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Taxotere, Carboplatin and Herceptin

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Comments

  • policewife84
    policewife84 Member Posts: 86
    edited March 2010

    Hi! I am having the glutteal flap done. I'm tall and thin, so the only place they have enough tissue is in the glutteal area. My plastic surgeon explained that there will be an incision on each "cheek" that will run along the same line as a pair of thong panties.He said while the glutteal flap is a little more difficult to perform (a longer surgery due to the blood vessels and such), that the results typically end with more youthful breasts and the healing is a bit easier that some of the other flaps like the DIEP. The bonus is I also get a butt and thigh lift as a result. Not bad - If I have to go through this, I'm excited about the added lifting and tucking! My husband and I were laughing - I find it funny that my new breasts are going to be made out of my rear end! I'm just worried about the pain aspect. I've never been through anything like this!

  • Jaimieh
    Jaimieh Member Posts: 925
    edited March 2010

    It is also called a hip flap if we are talking about the same area :)  I had it done in January and I think it is a wonderful option.  I still have a little bit of healing to and then I will be having stage 2 at the end of April. 

  • policewife84
    policewife84 Member Posts: 86
    edited March 2010

    Thanks so much for your reply! If you don't mind my asking -was it really painful?

  • Jaimieh
    Jaimieh Member Posts: 925
    edited March 2010

    I never mind questions.  NO AT ALL !  I didn't find the surgery to really be painful the hospital that I went to uses a device called On-Q ball that delivers pain medication to the donor site.  I was irritated by the drains but that is part of the process for me.  My body likes seroma's and hates JP drains...lol...  I was up walking the halls within 24 hours and I was released early.  I think that it really helped that my surgery was under 5 hours for bi-laterials :).  I had my surgery done in NOLA so once I was released I went and rested that day and started sight seeing the next.  I honestly felt that good.  I was slow and looked like a bomber but I was feeling pretty good. 

  • Unknown
    edited March 2010

    Jaimieh... My body prefers seroma's too. I'm still recooperating from radiatioin where they radiated a developing seroma for the last 4 days of my treatment and it became infected (first week in January). I'm now undergoing physical therapy to break up the resulting scar tissue, reduce the pain and increase my range of motion.

    Police Wife... I didn't have reconstructive surgery but my bi-lateral was done on an out patient basis. I left post op about 4:30 pm and by 5:00 was comfortably ensconced at a Hampton Inn down the road eating cold fried chicken livers and a Wendy's frosty with all my sisters laughing and joking with me. My anesthesiologist did a nerve block that prevented extreme pain for several days. I was uncomfortable, but nothing that Hydrocodone or Tylenol Extra Strength couldn't handle. Went back to the surgeon's office the next morning and, after a 2 hour drive, was home by 2:00. If truth be told, I'm in more pain now, with the seroma/radiation complication than I ever was after surgery.

    Congratulations to all you gals that are finishing up. I'm right behind you and should have my last Herceptin in mid-April and get deported in May.

  • policewife84
    policewife84 Member Posts: 86
    edited March 2010

    Oh goodness it great to hear you did so well and that it wasn't too awfully painful! And outpatient to boot! I'm looking at a 4-5 day hospital stay, just to make sure the tissue does what its supposed to. My husband is more concerned about how he is going to keep me entertained and occupied for that long - I have a short attention span and get bored quite easily! As for the pain, it sounds like it wouldn't be any worse than the Neulasta injection. For whatever reason, that shot leaves me HURTING for 2 days afterward. Its the most awful joint pain - I was having to take Hydrocodone just to get somewhat comfortable, and even then it was a stretch. I guess it's doing what it should though, my WBC haven't really dropped since I started treatment, and I go for my 4th round next Tuesday. Congratulations on finishing your treatment. I can't wait! Thanks again for sharing your experience.:)        Brandi

  • mofend
    mofend Member Posts: 3
    edited March 2010

    Hi - new to this board - have been on the chemo 2010 board most of the time.  Question for any of the ladies on TCH - has anyone had horrendous "menstrual" bleeding?  I put the quotes around it because I'm having something that's unlike any period I've had before. It has lasted three weeks now, since right after my first treatment and it got so bad with huge clots coming out the other night that I ended up in the ER.  It subsided after about 36 hours, but it's still continuing at an annoying rate.  My blood levels were right above needing to be transfused and then they started to go up ever so slightly - getting them checked again tomorrow.  I'm 49 and wasn't sure if anyone else on this regimen is experiencing all this fun, or if it's just me.  Thanks for any input and hello!  Mo

  • ccbaby
    ccbaby Member Posts: 503
    edited March 2010

    PoliceWife...I had a HIP/GAP flap surgery in December at NOLA and sailed through it. The only pain I had was the donor site and it felt like a bruise. Like Jamie, I was up and ready right after surgery. I wanted to get up and get the catheter out of me that night, but they wouldn't do it till the next day, lol I was released a day early and went I went shopping with a lot of walking the day after and then rode in the car the 11 hour trip back home (we divided the trip into 2 days) with no problems after my follow up visit..  I just had my second stage last week, and I will admit I am in a lot more pain than last time. But that is because I had a lot of things done, and my pain comes mainly from lipo done on hips, thighs and legs and I had an implant put in both my flap breast and healthy breast.

    Mo...I didn't experience a period like that. I haven't had a period since right after my first chemo treatment, which was almost a year ago. Hopefully someone else can chime in and offer some advice.

  • ipohgirl
    ipohgirl Member Posts: 56
    edited March 2010

    Dear Ladies,

    Been awhile since I last posted. Been pretty busy of late.

    Completed my 18th Herceptin last Thursday. Feeling a bit lost, actually. Waiting to get into neratinivb trial next week. Meanwhile, there's a bit of funny pains below my collar bone and deep inside my right foot when I stand up. Only when I stand up............

    Lisa,

    You are in my thoughts. Chin-up, don't fret about it yet since we all do not know what is  happening yet. Remember, we will face every battle together, all our brave sisters here.

    BTW, the stage 4 (uterine) friend who refused treatment passed away last Wednesday. It is exactly a year since she went for her op. I am dreading going to her funeral. I am really a very weak person with no guts............... 

    Hugs.

    Ipohgirl 

  • Lisa1964
    Lisa1964 Member Posts: 760
    edited March 2010

    ipoghrl - Good luck on the neratnib trial.  I tried and just could not tolerate the drug.  There was no doubt that I got the reall deal not the palcebo.

    mo - You should really have a gyno consult with your onco about this.  Most of us never had another period after the first TCH.  Good luck.

  • allisontom911
    allisontom911 Member Posts: 99
    edited March 2010

    Lisa1964 - good luck with the bone scan. I will be sending good thoughts your way.

    Mo - I just had a baby in October and got my first period day of cancer diagnosis, then I got a period 3 weeks later right after my 1st TCH, I have had none since. I had horrible cramps in January when I should of had a period but never had one. Nothingsince either. I just turned 38.

    I go for treatment #5 Wednesday and I hope it doesnt get put on hold because I have a horrible cold. 

  • Jaimieh
    Jaimieh Member Posts: 925
    edited March 2010

    Mo- I also pnly had one period after my TCH started. I got my period back one year exactly after I was diagnosed.



    Lisa- I am thinking of you and I hope you bone scan goes well.



    Lisa(ipoh)- I am sorry to hear about your friend :( Good luck with the neratnib trial. I am hoping to get on it after my reconstruction is done.



    Christy- now I am scared about the lypo but I am still going to do it ;).

  • ccbaby
    ccbaby Member Posts: 503
    edited March 2010

    Jamie...I didn't mean to scare you....I knew what I was in for going in to all of the lipo...and I can already see results (under the bruises) and it will be all worth it in a few weeks when I am healed! You may not need as much lipo as I had.  

  • cakelady
    cakelady Member Posts: 176
    edited March 2010
    I had my last Herceptin today guys!!  Woo Hoo!   Now I need a last MUGA and to go get that dang leaking expander replaced. and then get deported!!
  • ccbaby
    ccbaby Member Posts: 503
    edited March 2010

    Congratulations Wendy!!! It is a great feeling to get things all rapped up!

  • Juli-CA
    Juli-CA Member Posts: 13
    edited March 2010

    Stlcardsfan- I thought I was the only one with the pulse in my ears during chemo.  It did go away after I recovered from the last treatment but was especially annoying at night when trying to go to sleep.

    At 2 1/2 months PFC I have developed joint pain in my hands, elbow and knees.  My onc thinks it is a residual affect from the taxotere and not the herceptin, but he can't tell me if it is permanent. 

    Lisa 1964- I'll be thinking of you and praying that you can deal with whatever is found.

    "Deported"  what a great term!  In some ways I wish that I had be given one as my arm has been used as a pin cushion for the past 8 months but your comments have made me think I was better off with out one. Thank you all for the great information.  It's very helpful.

     Juli 

  • Jaimieh
    Jaimieh Member Posts: 925
    edited March 2010

    Christy~ thanks for the encouragement I am going to need a lot of lipo but I figured a week or 2 worth of discomfort is worth it in the long run.  Glad you made it home and I hope you are recovering.

    Lisa~ Thinking of you.

    Wendy~ Congratulations! 

  • weety
    weety Member Posts: 378
    edited March 2010

    CONGRATULATIONS cakelady!!!  Can't wait till I'm there!

  • Lisa1964
    Lisa1964 Member Posts: 760
    edited March 2010

    Ya Wendy!!! Getting deported is a wonderful feeling!!!

    Thanks for the wishes and thoughts everyone.

    Have a great day.

    Lisa

  • blessedby4
    blessedby4 Member Posts: 117
    edited March 2010

    anneoz:  I have had no issues with hair coming back!  I did lose all my eyelashes after I finished the chemo portion which really threw me since I hadn't heard of that!  Hopefully someone else will give some thoughts!

    cakelady:  Congratulations on being done!  On to deporting!!!

    So good to see more and more of us being able to say were done!

  • blessedby4
    blessedby4 Member Posts: 117
    edited March 2010

    anneoz:  I have had no issues with hair coming back!  I did lose all my eyelashes after I finished the chemo portion which really threw me since I hadn't heard of that!  Hopefully someone else will give some thoughts!

    cakelady:  Congratulations on being done!  On to deporting!!!

    So good to see more and more of us being able to say were done!

  • gramma23
    gramma23 Member Posts: 482
    edited March 2010

    Lisa1964, I am thinking of you and I am also going through a scare of recurrence. I had a needle biop and it came back not enough to tell if it was cancer so on the 24th I will have what they call a punch biopsy. they will have to make a small incision and take a chunk out and sew it up. she said just a couple of stitches and I could go to work after it. I am not sure because I am still tender from the needle thing! I think I am getting to be a sissy now. I am going to find out about a trial on the 17th but I may not get to be part of it because of the possibility of new cancer. I guess we will see. I see why he did not want me de ported now and also the red blood count being down and not coming back,

    Cakelady I am happy for you and I hope you can get all this behind you soon. I am glad most are getting much better too.

    Carolyn

  • rayhope
    rayhope Member Posts: 75
    edited March 2010
    Lisa:  Still praying for you.  I hope you have good news to report soon.
  • AmyIsStrong
    AmyIsStrong Member Posts: 426
    edited March 2010

    Carolyn and Lisa- we stand with you in love and support. Please update as soon as you learn something. This stuff is so hard. The waiting is the worst! But you are NOT alone!

    Amy

  • Gin52
    Gin52 Member Posts: 272
    edited March 2010

    PoilceWife - Have you tried taking Claritin to help with the Neulasta pain?  It does help a lot!  Good thoughts and prayers for those headed to surgery, as well as for all of us facing this horrendous diagnosis!!

  • rayhope
    rayhope Member Posts: 75
    edited March 2010
    Carolyn:  Praying for good report for you also!  I know the waiting is hard.
  • weety
    weety Member Posts: 378
    edited March 2010

    Anyone with messed up bloodwork AFTER finishing chemo?  My blood work is still all over the board 3 months after finishing chemo.  WBC's are kind of staying in the 2's and 3's with an occasional bump into the 5's.  Platelets are in low 200's and still dropping.  I'm curious if anyone else had these problems. 

  • ccbaby
    ccbaby Member Posts: 503
    edited March 2010
    Weety....My WBC was low all during my chemo and still is even 8 months PFC. It is at 2.4 and my RBC is 3.7. They keep telling me that it just takes a long time to recover after chemo.
  • Unknown
    edited March 2010

    Cakelady!!! Congratulations on your last Herceptin!!!

    I finished Herceptin today too!!!! YEAH!!! I didn't know it was my last day until I got home :-( I had no chance to say good bye to my chemo lounge friends or the staff that took such good care of me (nor to ring the bell and get my picture taken to add to their "Survivor's Wall of Fame".) It's been a long year and the gals here on this board have been so encouraging and helpful. I wish you all the best!

  • ccbaby
    ccbaby Member Posts: 503
    edited March 2010

    Congratulations Swampy!!!! WOO HOOO!!