Taxotere, Carboplatin and Herceptin
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Special k, I have one of those from before Dx. If you can feel the tendon, massage it in tiny circles and sometimes it will pop out of the joint area and you will get relief, also sometimes you can kinda pull gently straight out and it will pop out and instant relief . But go very gently and slow. Good luck.
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SpecialK mine doesn't hurt so much (granted I do seem to be super woman when it comes to pain so you can take that with a grain of salt) but like I said goes away in 5-10 minutes. My dad had it though. He did the cortisone shot. Never had a problem after that.0
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SpecialK you could always ask your PT if perhaps ultrasound might help. Typically surgery or injection is the preferred tx, from what I've seen, but since you want to avoid insult to the LE side, conservative methods may be worth a try.
P.S. You could ask for a referral to a certified hand specialist.
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Dance I think she would be OK with the injection. The problem with blood draws is the use a tourniquet (this is why BP isn't good either). Of course there is an infection concern but this will be done in a sterile environment. Not like getting a cut in your kitchen. SpecialK do check with your PT about that but I think it might be OK to get the shot in your LE finger.
But giving it time might not be a bad idea if it isn't bothering you too much.
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Thanks everyone! It seems to be bothering me less on Arimidex which is what I hoped would happen. The pain is fairly intense when it gets stuck - which is several times a day at this point but it not hurting all the time, which was the case on Femara. I have had success with "resting" it by wrapping flexible tape (the stuff they use to hold the gauze on after a blood draw) so that it is immobilized but still usable. I was hoping that any inflammation would quiet down if I did that. I also have a little less pain where the thumb joins the hand. My pain threshold is fairly high also, one reason I have delayed doing anything about this other than switching AIs. The biggest problem with talking (other than a phone call) to my PT is that they are rehab at a major cancer center so I need a PCM visit, a referral from insurance, a written prescription, etc. The person I saw the most at PT just had surgery for this same thing - she was aware of it and did not tell me that I couldn't have either the injection or surgery. I may just ask for a referral from my PCM or MO to an orthopedic surgeon.
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SpecialK - you probably already know this, but if you decide to go the ortho surgeon, I would only go to one that specializes in hands. Hands are really tricky and orthos tend to specialize in certain joints.0
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dance - Thanks for that reminder, although this is a very simple surgery. Since my PT just had it I will probably find out who her doc was! My best friend just had wrist surgery in California (pins and screws and a Titanium plate) and she went to a hand specialist in a sports medicine ortho practice, with it own in-house PT. Pretty sweet!
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hello, specialK and lago, and everyone else. i have my last herceptin infusion in two weeks and then i'll start arimidex. i can't believe i'm almost at the end, but i'm having such a hard time with chemo brain, or at least i hope that's what it is. of course, i'll be 67 in dec., so i AM getting old, but geez ... i can't get a clear mind. it's worrying me so much. it's actually keeping me awake because i'm so obsessed about it and worrying that it's the start of dementia. anyone having the same problem?0
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yaya - Hi! I absolutely can't believe that you are almost done with Herceptin! That seemed so fast - easy for me to say, right! I took Acetyl L-Carnitine during chemo to try to keep neuropathy away but continued on it after chemo and I think it makes a difference. It is worth a try, but I think the stress of chemo and treatment takes a toll - once you are done with the Herceptin you may find yourself feeling better and your mind clearer. Hope so!
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Hey guys! Looks like I will be joining you all real soon. I have surgery on August 2nd, then I will start chemo sometime after that. It will be TCH, but my doc is part of the Aphinity trial so she is trying to get me on that if all my other tests come back good.
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Hello ladies;
specialk, hope you are able to get things figured out about your hand. Me? I'm waiting for a referral to a urologist. This whole "uti" thing is not going away, which makes me and the doc's think it is not a uti, hence the referral. Which means I will be in misery and 6itchy for however long this takes. I am turning into a very unpleasant person. The BGC kicked my butt this time.
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oh vicki that just sounds awful...uggh, I'm so sorry!!! Hope they figure it out VERY soon!
Welcome damiana!
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damiana, What is the Aphinity trial?
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Vicki, looks like the BGC took you on the scenic route. Never fun, But always interesting, like the Chinese curse! I hope it is not anything major. Much love
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Laura- It is TCH + pertuzumab at the same time.
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I DID IT!! Yesterday was my last herceptin infusion!! What an incredible feeling it is. No more infusions for me. I have so many amazing people in my life. I am so happy and proud of myself. I just can't stop smiling!! I never though I would get here...yet 15 months later ...here I am. I LOVE MY LIFE! I feel like this cancer part of my life is over. It is just a memory. I am movin' on.
Thank you everyone who has helped me on my journey. For all my BC sisters who are in the middle of this nightmare....You CAN do it...It does get better...Keep Going...Keep smiling....Keep fighting...your almost there!!!
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Whoo Hooo Christean!! Congratulations!!!0
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Christean......
Wonderful......now go out and continue to live well and live strong.
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Huge congratulations Christean!!! Thank you for the inspiration!!! Moving forward with LIFE!
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Damiana, What is the Aphinity trial?
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Christean- that is so AWESOME!!!! Glad there is light at the end of the tunnel!
HBB- the Aphinity trial is the tch combo + Pertuzumab which is a new her2 targeted therapy.
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Did any of you have severe diarrhea with you treatments? I am 8 days past my 3rd tch treatment and I am still have diarrhea every day. It's pretty severe. Any advice would be appreciated.
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Mom24, yes a couple of us have had it. BRAT diet, bananas, rice, applesauce and toast. (Applesauce tastes funny to me though) mashed potatos too. Immodium take ad directed, but if to take more than three times call your doc. Don't get dehydrated, that is bad. Keep drinking, and if it doesn't stop call your mo. He will probably put you on lomotil. That usually worked for me, but I would have to take it for two days to stop it. Then, maybe skip a day and have to use it again. I wish you luck.
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Thank you. It helps to know that it's a normal reaction. I already am on the Lomotil which is why I was concerned. It just doesn't seem to be stopping. I mean the Lomotil helps for the day and by the end of the next day the problem returns. I guess I am feeling frustrated.
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Yeah, I am still dealing with it a little bit at 6 weeks PFC. During chemo, I ended up with renal failure due to dehydration. Spent 4 days in the hospital. After this, my mo adjusted down my taxotere dose by about 20% . That helped, and the next week, he adjusted down my carboplatin. So tx #4, #5 and #6 were actually much better. I still got diarrhea, but it didn't last so long. I found days 5- 10 were the worst for me Good luck.
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mom2 - I had the Big D for the first 10 days after each TCH, except the last one. It was never that severe but bad enough that I really didn't leave the house for those first 10 days.
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SpecialK I was the same way. I took immodium like candy. I joked with my MO that here I have a med cabinet full of all these heavy duty meds, and after this the only things I'd be "addicted" to are immodium and eye drops. Lol. Good luck mom24! Immodium helped for me but it was a regular occurring event.
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I also continued to have this issue during the Herceptin only phase - one of the onc nurses suggested going on a probiotic and it has made a world of difference. I had a GI surgery in '95 and struggle with IBS-like symptoms since then - the probiotic changed all of that - should have done it sooner!
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Specialk, I am still having problems, still on Herceptin I also take a probiotic. Do you just take one a day or more. But I am also on oral magnesium,.that could be causing some issues too.
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