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Taxotere, Carboplatin and Herceptin

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Comments

  • specialk
    specialk Member Posts: 9,261
    edited June 2012

    mt - if you get short of breath, elevated pulse or feel like your BP is high - definitely an issue.  When I went in for weekly labs right after I had swelling they immediately made me sit down and took my BP, which was normal, but I looked like a human balloon.

  • dancetrancer
    dancetrancer Member Posts: 2,461
    edited June 2012
    mt4ever, also, weigh yourself daily at the same time.  Any big changes, call your onc with that info.  That will tell them how serious it is. 
  • dancetrancer
    dancetrancer Member Posts: 2,461
    edited June 2012

    Hey all...anyone get dx'd with "pre-diabetes" from the steroids?  Doc ran an a1c on me after I told him I was seeing bubbles off and on in my urine.  It was just slightly elevated beyond normal.  Said they see it a lot, expect it will come back down.  Of course I'm worried it won't.  Y'all know my personality by now. Tongue out

    Hgb up a whole point since Wed to 9.1!!!  And whites up!!!  And kidney function excellent.  So lots of good news to report, too!  

  • lago
    lago Member Posts: 11,653
    edited June 2012

    I didn't start taking a diuretic till after chemo ended and the fluid retention didn't go away. My weight would increase eventually to 4-12lbs on chemo

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited June 2012

    DT, unfortunately, I am diabetic and my sugars went through the roof with the steroids. They are havng trouble coming back down enough for me. My a1c was 9 my normal is a 7. So I am over. Hopefully it will continue to drop now. My red count dropped to8.9 we are waiting to see if to rebounds next week. I don't want another tx. I already had two tx during chemo. I keep hoping that all the SEs disappear! What the heck is taking so long. And, I am really NOT complaining, I know it all takes time, I just am hoping it hurries up! Much love to all.

  • vickilind61
    vickilind61 Member Posts: 143
    edited June 2012

    My scalp is starting to tingle and feel, well, weird.  And my tongue is still feeling weird. 

  • dancetrancer
    dancetrancer Member Posts: 2,461
    edited June 2012
    moonflower, you are not complaining!!!!  This chemo ride essentially sucks.  LOL  It is what it is.  I hope your recovery hastens and that a1c comes down!!!  And come on reds - climb!!!  So hope you don't need another transfusion either.  How many weeks PFC are you now?  I'm just 9 days PFC, so still in the thick of it, but I hope past the worst!  Much love back to you and all as well. 
  • Relda
    Relda Member Posts: 103
    edited June 2012
    Yep Vicki that's the beginning stages of the grand hair exit!  The scalp weird/sore feeling is so odd, never felt anything like it.  But it really does go away as soon as you shave off the remaining hair Smile
  • vickilind61
    vickilind61 Member Posts: 143
    edited June 2012

    relda, I am going to have my DH take the clippers to the rest of the 'hawk tomorrow.  Was planning on that anyway.  Scalp is just all tingly and itchy in random spots.  Kinda looking forward to it; just hope that the pit hair, and netheryayah hair follows.  Oh and to not have to shave my legs, heaven!

  • Relda
    Relda Member Posts: 103
    edited June 2012
    Oh it will!  It's a glorious thing, no shaving for months!!  And for me, no disgusting chin hair!  Its all sorts of awesome!!!  Laughing
  • vickilind61
    vickilind61 Member Posts: 143
    edited June 2012
    ROTFLMAO!!!!!!!!!!!!!!!!!!!!1Laughing
  • hbb
    hbb Member Posts: 84
    edited June 2012

    Well my onc thinks the rash might be caused by the Herceptin. Sooooo, done prednisone to try to get rid of it and a big guessing game to follow. Yippee

  • GrandmaV
    GrandmaV Member Posts: 1,045
    edited June 2012

    lago and specialk - what diuretic are you taking?  I'm on Chlorthalidone 50mg/day  and it doesn't seem to be doing anything.

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited June 2012

    DT, I am 15 days post my last chemo. Two weeks. And the d train keeps reappearing. I had to take lomotil again. Perhaps I should watch what I should eat for more than the day after it quits LOL, no more salad the day after it stops. Even if my mouth is watering for it. Translation, I never should have eaten the grilled chicken salad on Thursday. LOL

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited June 2012

    Hbb, hope the steroids work! Vicki, when the nether region hair goes, we call it the exploding bunny syndrome. As in "a bunny must have exploded down there!"everyone have a good weekend.

  • dancetrancer
    dancetrancer Member Posts: 2,461
    edited June 2012
    Uggh moonflower...I've had 2 salads today b/c my white count was up, and I was craving fresh greens so...stomach is rumbling...oy...hopefully I have an uneventful night ahead of me!  So easy to want to rush back to our normal selves, isn't it?  I will follow your insight and take it easy on the salads...as I do believe you are on to something there!  
  • ashla
    ashla Member Posts: 1,566
    edited June 2012

    The bald head , missing eyelashes and lower than expected regrowth was alot harder for me to deal with than I expected. The hairless rest of me however was GREAT. Even weirder is tht wih regrowth it's almost all the same length! Everywhere! One bonus after chemo was a beautiful glowing complexion!



    I describe the weird scalp sensation I had as the feeling you get when you remove the rubber band from a very tight ponytail. It comes on suddenly and doesn't last long.

  • lago
    lago Member Posts: 11,653
    edited June 2012
    GrandmaV its a combo of 2 drugs: Triamterene 37.5MG/HCTZ 25MG |1/2 tablet
  • vickilind61
    vickilind61 Member Posts: 143
    edited June 2012

    dance, hope your tummy is doing better.  Smile

    moon, I am a week out from my first tx and, while the d-train is no longer at the station, my bowels are definately tender.  Have to think about what I am eating or it barks at me.  Other than that and, as I mentioned, the tingly scalp, I am feeling really good.  Hoping this will be the pattern for me the entire circuit.

  • specialk
    specialk Member Posts: 9,261
    edited June 2012

    grandmav - I am on the same drug as lago

    moon - try taking a probiotic, if you haven't already.  This was recommended by one of the onc nurses and made a huge difference for me - I was always D train, never C!

    Sadly, never had to stop shaving my legs during chemo - just did it less often.

  • dancetrancer
    dancetrancer Member Posts: 2,461
    edited June 2012
    Thanks Vicki - I made it through the night without incident...lucky!!! 
  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited June 2012

    I am on a probiotic, eat active culture yogurt and it doesn't help. It's not c-diff, as occasionally a firmed stool appears before going all wonky again. I am just extra sensitive and probably have developed colitis from all this. I will be seeing my mo Thursday and try to figure this out, I see a colonoscopy in my future, don't ya think!?!

  • vickilind61
    vickilind61 Member Posts: 143
    edited June 2012

    So I should be hitting my nadir tomorrow and the following 3 days.  Going to stay in my office as much as possible.  I am going to the salon tomorrow and have my daughter take off the Mohawk.  The pink has faded so much and it is starting to fall out.  Not big yet; if I pull gently, I get 5 to 8 strands, but my scalp is driving me crazy!  Tingly and tender.  And, my face is broke out SO bad, down my neck.  It is bad.  Let's see, oh yeah, my nose is running/dripping, and I am getting raw spot around my nose and my mouth.  My lips feel so tight; there is not enough Vaseline on the planet!

    Keep CO in your prayers; we are on fire everywhere.  The latest Waldo Canyon, at 2500+ acres, is at my back door. 

  • Denielle
    Denielle Member Posts: 13
    edited June 2012

    Vicki I had severe Mucus Membrane side effects especially after the first 2. Nose bleeds all day, oral sores, dry lips, cracks at side of mouth, blisters back of throat. Could feel them down my esophagus and into my stomach. Just a burning. Even had rectal and vaginal membrane breakdown, and bleeding. Just had to ride through it each time. I guess that was the ONE side effect I was destined to have EACH time. They did decrease in severity after each though. And especially after I started juicing just before treatment 3. But as for the rest, they varied each treatment. The D train visited EVERYTIME as well and had night time accidents at least one time a treatment. BUT I also had the C train and ended up in hospital with neutropenic fever AND intestinal infection due to being "backed up" after treatment 1. Had Neulasta shots after each one after that. Claitin for the pain day of and first week after. Also had to take vicodin because my bones felt like glass. Unfortunately nothing else touched it. But I also have fibromyalgia so my muscles were in just as much pain. I used a humidifier with some relief. Also used eyedrops (natural tears) because my eyes felt dry and EVERYTHING seemed to stick to them. Any piece of lint or whatever was in the air...lol

    I know such a horrible picture I paint, BUT you get through it and you get better and it becomes a memory.

    Much Love,

    Denielle 

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited June 2012

    Vicki, aquaphor works pretty good. Dennielle, wow you sound like you really had a rough time of it. I am glad you made it through to the other side. Much love to all.

  • vickilind61
    vickilind61 Member Posts: 143
    edited June 2012

    Denielle, I still consider myself blest; my SE's are still pretty mild compared to some of the other ladies on these boards.  But this dry/runny nose is boardering on painful.  My MO is giving me Neulasta with each tx.  Even though the d-train is out of the station, I still need to be careful with my tummy. 

  • Denielle
    Denielle Member Posts: 13
    edited June 2012

    Thank you Moonflowr, yes Chemo was horrible for me. I won't lie or sugarcoat it. BUT I got myself up and to my treatments every 3wks and endured and overcame. Just part of the whole process. And now I am nearing the end...Woo Hoo!!! Have a blessed evening!

    Hope you get some relief soon from your nose pain hun. I can totally empathize with you. And yes the D train will probably visit again. Good to stay bland and careful with food that may upset tummy while on Chemo. 

  • dancetrancer
    dancetrancer Member Posts: 2,461
    edited June 2012

    Welcome Denielle!  Yes, you sure went through the chemo ringer!!!  Yikes!  We do what we gotta do.   So happy for you to be nearing the end of treatment...woo-hoo!  It's a great feeling! 

  • Kelloggs
    Kelloggs Member Posts: 303
    edited June 2012

    Vicki - I used a vaporizer every night and used a qtip to apply a small amount of Aquaphor in my nose.  It's the only way I could keep my nose from feeling like the Sahara desert and bleeding!  As for the runny, not much you can do about it.  Kleenex has a tissue out that has a cooling effect, they are wonderful!

  • vickilind61
    vickilind61 Member Posts: 143
    edited June 2012

    Thanks Kelloggs.  I will try the kleenex.  Keep putting lotion and vaseline around my mouth and nose and inside the nose.  That is not helping my breakingout.

    Going to pick up my rx for Levaquin.  Called my MO today; I think I have a UTI.  No fever, but the frequency to pee is driving my crazy.  MO said let's not take chances.