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Taxotere, Carboplatin and Herceptin

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Comments

  • ChickaD
    ChickaD Member Posts: 971
    edited November 2013

    Miss Moon...was it easy for you to get SS Disability?

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited November 2013


    chickD, I had to apply as a part of my long term disability at work. You are required to apply and if you get approved you have to turn the back payments over to the company. On the other hand the company that is hired by the job I had pays a third company to handle the applications. They only get paid if the government gives you the S'S disability. So they work hard to word things the right way, know what to ask, how to find out all the things that would make your case. It helped my case that my knees were so bad,but I can't get an op for them, I have diabetes and I have a pacemaker for a heart condition. ( yep I am a mess) so it wasn't only the cancer tx that they considered. I even got it without a rejection first. That doesn't happen often. But this company does this for a living and will take anyone so if you or someone you know needs this I can give you the name. It was good that they hired this company because when my company terminated me for too many days off this company continued to help with my application. Sorry if that was tmi.

  • ChickaD
    ChickaD Member Posts: 971
    edited November 2013

    Thanks Miss Moon....I also have LTD thru my employer and I had to apply for SSDI per their rules.  I hired a friend that only does SS work for the reconsideration.

     Did not realize that if I get approved for SSDI I will have to pay back my LTD payments...that could hurt...ugh

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited November 2013


    chickD if you get approved they, S'SD, pay you for about 5 months back. You already got that from Ltd so you just give them the back stuf. It does leave you in a mess for the time between payback and the new month though. So you are not really paying them from your payments but from the one big makeup 5 months payment the S'S pays you. If that's not clear I'll try to explain in a pm.

  • ChickaD
    ChickaD Member Posts: 971
    edited November 2013

    Ok ..that makes sense!

  • lovewins
    lovewins Member Posts: 570
    edited November 2013


    Thank you ladies things are seeming more positive. So my RO may approve the time off hopefully if I can get that week reset. I think I want ti talk with him/her before 6 weeks so I know what I am facing.

  • bren58
    bren58 Member Posts: 688
    edited November 2013


    I went in to have my port removed today. As soon as I got up to the desk to check in my eyes started watering like crazy. No, not because I was sad, but because the Taxo-tears just don't want to stop! The lady who checked me in thought I was upset about the procedure when I asked for a tissue. After some prep and paperwork, the port was taken out with just some local anesthesia and I was back home in 2 1/2 hours. So much less drama than having it put in. It was 51 weeks ago today that it was put in. So glad it is out!


    For all of you who are still in active treatment, hang in there, I know it's hard at times, but there will be an end to it.

  • AmyIsStrong
    AmyIsStrong Member Posts: 426
    edited November 2013


    Congratulations, Bren! For me. that was the best day of the whole thing.

  • specialk
    specialk Member Posts: 9,261
    edited November 2013


    bren - yay for no port!


    chickad - are you looking to not return to work at all?

  • soriya123
    soriya123 Member Posts: 384
    edited November 2013

    Congrats Bren....Yay..!!!

  • Viji
    Viji Member Posts: 89
    edited November 2013


    Congrats Bren and thanks for the encouraging words...

  • m1970
    m1970 Member Posts: 261
    edited November 2013


    I am also having trouble with vision especially small print. I don't think it is consistent so I don't think its permanent, but it is scary given that I had permanent blindness in one eye when my optic nerv was damaged during my mastectomy with immediate recon this may.

  • ChickaD
    ChickaD Member Posts: 971
    edited November 2013

    YAYMiss Bren!

    Miss Special.....Not sure I can work with the painful neuropathy my Onc is fearing a permanent s.e. because it keeps getting worse.

  • specialk
    specialk Member Posts: 9,261
    edited November 2013


    chickad - bummer!

  • monkeymom
    monkeymom Member Posts: 27
    edited November 2013


    Wonderful Bren!!

  • bren58
    bren58 Member Posts: 688
    edited November 2013


    Thanks everyone. The incision is really sore today, but totally doable.


    ChickaD, I hope it's not permanent. Hopefully with a little more time it will improve.

  • soriya123
    soriya123 Member Posts: 384
    edited November 2013

    I am so down today, had MRI done yesterday, got results back, showing I have 8mm mass on the same breast at 11 oclock position.  I will have biospy done soon to to confirm.  I feel like i am starting all over again :(

  • lovewins
    lovewins Member Posts: 570
    edited November 2013


    Awesome Bren...I hope they gave you some good pain medication! Hope you are feeling better soon.

  • mcgis
    mcgis Member Posts: 74
    edited November 2013


    soriya123...i'm so sorry to read that! when will your biopsy be? did you have surgery in the past (mastectomy...?)?


    Bren... i'm glad your port removal went well and it's out of there. another thing you can check off as being done!

  • soriya123
    soriya123 Member Posts: 384
    edited November 2013

    Mcgis, I had chemo first.  My MX suppose to be done next month, that why I had MRI to see my first lump.  Unfornately found another lump.  I will have biopsy on Nov 25.  

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited November 2013


    Oh soriya. Sucks. But you'll know for sure e with the biopsy.

  • AmyIsStrong
    AmyIsStrong Member Posts: 426
    edited November 2013


    Oh Soriya I am so sorry for this news. Is it definitely a NEW lump or just another one that they didn't see the first time? I don't know how (or if) they change your treatment protocol because of this development, but I am SURE someone on this site will have knowledge and insight to support you. Of course on THIS thread we will surround you with love and strength, but if you need to, put a post in one of the other threads and somebody who knows more, or has been through something similar will come along and share their knowledge and insight with you about this new development.

    That is what is so wonderful about this place - there is always someone who can answer and help.


    But please stay here with us as well, share what you are going through and let us love you. You are part of us now and we will gather round and help.


    In love and sisterhood


    Amy

  • soriya123
    soriya123 Member Posts: 384
    edited November 2013

    I had MRI done on July did not see that lump on my breast, but found a lump on my left biopsy turned out to be benign.  On Mid august had PET  scan done did not see this lump eithe untilMRI done again yesterday.

  • bren58
    bren58 Member Posts: 688
    edited November 2013


    Oh soriya I am so sorry to hear your news. I hope the biopsy will give the doctors and you some clarity about your situation. (((hugs)))

  • lovewins
    lovewins Member Posts: 570
    edited November 2013


    (((((((soriya)))))))

  • naiviv
    naiviv Member Posts: 308
    edited November 2013


    Sorry to hear the MRI news, Soriya. Stay strong you are in my prayers.


    Vivian

  • flowergirl1
    flowergirl1 Member Posts: 36
    edited November 2013

    Bren congratulations!  So looking forward to that day next October!

    Soriya....so sorry to hear this but I do pray it will be benign.  Hugs and prayers for you!

    I go for #3 tomorrow.  Halfway through! :) Been craving pizza so while my taste buds are somewhat good that was our pre chemo meal tonight. :)

  • flaviarose
    flaviarose Member Posts: 249
    edited November 2013


    for what it is worth, soriya, I had "multi-focal disease" - meaning that they found 2 lumps. They weren't sure until the surgery because imaging was inconclusive. My understanding is that it didn't change my course of treatment - it would have been the same if there had only been 1 lump.

  • specialk
    specialk Member Posts: 9,261
    edited November 2013


    soriya - hope this is nothing, but we are here for you regardless.

  • soriya123
    soriya123 Member Posts: 384
    edited November 2013

    Thank you to all of  you ladies!  I will let you kno once i have the results next week.  Fingers crossed and  lots of prayers!

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