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Anyone starting Chemo in Feb?

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Comments

  • Alyson
    Alyson Member Posts: 3,737
    edited June 2007
    Hi all
    Haven't been on for a few days as this computer is playing up a bit as it is old and must be replaced very soon.
    Hang in there girls we might not be online as much but I certainly think about you all every day and hope and pray that all results are fine, and all surgery goes well.
    Pat, my last taoxl gave me much more severe SEs. The onc said it builds up in your system. I am still very tired. Went out with my sister today for a couple of hours and now feel absolutely shattered. Haven't had the swelling but the numbness in my feet and hands is a real concern. It is hard to grip things and my feet are so sore. The onc said it could take as long as 6 months for them to come right.
    It is a cold day here today about 7c degrees which for Auckland is cold in the middle of the afternoon. Yesterday we had a frost, DH had to scrape ice off the car.
    Must go back into the livingroom where it is warm.
    Hope those who are still having to go up to the bar are doing OK. For the rest, hope every day sees an improvement.
    Alyson
  • wayover20
    wayover20 Member Posts: 191
    edited June 2007
    Hi Alyson and thanks for the insight. Mel also said the same thing and even worse side effects way after the taxol! I hope she's doing better now. I have decided to retun to work on 7/16/07,I need to, I've been off all this time and I'm so ready to join the living. My last taxol is on 7/3/07. My oncol. did mention she had a patient who did beautifully all thru AC and taxol, then returned 2 weeks post taxol with total body swelling and needed agressive treatment. But she also told me in the 26 yrs she's been doing this, that was her most dramatic case.

    In addition to giving me the lasix, she again lowered my taxol dose to 70 from 75. She also said that when I see her before my last treatment next Wed, we will again review my symtpoms/se's and if nothing has improved then she will recommend to FOREGO the last taxol. I really don't want to do that....I've come so far not to get it all. The neuropathy isn't any worse than is has been, it's just the swelling to hands/fingers and feet that's new.

    Anyway, we'll see the if it improves and I'll let you know. Thanks, Pat
  • leahrc
    leahrc Member Posts: 384
    edited June 2007
    All,
    Liver guy called late last night. NO EVIDENCE OF CANCER anywhere on PET/CT scan.No nodes, no nothing! He is puzzled that it didn't show the liver lesion, which he sees on the liver MRI, so that needs more investigation. BUT NO NEW progression is fabulous news for me based on the aggressiveness of the original tumor grade, etc.
    Liver guy and I discussed liver surgery vs. the RFA, but I think it is premature until he studies the scans himself and talks to his colleagues. He will present me to the tumor board at MGH to see what others think. I love that idea. Funny, he refuses to believe the liver tumor may have acted just like the breast and resolved itself with chemo. But I kind of think that is why he can't see it on the PET/CT- no longer malignant. Can I dare hope? But then he better not operate on "scar tissue". We'll see. Not caring so much about the lone lesion right this second-no reoccurrence and no new metastasis has me flying!

    Thanks to all of you for thinking/hoping/being with me. It means everything.
  • ErinsGram
    ErinsGram Member Posts: 150
    edited June 2007
    Leah - wonderful news for you! I'll be hoping with you that you're no longer malignant.

    Phyl
  • talbrig13
    talbrig13 Member Posts: 358
    edited June 2007
    Good Morning.

    Carynn & Leah....I am so happy for both of you...I too am dancing with Catherine...but I don't look nearly as good as Marsha's bear!

    Maisy/Patti - Congrats on last chemo...I am going today for my last one...hopefully my counts are up from last week when it was postponed. It will be a huge relief.

    Alyson & Wayover20 - I am not on Taxol, but Taxotere. And I am having the same fluid retention. My fingers and ankles get very swollen and I take lasix for it...it does not work as well as I hoped. When my 2 week chemo was postponed last week, I was getting short of breath and was extremely tired. This extra week between (a breather) has helped me alot...I am not as tired, although I am still swollen but not as much. I was up about 10 lbs...and was down about 3 lbs this morning.

    Went to the rad onc and they scheduled me to be "marked" on August 12...so I guess I will start around July 15.

    I am supposed to have another muga scan early July to check how the Herceptin is affecting my heart.

    Soo...next is muga, rads and every 3 weeks a Herceptin infusion until February....but I don't think any of you are joining me for that cocktail.

    I don't leave for my chemo till around 11:30 today, so will spend the afternoon hanging at the bar.

    So glad we are getting some good, no GREAT, news this week!

    Love to all of you,
  • marshakb
    marshakb Member Posts: 796
    edited June 2007
    A Little happy dance for Leah!!

    image
  • NarberthMom
    NarberthMom Member Posts: 382
    edited June 2007
    Yay Leah! Wow, good news from both Carynn and Leah this week. Does good for our collective souls!

    Hugs,
    Hillary
  • Primel
    Primel Member Posts: 652
    edited June 2007
    Joining the gang here to shout HURRAH!!! GREAT!! So glad for you Leah...

    Hugs to all,
    Catherine
  • lightphoto
    lightphoto Member Posts: 60
    edited June 2007
    3 cheers for Leah and Carynn. The picture Marsha sent is me doing a VICTORY dance for you both. I am happy for you both.
    Theresa
  • marshakb
    marshakb Member Posts: 796
    edited June 2007
    Hee Hee Catherine, they are so much fun, yes? Go to photobucket.com, it's so easy!!!! Marsha

    image
  • Primel
    Primel Member Posts: 652
    edited June 2007
    Marsha, don't get me started on this... I already spend way too much time on my puter doing things other than my work... so behind... I could scream...
    Hugs, girlfriend...
    Catherine
  • SammieKB
    SammieKB Member Posts: 164
    edited June 2007
    Hey,
    A big wahoo dance from sunny Las Vegas for Carynn and Leah.
    What awesome news. Yes it does give a boost of confidence for all of us.
    I just lost my day's allotment to the slots, so am in the room to rest and read.
    About the feet and hands. I am having a horrible time since I got here. I wore some new high heels(always wear Reefs flip-flops) and by the end of the everning I had blisters forming on the pads below my toes. I don't know what to wear tonight as I only brought my Chico's travelwear pants and they are too long to wear with flip-flops.LOL. I know it is my feet and not the shoes. I guess until all this subsides I am stuck in casual clothes with f/f's,
    My fingernails are sore, like bruised. Same with toenails.
    I am 10 weeks out from last Taxol. Could the FAC be contributing to this soreness in feet?
    Take care all. I will check in later. Love, Sammie Kay.
  • Primel
    Primel Member Posts: 652
    edited June 2007
    Hi, SammieKay... be reasonable with the slot machines...
    Hope your feet will give you a break. Mine have been peeling for weeks (big 30 year-old calluses (sp?) completely gone like huge blisters... I have to nurse my feet with good emollient and moisturizing creams, to not hurt them on those tender spots... At the next opportunity, I will prepare a bucket of luke-warm water with colloidal oatmeal bath powder (Toby tried to eat one packet a while ago...) in it, and will let my feet soak in there while reading a book... that should help this dryness and tenderness...

    We took home the dog of neighboors gone until the 6th. We know this dog and love him (so sweet and cute): he has the same exact coat and colors as our deceased Pippin, and Zoe's body, although very emaciated... We think we know why he does not eat: bad teeth (still young, though). So between sardines, hamburger, gruyere, peanut butter and porridge (to help him eat his softened kebbles) I hope to put a few pounds on this coming week... He is happy as can be (he is home alone all day when they are at work, not much exercise) with Toby and Zoe: a lovely trio... I would not mind keeping him (it's like having Pippin back with a nice temper..).

    Well, got to go...
    Catherine
  • leahrc
    leahrc Member Posts: 384
    edited June 2007
    want some even better news? Based on the reports, no return to chemo for 90 days!!!! That is excellent news for me. I really wanted to go to Italy (my life dream) non-immunosuppressed! So the tix for Oct. 9 are good to go!

    In the good news/bad news department, the port has a clot in it that shows on the Pet/Ct. Good news is that the port is coming out! if i need one later, I will get another. Yeah! I hate it- it pinches all the time.

    Haven't got my CA27.29 marker back yet- tomorrow. I hope it is normal now!

    Hope you guys are doing ok. #13 rads was earlier, things still good on that front.

    I should buy a lottery ticket!!!! Feel real lucky today.
    And tomorrow is the 6 month anniversary of my dx. Will never forget that phone call.

    Love.
  • marshakb
    marshakb Member Posts: 796
    edited June 2007
    OMG Leah you are just rolling with good news! I love it. Screw the port, get that sucker outta there, relax for 90 days, GO TO ITALY (I am sooooo jealous). And of course you should buy a lottery ticket so I can go to Italy with you! LOL

    Catherine, I would love to be that neighbors pet and spend a couple of weeks with you. AAAhhhhhhhhhhh the life, sounds wonderful what you are feeding him. Poor thing.

    Sammie Kay, LOL, did you play roulette at all? That is my favorite! Now there is a strategy to playing the table, no RED or BLACK, EVEN or ODD for me! Have fun in your flip flops girlfriend.

    Terry and Pat, LAST treaments for you, yee haw! Hang in there ladies the end is in sight.

    Carynn, how's the sunshine girl doing? I'm thinking about you.

    Hey Phyl, you tanned yet?

    Good luck Karen, the every day thing is a pain in the a** but doable.

    Hillary how is the hair report? I have a lot of white hair all over my head. You can really see it in the sunlight!

    Twilah, how's it going girl. It is your turn to come in with some good news. Big ole hug to you sweetie.

    Allyson, I know what you mean about just being TIRED. Don't know if it is after effects of chemo, or rads, or starting the tamoxifen. Maybe a combination of all that. Plus having trouble with the visual aspect of trying to get dressed everyday. One headlight, tender skin so can't wear the mast. bra, so no mast bra means no protesis which means lopsided. I'm good to out in public bald headed but lopsided?????? Having a bit of a problem with that.

    Hey Theresa, so good to hear from you. Please don't feel bad that you are having more smooth sailings than others. We love you, are happy if you are doing well. I promise that is true. Truly makes my day if someone posts that things are GREAT with them or if they have good news. We need you honey.

    All right ladies, I love you all, thank you from the bottom of my heart for being my friend. Marsha
  • CommandoBarbie
    CommandoBarbie Member Posts: 474
    edited June 2007
    Hi everybody! Hope you are well.

    Theresa – So happy to hear that you are doing well! You deserve it!

    Pat – Sorry to hear that you’re having issues with the Taxol. I found it so much easier to take than the AC. I did have problems with fatigue, and now that it’s over, both of my thumb nails are trying to come off. It’s weird tho, I can see a new nail right underneath, but it doesn’t cover the whole area yet. So, I’m trying to baby it as long as I can.

    Alyson – So hard for me to get my mind around your temp there! It’s 114 here today. Get some rest and hope you feel better soon!

    Leah – Big ol’ hug and high five to you. I am so happy about your news! Let us know what the tumor board says. So, when are you going to Italy? Keep us posted girlfriend!

    Terry – How was the bar today? Are you feeling ok? Are you getting close to being done?

    SammieKay – Thanks so much! Sounds like you are having a great time except for the sore feet! Are you gong to see any shows? Hope the Taxol effects wear off soon for you. I do still have the numbness in my fingertips, and like I said, I have 2 nails trying to come off. Sigh…but it’s ok – it’s looking like it was worth it!

    Catherine – I agree with Marsha – I think we’re all a bit envious of the dog.

    So, went to the Onc today. She is so amazing! She really celebrates every success. She was all smiles and hugs after seeing the pathology from my surgery. I discussed with her the statements made by the Rad Onc and she was visibly angry. So much so, I think there might be some phone calls made today, if you know what I mean. Anyway, she was just so pleased, and she too said NED. I told her I was a bit nervous about celebrating which she understood, but she urged me to go get on with my life. I cant paraphrase well enough to say it here, suffice to say that today is DH and my 26th wedding anniversary, and it was a wonderful present!

    Have an appointment with Rad Onc 7/3 to get the ball rolling. Waiting to hear from BS on when we’ll remove the port. She does it with a local in the OR. Oh! And Onc encouraged me to get back on the RA meds. So nice to hear some input instead of the “Quality of Life” speech.

    Well, that’s it for now. We’re going to catch an episode of Deadwood (bought season 3 today) then dinner. Take care all and keep that good news coming!

    Hugs!
  • Primel
    Primel Member Posts: 652
    edited June 2007
    Leah, you sure deserved the break!!! Boy, I love Italy... where to?? What's new on the work front? Hopefully nothing so you can take off when you want. Your family and friends must be as ecstatic as you...
    I am so happy for you...

    Marsha, I love it when you post longer notes... my hair is like yours (I definitely feel more of a very short "brush" under my fingers...) and as white... How are you doing with the Tamox? Apart from very hot flashes (but not too often... 5-6 times a day and a couple or 3 at night), I feel nothing special, certainly no pain... hopefully it will stay that way (3 weeks + now).

    Big hugs to all, I love you too... a lot...
    Catherine
  • talbrig13
    talbrig13 Member Posts: 358
    edited June 2007
    You are all on such a "high" and I am going to have another Whine Party....
    My last chemo has been postponed yet again...my white count went from less than 1000 last week to over 14000 today...they said it would not spike that high on its own in 1 week unless I was fighting a bug. I did not feel well last weekend and blamed it on the Herceptin...they seem to think it was a bug. I started feeling lightheaded last evening and have been today. So I guess they are right. So no last chemo until July 5th....so I guess that pushes my rads back another week.

    You will all be done with rads before I even get started. How did that happen??

    Dr. gave me a work excuse so I don't have to go into work until July 9th...they seem to think I need some rest. Can't understand that! How does a mom of 4 and a dog rest?? I guess the answer is not to go to work. Not a good week for me to be out. A holiday week and one of my direct reports is on vacation. This puts the burden on the other 2. I feel badly for them, but I know they will "kick it up a notch" for me. They have been very concerned about me and I do appreciate that. Now I just need to get my manager to also "kick it up"...ha ha

    Glad you are all doing so well....I am fortunate you are here to listen to me ramble. And I know I am lucky this setback didn't happen earlier in the treatment, as I would have had to get all those shots (which I avoided) or have more treatments postponed.

    Going to take my lightheaded, dizzy self to bed now...and take my temp just to make sure....

    Love you all,
  • ErinsGram
    ErinsGram Member Posts: 150
    edited June 2007
    Dear Terry - so sorry to hear about the delay but I'm sure they're doing what's best for you. Holy cow, what a spike in the counts. Rest, rest, rest and stay hydrated.

    Leah - It's great your good news keeps rolling in. Look out Italy - here she comes! I'm jealous too! Maybe we can have a reunion in Rome

    Catherine - I'll volunteer to be your puppy too. Can you get the 3 of them together for a picture?

    Marsha - yup on the tan. (I think I may have posted this on the Rads thread - sorry if I repeat myself.) It's getting very dark and looks rather odd with the surrounding skin being lighter.

    Flip-flop Sammie - enjoy the rest of your vacation.

    Deadwood Carynn - I think you're addicted. Now you've got my curiosity aroused - I'll have to check out Deadwood. Happy anniversary - congrats on the NED. There's a 'table' waiting for you at The Grill.

    Anyone notice an odd tickling sensation during hot flashes when the sweat beads up on the short hair.

    Zap #15 this morning. PS appointment next Thursday to discuss reconstruction (and prophy) and Dexascan appointment next Friday (to get a baseline before starting on the AI).

    Warm weekend wishes to you all!

    Hugs,
    Phyl
  • marshakb
    marshakb Member Posts: 796
    edited June 2007
    Hello wonderful friends,

    image

    Have a great evening!! Hugs, Marsha
  • swimmingmom
    swimmingmom Member Posts: 121
    edited June 2007
    Big celebrations for Leah, how great for you. I hope the trip to Italy goes off as planned. Been there once and thought it was amazing. You have to raise a glass of good wine over your pasta for all of us! Glad the good news keeps continuing for you.

    Carynn-good news for you to. My kids made me a NED cake and we had a NED party complete with yummy strawberry daiquiris and outdoor grilling. It was a great NED party. Live it up!!

    Catherine your yard looks so wonderful. It is exactly the kind of yard I wish I had and nope I don't. Thanks for the pictures. Send us more. I really loved the blue fence. Guess what? My hot flashes went away the day I got done with chemo-bam no more. Not quite sure if it is a good thing or not but right now I don't mind losing the middle of the night wake up call.

    Allyson and Marsha I hear you on the tired thing. I went to bed the other day at 6:30 and woke up the next morning at 10 am. I am ready for some energy but I guess the rads will take care of that. Marsha, I bet it takes a lot to make you tired.

    Pat keep going at the taxol! How is the swelling?

    Terry, how are you feeling now? Any signs of a fever. How odd that your count went that high and you did not feel that bad. I hope it all improves soon and you can get that last chemo in.

    Phyl, Leah, Hillary and Marsha all seem to be tanning well at the rads booth.

    I have my first real rads on Monday. Nerve pain has not lessened. Going back to work has been tough as others have said everyone expects you to be back to normal-I don't feel normal yet.

    And by the way-not a hair on my head, getting a little nervous.

    karen
  • talbrig13
    talbrig13 Member Posts: 358
    edited June 2007
    Karen,
    Thanks for asking about me...I don't feel that bad. No fever...just very tired and somewhat short of breath...swelling in hands & feet from Taxotere. I have been taking my temp...it is normal so far.

    I am scheduled for another muga scan on Tuesday and we will try for that last chemo again on Thursday.

    I just cannot give in though...I can't even sleep in. When dh gets up for work, I lay there and think of all the things I need to do around the house and cannot go back to sleep...which is really what I need to do. I just think this chemo has finally caught up with me and my body is telling me to cool it.

    I just want to be done.

    Hope all of you have a great weekend!
  • NarberthMom
    NarberthMom Member Posts: 382
    edited June 2007
    Terry -- I really, really hope that you can do your last TCH next week! Sleep, sleep, sleep all weekend. It's supposed to be nice weather here in PA, so take an afternoon snooze outside under a tree, preferably in a hammock!

    Karen -- You're two weeks behind me. My hair just started growing about a week ago, so hold on ... That's weird that your hot flashes went away with the end of chemo. Mine actually got worse once chemo ended. I think that the last taxol finally did in my ovaries for good and pushed me completely into chemopause!

    Phyl -- I get that tickling sensation. It's sort of fun in an odd way. At least it's better than the full blown whole body hot sweats!

    Carynn -- Happy Anniversary! Twenty-six years is something to celebrate!!

    Marsha -- LOL, baldheaded in public OK, but lopsided not!! Seriously, I've been going braless, sort of a preventive measure, and its tough to figure out what to wear in the summer to look decent.

    Leah -- I can't believe your good news keeps on coming. That Italy trip sounds wonderful. What cities are you going to? We will expect full reports of your food and wine highlights!

    Catherine -- Good idea about the colloidal oatmeal bath. And, enough descriptions of the dog's meals -- I want to hear more about people meals!!

    SammieKay -- My fingers started peeling a bit on the AC, so I can imagine that the FAC is contributing to the foot soreness. Moisturize, moisturize, moisturize.

    Pat -- last taxol coming up! You'll truly be able to celebrate the fourth of July!!

    Hugs to everyone,
    Hillary
  • Primel
    Primel Member Posts: 652
    edited July 2007
    Hi Phyl, if you want to see the infernal trio having fun today, go to www.fluxmuffin.com
    Peter made a page with pictures so the "legal" parents can see how tough life is at summer camp...

    Days are too short... cleaned up things in the garden (roses are gone before we know because of the heat... like the soufflé... pouf...) and can feel it tonight (sore...).

    Burried in work... will be more chatty next week...

    Good to hear from you Karen, Terry, Hillary...

    Hope every body is OK... Twyla...?? Vegas...?? Carynn... still up to your ears in Deadwood?

    Hugs all around,
    Catherine (I think my hair is growing back... a little)
  • leahrc
    leahrc Member Posts: 384
    edited July 2007
    Well since you all asked about Italy (sigh)!
    Now that I know I will be able to taste everything and will not be immuno-suppressed due to having been in chemo, I am really starting to get excited about the trip. We are flying into Milan and then have to get to Florence. We will be picked up and taken to this villa for 4 days.
    http://www.escorteditalytours.com/italycookingtours/bellatuscany.htm
    These kind of cooking tours are like you go on field trips to wineries, olive oil groves, etc. then you go to the local market and learn how to shop, and then you go cook! And of course, eat.
    We are only doing the 4 day tour, as the friends we are with want to "free form" a trip to Siena, Assissi, etc. They have lived there and wanted to show us some favorite sites. Plus the unstructured time will allow us to be a bit more spontaneous. Plus at the time we booked, I didn't know if I would be having more chemo, so I thought I might be tired if there were more days of structured stuff.
    We will rent a car fort he last 4 days, and we are trying to arrange to stay at an "agrotourism farm" that my friends have stayed at. Not sure what all that means, but it sounded idyllic!
    I have to research temps, etc. so I know what to bringto wear. Hopefully I can pack in DH's suitcase, as I was warned that lots of lymphedema starts with a "trauma" to the arm from lugging suitcases! Sounds like a good excuse to me!

    Yesterday was perfect weather-wise in New England- very unusual to have low 80's, no humidity, crystal clear day. I went down to Rhode Island to visit a good friend. She just happens to drive a BMW 645 CI convertible, so Thelma and Louise took a long drive down the coast. It was stupendouly beautiful and very good for my soul!
    We talked a lot about death and dying (she lost her husband 2 years ago to ALS) and it was very soothing. She is a therapist, though she doesn't practice as such. It was just nice to be able to talk about such stuff without anyone being upset. She gave me an interesting perspective on what it feels like to the family when a terminally ill person want to die at home, as opposed to going to a hospice. Of course, ALS is a horrible disease, and cancer might not look quite the same. So I planted it back in my memory for looking at a more appropriate time. Death does not feel too close to me today!

    Sounds like all of you are living through whatever treatments are left for this go round. The grillers are doing ok. Love you all and hope this week is a good one!
  • Primel
    Primel Member Posts: 652
    edited July 2007
    Thank you for the wonderful post, Leah, and the link to the Tuscany villa... The ride down the coast in perfect weather with your friend sounds just right and I am so glad you're enjoying your life and making the most of it...
    Big hugs,
    Catherine
  • wildabouthorses
    wildabouthorses Member Posts: 458
    edited July 2007

    Hello from Colorado from out hotel room.Having a great time! No time to read posts just checking in...so far about 1,800 miles on our trike! 2 other trikes are here too! Tamoxifin doesn't seem to be bothering me like it was, guess I'm getting used to it being in my system. Tommorow is a busy day for us, with a ride to Red Rock Ampitheater, group pic, bike games, BBQ and awards! Have been going topless the entire trip, no wig on no hats...see you guys when we get back home in about a week. Oh it just happens to be my birthday today...52 years young!

  • Primel
    Primel Member Posts: 652
    edited July 2007
    Good to hear how well you are doing and enjoying your trip... hot today... Red Rock theatre is a beautiful place (I've never been there for a concert, though, tickets are so expensive and hard to get... hope your hubby can manage all the steps...)
    The topless head must feel good... with the wind... hope the Pink Panther was not trike-sick...
    Protect yourselves against mosquitoes... they are pretty vicious right now, seems to me (if there is one in town, it's for me...) my revenge is that they are assured to go bald if they bite me now...
    Still chained to my chair to finish my work by Tuesday (wishful thinking!!) before port removal on Thursday... better go back to work...
    Looking forward to hear more about your trip... you are a whole group of bikers travelling together?
    Take care guys, and enjoy...
    Happy 52nd... Hugs...
    CatherineH
  • leahrc
    leahrc Member Posts: 384
    edited July 2007
    CAtherine,
    I have to have my port taken out on Friday die to a clot in it. Could you let me know right away how it goes? Curious about what they are giving you beforehand?

    Regards.
  • SammieKB
    SammieKB Member Posts: 164
    edited July 2007
    Terry, hang in there and give yourself a big fat break. I keep telling myself I will get to all these things after chemo. I have shrubs that desperately need trimming and with all the rain we are having in Texas, the weeds are growing like, well, like weeds.

    Catherine the pics of the pups are precious. What fun they must be. Don't work too hard. Will be glad when you get a break.

    Marsha, what cute graphics. I really enjoy them.

    Vegas was fun. We splurged and went to see Wayne Newton. What a show. It was fantastic.

    Hope everyone is doing well. I am having chemo on Tues, July 3 and then only one more. I will be doing the NOMOCHEMO dance in 4 weeks. I am dreading the nausea and sore mouth and all, but I know "this too shall pass" and I can do it.

    I am not sure if you are still doing the list, Hillary, but put me down for chemo on Tues.

    I am tired tonight so keeping this short. You are all on my mind and in my heart. Stay strong. Love to all, Sammie Kay.

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