the good days. For me, it's being able to spend more time with my six year old and give my husband a break. I look forward to taking my son to his swim lessons and basketball game!
Twink -- I've got the same problem with my wig. I have two different skull coverings to wear under the wig. One is slightly better -- it takes longer to get a headache. I'm thinking of trying the wig directly on my poor bare bald head. Also, I have a terrible time getting my classes correct. I wear "transition lenses" and I've got mild astigamitism. With the wig, it's hard to get the classes to sit in the exact right position on my nose for me to see straight.
Between SammieKay as the fairy godmother and Melanie as Samantha the witch, we've got quite a crew here!
-- Hillary0 -
Hillary...I am chucklling right now. Yes if I had any hair I would let it down in front of all of you. LOL
Sammie Kay, you may be the oldest in age here but I'm thinking you might be the youngest soul. Thank you sweetie.
Leah, I wish I had an insight to share, but I just don't. I guess I'll just cry when I damn well feel like it and laugh all the other times. Glad you stopped licking that lamppost!
Theresa, you get out of that germy bathroom right this minute and send Scott in to clean! Didn't your doc tell you to avoid germs and bacteria. Well mine did and I use that excuse all the time LOL Glad your surgery went well and your txs are on time.
Talk to all soon....I have got to get my day started....Marsha0 -
I was able to have my 3rd tx yesterday. My wbc were not down any lower. They changed the antimedicine they gave me before chemo and it seems to have helped with the headaches some. still have a little one but nothing compared to what I had before. Will delay number 4 one week so we can go and spend Easter with my son. He is in the Air Force and is stationed in Nebraska.
Hopefully since number 2 was so hard for me number 3 won't be. So far so good. We are going to see my daughter and son in law this weekend in Hattisburg, MS and take in some USM baseball games. If I get tired I will go to her house. Dr. said it was ok. We need to get away.0 -
Hi everyone from the February group - I am checking in from the March group to see how you all are making out. I like reading your posts because they have so much humor and commaradarie.
Hillary - I responded to your PM several days ago about kids - did you get it yet?
Sybil - I am thinking that counseling may be good for me, as I really have not been able to show any real emotion about this whole process. I just feel like I have to be strong for everyone else, so maybe talking with a counselor would be helpful in allowing me to process my feelings regarding this journey.
Melanie - thanks for the idea of bringing a treat for the nurses in the infusion room. I will try to remember to bring them something special next week, as they really make the whole process bearable.
Regarding wigs, I have been having the same issue that Hillary and Twink described. I had my hair buzzed on Tuesday and have been wearing my wig at work since, and it is also giving me headaches and itching my head. Yesterday at work I closed my office door and I was tempted to take off my wig, but I was afraid I would forget and walk out and scare everyone with my semi-bald, patchy head! I have seen some of your photos and I assure you I am not nearly as attractive without hair as all of you! Today I had a consultation with my radiation onc. and she gave me a sample of a cotton skull cap that at least keeps the wig from itching my scalp. I am actually considering getting a full lace wig as they are much softer on the scalp, although they are quite pricey.
AC#2 has been so much more tiring for me than AC#1, that I am actually dreading #3 next week. It took longer to feel better and regain my appetite, which sounds pretty normal. My onc. said that with each AC treatment I can expect to be more tired, and he recommended that I take a couple of days off after next week's treatment. Regarding Neulasta, I have been lucky so far and haven't had any bone pain. I have also been getting Aranesp for red blood cell counts, and I seem to fairing okay.
As I think I am only a few days behind some of you (began 3/1), the advice and updates from all of you is very helpful. Good luck to everyone over the weekend!
Steph0 -
Hi ladies,
Enjoyed all of your stories.
Marsha, a good cry is good for you every now and then. By the way the roller coaster meds could be adding to the problems. Low red/WBC blood cells,no energy etc etc.... It all adds up:) You are a trooper..... This is just a storm, that will pass.
Pat, Well you are not alone. I had severe hip and upper leg pain 5 to 6 days after neulasta shot. So bad it felt like my hips were broken. They decided to give me a lower dose of Neulasta after the second treatment (which I never got due to my reaction to the Chemo). So can't tell if that would have helped.
Keep on sailing ladies..... You are all doing great. Time is passing.... I know what you all mean about the good weeks and bad weeks. I felt so jealous of everyone elses lifes going on while I was taking tx. But guess what this will be over soon and everyone can get back to taking those trips, being in shows or TV or whatever else you are missing.
Jel.0 -
Hi all! Hope you are having a great day.
Twink - You dont mention in your post, but are you wearing one
of those nylon wig caps, or going au natural? I bought 2 of the nylon caps thinking they would give me extra protection on windy days, they are terrible! Way too tight an uncomfortable. Now I just wear the wig gripper over my bald head and the wig on that. Much more comfortable, and no more wig headaches.
Speaking of wigs, took the red one back today and picked out two darling blond ones simiar to previous short hair cuts I had years ago. Couldnt decide which one to take so the ACS lady made me take 'em both. I'll try to get some pix up. I'm so, so impressed escpecially with them being free. Hey Twink, eat your heart out, they gave me 3 ford racing scarves too! They'll go great with my ball caps.
SammieKay, I'm with you. I actually feel guilty trying to describe the fatigue, cuz it's my only complaint!I've had moments of feeling nausea coming on and the compazine completely kicks it. And knock wood, not one issue with Nuelasta. Days 2-4 are my worst cuz with no energy, I long for a nap. But then the decadron kicks in and while
I still dont have much energy, sleep is a no go. But other than that I really cant complain:)
Pat, is there anything they can give you for the pain? When I had my first shot, they had me take vicadin (I was having the headache then), to try to kill two birds with one stone. Turns out I didnt have any problems with the shots tho...
Leah and all who mention licking lamp posts, please make sure it's not turning into thrush. When I got it my taste was waaay off, and food felt like it was backed up to my chest/throat. Just a couple swishes of miracle mouth wash, and I'm tellin' ya, all was right with the world. I understand if you kick it while its just on the tounge and before it spreads to the throat, its totally no biggie. So
take a look and make sure your tounge litterally isnt coated. Ok?
Scott and Theresa - I didnt realize you were in the UP, I have family in Ishpeming (eh). Stay warm now!
Hillary, did you reset your server time on your b/c homepage? Since we dont play with our clocks here, mine was ok, but I did check on the "MY Home" page to be sure:)
Piper - hope you have fun getting away. Every week we talk about it, (We have relatives in Pine, AZ, up in the mountains in Central AZ), and I keep woosing out. But I think this weekend or next is absolutely the time. Even if I just lay around, it will be a nice change of scenerary.
Stephf J - Nice to hear from you. Pop in and ask away!
Hi Jel! Glad you checked in too:)
Well, DH and I are having dinner with friends tonite. Will likely be an early evening, but I am having wine! Whoo Hoo...like I always say, it's the little things:)
Take care all. Later
Carynn0 -
Hi Everyone,
Had #3 yesterday, This cocktail didn't want to go down with out a fight. Half way during the treatment - I was tossing my guts out. My Face became so flushed. Within 15 minutes - I had The Bathroom "out of order" sign up. I cleaned up most of what I could while an IV machine tangled all around me. My lovely nurse kept checking on me. My oncologist and nurse came downstairs
to the infusion center to check and decided after treatment
to give me something that had benedryl, pepsid, atavin. I had to wait an extra 30 minutes before I could leave...Needless to say that I still can't keep anything down. This one is much harder then #2. And I don't know why. I barely got out of bed today.
Carynn, Twink, Hillary I also have two adorable wigs. I've only been able to wear them twice. After taking them off- my scalp was very tender. I have resorted to wearing scarfs and hats. My DH brought home a few sparkly Harley Scarves.I love these the best. Living in Texas, Scarves are a way to go for me. Besides working from home, noone sees me anyway
Leah - I'm with you on everything tasting like metal. I found one thing that help is using Plastic utencils. I carry them in my purse or ask for them when at a restaurant.
I hope the rest of you, begin to feel better soon.
You are all in my thoughts and prayers.
Talk to you later
Gotta see the rest the Butler/Florida game.
I'm not sure Florida is going to pull this off.
Melody0 -
Melody, I sure hope you'll feel better soon... Wishing the nicest week-end possible to those who went to the bar this week.
We are lucky that we started this process not going into winter, we'll be mostly done to enjoy recovery during those longer sunny days... big boost for the moral, as far as I am concerned.
Today was my first serious gardening day, cleaning carefully flower beds to discover what made it through the deep freezes we've had and 63 days under snow... everything is coming back and growing vigorously: columbines, lupins I started from seeds last year, delphiniums, blue geraniums, lilac, mock-orange, clematis, roses... you name it... vegetal life and resilience amazes me as much as animal and human organisms... so complex and sturdy and yet so vulnerable. Walking through the neighborhood is a delight, carpets of wild violets the fragrance of which stops you in your tracks, so sweet in the air (I did not notice it last year, maybe be the cold was a good thing)... I love this time of the year, full of hopes and expectations! I can't wait to start planting things again.
I must say I have been blessed with a lot of energy this week and hope #4 next Tuesday won't send me too far back to square 1...
I had this metallic taste most of the time, like many here, still do, but does not prevent me from cooking and went as far as fixing a salmon soufflé for diner tonight, realizing how protein rich this would be... the cooking time was a bit more than expected (altitude...), but I'll do it again: it's fluffy and goes down easy... and it is so pretty before it goes pooff...
I went back to the first pages of this thread to "replace" evrybody in their context, and, boy, did we come a long way... I love this group!
Big hugs and sweet dreams
CatherineH0
Categories
Join Us on Zoom: Upcoming virtual meetups. Read more...
Give your account some personality! Add a profile photo.