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Taxotere, Carboplatin and Herceptin

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Comments

  • rockermom66
    rockermom66 Member Posts: 23
    edited June 2013

    Thanks SpecialK, I am prepared either way. So far so good, just the usual wooziness :)

  • specialk
    specialk Member Posts: 9,261
    edited June 2013

    I would def keep taking the Claritin but hopefully your SE will be mild.

  • FeelingtheMagic
    FeelingtheMagic Member Posts: 103
    edited June 2013

    Minus Two. I used BioX Glutamine Rush... no grit, no flavour, blended easily into anything I was drinking.  It's pure L-glutamine.  I think it made a pretty big difference for me when I went through the active treatment.  Good wishes to all!!

  • minustwo
    minustwo Member Posts: 13,359
    edited June 2013

    Special:  You know how we all like to be Dr. Google.  Just wondering about the relationship between Neulasta and neuropathy because of the timing of the SEs.  Probably way off base.

    Feeling:  Thanks for the no-grit Glutamine Rush powder recommendation.

    Still think I may try the L-Glutamine capsules.  It's SO hard for me to get down any liquids.  I'm struggling to take in 43 cups and that includes soup & popsicles.

  • mt4ever
    mt4ever Member Posts: 51
    edited June 2013

    MinusTwo I took the glutamine tablets and I don't think my neuropathy was as bad, and after about 6-8 months from finishing chemo my neuropathy has started going away!  Yeah!   :)

  • ChickaD
    ChickaD Member Posts: 971
    edited June 2013

    Wanted to share a sweet story...today my hubby came home with a shaved head for me as a surprise.....and then he proceeded to try on my wigs....too funny...I LOVE THIS MAN!!!

  • Annie54
    Annie54 Member Posts: 39
    edited June 2013

    LOVE the story....He's definitely a keeper!

  • MichelleRN78
    MichelleRN78 Member Posts: 19
    edited June 2013

    That's awesome, way to show solidarity.  I once saw a man at the oncologist who had hot pink sneakers (he was with his wife).  I thought it was pretty cool.  

  • mckatherine
    mckatherine Member Posts: 180
    edited June 2013

    ChickaD - that's awesome. :-)



  • lago
    lago Member Posts: 11,653
    edited June 2013

    Not sure why my post didn't show up last night but Chickad I love the spikes and you look as cute as you sound.

    Chat more later. Need to get ready for work (ACS). I was up real late last night too doing freelance. Hope I'm not a zombie today.

  • specialk
    specialk Member Posts: 9,261
    edited June 2013

    lago - does this mean you got that ACS job, or are you volunteering?

  • lago
    lago Member Posts: 11,653
    edited June 2013

    Special it's a 5-6 month temp job through Manpower company. So technically I work for Manpower on assignment at ACS. The HR department at ACS has no record of me. I get paid by Manpower.

    But I'm working with all the folks I worked with last year. I am still doing my volunteer work as well. Still team captain of the Illinois Ladies team from the gals at bc.org, still on the planning committee for the walk but this year I'm also the chair of the Survivor tent at the event. Also still a reach to recover partner.

    I don't know if this will lead to a job at ACS. No positions are open in my area but if there was one this does make me a more desirable candidate. It's also great experience for working at any other charitable organization.

  • specialk
    specialk Member Posts: 9,261
    edited June 2013

    lago - excellent!  A foot in the door is worth a lot!  I hope something you want opens up there because I know you would be a great asset to them! I attended my first Relay for Life on behalf of the Livestrong team from the YMCA a few weeks ago  - I had a good time - ran into people I knew, my center had a tent there also so I got to see some of the staff.  It was well-run and people seemed to really enjoy themselves - I will do it again next year but will try to raise some money for it.  I really like the Hope Lodge - there is one on the nearby campus of USF, next to Moffitt, which is the only NCI designated cancer center in FL.  I lost a dear friend last year and donated to the Hope Lodge in her name - her family had requested all memorial donations go to the ACS, I thought it was fitting - she was a nurse, a military wife/mom who was always away from "home", and a cancer patient (BC/uterine).

  • jerripi14
    jerripi14 Member Posts: 3
    edited June 2013

    I had 3 neuprogen shots with my last chemo and took claritin and had no bone pain. This time I had the neulasta shot and am taking claritin and the bone pain is bad. I am also taking ibuprofen. So for me, the neuprogen was much milder.

  • ChickaD
    ChickaD Member Posts: 971
    edited June 2013

    Hi Miss Jerri....the Neulasta shot is kicking my butt...my Onc does not use Neuprogen that I know of...I think the bone pain is my worst side effect...ugh

  • lago
    lago Member Posts: 11,653
    edited June 2013

    I found the first Nuelasta was the worst one. I couldn't stand up straight for 2 days my back hurt so badly. The following 5 times I had some discomfort but I took some Aleve (OKed with onc first) and it took the edge off.

  • ChickaD
    ChickaD Member Posts: 971
    edited June 2013

    I plan on starting all my drugs early this run....lol....heading for Alaska group cruise on June 21 and want my se's to be done!

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited June 2013

    ChickaD, cute pic! I remember the taste issues. I could not take vinegar at all, even ketchup was out. But citrus was ok. Weak ice tea unsweetened was my go to drink for flavor when I couldn't drink water. Baked Potatos were my go to food. With a bit of soy sauce and lemon, I could eat them. I had the big D as one of my SEs so I had to be careful what I ate to not add to the D. Pretty much anything white worked, along with a bit of salt. Also the sharpest cheese you could find, like an Irish cheddar was ok, and helped me get the protein I needed. BTW, due to the D, I ended up in the.hospital, SO STAY HYDRATED, KEEP DRINKING! You WILL get through it, its not pretty, but, hell, you get through it anyway you can. Much love.

  • tangles
    tangles Member Posts: 211
    edited June 2013

    ChickaD my bone pain was pretty bad with the first two or three chemos but after that I had none! Hope you get this lucky too. As for SE other SE occurred after several chemos. FOr example I didnt have all this major eye watering until about #4 now the tears just roll down my face. SO no makeup. MO says its the taxotere. The fatigue got way worse with each chemo, but taste buds got better. Everyone seems to be a little different. I am 2 wks,4 days PFC and my nails look great, still have my eyebrows and lashes so who knows!! No neropathy until now my toes feels a little numb. Hope that goes away soon........

  • Adavisart
    Adavisart Member Posts: 26
    edited June 2013

    ChickD I am the same way and it is very depressing for me.

  • Adavisart
    Adavisart Member Posts: 26
    edited June 2013

    I am leaving in 20 minutes to go have chemo #6! My last cocktail before Herceptin only. Had a fever on Friday and was scared I would be delayed but a Z pack did the trick. I made it!!!! This board is such a help!

  • AmyIsStrong
    AmyIsStrong Member Posts: 426
    edited June 2013

    Adavisart - Congratulations on being DONE with the hard part. Herceptin-only is NOTHING compared to TCH.  Just know that every SE you have now will be for the last time! That knowledge alone makes it easier.

    So happy for you - you made it!Laughing

  • bren58
    bren58 Member Posts: 688
    edited June 2013

    Adavisart - YAY! YAY! YAY! Last one!

  • specialk
    specialk Member Posts: 9,261
    edited June 2013

    adavisart - congrats on the last chemo!  Don't be discouraged if it takes a number of weeks before you really feel better and have some energy - for most of us it is about 6-8 weeks PFC and then you wake up one morning and feel pretty good!

  • ChickaD
    ChickaD Member Posts: 971
    edited June 2013

    Hi everyone.....sitting in the chemo chair for Round #2...they switched my Neulasta shot to 3 days of Neupogen to see if bone pain gets better...

  • lago
    lago Member Posts: 11,653
    edited June 2013

    Happy dance for Adavisart!

    ChickaD hope the Neupogen is kinder to you.

  • ChickaD
    ChickaD Member Posts: 971
    edited June 2013

    Thanks Miss Lago -- off to the hospital for my shot now -- anyone else out there have my same issue of switching from Neulasta to Neupogen????

    Also -- I some some of you ladies are/were neutropenic.... can you tell me what I should be looking at my my blood work... I see 2 categories - one that says Neut% and the next one says Neut (ANC) - both were low -- I guess that why the shots?

  • Adavisart
    Adavisart Member Posts: 26
    edited June 2013

    Thanks ladies!! As I walked into the building yesterday tears flooded out. I did not realize how emotional it was going to be to have made it to this far, finally.



    I rang the bell wearing a survivor sash and crown and the nurses gave me a lovely card.



    Today I am headed back for the final Neulasta. I do feel better just knowing it is the last time to experience these side effects. Attitude is powerful but not easy to just decide to have. Need help from buddies for sure!! Thank you for being here.



    I hope to be of help to others.

  • specialk
    specialk Member Posts: 9,261
    edited June 2013

    chickad - just look at your WBC - that is generally what your doc will be watching, along with your hemoglobin and platelet count when determining whether or not your chemo will stay on schedule

  • AmyIsStrong
    AmyIsStrong Member Posts: 426
    edited June 2013

    Survivor sash and crown? Wow what a great idea. I rang a bell at the end of radiation, but a sash and crown would have been a lovely touch as well! Good for you!!!!!