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Anyone starting Chemo in Feb?

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Comments

  • talbrig13
    talbrig13 Member Posts: 358
    edited June 2007
    Have been thinking about you Twink...glad to hear you are resting and relaxing!

    Marsha...it must really have been a shock for you, but try to think about the good the rads could do for you.

    I saw my Breast Surgeon for check up on Friday. She commented on how "uneven" she made me. She also did a chest xray to see why my port won't work well for blood draws. She called me herself Monday and said it is at a very sharp angle going between my collar bone and top rib and the end of the catheter is right at a junction of 2 veins. My choices are: live with it, have it replaced or have an "interventional radiologist" adjust it. I need to talk to my onc tomorrow about it...if I won't have too many more regular labs and just the Herceptin infusions, I can live with it, but if I will be having labs with the Herceptin, I might want to do something. I was not thrilled with the local surgeon who put it in, so I might go to Pittsburgh for my BS's radiologist to take care of it...will keep you posted. She did refer me to a plastic surgeon for the breast reduction too. Need to wait until after rads for that.

    Catherine...my garden is growing beautifully...and I have a sparrow nest with 3 little babies in it in my rose bush.

    Leah...hope your birthday was wonderful.

    My rads doc rescheduled my appt from today to June 26...by then my chemo will be DONE! I will be ready to move on to the next phase...planning rads, etc.

    Took my decadron to prepare for tomorrow....need to watch TV to get sleepy...hope all of you sleep well...

    Will check in after chemo tomorrow. Love to all,
  • Alyson
    Alyson Member Posts: 3,737
    edited June 2007
    Hi everyone,

    Pleased to hear that Twink is doing fine. Thinking of you.

    Marsha, hang in there we will all be interested to hear what happens. Keep us posted.

    Terry, my port is only used for blood if I am at the hospital as the girls (and guys) at the lab are not trained to access it. This is a real pain as yesterday it took them sveral goes to get blood, so I know how you feel.

    To those who are at the bar hope all goes well.

    Not sure why but lots of aches again today, maybe its the weather.
    It is a wet cold beginning of winter here today. Had to go out for a few minutes and it was cold. The south of the country has had its first snow- something we don't get here in Auckland.

    It is DH's birthday today so had better start thinking about dinner - nothing really special tonight as the family are coming over on Sunday.

    Hugs to all

    Alyson
  • Primel
    Primel Member Posts: 652
    edited June 2007
    Terry, will be thinking of you tomorrow... sleep well, and dream of these little birdies in the roses...
    It's been so windy today (and will drop to the mid sixties tomorrow), I've been fearing for all the blooms out there in the yard... Will check the casualties tomorrow morning...

    You all take care,
    Catherine
  • ErinsGram
    ErinsGram Member Posts: 150
    edited June 2007
    Thank you Hillary - all I could think of was ncco.org and that was some type of orchestra.

    Marsha - My diagnosis was pretty much the same as yours - 5 cm with 1 node but left side. It's the combination of the tumor size and the node that make RT a recommendation - he told me that's a fairly recent change - previously no RT for 1-3 nodes with a 5cm tumor. I'd love to blow it off and get on with reconstruction but I'm so afraid maybe I have some 'bad boyz' hanging around in there and I'd kick (or kill) myself if I had a recurrence when I could have taken an extra precaution with RT.

    Hugs to you today and I sure hope you're feeling better!

    Phyl
  • ErinsGram
    ErinsGram Member Posts: 150
    edited June 2007
    Twink or Twink's daughter - Thanks for the update. We'll be waiting for the details. Hope all is well this morning.

    Terry, Piper and Steph - belly up - Piper and Steph, take your Victory Lap!

    Alyson - your weather description makes me shudder (or shiver). Hope your DH enjoyed his BD dinner.
  • wildabouthorses
    wildabouthorses Member Posts: 458
    edited June 2007
    Catherine what a good idea with the asprin! I knew how it helped but never thought of using it during tamoxifin. I took the Amitriptylin for the first time with the Tamoxifin last night as its for chronic pain and its also used as an antidepressant. I may try not taking it tonight as it seemed to actually make me a bit hyper, had a hard time falling back to sleep after pee trips. This morning I'm so tired I'm not sure if its from the Ami pills or from being so hyper. I did have to take a nap yesterday so think the fatigue is from the Tamoxifin. I haven't feel that tired for a couple of weeks.

    ErinsGram, I stopped in to the dealership two days ago and they were getting ready to put on the trike axle and had sent the body parts to be painted to match the bike to the painter, they expect those parts back today. They really tear into the bike to add the trike kit. Here's a pic I took of the tear down...hard to see the bike with all the stuff in the background. image
    They are supposed to be taking progressive pics so we can see how its done.
    I bought a Pink Panther off the internet to put on the luggage rack as most goldwingers put a stuffed toy on the back for laughs and smiles. He is poseable so I have him laying on his side with a hand to his head and legs crossed. Pink will go nicely with the bike color and pink reminds us of BC. Hubby said he is going to try and find the "Pink Panther" song to put on the bike's mp3 player!
  • marshakb
    marshakb Member Posts: 796
    edited June 2007
    Thanks everyone. I called my BS that afternoon who called the onc then called me back. The onc told Dr Dreamy that without rads my recurrance rate in the mast would be 20% in 10 years. If I do rads that goes to 15%. Dr. Dreamy said he still felt it was a very slim gray zone as he did get great margins and it was no where near the chest wall. He also said recur in a mast would usually occur within a year since there is just not that much tissue there it tends to show up early. I am already 6 months out and so far it looks great. Why wasn't my onc concerned about that 5% back in January?? Geez

    So..... I am seeing the rad onc as a "second opinion". Let him go over my records, talk to my surgeon, and then I will take HIS recommendation. I have no choice in the matter at this point really. I have a friend who works there for 25 years and she is making sure my doc will be the head honcho, Dr. A. (who is HUGE supporter of our theatre so I know I will like him)

    Went to BNO last night and managed to shake myself out of my funk. Sorry this post is all about me. Twink please let us hear from you soon. Love to all and hugs all around to my dear sweet sisters! Marsha
  • Primel
    Primel Member Posts: 652
    edited June 2007
    Hi, Marsha, you sound a bit more zen this morning, good... what's wrong about writing about yourself? If you were not doing that now, when would you? These decisions are not easy ones... sounds like you'll have the right people around you, so reassuring. What do you do during the day, these days... reading plays you might be interesting in, working on real-estate with your DH? Are you far from the beach? What is your routine with your doggies (they must need quite a bit of exercise...).
    I am enjoying my break... the great thing about being free-lance, you take all the breaks you want (even if it is not great for the budget... I compute my income in "I made the deductible for next year", "I got a 6-month supply of Tamoxifen", "this will be a few physical therapy sessions"... no caribean cruises in sight... which I do not need, I must say... still, a funny way to view the future...).
    I do not feel affected by Tamoxifen (took only 2 for now...) and am in great spirits, I must say (my nature to start with)... I do a lot of reading of all kinds (including for my work... lot's of medical imaging and radiotherapy techniques, as I mentioned before). Tonight is concert night (I hope I won't fall asleep... 2 hours is long... especially this Beethoven's Missa Solemnis which is not easy to take as I read on various sites about it). It's going to be cool (high 50's-low 60's in the evening), so I can wear something nicer than the bandanas... It will be a cheerful Russian silk scarf, black with lots of red/pink/green roses (gypsy type).

    I go check the watering outside (it is still very windy but no rain at all... we need it)...
    Looking forward to hearing from Twink (who will have been asleep during the "breastless" hours, as she put it, going in with hers, waking up with new ones...).
    Thinking of you all in treatment today...
    Take care,
    CatherineH
  • wayover20
    wayover20 Member Posts: 191
    edited June 2007
    Hello everyone, I've been keeping up with you just not posting. I'm doing well and yesterday was #8 taxol and 4 more to go. Pins and needles to feet and fingers comes and goes and starting with yesterdays dose it was decreased from 80 to 75mg/m2 since my dr. wanted to lessen the chance of any permanent damage since taxol is cumulative.

    Marsha, about your rads...my tumor was 4.3cm and on one side of the resected tumor the margins were "close", the others clear. Also nodes neg. After the mastectomy, my surgeon said I needed chemo for sure and "maybe a little radiation" so I was mentally prepared. But then my oncologist told me and the surgeon rads was not indicated. Now at this point I'm going to again ask my onc. to be sure rads not needed since that one close margin is bugging me. Before I started chemo my PET scan showed no cancer remaining and tumor markers were neg. too, so that helps if she still tells me no rads.

    I read posts on the Johns Hopkins site similar to mine and in cases that are in this "grey area", not falling directly in line with standard treatment criteria, they said you have to have faith in your treatment team to make the best decisions for you. So that's where I stand...my doctor is one of the top breast specialist in my city and I have put all my faith in whatever she says I need or don't need.
    Sorry you were so looking forward to being done but on the other had happy your doctors are looking out for you. Take care

    Pat
  • NarberthMom
    NarberthMom Member Posts: 382
    edited June 2007
    Good afternoon!

    Pat -- Glad to hear the taxol#8 went well. Hang in there -- it will be over before you realize it!

    Catherine -- You sound in great spirits! I'm so jealous of you being able to tailor scarfs to your mood. I have a whole drawful of silk scarves. In the winter, I love to wear them with sweaters or turtlenecks. Around my neck - LOL! I figured I had the whole head cover thing figured out until my son refused to allow me "out" without my wig.

    Marsha -- Sounds like a good idea to have a consulation with the rads onc. You'll feel better knowing that you have done everything possible to find out how you should fight this beast! Also, it's perfectly OK to post just about yourself -- no need to apologize to us! As I always say, if we can't vent to each other, who can we vent to!

    Jan -- Wow, what a lot of parts! I can't wait to see the whole thing. A Pink Panther doll sounds like a great addition to the back!

    Alyson -- Happy birthday to your husband! My husband's birthday got lost in the shuffle this year!

    Terry -- Sounds like you will be a little behind us in rads. We'll be able to forge the way! Given that I'm doing 8 weeks, and most folks do 5 weeks, we'll overlap a lot!

    Twink's daughter -- Thanks for posting! Thank your mom for thinking of us worrying about her!

    StephJ and Piper -- Are you doing the happy dance for the last chemo?

    This morning, I chaperoned a field trip with my son's kindergarten class. He's been so upset that I haven't been able to do any field trips this year. I had a lot of work-related deadlines in the fall, and then I was diagnosed, and well, you get the picture. I'm always so self concious that one of the kids is going to ask why I have no eyebrows or something like that, but they are either not very observant or too polite!

    Hugs out to Belinda (sorry, I don't know what treatment number this is) and to Vegas (port removal - yay!).

    -- Hillary
  • swimmingmom
    swimmingmom Member Posts: 121
    edited June 2007
    Marsha, good to hear that you are getting this worked out. Also, good that you have the mental and physical strength to do all the researching and questioning of what is happening to you. Let us know what the decision is.

    Alyson, it is in the 90s hear so your weather sounds good. How are you doing with the time off? Do you feel more rested away from the classroom?

    Pat, good luck with the taxol. Although some of us are done we are still here for you. I have the nerve pain so keep up with letting your dr know about it so you don't have to deal with this.

    Catherine-I have this lovely picture of you in my head with your silk scarf off to the symphony- looking so beautiful. Enjoy your night out. My daughter and I are decided this afternoon that we are going to drive down to Kentucky tomorrow for an overnight to celebrate the end of chemo. Leaving my son at home-I hope he behaves!!

    So good to hear Twink is OK

    Terry sounds like you will be about the same time for rads. I have my next apt on june 22. I hope the end of your chemo goes well

    Jan, OK I have to be honest, motorcycles scare me. I know it is silly but it just seems so.... i don't know...unprotected and fast. Even looking at all those parts. I guess I am wierd.

    Hillary, how fun that you went out with your son's class. Children are brutally honest so I bet you looked great. I imagine he was thrilled to have his mom there.

    To those finishing-good luck. It does feel good to be done!
    Karen
  • talbrig13
    talbrig13 Member Posts: 358
    edited June 2007
    Good evening girls,
    Sounds like you are all having some fun...glad to hear and read about it...
    Marsha, please do talk about yourself...we are good listeners, if not good advisors. I talk about myself all the time to you guys and I surely hope you don't mind. Besides, you are not going thru anything any of us haven't or won't or aren't concerned about. We all love you and your wonderful spirit.

    Had next to last chemo today...pretty uneventful, except for usual port issues. But it did work with the help of Herperin and laying way back on my left side. I think I am just going to live with it. Can't see going thru yet another procedure just to "fix" it. My Benedryl has worn off, so the Decadron high is kicking in. Have my son's laundry to do so he can leave tomorrow for Myrtle Beach with my sister (he is afraid to fly). Then need to get DD#2 ready for her Florida Chorus trip...she leaves Saturday. Then DD#1 and I leave early Sunday morning for the airport to fly to Myrtle. Didn't think I could stomach the long drive the weekend after chemo.

    My mom is clueless that we are all going down for her birthday. All of her girls and most of the grandkids will be there. My brother and his wife both started new jobs recently and can't get off. So this is a girls trip.

    This will sound silly...I got a speedo swin cap to wear. Just don't think I can go bare on the beach. Not sure I even want to be bare around all the nephews - 7 of them. Only 2 nieces. Of course, taking some hats with brims and my scarves along with the wigs. And lots of sun lotion.

    The taxotere is already working on my tongue tonight and my throat. Tongue is both numb and sore, if that makes any sense. Throat feels sore. Nausea won't kick in until tomorrow afternoon. Hot flashes will start in the morning. My eyes are twitching and my legs feel like lead. The onc told me today that the tired legs are just from the chemo. I will have another Muga scan between last chemo and next Herceptin. Just to make sure the Herceptin is not affecting my heart. he thinks I am going well though.

    Well going to go pay some bills...never ending job!

    Good Night!
  • luckymel
    luckymel Member Posts: 21
    edited June 2007
    Twink, thanks to your daughter for posting the good news that you are stable and relaxing. Hope you will soon be home and posting an update yourself. I thought of you so often the past two days.

    I got home today myself, did well, had great care, and it was overall a relatively pleasant experience. I'm feeling fine, pretty much - very little pain except from the axillary dissection, because he removed all the breasts (plus my port) through my nipples, which are gone. It isn't going to be pretty for the next month, but should look great once the diep is done in July. The thing that bothers me the most is the little bit of bronchitis that I had going in, which is still with me. Reach to Recovery volunteer called within an hour of my return home and is coming tomorrow - those ladies don't waste any time!

    Marsha, hugs and sympathy to you for the possible change in plans regarding radiation. You have such a great attitude about things in general that I know you'll make whatever the right decision is, and be fine with it. Remember, those guys are on your side, though - their reason for being involved is to do what is necessary to save your life. Very cruel to bring it up just when you think you are done, though!

    Pat, I'm very glad you're 2/3 through the Taxol treatments, and hope you are still being kind to yourself. I've been watching your posts and keeping up even though you haven't heard from me. I'm still fighting Taxol side effects, although it's getting much better.

    Everybody else, I keep up with all you guys pretty much on a daily basis and still think you're all such a great bunch. Hugs to everyone.

    Twink, hope you're still doing well. Let us know when you can.
  • southtx
    southtx Member Posts: 17
    edited June 2007
    I, like a few of us, still keep up with the posts, just don't feel I have much to contribute lately, but feel close to you all.
    Marsha, I've enjoyed "knowing" you all these months. So sorry for this sudden possible change in plans. Granted, it's a dirty trick, but you'll come out on top no matter what you end up having to do. You have so many people praying for you that you're not even aware of. I think of you often and admire your upbeat attitude...but..even the cheerleaders need a shoulder to cry on, and then back to the fight.
    Catherine, I've read your posts with such admiration for you. You seem to be a person everyone would want to know.
    I started Tamoxifen 1 month ago and got terrible headaches by the 3rd dose. Checked my bloodpressure and in was elevated for me 150/92, talked to my onc. He had me stop it for a few days. I started back at 1/2 tab at bedtime for 5 days (my idea) then began again with 20mg at bedtime. Still have the headache on and off, but blood pressure is back to normal...no other side effects so far.
    Pat, hope you are doing well too, finishing up the taxol.
    I have about 1/4 inch of hair growing,(gray,gray,gray!!) and have decided to go "comando" with no wig or scarf at work. It's really very liberating and I get fewer looks. just takes a second to tell I'm bald headed without the headcover.
    Hugs to everyone, you are all my inspiration.
    Tracy
  • vegas
    vegas Member Posts: 151
    edited June 2007
    Did you guys see this? http://www.msnbc.msn.com/id/19048185/

    Latest study says the anthracyclines only help 8% of breast cancer patients! Many of us just went thru having that treatment for nothing!! Wish this research had come out even six months ago. I was so proactive about researching, and found that the taxanes did not help me either, but never saw anything before this on adriamycin!!
  • ErinsGram
    ErinsGram Member Posts: 150
    edited June 2007
    Mel - So good to hear you're doing well. I can imagine how much you must be looking forward to July. Where are you having your Diep?

    Tracy & Pat - thanks for checking in.

    Terry - hope you have a wonderful trip. Enjoy!

    Marsha - you OK? I've been thinking about you.

    Hope you all have a great weekend!

    Phyl
  • steph_j
    steph_j Member Posts: 35
    edited June 2007
    Vegas - thanks for the interesting link about anthracyclines; I want to do more research because it was supposed to be one of the most effective treatments in increased survival when used in combination with another drug (i.e, AC) which the article didn't specifically mention.

    BTW, from that webpage I also found another link about a study that indicates that shorter radiation coruses may be just as safe as the currently recommended treatment course of 5x per week for 5-7 weeks. http://www.msnbc.msn.com/id/19027116/
    I am definitely going to bring this up to my radiation-oncologist to get her take on it, as I would love to reduce the number of treatments, if possible.

    Steph
  • steph_j
    steph_j Member Posts: 35
    edited June 2007
    Hi All,

    Just checking in after my last chemo/taxol #4 yesterday. Everything pretty much went smoothly, except I have developed a small rash over my top port entry site. They were concerned because they don't want it to get infected (i.e cellulitis), so they prescribed some antibiotic cream that I am to put on it 3 times a day. To me that's just a sign that it's time to get this port taken out as soon as possible!

    Today, I feel typical - just a little queasy, more like acid reflux, but I know the aches should kick in by Sat/Sun, as well as the fatigue. I will go to work today, but anticipate taking off a couple of days next week. I also go in for my Neulasta shot today, as my WBCs were slighlty low and I don't want to risk getting an infection.

    So, I am happy that chemo is over - they even gave me a certificate signed by the nurses in the infusion room. I will be even happier when I get through all of the side effects and begin to feel better. It will really be great in 2 weeks when for the first time in 16 weeks I won't have get chemo!!!! If I remember right, it takes about 2 weeks for taxol to come out of the body - is that correct? BTW - how many of you that finished over the past 4 weeks are beginning to see signs of hair growth? Just curious as to how long it takes to start coming in.

    Piper - are you excited to have the last one done as well?

    Well, I have to get the kids ready for school and get ready for work, so I will check back in later to respond to posts.

    Have a great day all.

    Steph
  • NarberthMom
    NarberthMom Member Posts: 382
    edited June 2007

    Steph -- A little more than two weeks after my last taxol, and I'm feeling pretty good. However, absolutely no hair growth anywhere.

  • wildabouthorses
    wildabouthorses Member Posts: 458
    edited June 2007
    Vegas thanks for sharing that, now I feel better about quitting chemo after one dose, Admyacin and Cytoxyn were my doses and I'm early stage cancer!

    steph interesting statement from the rads page link...

    ...MRI or magnetic resonance imaging scans detect 10 percent to 20 percent more pre-invasive breast cancers than standard mammograms, especially the type most likely to spread...

    I'm doing better today now that I didn't take that other med with Tamoxifin last night! So I think the Amtriptylin caused the fatigue yesterday during the day as I napped and even went to bed early last night to combat it. I still feel like I have drank a glasss or two of alcohol though otherwise no other side effect yet from Tamoxifin.

    Karen, its so hard to describe how you feel so alive on the back of a motorcycle, there is so much stimulation you miss riding in a car. It actually makes driving trips pretty interesting, the scenery seems different from the back of a bike. You smell, hear and see things differently.
  • talbrig13
    talbrig13 Member Posts: 358
    edited June 2007

    Vegas...I hadn't read that report, but my onc gave me research done by this Dr.Slamon and this is the reason I am doing the Carboplatin, Taxotere, Herceptin...less heart risk. Because Hercepton too can cause heart toxicity. He did not want to give my AC with it. The research shows better survival results with the TCH. and less heart problems. Interesting how the treatments change based on the ongoing research.

  • talbrig13
    talbrig13 Member Posts: 358
    edited June 2007
    I am very queasy this morning. But don't want to be a baby. Taking son to dr. for his work permit exam. He is going to work with my hubby part time during the summer painting etc. Extra spending money for him. He is 15. Then want to finish up laundry so I can get the packing done.

    so take care all of you...will check in before I leave.
  • CommandoBarbie
    CommandoBarbie Member Posts: 474
    edited June 2007
    Good morning all!

    I took a vacation day today as my BS wanted me to have an MRI before surgery. I’m slightly claustrophobic, so I’m hoping it’s an open MRI. Anyway, surgery will be 6/21. I am curious, anyone who had both a SNB and a lumpectomy, is the wire placement anything like the shots before the SNB? I really don’t get too anxious anymore when it comes to procedures since I’m used to being stuck and poked and prodded for my RA, but I still say the shots before the SNB have been the absolute worst part of my tx!

    Alyson – I’m sure you hear this all the time, but it’s hard for me to fathom that it’s cold now where your are! This is the time of year that we get 110, 118 degrees. For DH and I tho April / May are our tough months. We start hitting 90 and 100 then. Every single time we go out of state to visit his relatives or something, we come back with new jackets as souvenirs! No matter how hard we try, we don’t seem to pack warm enough clothes. Hard to get your mind around 40 degree weather when you’re packing in 100 degree weather!

    Marsha – what’s wrong with “all about me?” hehe! A bad as I want to be done, I gotta tell ya, if a new study came out and said more chemo might keep it from coming back, I’d do it. 2007 is all about me. Me getting better and slaying this beast for good! Care to join me? I hear they serve beer.

    Catherine – your scarf sounds beautiful! You should post a pix of you in it. How was the concert? Did you stay awake?

    Hillary – How did the field trip go? I’m sure the kids didn’t notice anything different. A couple of weeks ago I was in Target. I always do the scarf and hat thing on weekends and this was no exception. For some reason, I got a lot of looks that day. (Ever notice that sometimes it seems no one looks and sometimes seems like everyone looks?) Anyway, I was trying to think of a smart ass remark to make to the next person who “looked” when a little girl about 3 passed me and just stopped and said HI! It was so cute and you could tell, she didn’t notice. I was just a nice lady with a hat on. Got a grin from Mom as well, and it just made my day!

    Jan – the bike looks to be coming along great! Have they said about how much longer it will be?

    Karen – Have you recouped from your party? I think the next big event is that we need to get you on a motorcycle! We don’t have one anymore, but trust me, there’s nothing scary about them. What is scary is the other guy! When you’re on a bike you need to “drive” everybody else’s car as well. But I’d betcha if you could take a short trip, not in city traffic, you’d be hooked!

    Terry – you sound busy! You’ll have to let us know how the trip goes. I know exactly what you mean about the sore and numb at the same time. I always described it as somewhat numb and “burnt.” I noticed that certain food textures would irritate it as well. I was lucky tho, any taste issues and that sensation drug only lasted the first week. The second week wasn’t normal, but so close that I could pretty much eat whatever I wanted.

    Mel – hello our January sister! Welcome home! Wishing you a speedy recovery!

    Hi Tracy! Nice to hear from you! Please don’t feel like you need to “contribute!” Just post when ya wanna! That’s really awesome about going topless! Good for you!

    Vegas – I read your post and the article a couple of times trying to digest it all. I’ve decided that I just don’t know. One of the advantages of doing chemo first, is to actually see it work. I did AC+T, and could see the changes in the size of the tumor very quickly. I’ll never know if one of the drugs was completely useless or not. We can almost look at it like we were all part of a “clinical trial” and they’ve discovered that there’s something better for those who come after us. We should start a pool tho on how long it takes for one of those lawyer commercials to come out shouting at us to call an 800 number “if you were given Adriamycin!!” Seriously tho, it will be interesting to see what additional info comes next. Anyway, good info, thanks for posting it!

    CONGRATULATIONS STEPH! I have to continue to see my Onc this month until my red cell count hits 36. So I have to stop in every other Thursday and get the shot, but as Marsha says NoMocheMo! As for the hair re-growth, mine started coming back during Taxol. Anyone but someone going thru chemo would still call me bald! But, you can definitely see a hairline now. Very soft, very white! I thought maybe I’d post a pix in a few weeks if it continues to come in this fast.

    Sending a big hug to Twink!

    Well off to the MRI. Will check in later.

    Hugs!
  • Primel
    Primel Member Posts: 652
    edited June 2007
    Vegas, not what we want to read... definitely to discuss with the onc...!!! You really wonder WTF is going on in the medical world...
    Boy, you are on the look out...

    Thanks for your vigilance,
    Catherine
  • twink
    twink Member Posts: 550
    edited June 2007

    I'm so glad you're doing well Mel. I guess I am too, all things considered. Can't type very well though, so this will be short. Breasts gone. Implants in. SNB CLEAR!!!!! Thanks for all the warm wishes...I could feel them. Now back to bed...I'll post more later.

  • NarberthMom
    NarberthMom Member Posts: 382
    edited June 2007

    Twink -- Wonderful news!

  • NANA45
    NANA45 Member Posts: 8
    edited June 2007
    So glad to hear all is OK have been thinking of you. Take care.
    Sandy
  • ErinsGram
    ErinsGram Member Posts: 150
    edited June 2007

    Great news Twink! Wishing you a very speedy recovery!

  • vegas
    vegas Member Posts: 151
    edited June 2007
    Twink, so happy you are doing well! And able to post so quickly. Rest, rest, rest and put the princess crown tightly on your head. No lifting more than a cup of soup for the next few weeks at least, even if you feel good. The more you rest, the faster the recovery, for sure!

    Carynn, I know you did see your tumor shrink substantially and that is so encouraging. Though your hormone receptors are different than mine. Perhaps the cytoxin is responsible? I am hoping it was effective, otherwise I will feel I have "wasted" time when I could have gone straight to the hormone therapies.

    Had I read this article based on other stuff I had found out before I was persuaded to go with the current "standard of care" I know I would not have taken chemo. I was on the bubble about whether to do it anyway. Eric Weiner from Dana Farber and another doc from MD Anderson (whose name this poor little chemo brain can't dredge up at the moment) have already claimed that many hormone positive women receiving chemo should not be!

    As Catherine said so succinctly - WTF?!!!

    Carynn, you are right, shots before SNB could easily have been the worst part of the treatment!

    Wildabouthorses, you may have been the lucky one of the bunch of us!

    Terry, sounds like TC is the next generation for standard of care from what I have been reading. And for really estrogen positive women it may end up just being C!

    Steph, I really hope that article led you to something you can use with the radiation!! Keep us posted! Congrats on being done with chemo too!

    Okay, I am off right now to get my port out! Wish me luck, and I am so excited this part of the saga is going to be over soon. Will let you know how it goes and what they do so the rest of you that still have ports know what to expect!!
  • luckymel
    luckymel Member Posts: 21
    edited June 2007
    Oh, Twink, I'm so glad you're home and doing ok! I imagine you may have more discomfort that I do at this point - though I hope not - and maybe some adjusting to do to get used to your new pair, but glad things went well, anyway. I look forward to hearing more from you later.

    Phyl, in answer to your question, I am one of the lucky ones who gets to stay home for her diep. I live in Houston, and we happen to have a very excellent surgeon here, Dr. Aldona Spiegel, who does only breast reconstruction. She trained under Dr. Levine or Allen I believe, and often goes to S.C. to work with them. I've seen her results, several different people, and she does very nice work. So at least I don't have to add traveling to the stress of the whole thing.