Taxotere, Carboplatin and Herceptin
Comments
-
Marcie47 If the neuropathy happened well after chemo ended I wonder if it's not arthritis or carpal tunnel related to an AI you might be taking.
sciencegal I still have neuropathy (most of the time numbness) in my left heel. I can tell you when it's going to storm because it gets worse as storms are approching. I call my left food Tom Skilling.
0 -
Thanks for the input, i never thought of arthritis and it is totally possible. I love the Tom shilling story it made me laugh.
Hope everybody is coping with SE during their treatment, just know that today will be tomorrow soon enough and before you know it, it will be next week. Life is soooo good and will worth the fight!!!!!
Have a great weekend 🙋0 -
MinusTwo - Be sure to tell your onc about the fingers.
0 -
I didn't have iron supplements during chemo, but did have two iron infusions afterwards (4 months post and then it dropped again at 9 months post). So it is something to keep an eye on post chemo as well. I did not take the iron supplements b/c my stomach is very easily upset.
0 -
I can't taste anything......its not metalic....just can't taste a damn thing....anyone?
0 -
I had that too - salty and sweet were the only things I could really taste. My solution was to just eat bland stuff that doesn't have too much flavor anyway. That way I wasn't dissappointed. I did find that my taste buds returned, to a certain degree, about a week prior to the next tx. That time period got less and less the deeper into chemo I went, but the taste buds came back after I was done. I didn't get the metallic thing either - after a while I kind of had a burnt sensation on my tongue and also got a bit of neuropathy that went away too.
0 -
I also feel like my tongue is burnt....ugh....and you are right Special, it is disappointing
0 -
chickad - potatoes in any form were the key to survival of chemo for me, lol! I should not admit this but I did add shredded cheese and bacon (salty!) to them to keep it interesting.
0 -
I am 10 days post treatment and my taste buds are getting better but not back to 100% I have to ask my family is this taste bad or is it just me??
0 -
For 7 days after each of my treatments, my taste buds have been fried. I haven't had any mouth sores (yet) but my tongue feels like I burned it (almost raw). Nothing tastes right. Almost metallic but not exactly. It goes away after a week and I have 2 weeks of tasting before doing it again.
0 -
I've had tolerable in fingers...but feet....worse....so idk?
0 -
OH....and taste buds....can't say it can b better during tx...but it does get better after. :-)
0 -
I sure hope it gets better...I'm 12 days after 1st chemo and seems to be getting worse for me....going to try the potato thing....thanks everyone!
0 -
ChickaD - that is one of the more annoying side effects. Ditto what SpecialK said. Also - I found omelets to be very satisfying when my buds were feeling fried. Simple foods were better.
. Popcorn ( popped the old fashioned way in olive or coconut oil) with sea salt has been a go-to snack.
Oh - and what I could / couldn't taste was different each round. First nothing, second was metallic after taste only, third was no vinegar, last was sweet stuff.
The no vinegar weekend led to a very interesting bowl of coleslaw that no one else in my family could eat.
0 -
One more crazy post final chemo SE to add: an acne-esque rash in my face. My face looked flushed / sunburned Thurs. Saturday am it was more noticeable, then after a shower yesterday afternoon little bumps (some w/whitehead) popped up. Today it's spreading down my cheeks - and it's very itchy - but I'm not sure if its just dry . . .
Will definitely call /email the nurse tomorrow. But ugh. Anyone have tips on dealing with it?0 -
chicade I remember my first treatment to be the worse with the tastebud thing. I think it lasted the entire three weeks then after #1 it was only lasting a week.....
0 -
Shaved my head today at beauty shop..left some hair on top with spikes! One of my good friends showed up and shaved her head with me...cried thru the whole thing...my mom and daughter cheered us on and cried too....
0 -
ChickaD I want to see your spikey head
0 -
ChickaD....my dh went with me to salon to get shaved. What I didn't kno is he told hairdresser to shave his head too. She is a bc survivor so shaved both of us at no charge. I can soooo relate to the tears on that day...will b 2 years in jes a few days...6-6-2011. There is HOPE...never give up!!
0 -
When my hubby got home from work he said "You look beautiful...just like a moviestar"....needless to say the waterworks started, made me feel better about my shaved head......I love that man! ♥
I promise to post a pic from my big girl computer!0 -
ChickaD, you are on your way now! One step closer to being done!
0 -
I never ever shaved my head. I never lost all my hair with chemo. My MO couldnt believe how much hair I still had on the last treatment. Still have my lashes and brows and I am 12 days PFC. With that said I can NOT go without a hat or wig as you can see my scalp and the hair on my head that I have is so thin sticks up and looks terrible, but I have hair around the ears and neck and have some tiny bangs so in a hat it appears I do have "some" hair. So ready for it to grow back after 4 months of hats!!
0 -
Still trying to figure out how to post my pic......nothing is working ..... ugh
0 -
Does anyone know of links between Neulasta and neuropathy? Maybe it's just the time frame between the cycles, but I'm getting really suspicious. Three more toes checked out last night on Day 6 in the middle of the bone pain.
Claritin worked for bone pain after tx#2. Did not work after tx#1 or tx#3. This third time is as bad as the first. Aleve doesn't cut the pain but walking helps.
I'm trying hard to make myself drink the L-glutamine powder for the neuropathy, but boy do I hate the grit on my teeth. On top of queasy stomach & the Big D, I skip it more times than not. Did anyone try the pill form? GNC has 1500 mg pills which convert to 1.5 grams. Or 1000 mg pills.
0 -
FINALLY -- spikes !!!
0 -
minus2 my bone pain went away after about the 3rd shot. I read online after your bones get used to the shot the pain goes away. It did for me I hope it does for you too....
0 -
OMG -- the bone pain was the worst for me -- I did the Claritan but that did not touch the pain -- actually my morphine didn't even touch the bone pain -- not sure what drug to ask the doc for next week when I do my 2nd chemo -- ugh
0 -
minus - Taxotere also causes bone pain and it is difficult to know whether or not it is the Tax or the Neulasta that is causing it, or a combination of the two. Claritin will not help with Taxotere induced bone pain. Why are you thinking that the neuropathy is coming from Neulasta as opposed to Taxotere, for which it is a definite SE?
chickad - don't assume that your SE will be the same with each tx - they may not be. What bothered you on the first tx may not happen on subsequent tx, and something new may pop up. SE are a moving target.
0 -
ChickaD - CUTE HAIR! I love it!
I am getting Neupogen shots, started today.. yesterday was chemo #3. I had neutropenia after my first 2 treatments and I have one to go.
Does anyone know if the bone pain is as bad with Neupogen? I have to go in the next 3 days for the shot because take home shots would cost me $946 (ugh!). I took a Claritin this morning just in case.
0 -
rocker - cumulatively - maybe. Neupogen might be gentler because you are spreading out the dosing.
0
