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Bottle o Tamoxifen

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Comments

  • ashaby
    ashaby Member Posts: 200
    edited February 2008

    Lilith,

    What a hard decision, but congrats on making it. Alot of us have had mild arthritic pain starting Tamox. Mine has largely subsided. Welcome to the train. You'll find me in the dark chocolate aisle of the train.



    Basha

  • wishiwere
    wishiwere Member Posts: 934
    edited February 2008

    Cynthia~ good luck with your scan today!

  • VirginiaNJ
    VirginiaNJ Member Posts: 314
    edited February 2008

    Cynthia- best of luck with the bone scan!  We will be waiting anxiously to hear results!!  All good karma sent your way!

    D- awesome news on the clear mammo!!  I have a breast MRI on Monday that I think is starting to weigh on my mind.

    Kosh- Like the others have said there's plenty of room.  I was dx'd at 40 1/2 and my surgeon asked me about kids (I don't have any).  She encouraged me to be on the Tamox for at least 2 - 2 1/2 years, then I could go off if I wanted kids.  (I don't really have kids on my horizon, so it's less of a decision for me...)  But, I can totally sypathize with you...it really SUCKS when the decision is taken out of your hands...  Best of luck deciding on what to do...

    Miss Lolli- I stopped chemo in June and started the tamox 1 month later.  I think that the onc wanted the last round of chemo to be through my system before starting me on the tamox.  (I did my rads before chemo (long story)). 

    I'm a chronic insomniac, so Ambien CR doesn't help me 100%, but it does somewhat...  It's worth a try.  I think you can go to their web-site and get a coupon for a week of pills for free (to test drive it!!). 

    Lolli/Cynthia/Basha and everyone who has sent me good wishes RE my Dad I REALLY appreciate it...  I get so much warmth when I come to these BC boards...helps me from going koo koo!!  :)

  • dawnjs5k
    dawnjs5k Member Posts: 4
    edited February 2008

    I have had a couple of days full of side effects.  Has anyone noticed that they seem to come in spurts?  It seems that I will go several days without much of anything and then it will hit.  I had Hot flashes constantly yesterday and Sunday, I seem to be more tired than normal, and the muscle cramps were horrific.  I hope I am now in to some days without them or that they are more tolerable.

    Have a good day!!

    Dawn

  • JapanLynn
    JapanLynn Member Posts: 211
    edited February 2008

    Good morning, all--

    Dang...just lost my post.  Oh, well...

    Kosh, so sorry you had to make such a horrible decision re: children v. tamox.  Sending good karma your way that all works out.

    Dawn, I've noticed the same thing about SEs...they do seem to come in waves.  Lately I've had big-time cramps in my feet...not sure if that's a SE or not.  My hot flashes have been pretty mild...mostly at night, but they come and go, too.  Strange...

    One revelation I had over the weekend re: joint pain--I've been taking Traumeel tablets for a few weeks; that's a homeopathic thing that was suggested on another thread.  I wasn't sure whether it was working or not until I left it at school over the long weekend...boy, my hips and shins were hurting just like before.  I had been pain-free for a couple of weeks.  After starting it up again yesterday, I feel much better.  Might be worth a try...I got my at iHerb.com.

    Virginia, I feel your pain re: your dad's illness...my dad had Parkinson's disease for years before he died about 18 years ago.  So, so hard to see him suffer...sending cyber hugs your way.

    I didn't move from the chocolate car yesterday...the Cadbury mini Easter eggs held me hostage. :-)  They're gone, though...time to eat healthily again.  You can find me in the fruit and veggie car today (I hope)...I'll stop off in the Starbucks car, too. 

    Take care...off to school!

    Lynn

  • nativemainer
    nativemainer Member Posts: 7,945
    edited February 2008

    A question for the tamixi-gals:  I was diagnosed with traumatic arthritis in my right knee many years ago.  It always gets a bit worse in the winter, better in the summer.  I started tamoxifen in October, and this winter there are times when I can barely walk, let alone get up or down stairs due to the pain in my right knee.  It has never been this bad.  I have had NO side effects from tamoxifen, and have been considering stopping it as it doesn't seem to be working for me.  Could the worsening of the arthritis be a side effect?  My onc won't order the CYP 2D6 test because my insurance considers it experimental and won't pay.  The only other thing that could remotely be a tamoxifen side effect is depression, which I have also struggled with for many years but which is seriously worse this winter.  Is there some chance the tamoxifen is actually working in me after all?  Everything I have read says that women who do not get hot flashes are far more likely to have a recurrence and sooner that women who do, so I have been planning to talk to my docs about an oopherectomy so I can get on an AI since the tamoxifen hasn't seemed to be doing anything for me.  I have never had a hot flash in my life.  All my onc says is "You're doing well." and the surgeon says "you're lucky."  But all I feel is scared that no one is looking very hard for a recurrence because of a false sense of security because I'm taking tamoxifen, which I really think isn't working. 

    Sorry for the rambling post, but I'm feeling especially scared about all this today for some reason. 

  • ashaby
    ashaby Member Posts: 200
    edited February 2008

    Dear Native Maine, Both my pharmacist and oncologist said arthritis like pains are a se of Tamox. I get it sporadically in my feet and ankles. I take Advil and put my legs up. If you are already arthritic in your knee, seems likely. My depression has not increased, thank God, but I am on very great meds all along.





    Good luck. Basha

  • wackyjackie
    wackyjackie Member Posts: 107
    edited February 2008

    Hey Ladies,

    Sorry I haven't posted in a while.  I've been reading but just not posting.  By the way, I just had a chocolate mint candy so I guess I'm in the chocolate car today.  LOL.

    Just a quick question.  Does anyone experience nauseau any time during the day after taking tamox?  I have to take mine with a coated baby aspirin 81 mg. a day because I have a high platelet count and puts me at great risk for blood clots(lovely!!).  Anyway, I was wondering if that's what's making me nauseous.  Thanks.

    Hugs, Jackie

  • Cynthia1962
    Cynthia1962 Member Posts: 236
    edited February 2008

    Jackie - No nausea for me and when I do take an aspirin, I always take it on a full stomach cuz it'll give me a stomach ache if I don't. 

    Native - If you can afford it, it might be valuable for you to get the test done even if your insurance won't pay for it.  Do you take any other meds that use the same CYP2D6 pathway?  That might help you know if you're a metabolizer.   Not all women who don't have hot flashed are poor metabolizers, and since your arthritis is worse and your depression also, it's quite possible you're metabolizing it.  It's going to be just a matter of time until all insurances pay for the test.  You might check with your insurance company to see how long it usually takes a test to move out of their experimental category.  I used to do insurance billing and every time a new test came out some insurance companies automatically classified it as experimental so they wouldn't have to pay for it.  Bast*rds!  

    Dawn - yes, my side effects come in spurts.  I'll just start to worry that maybe the Tamoxifen is no longer working, and I'll have one hot flush after another.  lol  

    Virginia - I'll be thinking about you on Monday when you have your MRI.  It seems as if just when we manage to forget that we had breast cancer we need another test which brings it all back.   I've yet to have a breast MRI, and can't help but wonder what is maybe lurking in them. 

    My bone scan went well today.  After I got the radioactive injection, I went shopping for the next 3.5 hrs and, boy, was that fun...no kids, stores we don't have locally, and time to enjoy it.  I took a valium before the test, but when I got on the table and he moved the machine over my face, I started to think that maybe I hadn't taken enough.  lol  But, then the machine started to shimmy and that combined with the valium made me sleepy and the time flew by.  It went faster then it did the first time, so I hope that's a good sign.   

    Take care all,

    Cynthia 

  • Harley44
    Harley44 Member Posts: 2,126
    edited February 2008

    Hey ya'll,

    I'm back!  We stayed at a friend's house for a couple of days, after getting off the cruise ship on Saturday, so I didn't get home til last night, around dinner time.  I guess I'll have to catch up on these posts, but I just wanted to say hi...

    Thanks for all the warm wishes for my wonderful vacation!  It was so fun & relaxing, too.  I am now back to trying to figure out who in my medical plan is responsible for what...  I never know whether to contact my onc or my surgeon or my primary care dr...  I guess I'll call ALL of them!!  lol

    Virginia,

    How's your Dad doing?  I am keeping him in my prayers!

    Cynthia,


    How did your holster monitor test go?  I believe that I just read a post that you were having a bone scan today (or tomorrow, I forget which).  I hope all goes well with your tests.  I hope your cardiologist was able to figure out what is happening with those palps and taccy...

    Hugs

    Harley

    Welcome to all the Tamoxi- newbies!! 

    Good Luck, everyone!

    Harley

  • VirginiaNJ
    VirginiaNJ Member Posts: 314
    edited February 2008

    Harley!  Welcome Home!  Can't wait to hear about the cruise!!  I am thinking of taking a quickie 3 day-er on the Eurodam (brandie new ship) on Labor Day weekend.  But, scared to book anything w/Dad's health.  He's the same....they are now making noise about releasing him from the hospital (I don't think there is anything further they can do for him and they want to push him out the door) so now we kids are scrambling to figure out what to do...home health aid, assisted living...ugh...  Still heartbreaking.

    I've been sad and depressed lately but don't know if it's because of the Tamox or my Dad being sick.  Now my new thing is waking up about 5 am feeling "hot."  Thank goodness I have a ceiling fan (with a remote!!) so that helps.  But, I hadn't been having and SE's.  Sometimes I think I make them up in my head!!

    I was in the Budweiser car yesterday...bowling night...it was fun to cut a little loose.  LOL

    Cynthia- I hope that you indulged yourself and bought a prezzie for YOU!!  I have been obsessed with my Nintendo DS (yes, I am a grown woman) and have been buying games for myself like crazy.  I have an Amazon credit card, and the points rack up with all the medical expenses (and vacation expenses!!)

    Native- my onc has the same reaction as yours when I tell her that I have no SE's from Tamox..."you're lucky..."  I see my onc nurse on Friday for my Herceptin treatment...then my onc on 3/11.  I am going to ask about CYP2D6 test...  I have no clue if my docs office does it or my insurance covers...

    Jackie- I can't remember if I got nauseous w/Tamox.  I'm thinking I might have, but my chemo brain can't remember!! Embarassed

    I feel the chocolate car calling me...Basha, how goes WW???  I still haven't gone back.  Yesterday I was in Target and they had all the Valentines candy on sale...so I bought stuff b/c it was CHEAP!!  UGH!.

    Lynn- your comment RE the Cadbury eggs cracked me up...  "They're gone..."  I value that.  I also admire you for going to the Veggie car today!!

    Ok, sorry for the long rambling post!!  Surprised  As always, thanks for all the kind thoughts RE Dad...

  • wackyjackie
    wackyjackie Member Posts: 107
    edited February 2008

    Virginia,

    Thanks for the response.  I seem to get nauseau at least one time during the day.  I never did before.  My onc is "not sure" about the CYP...test.  She's going to let me know on my next visit? I do get lots of hot flashes.  I hope all is okay your Dad.  I pray for your strength.

    Hugs, Jackie

  • dcbkc
    dcbkc Member Posts: 137
    edited February 2008

    Thanks to all for the good wishes. You guys are great!

    Native Maine --

    Not everyone has visible s/e.  Everyone reacts differently.  Ask your doctor what makes him think all is ok?  Is he doing blood tests?  I think almost everybody here has had joint pain with the tamox. Keep your chin up.  Sounds like you have questions that really only your doctor can answer.  Call!

    Cynthia,

    Glad you were able to get through the bone scan calmly. That's a win in my book. Why did you get that, by the way?

    Jackie,

    No nausea for me and I take an 81mg aspirin too. But throw in an Advil on an empty stomach -- yeah, my stomach gets upset.

    Virginia,

    I'm hoping for the best with your dad.  It's not easy being the sandwich generation.  I'll be thinking of you on Monday too.  I have to see the surgeon on Monday myself.  The u/s showed a fluid build up that he'll probably have to drain -- I'm really uncomfortable I think b/c of it. Not fun! Did it in Oct.

    Harley,

    Welcome back!  Sounds like your trip was fantastic!  That's great!

    I've been in the chocolate chip cookie car lately -- yes, I finally made some.  I've hidden about a dozen -- my husband admits he has NO willpower with them.  But also found a great bakery yesterday -- cream cheese brownies and raspberry scones.  I've been a baaaaadd girl!

    D

  • VirginiaNJ
    VirginiaNJ Member Posts: 314
    edited February 2008

    CREAM CHEESE BROWNIES AND RASPBERRY SCONES!!!!!!!!!!!!   I WANT SOME!

    Sorry, I lost control there a little bit...I'm a sugar carb addict...I admit it...

  • Cynthia1962
    Cynthia1962 Member Posts: 236
    edited February 2008

    D - I've been in the cookie car lately, too.  lol  I even made some double chocolate chocolate chip cookies the other day, but they turned out kind of funky so I'm still messing with the batter to fix them.  I think the problem is that I used sweetened instead of unsweetened cocoa because I didn't have it, but I do now so I plan to add it and see if they taste better.  They also are too thin and crunchy so I'm working on that, too.  As you can tell, baking is not my thing.  lol  I pick up the Girl Scout cookies today, too.  I'm soooo looking forward to that.  Yum!

    I don't know exactly why I had the bone scan (ducks down sheepishly).  lol   I've quit asking because the reasons usually upset me so I just agree and go on my ignorant, but merry way.  I think it's just because it's been a year since my last one and my first post treatment.  Since finishing chemo/rads, I've had a mammo, CT scan, and bone scan, and blood work (hormone levels and probably tumor markers).  I see my onc next Thurs., so I'll know more then.  I'm sure I'll need to drug myself up before that appt.  lol  

    I've been having a lot of discomfort in the armpit/axillary node area of the lump side.  I'm assuming that it's due to fluid buildup due to hormones because I experienced this after my surgery and before my cycles stopped and that's what my onc said it's from.  I think my cycle is going to start again any day now because my abdomen is so tender.   

    I hope it won't be too uncomfortable to get the fluid drained for you.  I hope you won't have to keep having it done.

    Virginia - yes, I bought myself a pretty bag/purse from Cost Plus for carrying my knitting/books.  Mostly I got Easter supplies so I won't have to do it at the last minute like I normally do.  lol  I won't think it's weird that you love to play your Nintendo DS if you won't think it's weird that I play games on my childrens' Webkinz.  You should see how much kinzcash I've racked up for them.  lol  Of course, my daughter can spend it as fast as I make it.  

    I'm glad to hear that your dad is coming home, but I'm sorry for the anxiety it must be causing you to need to find him assistance.  I'm also one of the sandwich generation, although for the most part my parents are still "young" (mid 60's).  They've been having their share of health issues in the last few years, though, and I know it's a sign of more to come.  My mom is scheduled to have a complete abdominal hysterectomy in March and I'm trying to go to all her dr appts with her because she has a very difficult time understanding and remembering what is discussed.  I'm having to learn everything I can about abdominal hysterectomies so I can explain it to her because she doesn't always understand what she reads and she'll tell me something that I know isn't right and I need to be able to correct her info.  I'm so worried about how I'm going to help her during her recovery and take care of my little children.  I called the hospital and they don't have restrictions on bringing young children to visit, but the nurse said she wouldn't advise bringing my youngest since there are some really sick people on the surgical floor.  So, how am I going to be able to visit her during the day?  I hate the thought of her being alone.   Sigh!

    I hope you get a chance to take a cruise.  Having breaks really seem to help.   

    Harley - I'm looking forward to hearing about your cruise.  I'm still wearing the holter monitor, but Friday is my last day.  I won't see my cardiologist for her interpretation until Mar 17th.  I've been noticing that my heart rate is a little fast every evening now, so I'm wondering if the time-released Toprol isn't giving me coverage long enough.  

    Take care all,

    Cynthia 

  • Harley44
    Harley44 Member Posts: 2,126
    edited February 2008

    Cynthia,

    Wow!  I would be nuts, waiting til Mar. 17th to find out the results of the halter monitor test.  I think you are right, though in your attitude about the bone scan, or any other tests your dr. orders... sometimes it's best to be blissfully ignorant, and not know they why's and wherefores.  I am getting kind of concerned because my onc ISN'T ordering any tests... maybe I should be having CT scans and PET scans, and bone scans...   My last chest xray was before my biopsy!! 

    Best wishes,

    Harley

    P.S.  The cruise was great!  Just feeling tired from all the unpacking and laundry... 

  • VirginiaNJ
    VirginiaNJ Member Posts: 314
    edited February 2008

    Cynthia- I loved your post RE the cookies!  Practice makes perfect!  I wish I could be your taste tester!!  (I actually eat food for a living...another reason why I can't blame my weight gain on Tamoxifen.  Today alone I think I tasted 30 different restaurant dishes...I need Tums).

    Best wishes with your Mom...  I know that I need my sister to come to all of my appointments...just another set of ears.  Although, my sis and I have both decided that we become flumoxed when we are in front of doctors, especially if they are in a rush...  We just stare at them, duh, and forget all the questions...  That's great that you are there for her.  My sister can sympathize with the kids, though.  She has a small window of opportunity to visit my Dad in the hospital - while the kids are in school (youngest in Kindergarten).  I wish you all the best.  Hopefully your Mom won't be in the hospital too long...

    It's so facinating to see what onc's are ordering what tests.  I've only had follow up mammo's, now MRI, and pelvic US.  Oh, and blood work every few weeks. 

    I guess I fall into that whole blissfully ignorant category... 

  • NCbound2009
    NCbound2009 Member Posts: 1
    edited February 2008

    Hello...its been awhile since I been here...I have read every single post here on this Subject.I have decided to return after having my one yr follow up mam yesterday...they are saying they recommend me to have an MRI done now..

     I have been taking the Tamox since June 07..very little side effects...alil weight gain which I have been slowly taking off...and the other SE is pains sometimes in the ankels..specially sitting awhile and get up...feels like someone twisted my feet back on to tight..LOL..but once I am walking around abit..all pain goes away..

     My worst SE..and I dont know if its the Tamox to blame..but it sure has me moody..well there are days Im feeling fine..then days Im edgy...(hmm..no more periods since Oct 07..)

     I weened myself off the anti's 50mg prozac without the Drs knowledge...but she knows now....and I only use the xanax if needed which has been awhile now..maybe 3 months I last took one of them..My Tamox is 2 times a day..morning and night...my choice...

     I have to see my onc in March..and the breast surgeon also in March..just the follow ups...

     I have felt so many of the same feelings some of you have written about..good and bad...I sat here reading and talking aloud saying omg thats so me tooo.....glad to know its not me just feeling like that and so on..

      I need to stay around here more and talk more to you all who know and understand....I just havent been the same since being told at 49yrs old I was with B/C on Feb 14th 2007...had the lumpectomy and rad treatments..which was nothing at all..just the fatigue was hitting me......and now Im ready to do The Walk (Relay For Life) next month .

      Rosie

  • Harley44
    Harley44 Member Posts: 2,126
    edited February 2008

    Virginia,

    Funny how some drs. order every test in the book, while others don't order ANY tests.  My onc. does bloodwork every time I go in, but that is about it... oh, this was the first time he really examined me, and listened to my lungs, and he said that they sounded good, all clear. 


    My surgeon told me that since my lymph nodes were negative, I would not get any further tests, unless I was having a lot of pain, and had been for a few weeks... so, in that case, I am glad I am not getting any more tests!

    I'm glad that your Dad is getting out of the hospital, but so sorry for the circumstances; it really must be tough having to find nursing help for him.  I know that it is hard to see our parents as being sick, or frail and needing help.

    I'll pm you later...

    Hugs

    Harley

  • Helenhsm
    Helenhsm Member Posts: 5
    edited February 2008

    Hi all,

    Virginia, my dad has Alzheimers so I know a bit of what you are going through. My dad's wife is also ill, but they are making it through together. None of my sisters lives near my dad. When my dad's wife was in the hospital last year, my sisters and I all freaked out because my dad cannot be left alone. We want them to have people come in to help, but they mostly refuse, so it is frustrating to us. I hope you and your family can come up with something that will work well for your dad. These situations are very sad, so it is normal to be down about it.

    Cynthia, I'll have to have my family be on the lookout for the girl scout cookies. I've been having cravings for cookies, too. I also got on the chocolate car and bought myself some See's candy. Just one or two pieces a day. Yum. You are a good daughter to your mom. I remember what it was like having small kids and feeling a bit 'trapped at home.' My kids are all in the double digits now, so I can leave them alone. Maybe you can get a neighbor or friend to come over to sit with your kids while you visit your mom in the hospital. I doubt your mom will be in there long. When I was considering a hysterectomy my Gyn said it is a one night stay. I'm having an Oopherectomy - just ovaries - out and it is outpatient.

    Rosie, welcome back - wow you read every post - whew! I've read a lot of them myself and it sure does help to see other women experiencing some of the same SE's etc. Nice to know we're not alone. I had some mood swings for awhile which were not pleasant. Now I'm having knee and hand stiffness. Whatever. It seems the SE's come and go for me. I've been on Tamox for about 6 weeks now.

    I tested BRCA+ and so am having my ovaries removed this Friday. Not too excited about another surgery, but ready to put all this behind me, if possible. I have a lot of support and have meals set up. Anyone else here had this surgery?

  • louishenry
    louishenry Member Posts: 22
    edited February 2008

    Question... I just read that if on tamoxifen, blood work must be done every 6 months, as it messes up one's system. My onc did not mention it. He just said that he wants to see me every 6 months. Any thoughts? Nada

  • nativemainer
    nativemainer Member Posts: 7,945
    edited February 2008

    My onc hasn't said anything about blood work at all.  I see her every 3 months.  In fact, the only blood work I have had was the usual pre-surgery stuff and a TSH level before starting hormone therapy--my onc gave me a prescription for Arimidex, but the test shows I'm not even close to menopause so she called in a prescription for tamoxifen.  There are no plans for any more blood testing that I know of. 

  • ashaby
    ashaby Member Posts: 200
    edited February 2008

    Dear All,

    I never was offered bloodwork for Tamox. My latest in the bc journey is tenderness from upper breast into the armpit. Quite sore. I see a PT on Thur week to see if it's lymphedema. Anyone else?



    Virginia, I've lost 7 pounds on WW. Yay!!!Now another 1000 to go. Can't wait to see my waist again.



    Love,



    Basha

  • VirginiaNJ
    VirginiaNJ Member Posts: 314
    edited February 2008

    Basha!  GOOD for you!!!  We have a program for "well being" here that you can earn a $75 gift card...  The guy called me last night and I just didn't have the energy to deal with a "session."  He asked me if I wanted to drop out of the program...  Guess they are tired of chasing me down...

    I might be getting the bloodwork every few weeks or so b/c I am on Herceptin.  Who knows.  Again, I'm blissfully ignorant.  Last time they called me and said, "Virginia, your bloodwork came back fine."  To tell you the truth, I didn't even give it a fleeting thought!  EmbarassedSurprised  I do get my finger pricked every time I go (every 3 weeks), but occasionally they take the vials of blood.  I'm guessing to check for the tumor markers or whatever.  I guess it's a question for tomorrow, eh??

    Cynthia- I meant to tell you that your comment RE Webkinz was HYSTERICAL!!  I'm glad you can relate to my "kid at heart-edness."

    Harley and Helen and all who have supported me and put up with my posts RE Dad, again, thank you so much for the kind words.  Dad was moved to an assisted living/rehab place yesterday.  Perhaps the change of scenery will do his psyche good.

    I'm drop dead tired...  Not sure if it's emotional stress or the Herceptin/Tamox...  I'm going to head down to the cafe now and get a 20 ounce java...

    Have a good one girls.  We are supposed to get 3-6 inches of snow here in NJ tomorrow...it will make it so convenient to drive for my Herceptin!  Yell

  • ashaby
    ashaby Member Posts: 200
    edited February 2008

    Cynthia and Virginia and all else who relate,

    I love the idea of revealing our distractions to ease stress from bc. Mine is People Magazine, on a couch, curled up, seltzer and the ultimate possibility of falling asleep. Beats any anti anxiety med. Ha!! Basha

  • Blinx
    Blinx Member Posts: 82
    edited February 2008

    I had to ask my onc for bloodwork, to see where I was regarding menopause, before starting tamox. I'm glad I did, since you can't always go by the monthlies, or lack thereof.

    One odd thing though, the onc didn't examine me at either of the 2 appointments -- she depended on the recent exams I had just had by the surgeon or rad onc. Hmmm.

    As for distractions, I LOVE catalogs! I go on the web and put my name on the mailing lists. I get home from work and idly "window" shop through the catalogs while watching TV.

  • my3girls
    my3girls Member Posts: 1,291
    edited February 2008

    Hi Tamox friends!

    Just catching up with all of you, while I am still recovering from surgery.  Doing pretty well, I just got my driving privelages back!! Yeah...I was getting cabin fever sitting in the house, and it's freezing outside!!

    Kosh...welcome.  So sorry you find yourself with such a painful decision to make.  I have to tell you, adoption is a WONDERFUL thing!  We have had a great story to tell about it.  My daughter gave up her baby (she was 17) to a wonderful couple, who had a 2 yr old at the time.  It's an open adoption, and we are so very BLESSED, to have them in our life!  It's a great scenario..all the way around.  Feel free to pm me with any questions regarding open adoption.  I feel for you, so sorry.

    D...Wahooo...the all clear on the mammo and us!!!! Thank God!!1

    Virginia...I am so sorry about your Dad.  I think that is so hard to watch your parent detiriorate.  I watched my mother.  My prayers are with you.

    Dawn...my s/e for tamox do go in spurts as you said. Some days they are just very painful, and other days, hardly feel a thing.

    Harley....welcome back.  Glad the cruise was fun and restful!! Good for you!!

    Hello to anyone I missed....you girls are the best!!

    xoxo

    Lisa

  • dcbkc
    dcbkc Member Posts: 137
    edited February 2008

    Hey to all!

    The serious stuff first -- my med onc told me that he'll do blood work every 6 months while I'm on the tamox.  I'm not exactly sure why -- I was still in the 'deer in the headlights' mode.  I see him again in a month.

    Virginia,

    Moving your dad to an assisted living facility could be great for him. Once he's on his feet a little, he'll have made friends and become comfortable with the situation. I'll keep good thoughts for you both.

    As far as distractions -- if you haven't figured it out by now, for me it's food.  Eating out, baking, going out with friends for coffee and a scone -- whatever! My neighbor is actually having bunko this afternoon and has invited me over -- lunch first, of course! I'm just hoping not to fall on my butt from here to there -- we've got sleet/snow/freezing rain today.

    Basha,

    Congrats on the 7 lbs!  You probably look mahvalous!

    Hey, did anyone see the lunar eclipse last night?  Very cool.  Even my 13-yr-old was fascinated.

    D

  • VirginiaNJ
    VirginiaNJ Member Posts: 314
    edited February 2008

    I heart you guys...  Kiss  This board is such a welcome distraction!

    I love Entertainment Weekly Basha!  Kinda like People!!

    I am so obsessed with my Nintendo DS that my arm is aching from playing so much...

    Just called the infusion place and they are fine with me going in today...

    D- I think you are sending the snow my way??  Are you in the mid-west??  It's supposed to be nasty here tomorrow.

    I see my Onc nurse every three weeks.  She listens to my heart and looks in my mouth (looking for chemo sores...ummmmmmm, I finished chemo in JUNE!)  LOL

    I see the actual onc every 3-4 months.  She feels me up and checks my lungs as well...  Never did go back and see the radiologist for a follow-up.  Did go see the surgeon 2 weeks after surgery, but never went back to her either.  Seems to me sometimes that every doc wants a follow-up...and for what...they look at you for 5 minutes, say everything is great...and poof, whatever your co-pay is later, you are done!   That's a whole DS game I could spend that money on!!  (JUST kidding...I know my health is more important than Nintendo DS).

    LOL

  • livinginboji
    livinginboji Member Posts: 9
    edited February 2008

    Hello Ladies,

    I , too, am jumping on this train! I finished chemo (A/C) in Nov. took 3 wks. off and started radiation in Dec. and finished (30) in Jan. (I was on the "Starting chemo in Sept." thread). Started tamo the middle of Jan. The onc. rad said he didn't recommend taking tamo at the same time as rads because it leads to harsher burns. He also said that if you sunburn easily you will burn with rads. I went into chemopause after my 2nd tx. and haven't had a period since. I am 51 but was still regular with periods before bc. I have had some hot flashes but not horrible. It helped having enough hair that I don't have to wear a hat/scarf anymore.

    I started lexapro 3 wks ago due to major emotional ups & downs. Holy crap! I thought I was going nuts! It really has helped. I have noticed the pain in my hip joints when getting out of a chair but not too bad. And swelling in my hands (but not ankles). It really is so helpful knowing that others have the same se's as you or that its not just in your head!

    I want to reserve a seat in the chocolate car! And I'll take a box of thin mints!! lol! I also splurged on some discounted after season Valentine's candy! My bad! Sorry but sometimes chocolate is the only thing that makes me feel better! LOL!

    Take care ladies!