Taxotere, Carboplatin and Herceptin
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ccbaby: Sorry to hear you have to change doctors! Hang in there!
Lisa1964: Yeah for you going for your final Herceptin!! What an accomplishment and now you can move on with life! Hope you celebrate what you have been able to get through and enjoy a great day!
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I am in the neratinib trial- there is a board on here for those of us in the trial
Kristy
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Gramma & Blessed...Thanks so much!
Lisa...Congratulations!! What a great feelingto be done!
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Gramma & Blessed...Thanks so much!
Lisa...Congratulations!! What a great feelingto be done!
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Lisa1964 I am so happy for you ,Im counting down I have 3 more ,Bold is right behind me,Celebrate BIG I intend to!! We have come a long way ladies, In your famous word Lisa there Is Light At The End of the Tunnel!!! WOO HOOO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! 0 -
YEAH, YEAH Lisa!!!! So glad you are PFC all the way! Hugs and take care!
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Hi - been a while - Chemo 3 of 6 last week. Hate the taste/feeling in my mouth, tummy. When the nausea goes away, does anyone else get really bad headaches?
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Congratulations, Lisa! We're all so happy for you!
Becky
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Congratulations on PFC Lisa! PFC, PFC!
We are all there behind you in line 
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Thanks for all the well wishes guys. I don't think it has completely sunk in yet. Now I just can't wait until all the lingering symptoms subside. When the port comes out on Monday, maybe then it will seem more real.
My onc has asked me to think about joining a trial. It is an oral medication that is similar to herceptin that I would take for one year. He thought that since I did have 2 positive nodes, I should at least listen to what his research nurse had to say. The hope is that this new drug will further decrease the odds of a HER2+ cancer from recurring. What the heck, it is free to listen and then I will report back here.
Have a great day everyone. And there is LIGHT AT THE END OF THE TUNNEL!!!!!!!!!
Lisa
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Lisa, I am so happy for you. I am glad for you to get your port out too. I wish I could. I think I would feel more like I was finished. I don't go back to onc until Dec 2 and I guess we will talk about it then but he said 2 years but I had 3 nodes positive and the sentinel node next to the tumor was as big as the tumor which was over 5 cm. they took out 22 nodes and radiated the rest of them in the area when I did radiation. I have not heard of the trial. I sure hope it works for anyone on it. It did not take long for the bad taste from H only to go away.
Christine, I don't think I got bad headaches. It has all been so long ago it seems. I am sure it has something to do with that poison. Ask your nurses or doctor. I used to have headaches before cancer but it was a tooth pressing on a nerve. Not a bad tooth just a nerve in it's way I guess. I got an implant and that solved that.
Have a good day everyone. good to here from you Kristy Ann.
Carolyn
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Christine: I got headaches too. It is not uncommon. I would remind you to the point of great redundancy to drink a boat load of water that is how I got them under control. That and time and advil. I am sorry that you have the SE. I believe that mine was from the herceptin. I only have 3 left and then I am done forever and ever!!!!!! My thoughts are with you.
LISA!!!!!!! Totally cool!!! You did it completely!!!!! Congrats!!! Damn it I mean it!!!! You Rule!! What a heck of a long road. Now get deported and move on out!! I have heard that the longest recoveries are a year and a half. I mean to be at 100%. Most beat that. I am still very fatigued.I just saw the doctor yesterday for herceptin # 13. My DH and I are just getting over the "FLU". I had an Echo and that seems to be OK. However I hear and feel my heart as though it is somehow stressed. It could be psychosomatic. I still have trouble sleeping. During the day I am fine but at night it is hard to quell the fears. It is time to but this behind us, but it is hard when I see my reflection or feel pain in my arm or breast area. I redirect and let it go. I am curious about your study. Do you have any details? Again a heartfelt congrats girl. You deserve a lifetime of love and happiness and now go get it!!!!!
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It's been quite a while since I was on these boards.. I didn't realize how much I missed reading everyone's posts. Lisa1964 - oh my gosh, congrats on the end of Herceptin. And Bold.. you are so close. As for me, I will (FINALLY) be done with chemo on Monday, November 2nd. Then continue on with Herceptin through May. I start my rads in mid-December. I am so looking forward to growing some hair back. I am sick and tired of being (insert F-word here) bald !! Not to mention no eyebrows and barely lashes. Lisa / Bold.. how are you two doing on the hair thing? I was reading on the Hair thread, but didn't see any (recent) posts. I recall reading (months ago) your posts about your hair. Chelev posted a recent pic of herself and her healthy hair growth. I'm so jealous! Guess I'll never get over missing my long hair. Glad to be back in your group.
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I will never get over still missing my hair ladies I thought of getting it back for every holiday season and here it is 14 months later and because of Taxotere I have never got my hair back its way to bald to wear without a cap looks dumb with a cap now that winter is here don't want to smother it with a wig I hate them and saw a derm doctor he blamed it on my dad being bald hello that is such a lie I had thick hair they thinned it when I cut it so I hope everyone gets their hair back and I am ready to fight and find out what the h..l happened to mine this derm didn't even ask me if I had hair other places ...I am seeking another opinion and I don't know if there is a hair specialist but it would be something I would send my child to college for hmmm
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Lisa, Congratulations!! I wish you and Dasher the very best. The pair of you have offered so much wonderful information and advice. I love to imagine what it will feel like to have my port removed; Lisa, please pop in and share your experience of it.
Bold, only three more to go! Excellent!! I am glad that you and your husband have recovered from the flu.
I had another Herceptin infusion today and I am happy to report that my blood counts were normal. Gosh, I remember how worried I was that I would never get off of the Neupogen shots! I even purchased another 10 injectables just to be safe. Looks like I will be able to make a Neupogen donation to my Cancer Center.
I will have my second post-chemo echo-cardiagram and annual mammogram sometime this month. After that, my doctor appointments should settle into a nice routine of nothing more than my oncologist and Herceptin every three weeks, and an echo-cardiagram every three months.
Ladies still in chemo, hang in there, drink a lot of water, and know that soon you will feel so much better that it may be hard to remember how crummy you feel right now.
Cheers!
Cloud
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Hi Everyone. I went to have my port flushed yesterday and get my blood tests. I knew I was feeling weak when I walked and my husband walks real fast so I quit walking in the morning with him especially when I have to work in the evening. Any way my HG was down to 10.2 so I gave in and got Procrit. I just did not want to feel so crummy and have my heart beat like it was coming out of my chest every time I got busy. I felt really dizzy too. I sure wish my bones would get busy and make HG. They all said my hair looked so good but I know it doesn't. It has grown a tiny bit but not so much as most would notice it. I saw on the "doctors" that if you eat eggs, raw oysters,carrots and salmon it will help your hair grown and be healthy.What I have is healthy but I can deal with it. I talked to a woman I have visited with when I was taking chemo in 2008 and she is still taking it. I asked her how long she will have to come in every week. She said she did not know. She has been taking chemo for 5 years every week. Her hair is growing back in again. She has bone met from what I gather but did not ever hear what it started as. I see others that have been there for years. A friend's mother has been going for several years. When do you say is enough? I am so blessed that mine is over even if I don't have a lot of hair. My breast I had the lumpectomy is hard a swollen now. I am not sure why and I mentioned it to the nurse giving me my Procrit. she asked if I had mentioned it to the doc and I told her no I was going in for the radiation doc checkup so I would then if it is still like that. I am not sure if it might be some lymphedema or what. It hurts and gets really red.
Bold, I am sorry you have had the flu at your house. I hope you feel better by now. 2 of my grandsons and my daughter in law had it. I was around one of them when he was running fever and the young man I work with was running fever the day I worked with him and he called in the next day so I guess I may end up with it. I hope not! I was afraid my grandson that has asthma would be real bad but so far the Tamaflu has helped him.
I wish all of you a good day. I have to go to a meeting at the bank this morning. 7:30 is too early to listen to that dry stuff, but better than getting an infusion.
Carolyn
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Good morning sistas!! I just wanted to report about my hair. Even though there is a great hair thread. I have about an inch to 2 1/2. This depends on where on the head. I love it! I look pixie like. I have it uber blond. I too miss my waist length hair, but its allllllll goooood!. It is creating a new me. My forehead is wrinkly and I have always hide behind bangs. I have no bangs now. But again who cares. I know that it will grow. I am so grateful to be alive and still in the game. I am sooooo looking forward to being finished with herceptin. The body aches (hips and lower back) and sticky nose. weak nails, slow hair growth, stress on the heart, fatigue,altered taste, diarrhea, slow weight loss,pain in surgical area, headaches and heartburn...... I'm just saying....
Still it wayyyyy worth it!
XOOX
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Bold are you going to have to take anything else after you finish the Herceptin? I have heard about a lot of other meds but I am not sure if they are just trial or are being used. I was only Her2+ no ERor PR+. I am finished I think with chemo now if I could just finish with trying to get the blood back up and the sore in my mouth well.
Carolyn
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When you say chemo are you considering herceptin as chemo? As it is really not. Herceptin surrounds the cancer cells. Where as chemo kills all cells that are dividing. Sorry I am confused. What sores in your mouth? Is it related to herceptin. How are your blood tests? What is low?
It sounds that you might have some autoimmune stuff going on. I am a P.A. by degree. I hope that you rebound quickly.
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Bold, I just wrote and long explaination and lost it, but here it is a nutshell. Are you going to take Tamoxifen? I do have autoimmune stuff going on. I have a sore in my mouth since June 2009 and dentist is not worried about it. I want some answers there. I do not believe sore has anything to do with any chemo. I finished herceptin in July 2009 and TC in Nov. 2008 so I am not taking anything except for my low red blood cell which I take Procrit. Everything else is good.I hope you are doing better by now and soon you will be finished with all this stuff too.
Carolyn
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Just a quick follow-up. Your low red count can retard healing. So maybe that is why it is taking so long to heal. I would like to ask you and you can reply by P.M. How is your digestive system? And I mean the whole thing from acid reflux to bowel and rectal area? I will explain privately. As far as tamoxifen is concerned, no I am not on hormone blocking drugs. I only had 2% rectors and it is to negligible to treat. I am "now" post menopausal and loosing weight to be at my optimum BMI. Other than that I am defenseless but hopeful.
I am glad the boards are so quite. I pray that it is a good sign.
Love and healing.
Rita
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LISA!!!!! I am so stoked for you!!! YAY!!! I will look forward to my day next June when i get to be done with the herceptin and rid of the port just in time for summer tank top season!!! = D
Bold, i had the heart issues as well, it was like all i could hear when laying down was my heart beating as if i had just gone running! hang in there once you are over your flu and a few weeks out it will stop. i was taken in to get another muga scan as well as ekg and they were fine but i was not happy until my heart rate went under 120 in the doc's office. I had so much anxiety about my heart that it was hard for me to calm it down for them to check it! I now have a normal heart rate again. My doc just said it was elevated but nothing was wrong. A bit unerving but i guess they were right!
I am interested in that drug they told Lisa about to take after herceptin. Anyone know anything about that? I am willing to try it if the studies are showing sucess!
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I am taking Amedex ladies and haven't had any bad side effects from it I take it at bedtime and have been on it since December of 08. I was done with radiation when they put me on it.
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Bold...Can we pics of your hair??! I would love to see!!0
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I would like to see your hair style too Bold. I can not figure out what to do with mine while I go it out. I had it trimmed to try to get it to grow right but it still does not look like I would like for it too. I am too old to look like a Pixie unless it is an old wrinkled one.
Carolyn
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CC thanks for asking about my hair. I will figure will try to post before the end of the week. I get what you mean about the wrinkles Carolyn! Think of it more as a Parisian mature artist. I use a wax type balm on my hair to keep it going the direction that I want it to. Lots of fun. Maybe I am delusional but I am so jazzed to have hair period. Hope everyone is healthy and happy!!!
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Are all of you finding that you have a bald spot like a man in the back of the head that is what keeps me in a hat but its also thin everywhere else but I know a lady who her hair is thick but has the round bald spot at the crown???
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I am filled in everywhere. Just shorter in the front bang area.
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The Amazing Alaina Bracelet!!!
My good friend (and extremely talented jewelry designer) Kathy Reading has created a beautiful bracelet for Breast Cancer Awareness Month in my honor! I am so stunned and humbled, I hardly know what to say, but to say that I love Kathy is not even enough!
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If the Amazing Alaina bracelets sell out, please take a look at some of her other gorgeous designs! Your support of her would be a small measure of the gratitude I have for everything she has done for me! She is truly a wonderful person!
I am blessed to be loved and cared for so creatively by her!
Alaina0 -
Hi everyone,
I am happy to report that having the port removed is a BREEZE! I was wheeled into the operating room at 12:02 and wheeled out at 12:27; in the car and on the way home by 1:25. It is now 5:15pm in my time zone and I am just fine. No pain or discomfort at all. I have not even had tylenol. They did knock me out completely, but I was barely out before I was awake again.
On the hair topic. I have a full head, about 1 inch to 1 3/4 inches. I had it trimmed into a "starter style" about 2 weeks ago. It is very wavy and curly and has life of it's own .Not my idea of a style, by it is hair. I will be happy when I have bangs as what I have know just rolls up to nothing in the humidity.
Wishing you all a happy s/e free evening.
Lisa
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