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Taxotere, Carboplatin and Herceptin

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Comments

  • gramma23
    gramma23 Member Posts: 482
    edited June 2009

    Jaimieh, congrats on the surgery and so glad it all went well. I hope you take it easy for a while though until you heal. that has always been my problem when I have surgery is I feel better so I am ready to get busy.

    I went to the onc yesterday and he thinks the fibromyalgia is all of my problems with the soreness of the surgery breast & underarm the collarbone pain, the breathing problems etc. I told him how out of breath I get when I take Herceptin so they dripped it slower and it did help but when the Herceptin got going into me I started having breathing problems but I just kept breathing deep and trying not to panic and once I was finished I stopped having extreme breathing but it did continue to bother me the rest of the day. I feel a little better today but I have read that is a side effect of Herceptin so I have one more in July and I am finished with it. Maybe the breathing problem will clear up. I was also low on RBC again! I got Procrit shot and a prescription to see if my insurance will pay if I give it to myself. I am hoping once I finish all these Herceptin tx I will be able to maintain a good blood count. It was below normal when I started though. the onc says it is because of my arthritis. I was not like this before surgery! He wants me to blow up balloons to exercise my lungs and told me that radiation would not burn my lungs. I know it can because the Rad doc said it might but they were going to do their best to avoid it and the heart. He said some get broken ribs from rad. I think that might be my collarbone pain but I guess I will wait and see what happens after I finish the H. I hate them saying fibromyalgia or arthritis is the cause for all the problems because I feel like it is a catch all problem. If they don't know then we will blame the other thing for it. He also said I needed to keep my port for 2 years! What have your onc said about that? I know others that had to keep them but not for breast cancer. He said because I was HER+ and it had gone into the lymph nodes which does make sense but does that mean after 2 years I can consider myself cured? I have more questions now than I did before I started chemo. I guess I was so dumb about it all I just did what I was told.

    As for the questions of new ones, I lost weight and have kept it off. I lost a lot of hair but not all of it and I had it buzzed off but not shaved. The side effects depend on your body and not everyone has the same ones but you will have some. I hope you have it easy like some here have. Your onc and nurses are there to help you so call them when you need to. I didn't but now I know I should have. The women here are great to help out and have great advice, If one didn't have a problem someone else will have so ask. Vent when you need too. We have all done this more than a few times I am sure. You will get through this though. I finished TC in Nov 2008 and I have hair now but not growing like I want it too but then I am impatient. I know it is growing now because it is messy when I wake up. Rooster tail and such.

    Thanks for listening to my complaints if you are still reading this. I just want to be through with it.

    gramma

  • duneoaks
    duneoaks Member Posts: 94
    edited June 2009

    Jaimieh--I also survived the surgery--it took about 2 1/2 to 3 hours, and I was home by 7:30.  I do have a compression bra, but I can take a shower today, so I'm looking forward to seeing the results.  Sleeping on my back at a 30 to 45 degree angle is the hardest thing for me, but I managed to nap on and off all night on the sofa.  I do not have any drains, and I don't go back to the PS till the 29th when I have my stitches taken out.  I'm glad to have this behind me now.

  • Jaimieh
    Jaimieh Member Posts: 925
    edited June 2009

    Glad it went well Helen.  I was told I was going to have a compression bra but I do not have one.  I am bandaged up and I have to take them off so I can shower today but I feel pretty good.  I took 2 1/2 hours to wake up in recovery...hehe.. I needed my nap.  Sleeping was hard last night on my back but I made it thru but I had to put myself in a bed of pillows so I didn't roll on my side.  I haven't had to take any pain meds so far today so I have a little bit of pain but nothing that I can't deal with.  I am with you I am glad that it is over now I just hope everything works out. 

  • cupcake7
    cupcake7 Member Posts: 321
    edited June 2009

    As always I come in and read the post to pray for each of you even though I don't post.  Today I need to:

    Lisa:  I wrote down Emily's name on my note pad next to my Bible so I could remember to pray for her.  That is so totally sad.  I think DH should not go because there is a lot of hugging, tears, kisses during a funeral and he might bring something home to you.  I would think everyone would understand why you can't be exposed.  Let us know how Emily is doing.

    Ipohgirl:  Cupcake Mommy here and she is so proud of you that you made it through.  #6 and it is done.  Do it all sweetie.  You can hang with one more full dose. We don't want any of those nasty critters to be hanging around in there with all you have gone through to rid your body of them through 5 tx of TCH.  Sorry about your friend, but you do have to let her go.  Be there for her when she needs you cause she will.  For sure listen to Blue cause she is very smart on the medical end.    While she has been with you all she has been a great source of good medical advice.

    ChellyD:  Welcome to Camp Chemo.  Not happy you have to be here, but you couldn't ask for a better group of ladies to be with.  Good luck tomorrow.  As you have read it is important to start drinking water and lots of it to flush out the stuff from you kidneys.  Watch out for day number 3 when the steroids wear off and the crash comes.  Keep a calendar of how you are feeling.  I put on sad faces on my worst days and happy ones when I was coming out of it.  You will see a pattern for you on your tx.....everyone is different.  You probably won't gain weight until after all tx is over.  Matter of fact you will probably loose.  What I did was not to bother to eat or very lightly on tx days to rest my digestive system and then catch up on good weeks between.  After tx and you begin the cancer pill for five years that does tend to put on weight.  Don't worry about it now, just focus on getting through your tx. TCH does make your hair come out, actually I think it is the Taxotere that does it, but it WILL  grow back.  There are lots of scarfs to wear until you feel comfortable.  In time you might be like a lot of us and just go comando.  I did around the house at first then it didn't bother me to go out in public.  Just do what feels comfortable to you. Keep in mind although you loose your hair your also loosing those cancer cells.  Hey look at this way...you know all that UNWANTED hair?  It goes too...no more shaving for awhile..lol   ANY questions no matter how small you think they are bring them here.  RANT is ok too cause some days you will need to.  CRY cause there are some very strong shoulders in here.  UNDERSTANDING..these ladies have walked the walk and know exactly what you are talking about. All in here are at different levels of tx. Some were just coming in when I was leaving and now here they are at the end of the tunnel and leaving as you are coming in.  What has always happened in here is as the one's who make it through,(and at times you think you won't but you will), they will reach back and hold your hand while you are coming through the tunnel.  Soon you will see that light at the end of the tunnel and then you can reach back to the new campers coming in.  Find one that is on the same schedule as you too then you can bunk together.

    Everyone have a blessed day...chat with you later...Brenda

  • Lisa1964
    Lisa1964 Member Posts: 760
    edited June 2009

    Jaimie and Helen - Congrats on the surgery!!!  I hope you both mend quickly - another obstacle covered.

    gramma - 2 years for the port?  That just stinks!  I want this dang thing gone!  I am constantly banging it on something.  Gonna have to ask my onc on the next visit.

    Cupcake - it is alsways so nice to hear from you and this time you sound like you are on top of the world.  Carry On!!!!!!

    Lisa

  • Bold
    Bold Member Posts: 306
    edited June 2009

    Lisa take the port out if you want to. I never got one. I mention that because it is so easy to servive without one. There is not flushing of risk of infection pain, disfigurement (OK that was over the top) Anyway just a thought.

    Gramma, the adventure continues.

    Hey Cupcake hows your mojo. I am in Radiation and my nip is uber sensitive and it gave me erotic dreams last night. Can't wait to feel that way before I fall asleep.(TMI) Bet DH would too.

  • cupcake7
    cupcake7 Member Posts: 321
    edited June 2009

    Bold:  I still have some soreness and it has been quite awhile since the rads.  I think the surgery itself left some muscles bunched up or something cause I can't lay on that side very long until I have to move. ???  Don't know what that is all about.  Remember after the rads to keep the area covered from the sun cause the dark red that will go away after radiation,  will come back and maybe never go away.  LOL DH better be ready at all times...The dose of Arimidex makes me dryer than I was before so sex not much fun...allot of burning...BUT I did find out if I had hubby wear a condom it keeps the salty stuff off the tearing and it doesn't hurt anymore.  You should have saw me going into rite aid to buy them...hubby or I have never in our life had condoms.so this was going to be an adventure.....well anyway finding what section they were was hard enough and  then there are SOOOOO many types..oh my gosh!  Ok grabbed one as not to seem obvious hanging around the condom counter.  Went up and wouldn't you know a young snit of a fella was the checker...!  I was so embarrassed but plopped it down on the counter with the money and he gave me the snicker look as ..GOOOO GRANNY!  Oh just dig a hole and throw me into into it!  Oh yeah Astroglide gel and regular is better than KY jelly.  Just lather that ol thing up before hand with the Astroglide.  lol  Works great. 

    Lisa:  Thanks girl.  I am still healing from the Colostomy take down, but doing well.  After a Colostomy surgery, 6 months of Chemo, , a Modified Radical Mastectomy, 30 rounds of Radiation and now the Take Down of the Colostomy all in a year I think I can face anything.  As I look back the chemo was the worst of all of it.  I feel so for you in the misery of it now.  How's Emily today?

  • ccbaby
    ccbaby Member Posts: 503
    edited June 2009
    Bold....I was thinking about getting rid of my port when chemo is done because I hate it. It sticks out and is ugly. The only thing is is that it does work fine, it is just the cosmetic of it.How do they administer your Herceptin? Through a vein in your arm or hand and it is easy to do it that way?
  • ipohgirl
    ipohgirl Member Posts: 56
    edited June 2009

    Dear Ladies,

     Went for my last TCH - albeit the half dose for T because of elevated LCT levels - yesterday! Yipee! I completed one of the most difficult tasks in my life. Girls, if we can do this dreadful journey, we can do anything.

    The emend didn't work yesterday and the nauseau still came. Today is day 2 and the nausea has started to work up again now that it's afternoon. Also, I have lost all my energy since TCH No.5.

    Cupcake - Thanks for your love and advice! I will try to visit all of you if I'm in the US. So nice to see your postings again and know you are back to your old self.

    Bluedasher _ Thanks for sharing about your LCT levels and experience and explaining to Granma about the subject. Yes, I will ask to consult with a nephrologist once I do the ultrasound next Thursday. There was never any trouble with my liver before - the onco said it was probably the taxotere and hopes the elevated levels will return to normal as time passes.

    Lsia 1970 - So sorry to hear about your neice. Hope she'll survive. In the event of a funeral, it is best to postpone it for at least 2 weeks after  since her parents and close relatives would have been in contact with her. This way, it will curb the spread of the disease to others. If it is held earlier, then I suggest not even your husband should attend nor be in contact with her parents since you are likely to catch it from him easily. It could get very complicated for us because of our low WBCs.

    In HK, a nurse taking care of a 10month old toddler with the disease caught it from the toddler's parents who caught it from the toddler. They were fine when the nurse spoke to them earlier. In Hong Kong, we have had a very bad experiece of such highly infectious diseases since SARS in 2003 spread virulently and killed over 100 people in no more than a couple of weeks. It was very frightening and the situation seemed uncontrollable at that moment.

    In fact, I urge all of us campers to wear  a mask when in public places (especially confined ones like supermarkets, etc) and to wash their hands vigilantly everytime they return home. Antiseptic pads and lotion would help too. Please take good care of yourselves.

     Also, did anyone post menopause with a reading less than 20 for estrogen positive take aromatase to inhibit the estrogen? One onco said there was no need while another said I should. Am weighing the side effects vs the actual benefits/prognosis. I read that fat deposits encourages estrogen production. After my surgery, I lost about 13 pounds but have now gained back 5. I shall strive to lose the five and get back to 107 pounds.

    Love,

    Ipohgirl 

      

  • Lisa1964
    Lisa1964 Member Posts: 760
    edited June 2009

    Bold, I am glad I have had my port because I have terrible veins.  Whenever I have to have a test done where there is not a certified person to access the port (MUGA) it is miserable.  On my last MUGA, 2 people stuck me a total of 5 times before they got a  vein - and this is pretty typical.  But still, I will be happy to get rid of it.  I am NOT keeping it for 2 years after herceptin is over.

  • AmyIsStrong
    AmyIsStrong Member Posts: 426
    edited June 2009

    LISA - Speaking of the MUGA  - the SAME thing happened to me on my first scan. Lots of poking - it was miserable.  When my wonderful chemo nurses heard about what happened, they told me that for subsequent scans,  they can access the port for me and then send me over to the nuclear department with the little thing sticking out so the MUGA tech can draw and return the blood through it and no sticks will be necessary.  They did say they don't like to do it TOO often b/c of increased risk of infection each time they access it. But I figure that is why I GOT the port in the first place - to use it. I am seriously considering doing it next time.  While I'm not going to keep it for two years, I AM going to keep it through the H treatment. And I totally agree with CCBaby - it IS ugly.

    Anyone else's thoughts re accessing it for the MUGA or other draws?
    Thanks

    Amy

  • Alaina
    Alaina Member Posts: 153
    edited June 2009

    I've only had my port accessed once for a reason other than getting chemo, and that was for my blood-draw the week after my 1st chemo.  I've not yet had a MUGA scan or another reason to get blood drawn since then, other than regular day-of-chemo stuff.

    The only drawback I can see is how it is billed to your insurance.  Using your port for a regular blood draw gets billed as "surgery" since they are "accessing a vascular device" as opposed to just sticking you in a vein.  LOL!!!  For those with financial considerations and/or persnickety insurance companies, this might be important.

    Alaina

  • Lisa1964
    Lisa1964 Member Posts: 760
    edited June 2009

    The only time other than chemo and regular blood draws that my port was used was for my blood transfusion.

    Yes, it is ugly, but I am glad I have it.

  • cupcake7
    cupcake7 Member Posts: 321
    edited June 2009

    Lisa:  Bad veins for me too.  Every trip to the ER they have to hook you up to an IV just in case and I said...look just draw the blood and IF the Dr. wants me admitted then go ahead and access the vein, but PLEASE stop butchering me up. I do not have good veins and you keep blowing the ones I do have.  Then he discovered I had a port and his eyes popped open and after 3 attempts and getting bigger needles I said, "you are SO done, leave my port alone!"  He did come in later and say maybe he should listen to his patients...DAH!  He could have got it infected so girls please don't let ANYONE access your port unless they are onc.  Ask for one to come in if you are in the ER, the hospitals do have them available. Or like Amy says if it is an onc day where the office is open let them put access it and send you over to what you have to do.   Its too easy for ones that are not familar with them to screw them up.  I am thankful I got it and want it for the duration. 

    Ipohgirl:  Hang in there sweetie this is it...the last time so everyday just know it will be the last and soon you will be out of it and not be sick anymore.  I know it has been hard on you, your poor body is just saturated with the poison, but it is doing its job killing those cancer cells.  Vision your health again and what you are going to do.  I will be praying for you.

    Bold:  Hey gotta have a sense of humor with being surrounded by grief.  I love my car but learning you can't drive close to those cattle trucks on the freeway...you know the ones with the round holes in them...Cows do pee and poop.  Also those overhangs in the drive up windows with all those pretty birds chirping?  AH HA they poop too...SPLAT!  Yeah convertibles are fun, but must be ware.  I never knew how many smog polluters are on the road cause I seem to always be behind one of them at a stop light...can't like roll up the window or anything...lol  Outside of that I just crank up my rock and roll CD and let the wind blow through my new hair.  Life is soooo good. 

  • Bold
    Bold Member Posts: 306
    edited June 2009

    Ipohgirl: You pose a very interesting dilemma in reference to the amount + Er vrs Hormone therapy.I am in the same boat as you. I only had 2% ER+.in pathology. My onc has recommended Hormone therapy for me. She used Adjuvant on line. The same on size fits all website that 99% of all Dr. use. It calculates + or - and thats it! I dug a little further and looked at some research. The only one that said anything about % said that they did not let people in the study less than 10%. Do you know you actual %? I want to do all I can to prevent a recurrence. The first two years are very critical. I have gained a lot of weight from chemo and the need for comfort. I am aware that excess fats produce estrogen. I am after chemo in full on menopause. This I am sure helps with the natural reduction of estrogen. I plan on losing 2 pounds a week after I complete Radiation. This is a big decision. I am making myself nuts trying to figure out what to do. I think maybe I will make an appointment with an endocrinologist and talk to them Hell I don't know. But I have to.

    Lisa: I think that the pain in our joints is from lack of estrogen in our systems. You feet seem to be suffering from neropathy. Some people find that very painful. I have only the numbness not the pain. This can take a year to resolve. WTF! Heres a kicker! I still have taste issues! I have a sweet, salty taste that awful! I want my taste back! (and HAIR!) I was able to keep my nails so far by continuing to use crazy glue and real short. Works like a charm.

    Cupcake: You crack me up! Your such a randy girl. You DH is lucky. Hows the car? I have always had a convertible. Everything from triumph, Fiat,and presently my 6th SAAB. Love it! Thank you for your caring advice. I am glad our weather has been cool for this phase of treatment. I was told I could not swim in the pool! I was very upset as I love to cool of and kick a few calories off.

  • bluedasher
    bluedasher Member Posts: 350
    edited June 2009

    Ipogirl, I think I confused you by switching topics from liver enzymes to kidney ones. A nephrologist is a kidney specialist which I want to see because my creatinine level was up at the end of chemo and has stayed up. I don't know what a liver specialist is called. If you just have the one high ALT or ALP reading and it comes down on your next blood test, I don't think you need a specialist.  My ALT spiked higher than yours at one test during chemo and came back down and has been fine since then. If your ALT is staying up, then you might want to look further into whether there is a liver problem.

    Gramma, When I saw her before my Herceptin this week, my onc mentioned that she needed to make a note to herself to schedule taking out my port after my last Herceptin. Yea!  I thought my last Herceptin would be September 28 because that would be the 17th one. It sounds like she wants to do one more which disappointed me a little but I'm probably being silly - the Herceptin treatments don't seem to cause me any side effects so what's one more 90 minute infusion? But I just want to get it done. I guess when I see her in August I'll find out for sure if she really meant that. I do like having the port to not have them searching for the vein though I've had better luck with the techs here doing a vein stick. My last MUGA, he got the vein in the first stick - they usually do that or at most 2 sticks.

    The BCIRG 006 results for TCH showed about 8% recurrence in the two years after the start of chemo - most of that was after Herceptin ended. The next year there were about 6% and the fourth year there were about 4%. (Actually those are the numbers that didn't have disease free survival - they would include people who died from causes unrelated to bc and chemo, but I'm assuming that that was a small part of the number.) So it does look like risk of recurrence is leveling off after the first two years after the year of Herceptin. Two thirds of the women in the study were lymph node positive. 

    The slides I have also have a slide for DFS for lymph node negative women but they don't have a slide for lymph node positive. The lymph node negative women had 3% non-DFS in the first two years after TCH started, 3% the next year and 1% the fourth year.

  • AmyIsStrong
    AmyIsStrong Member Posts: 426
    edited June 2009

    LADIES - URGENT QUESTI ON (and totally embarassing one!!!):
    I had my 4th TCH yesterday. Everything went fine. I am drinking LOTS of water, the way I always do. BUT I feel like my urine has burned me on my skin in the immedate surrounding area. I have red marks/burns on my skin and it hurts. Is this possible? I put some aloe on it. Has this ever happened to anyone? Is it something to be concerned about? Any suggestions???
    Ouch, help! and thanks!

    Amy

    ps Blue Dasher: what does DFS mean? thanks.

  • Jaimieh
    Jaimieh Member Posts: 925
    edited June 2009

    Amy ~DFS= Disease Free Survival

    Bluedasher~ DFS for lymph node negative is it 97% for the first 2 years ??  Am I reading that right ??

  • 2hands4me
    2hands4me Member Posts: 39
    edited June 2009

    Cloud - Where are you? Hope the carafate and Nexium are helping, but I see you haven't posted since June 9. Maybe school is out and you're on vacation?? I answered your PM but didn't see a response which is fine...but now I'm concerned! Thinking of you and I'll watch for an update!

  • rayhope
    rayhope Member Posts: 75
    edited June 2009
    AmyIsStrong:  I am 11 weeks out from last TCH and on Herceptin only now.  I had similar problems (still do a little) and found Desitin ointment to work wonders.  Use liberally until problem resolves. 
  • duneoaks
    duneoaks Member Posts: 94
    edited June 2009

    Amy, I had REALLY bad yeast infections after my 3rd TX and every one after that.  It was probably the worst side effect I had.  Call you Dr. and discuss this with him.  They put me on Diflucan and thank goodness it works really fast. 

  • CaliforniaCloud
    CaliforniaCloud Member Posts: 105
    edited June 2009

    Well isn't this perfect timing 2hands4me!  I have been reading pages and pages of posts this afternoon.  If I had been a quick reader, I would have missed your post entirely.  Thank you for asking about me.

    Treatment number 5 was indeed a real kicker.  Think I posted that chemo #5 was postponed by two days. My neutrophils number were at  0.9.  Two days of neupogen and my WBC were sky high, so we proceeded with number 5.  However, because my numbers were so high, the doc said no more shots, but I could pop in Monday if I felt bad.  Well, I didn't feel real bad until Tuesday evening.  Wednesday's blood work came at neutrophil # s of 0.1.  I was sick.  I was scared.  My Mom was scared.  My husband was scared.  It took several days but I bounced back.  However, my husband insisted that we cancelled our attendance at my niece's wedding as well as having my niece, her husband, and brother-in-law as house guests. Very wise decision on my husband's part because we are still getting reports of people turning up with various aliments that were brought to the wedding and then passed along.

    I went in Wednesday hoping the doc would cancel Chemo #6 because I felt so lousy.  Sure enough, I was scratched and told to go home for a neupogen shot and we'd try again on Thursday.  Great news:  It worked!

    I am finished!!  And like Maggie, I am loving lounging around.  At 6:00PM, I am still happily running around in my pajamas.  I just finished my first gallon of water and hope to sip my through most of another this evening.

    About the Carafate and Nexium.  The Carafate made me nauseous.  My onc's response was "Stop taking it; it is supposed to make things better."   The Nexium, on the other hand, has been fantastic.  I am sleeping through the night and, until today, the funny feeling in my throat and shortness of breath went away.  I guess I just need to drink more fluids to get these poisons out of my body, and keep taking my Nexium.

    One day past Chemo #6 and I am off to a dinner of bbq ribs, potato salad, and corn on the cob.  No taste issues today, so I am going for it!

    Congratulations to all of us who passed major milestones, hang tight to those who are working your way through this, and above all, my prayers are with you all, with very specific prayers for some.

    Cheers!

    Cloud

  • cupcake7
    cupcake7 Member Posts: 321
    edited June 2009

    Amy:  That was a huge problem for me and that is why I found the Astroglide as with the urine burning so did sex.  It was months of questions and no one had any answers.  I said this cannot be a problem with so many women and not be addressed.  Have you had to take any antibiotics through any of the treatments for anything?  Helen has the answer and I ask for that too and it helped a lot.  Just have to keep on top of it.  Herceptin I think deminishes the estrogren and that messes up the vagina area... I know the Arimidex does

  • AmyIsStrong
    AmyIsStrong Member Posts: 426
    edited June 2009

    Thank you all for the feedback. I am using a thick soothing product called 'bag balm' in the inflamed area. I don't think it is a yeast infection, more like an external skin irritation. I am going to give it another day or so and see if it settles down.

    Weird how these things can come out of the blue like that.  I am taking more digestive enzymes and supplements this time to try to keep the GI problems away. I don't have nausea but more abdominal pain, cramps and spasms. We shall see if my new products (suggested by my alterna-doc) help this time.

    Thanks again. I hope everyone has a peaceful, enjoyable weekend.

    Amy

  • ipohgirl
    ipohgirl Member Posts: 56
    edited June 2009

    Dear Ladies,

    Cal Cloud - Where the emend didn't work, the ginger juice worked wonders!! Nauseau wore off yesterday and I managed a good night's sleep even with full dose of decadron. The ginger's  less straining on my poor liver too - the emend flyer said one SE is  elevatred ALT levels, which I am already suffering from the taxotere and decadron.. For those with nausea, please try the ginger juice. Congrats on the last chemo - we are on the same schedule. Will do RT planning first week of July and start in mid August.

    Bluedasher - Yep, see how ignorant I am - didn't know that a nephrologist is for kidney problems! My creatinine is exceptionally low since I did the operation - just opposite to yours. It might signal problems too. As for my elevated ALT readings, the onco has ordered a ultrasound next week to rule  other possibilities. Also, how can i get hold of the BCIRG results? I'm really encouraged to read about the much improved survival rates. I am node negative btw but had multifocal tumours (IDC and insitu). 

    Bold - Thanks for sharing about the ER dillemma. Does anybody know whether we could check the estrogen levels in our body after the TCH treatments regularly in the bloodwork like the way they monitor our liver and kidneys? I don't mind taking the aromatase inhibitor for the first two years, but if my ER levels are decreasing I don't think it would make much difference and weighing the horrid SEs of aromatase  - like continuing baldness and brittle hair and hot flashes and thinning bones - it would really help if I could actually see my ER levels to justify it.

    A tip. When I cut out sugar completely when I first found out about my cancer, I lost 13 pounds in a month! I have gained half of that back since chemo started and hope to lose it now that  the TCH is over. Cutting the fat really helps reduce the estrogen. And, I thought it was only a small percentage of HER + who would also be ER +. Not so on this thread. And, BTW, yours truly still doesn't know how to add her signature on the postings.................

    Mommy Cupcake - You are hilarious! My DH and me had not tried anything since TCH started. I was thinking of starting three weeks later. Any advice on when might be a good time. Asides from some stinging sensation the first week after chemo, my vagina is holding well. Also, does the RT sessions hurt?  Hope you are healing well.

    Also, i read in another thread that taxol costs less than taxotere and is better in term of SEs. I thought that was not true. 

    Hugs,

    Ipohgirl

  • Unknown
    edited June 2009

    Jamieh, I hope you're recovering fast from the surgery!  For me the drains were the worst part.  Oh, and I HATED sleeping on my back... I'm a tummy sleeper and it was 2 weeks before I could roll on my side.  

    But now everything is normal!  It's been 6 weeks, and I'm back to my stomach-wrapped-around- pillow-roly-poly sleep normalcy. 

    I'm so glad it went well and that you're bouncing back... but not surprised; you've got a lovely attitude about all of this.

    Laura 

  • Unknown
    edited June 2009

    PS - Jamieh, I meant to add that you're so fortunate you didn't have to get drains.  LUCKY GIRL.

  • EngTchr
    EngTchr Member Posts: 74
    edited June 2009

    Hi everyone, I'm a new member.  I feel like I know so many of you because I've been reading the pages since this thread started in July 2007.  I'm up to March of this year and still reading. 

    I had Tx 1 June 17th and so far things are going pretty well.  Very, very tired in the evenings.  Just trying to take it a day at a time.

    I'm so glad to have found this wonderful group of women who are all going through the same thing!

    Becky

  • kmn0701
    kmn0701 Member Posts: 13
    edited June 2009

    Ladies I have a Herceptin only related question. Yesterday was my first "big Herceptin"...I am now only getting it every three weeks (YAY), but today I feel sick. A little like I did after TC...achy, tired, a little chilled (but no fever),etc. Did anyone else experience this? I know my nurse said something yesterday about the dose being 3-4 times stronger since I was only getting it every three weeks now but she didn't say anything about it possibly giving me any new side effects. I just wanted to see if anyone else went through something similar?

  • Unknown
    edited June 2009

    Hi, Becky! You've come to the right spot for support and encouragement. You're on the right track if you are willing to take it one day at a time.

    Well, I'm back from my trip to California. Had a wonderful time, grand baby is a doll, my son got graduated and now holds an MBA from UCLA Anderson. We also managed to squeeze in a "Child Blessing" service with out favorite pastor. It was cold (the locals out there call it June Gloom) and I did not take a warm jacket, but my ex husband's wife had knitted me a prayer shawl and gave it to me while there. She is a wonderful lady and so thoughtful. I don't know what I would have done without her thoughtfulness!

     Had TCH #4 upon my arrival back Tuesday. Neulasta shot on Wednesday and things were going well untill I hit a bump Friday. I was exhausted Wednesday night, took my meds and hit the sack. I slept all day Thursday and Thursday night. Woke up dehydrated Friday morning dizzy, weak and light headed. Passed out and ended up in the local hospital for rehydration Friday through Saturday afternoon. I still feel a little punk, but lots of rest and lots of water should get me back in shape. Blood counts held up well through the ordeal though.

    I'll post more later, but for now I'm off to bed. Hugs to all.