Come join others currently navigating treatment in our weekly Zoom Meetup! Register here: Tuesdays, 1pm ET.

Taxotere, Carboplatin and Herceptin

1192193195197198627

Comments

  • blessedby4
    blessedby4 Member Posts: 117
    edited October 2009

    Swampy, it is confusing when each doctor is so different in treatment.  Doesn't help us, who have to go through it!  My tumor was 4.2cm and no lymph nodes and I had a left mast.,  yet I was told no radiation would be needed!  Now I am confused again and will ask my doc again about this.  I have one more chemo to go next week and then continue with the Herceptin like the rest of us.

    Hang in there!!

  • Lisa1964
    Lisa1964 Member Posts: 760
    edited October 2009

    Just checking in to say Good Morning and to get this thread bumped back up to the first page.

    Have a great day!

    Lisa

  • Denali
    Denali Member Posts: 113
    edited October 2009

    Swampy, that's the standard I've always understood about the need for radiation. 

    Blessedby4 - you don't need radiation because you had a mastectomy.  There's no breast tissue to radiate.

    I skipped out on radiation too.  I've decided to do a 2nd mastectomy w/ reconstruction.  I'll be rolling into surgery Oct 21st.  I'm looking forward to all of it getting done.  I went to the pre-op appt yesterday with the PS and she took the 'before' pictures.  I made her promise not to sell my photos on the internet.Wink

  • bluedasher
    bluedasher Member Posts: 350
    edited October 2009

    I've been deported - I didn't check the exact time, but it took no more than an hour. Taking it out is much easier than putting it in. It was done under a local. He spent a while cauterizing the edges of the incision and getting the port freed from the entaglements that it had grown attached to in the year it was in. There is just one incision - he followed the scar made by the original placement. Once the body of the port was free, the catheter just gets pulled out of the vein which felt a little odd but didn't hurt and he applied pressure for a minute or two so that the vein didn't bleed.

    The local is just starting to wear off and it doesn't hurt much. I've been applying an ice pack on and off and I can take tylenol if needed. 

    Since I'm hormone negative, that was the end of my cancer treatment. Nothing but check ups from now on. 

  • Unknown
    edited October 2009

    Wonderful Bluedasher!!! I can't imagine what it is like to be DONE!! It's like that day will never come, but I'm half way there. Just rads and Herceptin to go.

  • ccbaby
    ccbaby Member Posts: 503
    edited October 2009

    Congratulations Bluedasher!!  I can't wait for the day to come so I can be de-ported too!!

  • weety
    weety Member Posts: 378
    edited October 2009

    I've asked quite a few questions about using procrit for low hemoglobin the last couple weeks.  Here's the really weird thing that happened.  Thanks to all your helpful info, I decided to wait at least a week or so before doing the procrit, both to see what would happen to my levels, but also to have more time to research it and make a decision I was okay with.  Here's where the weird thing happened:  When my onc recommended starting the procrit, my hemoglobin was at 10.7 (It had been slowly dropping from 12 originally at start of chemo)  I DID NOT do the procrit shot, and last week, my counts jumped up to 12.6 and then today they were all the way up to 13.2!!!  I DID NOT do the procrit shot!  How could this have happened?  I did take a couple of neupogen shots, but I am under the understanding that this ONLY affects the white blood cell production.  According to what my onc said before, red blood cells tend to go down very slowly, but they also go up only very slowly as well. It can take weeks to see even a 1 point jump--You don't see the big jumps like you see with WBC.  She is out of town till next week, so I'm relying on any input from you all!

  • cakelady
    cakelady Member Posts: 176
    edited October 2009

    I was curious how much the expanders hurt when they get pumped up every 2 weeks?

    Bluedasher,,,,,,,,,congratulations! how nice to be done.  What kinds of followup will they be doing?

  • gramma23
    gramma23 Member Posts: 482
    edited October 2009

    Weety911, Your bone marrow makes the cells and it looks like yours are working great. After I started taking Procrit mine went up and stayed for a while but then it came crashing. Every since they have given me a shot but I decided not to get my blood test the last time because I am finished with chemo and everything else. I wanted to exercise and give my bones a chance to make it on their own. I have felt a little weak at times but I just kept on and I am hoping by the time I am supposed to go for the port flush and the blood test it is going to be up. If it is not then we need to see why my bone marrow will not make on it's own and if it is down just a little then I may just wait a while longer. I had been getting blood and then Procrit when I had had a lot of blood that they got worried. You are still on chemo aren't you? If so then if may be the chemo is knocking it down and then your bones is bringing it back up. Just make the decision on a time by time basis. I am not suggesting you go against your onc but I do say ask questions.

    Blue, I am so happy for you to get de-ported. I wish I could. I have to wait a while I guess. the last time I asked he said 2 years and I was still taking Herceptin but I have been finished since July with that. I am not sure 2 years from when. I have made him mad at me a few times because I want to take vitamins or try something to help build my blood but he tells me no. He thinks I am not trusting him. He said if he knew of something I should know he would tell me. I was ER-/PR- but I was IIb with nodes involved so I think that is why they think it may come back.

    Lisa, Good to see you posting. That means you are reading and will come in when needed. I hope all is going well for you. How is the hair coming? Mine is slow but I do have hair so I will be greatful for that. I was told Biotin would help it grow but the doc said no for me to take it. It is in B complex vit too but I am not supposed to take those either.

    Have a good weekend everyone.

  • enjoylife
    enjoylife Member Posts: 187
    edited October 2009

    gramma thanks for the advise and most days I feel that way its just a am a young 58 single and use to be so pretty and its not fair cancer took all that away before age did but it made me appreciate my life as yu have said so much more thanks for the kind words .....

    Maura

  • Lisa1964
    Lisa1964 Member Posts: 760
    edited October 2009

    Go BLUEDASHER!!!!!!!!!!!!!!!!!!!!!!!!!!!  Yea!!!!!!!!!!!!!!!   Since you and I started on the exact same day this is truly a celebration!!!!!  Yippeee!

    I postes earlier that I requested a new surgeon to remove my port.  I see the new guy next Tuesday.  My last Herceptin is Oct 20 and my Onc says I can have the port out immediately there after.  I am ER PR postive, so I get the tamoxifen for five years, but that is nothing compared to the last year.  I am so happy for you Blue.  Live moves on with you in it!!!!!!

    Gramma, yes mam' I am reading, but I only jump in when I think I can help someone.  This thread gave me so much hope and support, I will never abandon it.

    Love to all of you!! Rock on!

  • blessedby4
    blessedby4 Member Posts: 117
    edited October 2009

    Bluedasher: Congratulations!!!  What a great feeling it must be to know you are done!!  What hope it gives the rest of us to know one day we will be there also.  

    Cakelady:  I had my expander filled every two weeks and the most was 85cc at one time although did some at 65cc and the last two at 50cc.  I think it depends how much you have them filled on whether it will be hurting you or not.  Slower is much easier but more fills but it was definitely worth it for me!! 

  • jkcrml
    jkcrml Member Posts: 53
    edited October 2009

    swampy- rads are a walk in the park compared to chemo. I finished 32 treatments the end of August. Use a lot of 100% aloe vera, Wal-Mart sells some, the brand is fruit of the earth.

    good luck

    Karen

  • gramma23
    gramma23 Member Posts: 482
    edited October 2009

    Enjoylife,I do hope I did not hurt your feelings. I also hope your find a companion that loves you for you and not what you have or don't have. I am sure you are still beautiful. I admit I have never been single oh! I mean in a long time since I was a child of 15 but saying that I do know some men have left women of a long marriage because they lost their breast and who knows why else, but if that is all we are to men then we don't need them. I am sure your are beautiful anyway. There was a nurse at a hospital who we thought maybe was a cancer survivor and found out that she had alopetia. She lost all her hair as a child and she was really pretty in the face. That is why I donated hair because I lost hair as a child too but just in one spot and it came back. I miss my hair like it was, long and wavy but I don't have it and I may never have that again. It did help keep me warm too. I get so cold on my head I will have to wear a hat of some kind now that it is colder but then it is a lot easier fixed!

    There are a lot of women run/walk in the city yesterday for breast cancer. Some are survivors and some lost someone to breast cancer but they want to find a cure so no one else goes through this. I just feel so terrible when I see someone else going through this.I had a friend who was in her 30s and she died because she did not pay attention to her breasts and never had screening and didn't notice the lump. that scares me for all the young women who don't get screened because they are too young and they also don't take this serious. I know I had lumps all my adult life and they were fibrocystic but I had them all checked when I felt one. No one in my family had cancer at all but my brother and I was diagnosed in the same year and he was 8 years older than me and we both had HER2. I wonder why! I know cancer is a mutation but we did not live even close to each other so how could we have come in contact with something to cause this. I have so many questions and no answers. I asked the onc but he just says their is no connection. I want to know if my children might have a chance of cancer. I always thought my heart would be the problem since my family has a strong history of heart disease but mine is okay.  We were out in Sat. city traffic yesterday and I realized I or anyone has more chance of dying of a car crash than a disease these days. Or even be injured for life. I guess I will trust God and not wonder why this happened to me and my brother (I lost him in Jan.2009) but try to tell anyone if you have something that is not right see the doc. I also want everyone to have a chance for medical care. So many can not afford to go to the doc. I am so grateful I can even though I get mad at the system. I got turned over to a collection agency again for something I am not sure of. Too many bills and insurance papers I don't understand. I owe $93. and have have paid a lot out of pocket. Sorry I am ranting but how many people are losing homes and families because of things like this? Very frustrating.

    I wish all of you a good day.

    Carolyn

  • Lisa1964
    Lisa1964 Member Posts: 760
    edited October 2009

    Hey guys!  How is everyone doing?

    The heat wave here in So Fla is just awful.. I am bored silly.  Too hot to be outside and too worn out from being outside too much.

    Watching the Presidents Cup Golf Tourney and TV,  It is nice to see all the US Teams guys with the pink ribbon on the caps in support of their team-mates wife.

  • gramma23
    gramma23 Member Posts: 482
    edited October 2009

    Lisa the pro football guys are wearing pink too. I think it great too. It is weird that you can have breast met in other parts of your body like the liver, brain etc and they call it breast cancer. I was reading about this a while back how the spreading breast cancer is still breast cancer. I wonder what makes it look different from say a regular brain tumor cancer or even in the bones it looks like the breast tumor when you can get bone cancer but not be the same. It looks like with that information they could find a cure. I know in Canada they have come across the DNA of one person and they think they can do individual cancer drugs from that discovery but of course it will be a while coming I guess. From what I was reading it was for the ER+/PR+ cancers not the Her2 cancers. My brother told me he had HER2 and he had it in his throat and neck. I wish I could get his path. so I could understand that more. Of course I would be more confused than I am now I guess. Is there a HER1 & Her2 I wonder?

    So many questions so few answers. sorry it is so hot for you. My niece called yesterday and she lives in Valdosta GA and she said it was hot and dry there and I thought it had been flooding but not where she lives I guess. We are really cool here for this time of the year. Weather is just strange this year I guess. Hopefully you will cool down soon.

    Have a good day if you can everyone. Keep us posted on how you are doing.

    Carolyn

  • bluedasher
    bluedasher Member Posts: 350
    edited October 2009

    Carolyn, a breast cell doesn't look exactly like a bone cell or a lung cell. When they find the cancer, they can look at the cell and see what cell it looks like. That's why when my sister had a brain met they figured out that she had lung cancer.

    There is a HER1 and a HER3 and HER4. I think that HER1 may be the normal human epidural growth receptor. HER2 is one factor that can make cells grow out of control so it is found in cancers in a number of places, not just breast cancer. There are trials for using Herceptin for other HER2 positive cancers. A friend recently got diagnosed with bladder cancer and I noticed that that is sometimes HER2 positive and they are trying Herceptin for it.

  • Alaina
    Alaina Member Posts: 153
    edited October 2009

    Radiation Eve!

    Well, let's get the ugly out of the way first. I had a scare today.

    I was gazing at my scar this morning (as I do every morning) and I noticed thickening and pocking under the center section of the scar-line. It was same sort of "look" that the skin on my breast had prior to the cancer diagnosis.

    I remained calm on the surface, but inside I was completely freaking out! I'd read far too much (on the Internet) about cancer recurring in/on/around scar-lines from surgery, and as strong as I've been, I really don't know how I would have been able to stomach that happening.

    So I went to my PT appointment and was on the phone calling upstairs to my surgeon's office to have them take a look at it on an emergency basis. They squeezed me in and assured me in a very compassionate and understanding manner that I had nothing to worry about. It was just the skin changing as it healed. And most importantly, it was nothing that would delay radiation treatments from starting tomorrow.

    But I was scared ya'll. Recurrence is always just below the surface of primary cancer survivors, and it doesn't matter how strong and brave we appear on the outside, nor does it diminish how grateful to God we are of our current NED (no evidence of disease) status. The fear is always there...riding side-saddle with our faith. You just work every day not to let it take over your life, to focus on your faith and turn down the volume on your fear.

    On a much brighter note, and boy was THIS needed today. I went by the yarn shop and received the absolutely WONDERFUL afghan my yarnie friends knitted for me! I cannot WAIT to wrap up in it (it's HUGE!) on a cold winter's night, snuggled up in my recliner! Yet another labor of love and kindness that I've been the blessed recipient of!

    That really made my day! My wonderful support system always manages to do something right before a big phase in treatment to help me enter that phase with confidence; knowing that I am so loved and cared about!

    And speaking of love and care...I spent Saturday evening with my college sorority sisters in Phi Mu! It was our first real reunion-get-together in 17 years!!! It was so great to see everyone and when I walked in, I was greeted with applause! That was a little overwhelming, but I needed those hugs and well-wishes, and I thank each and every one of those wonderful women for just embracing me and encouraging me! And Praise God, I didn't get home until 1:30am in the morning, but my energy levels remained HIGH! Two months ago, heck even a month ago, I wouldn't haven been able to hang out like that, but I'm so glad, things are settling in to my "new normal!"

    October is proving to be as busy as I expected, but I welcome all the activities, projects, and yes, even tasks at work!

    Next month, I'm going to the LBBC (Living Beyond Breast Cancer) Conference in Philadelphia! This will be my first one, and I can barely wait! I'm taking two workshops while there; Managing Your Fear of Recurrence, and Journaling (to maybe help with this book everyone keeps telling me to write, LOL!!!)

    So this is the deal; radiation treatments daily (Mon-Fri) for about 5-10 minutes a day. I go in, strip from the waist up, put on a gown open to the front, lock my belongings in a locker and head down the hall to a room with a door about 6 inches thick. Lay on the table, slide into my AquaCradle, lift arms up over head, get situated by the techs, and then lay there to get what is essentially an xray, but a LOT stronger than your normal xray!

    Potential side effects can be itching, burning, rash, skin peeling, all in the affected area getting the radiation (left chest area, under left arm area, upper chest near collarbone). Fatigue towards the 3rd or 4th week of treatment is also possible. The great thing about rads is that the techs see you daily and can monitor any potential skin problems and nip them in the bud before they progress. More serious potential side effects could be heart damage and damage to the upper quadrant of my left lung. But nearly every one I've spoken with whose had rads has said that it's a piece of cake, a walk in the park, compared to chemo. I'm trusting that to be true.

    My first treatment will be tomorrow at 5pm. After that, all other treatments will be at 8 in the morning, so I can go to work afterwards. And if it's anything like chemo, before I know it, I'll be posting here telling you I'm nearing my final treatment!

    So here's to walking in the park...with cake!,

    Alaina

  • gramma23
    gramma23 Member Posts: 482
    edited October 2009

    Blue,thanks for the info on HER. I should do more research myself. I wish they had given my brother Herceptin first. Well the only problem is his heart had a problem so I guess it was his time and I need to accept that. It will be a year in Jan and I still wonder why.

    Alaina,I am not sure the radiation is a walk in the park but it does not take long at a time. It takes longer to undress and dress than it does to take the tx. A lot of it depends on how your skin reacts. I have some scars from burns. I do think I might have reacted that way because of the auto immune problem. Do you burn easy? Just do what they tell you and don't put any oil on before the tx. It is like frying bacon in grease when you do that. Use the soap they recommend to bathe with too. Mine said Lever 2000. I am not sure it is the thing to do but anyway whatever they tell you. I did exactly like they said and still had burns. Ask them anything that concerns you even if it turns out to be nothing. You are the one who sees yourself every day. I think after the treatments and I felt better I became more concerned with recurrence. I guess at first I was working on getting through all this stuff and now I feel better and I get scared it will happen again. I do think that is normal though. You have some great friends and I am thankful for them. We all need a support team. I have some good friends that are always concerned about me too. We have had a lot of people we know with different kinds of cancer. What is up with that?

    Have a great day everyone.

    Carolyn

  • enjoylife
    enjoylife Member Posts: 187
    edited October 2009

    Hi there I had chemo a year ago and rads a year ago and rads was a walk in the park if it would of been the only thing I had to have it would of been so easy so dont worry about it I never burnt either and it did give me a hard time with my lymphedema but I am working on it now and its controlable just a little pest to deal with but most days it fine and I am here. After all my treatments were over I was afraid I would say ok now what is it going to sneak back and get me its normal I talked with alot of people infact they probaly have a thread after treatment now what if not you might want to start one. Still looking at the hair and I am not going to say it outloud dont want my hair to hear me no pun intended..but its actually growing more sprouts Gramma I think you right I think I will be good most days I deal with it some I cry not as much because I dont want the C word to keep me down so there is something I can do for it ...we are so blessed to be here and to be in this site for support....

    Maura

  • RockstarmomPaula
    RockstarmomPaula Member Posts: 124
    edited October 2009
    CoolJust finished Herceptin 14 this morning 3 more to go!!! My nurse that does it is so awesome she has my port figured out she also figured out if I get a full bottle of saline started when she mixes my med runs it then finish saline completely I don't get a headache for 2 days, Thought on rads doing it for me was a piece of cake except for the inconvenience of being 2 1/2 hours away, On a great note I got to meet Denali and have dinner with her,that was awesome. The week after I was home the effects of the 3 weeks showed up red ,sore, blistered,oozing, nasty got some burn cream 2 days using it was all better. At my checkup last month I have no discoloration ,no hardening it was all great news. People keep telling me how great I look, I love that,except for the gentlemen the other day that told me He liked my wig I smiled and said I worked hard and earned that hair It is all mine!!! People should sometimes think before they speak. My son And I are creating a Painted Pink Ribbon Chair our Daycare center does it as a Fund Raising Event so we decided in honor of Breast Cancer Awareness Month we found a chair at the Flea Market in Denver we are going to sand it down paint it pink I got some beautiful pink ribbon fabric off Ebay a lady from my work is going to make a seat cushion for it Then I want to put Live Well Love Much Laugh Often on the wood slats at the back (in my small town I have about 40 supporters wearing pink bracelets that say that),Its my motto!! then I want to some how put some actual pink ribbons on it I dont want it to be gaudy just simple and elegant! I guess I will figure that out at the end.Then they will auction it to raise money for the Daycare Center, I will get my son to take a pic so I can post it when I get it done!
  • blessedby4
    blessedby4 Member Posts: 117
    edited October 2009

    Just finished my last chemo treatment today and continue on with Herceptin now every 3 weeks until next July.  Hurray!!!  Feels kind of strange knowing I am done, not sure why that is.  Have to go have a echo done of my heart and then exchange surgery in about 6 weeks or so.  Hope the recovery on that isn't too bad.  He is going to lift and tuck and possible small implant on the remaining breast, too hopefully match the implant side as best as possible.  New foobs for xmas!! 

    Reading a little more on HER2+ cancer and realizing it is not a good one to have although they have made great strides with treatment with Herceptin.  Have to start Tamoxifen soon and hope I don't have some bad se's with that part of treatment.  Have to do what you have to do!!  

    Glad to hear all of you are hanging in there...what choice do we have but fight!!! 

  • ccbaby
    ccbaby Member Posts: 503
    edited October 2009

    Congratulations blessedby4!!!! 

  • bluedasher
    bluedasher Member Posts: 350
    edited October 2009

    I hate adhesive! I'm in the misdst of an allergic reaction to the adhesive involved in my port removal. The surgical drape had adhesive around the surgical area and that is all inflammed and itchy. Parts are also bumpy. They said to leave the surgical tapes on the incision for 10 days but that was itching to so today the nurse said I could go ahead and take it off. Slathering on hydrocordisone cream but it isn't making much of a dent in the itch. I took benedryl to help calm the itch last night so I could sleep but I don't want to use it in the daytime.

    Congratulations Blessedby4. I think that HER2+ is good now that we have Herceptin and Taxotere. With the older chemos, women with HER2+ had a worse recurrence risk than those without. I've seen graphs for studies for treatment with AC-T chemo and the HER2+ women did as well as the HER-. The lines on the graph are pretty much on top of each other even though there was no Herceptin because adding Adriamycin improves the results of chemo for HER2+ but not for HER2-. Then in the BCIRG 006 study, results from AC-TH and TCH were about the same and both were much better than AC-T in preventing recurrence. Therefore, I think our prognosis with TCH is a bit better than non HER2.

    And being hormone positive makes recurrence a bit lower too. Recurrence in BCIRG 006 was about 7% for node negative after 4 years. They haven't published numbers for hormone negative vs hormone positive, but it means that all of us node negative HER2+ women have pretty good odds. Because you are hormone positive, yours should be even a bit better and I hope that my tumor being less than 1 cm means mine are a bit better too.

    Paula and Lisa, you are getting so close to being done. 

    Lisa, my port removal was done by a PA in vascular surgery. I was a bit worried about him not being a doctor, but they told me he does almost all the port removals and has a good record with them so I figured it was best to have it done by the guy that gets lots of practice. He had a nice bedside manner and I felt very comfortable during the removal. He did the incision over the scar from the port insertion so there won't be any additional scar and it looks like it has closed up real nicely. 

    I thought they said this morning on the radio that the storm was tapering off and would be over for now but it is suddenly really pouring - amazing God opening the heavens rain like if you saw it on a movie you would say it was a fake effect.

    Alaina, I hope you have a good walk in the park with cake. I know that it doesn't work out that way for everyone, but rads was pretty easy for me. Just a slight burn in a small area at the end - no blisters. I didn't have any rads fatigue either. And I'm fair skinned and large breasted - both things which may make it worse. I was told to use either Basis or Dove for sensitive skin for soap during rads. Also to put on aloe vera (the 99 or 100% pure stuff) and a moisturizer like Eucerin Daily Replenishing or Aquafor 2 or 3 times a day during rads. The spot where I burned was on my side. I didn't realize the rads was going that far back and wasn't putting the lotion on there at first.

  • Bold
    Bold Member Posts: 306
    edited October 2009

    Congrats Blessed!

    Hey Rock, good to hear that we are almost at the end of a LOOOOOONG year. I have 4 more herceptins and have my next one on tues. next week. I am anxious to be done. I presently have a very bad flu. It has been a week now and I still have no voice and am pooped. I do not know if it it is N1H1 but there is a good chance that it is. I did not go in soon enough to take advantage of tamiflu. GRRRR. My bad. My DH has it too. Well I guess I am building my immunities.

    I love reading your post blue. I enjoy the mind of an engineer. My DH is an architect. I wanted to marry an architect because they use both sides of there brain. They are half artist half engineers. Your mind is very good at abstracts and data. It has been a pleasure and  benefit hearing your reasearch. Radiation for me was not difficult at all.  I did not burn. I attributed it to all the nude sunbathing I did in the day. (in private) (most of the time). I used the pure aloe right after treatment and right before bed. I used Aquafor a few times a day too. I am totally back to normal no discoloration. I did have a little fatigue but it was hard to tell if it was from the rads or lingering chemo effects.

    I spoke with my onc recently and she said 70% of woman are back to normal energy levels after one year. The other 30% take a bit longer but will eventually be back up to snuff.

    Please be careful with this god awful flu. It sooo sucks.

    RB

  • trishK_
    trishK_ Member Posts: 68
    edited October 2009

    BLUEDASHER- thank you somuch for that information you just gave us! i actually was just researching the reocurrance rates and was getting confused by the date, you made it much more simple!

    I am having anxiety about reocurrance right now, i am done on my herceptin until June. I feel like there is so much information out there and some of it is scary! I had 2 lymph nodes positive and that is haunting me. I guess i cant live in fear, but everytime i hear about someone getting cancer again it just sends cold chills down my spine and a knot in my stomach.

     How are some of you dealing with the anxiety?

    I just started Tamoxofin and can look forward to more of thes lovely hot flashes! I am only 40 and now have more in common with my mother than ever!

    Yes, the rain is supposed to stop later today here in SoCal, but boy has it been so nice to be cool!

    Congrats BLESSED! It is so nice when that last chemo is done!


    Trish

  • KristyAnn
    KristyAnn Member Posts: 131
    edited October 2009

    Hi Everyone,

    Just stopping by to say hello and encourage everyone to hang in there- I finished herceptin last April after having mastectomy, TCH, Herceptin a year, rads -33 treatments, hysterectomy- I have hair again, normal energy levels, am working with a trainer to get more in shape and rebuild arm strength after the rads - i just joined the clinical trial for neratinib.

    I still think about cancer but there is not as much anxiety as before and most days I "almost: forget it! Hair came back grayer and its still short so there are reminders- but that is OK. Still waiting on the eyelashes to get long enough for mascara LOL.

    Hang in there Ladies- this too shall pass!!!!!!!!!!!!!!!!

    Kristy

  • ccbaby
    ccbaby Member Posts: 503
    edited October 2009
    Trish...I had HUGE anxiety issues about a recurrence a few months ago after my 3rd chemo. All I did for that week was cry and think about it too much. I am better now. I just try not to think about it as much and am doing everything humanly possible to hopefully prevent a recurrence. I am going more organic with my food and health/beauty products, I have been seeing a homeopathic doctor since finding out about my cancer. I know that I have been in great care with my medical doctors and have gotten the best treatment possible. What more can we do but to worry about it? That is something that I am going to try not to do anymore.... 
  • CaliforniaCloud
    CaliforniaCloud Member Posts: 105
    edited October 2009

    Congratulations to Blessed and Bluedasher.  Alaina, thanks again for another journal entry of your blessings and treatment events.  Bold, I hope you feel better soon.  Grandma, you have travelled a rough path, but your faith remains steady and I find your posts uplifting; thank you.

    I went out for a haircut this evening, but the hairdresser was timid and only gave me a trim.  I was hoping for a little shaping, or texturing--what am I trying to say?  I have no idea because prior to chemo I wore my hair very long and trimmed it once or  twice a year.  Anyway, the purpose of my visit was to make my very short hair to look a hair-style choice instead of a failing chia pet.  The hairdresser offered to do a #1 shave all over, but I don't think I gave her the response she was looking for--as in an understanding what she was offering--because that's when she said she would just trim it.  I am pleased though because the trim around my ears looks much better.

    Fears of recurrence are not thoughts that occupy my mind.  I have thought about it, but my imaginary future shows me handling it just as I have, and am, handling it now, so the concern just seems to dissolve away.

    Energy level three months post chemo.   Most days I am fine, but I do find myself getting to bed earlier during the week and resting more on the weekends.  I did, however, get a cold and it took about 18 days for me to fully recover.  Eighteen days of feeling crummy was really a bummer, but I also felt proud to know that my body--without medical intervention--was fighting for recovery.  Oh, I should also note that Chemo brain seems to be a thing of the past. Woohoo! 

    Tomorrow night is the 2009 Cancer Awareness Event at the local cancer center and I will be participating in the Cancer Survivor March.  My husband, mom, and I are celebrating with dinner at our favorite restaurant before the event.  I think we will be smiling all night!

    I wish us all the best and send out daily prayers of health, happiness, and strength.

    Cheers!

    Cloud

  • Lisa1964
    Lisa1964 Member Posts: 760
    edited October 2009

    Congrats Blessedby4. Getting that last TCH is a great feeling.

    And a big congrats to everyone finishing rads, herceptin, etc.

    Bold, sorry about your flu.  Stay home and lay low.

    Blue, I met with the surgeon that will be removing my port and I was very happy with him.  The procedure will be done at an out-patient surgery center.  I will be knocked out briefly (for which I am grateful).

    I need to rant:  I joined a "Show your Support for Colon Cancer" group on Facebook because I have a good friend with Colon Cancer so I was showing my support for her.  I received a private mass message this morning via that support group from a woman saying that breast cancer gets too much attention and "she is sure" that it is "like 6 or 8 down the line for cancer deaths".  I was very offended that she would bash ANY type of cancer and also offended that she sent out this mass message to thousands of people and did not do any research before attempting to quote statistics. Ticked me off.

    Lisa