Bottle o Tamoxifen
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jo---i'll chime in for the no se voices. i have experienced some hot flaxhes and some fatiqe. was also told that almost always side effect dissipate. a griend asked me if my nausea and vomiting were bad. i had no ideas what was referring to. i said no---i am not doing chemo. she said, oh! i know that. but others i have spoken to.....so, clearly woman by woman experience!
me make up, creams, lotions oh my! i never gave those a second thought! thinking cua i dont use anythin butwater to wash my face, hand lotion for my hands and rosemary and tea tree oil horse shamp[oo formy hair. guess i better go check the ingredients. yikes! and thanks for the heads up!
~~nancy-carol
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I take Ubiquinol which a is a more bioavailble form of CoQ10. I've been taking for about a year. (before BC)
The list of "estrogenic" foods, essential oils, etc, is HUGE.
To try to avoid it all is crazy I am come to realize. I started out trying to and do still to a point. But it's just ridiculous the amount of things I can't "have" or use anymore. Depressing. BTW, Lavender (and Rosemary, and Clary Sage and Tea Tree Oil, and Chamomile, and, and, and....) are all estrogenic and used VERY much in "natural" products. Sooo, I do try to avoid those when possible.Luckily I used to own my own business and made alot of natural types of products and kept up with it a bit over the years. So, I have almost every essential oil you can think of (of which only a handful I will now use
) and make my own perfumes and lotions, creams etc. I make a cream with cocoa butter, coconut oil, olive oil that I add a bit of Frankincense and Vanilla to for my skin. (Frankincense is actually supposed to be good for cancer) I have changed all my makeup to those without fragrance and parabens. Make my own glittery lip balm (pretty! 
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Started Tammy on Dec. 23 and had my first night sweat two nights ago, so for me they're just starting. But I am also on Effexor, and although the night sweats are annoying, I don't think they're quite as bad as a lot of people have experienced. I would put them into the category that some women have labelled as "warm flashes". I also have intermittent blurry vision, and fatigue and some funny taste experiences. But I don't know if I can blame Tammy for the blurry vision and fatique . . could be my age, lack of sleeping at night. I have tried Trazodone, and felt that my sinuses swelled terribly and I couldn't breathe. I think I will try Zopliclone. If that doesn't work, then I'll see what my naturopath can suggest. Day 3 of rads and so far so good . . .
I completely understand the restless leg syndrome, (a few pages back) because I feel I have always had that too. I don't think it's manufactured or in your head at all . . . I've battled with it for years and it's worse in the cold, during pre-menstrual and menstrual cycle, when I'm tired, etc. Very real for me.
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Getting my Tamox tomorrow and getting ready to jump on with the rest of you. Besides the hot flashes and weight gain or loss has anyone had any other problems - minor or serious? I don't take anything except vitamins so I'm a little scared to have to take something all the time. I guess I've turned into a health nut the past couple of years because of my husband having COPD I've elimenated probably 80% of all chemicals, preservatives and such from our home and foods. We clean with natural products and he does the cooking and cooks from scratch. He has to take a lot of medicine, but we've been able to have some of his cut down or out because of the changes we made. So, this is a little scary for me, but if it helps then I certainly want to do it. Don't want to have to go through surgery and such again!
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As to leg cramps - I used to have them really bad and cry and moan in pain. My husband taught me how to flex the knotted muscles by pushing my heel out and pulling my foot straight up vertical. It sometimes takes me a while to get my foot up but the cramp goes away immediately and doesn't quiver and try to come back the next few hours. I hardly ever get them any more, but the first time I feel the quiver in my calf I flex my foot and it goes away. Don't know it this will work for everyone but it's helped my sleep tremendously.
Also, I usually take Trazadone to sleep but since I started taking Tamox is seems to not work as weel. I have quit taking it and started taking Xanax before I go to bed and am sleeping much better.
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This may sound really radical but I'm not avoiding anything, with the exception of massive amounts of soy. I refuse to live my life reading labels and denying myself things I like. If it gets me in the end, so be it.
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I'm with you Surfette, although I have been trying to cut back on my caffeine intake.
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surfette - I'm with you too. I also refuse to have to read massive amounts of labels and change my entire lifestyle. I was fine for 55 years. A medicine the doctor gave me caused my BC not chemicals in foods or cosmetics.
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Thanks to everyone who responded about gyno problems and the big T. I'm hoping to keep what's left of my parts also! LOL Have a great weekend everyone - I'm getting kicked off the computer by my DH. My best to all, Val 0
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Oh Surfer& Dawney....I think you have it figured out! I'm old enough to figure if it makes me happy, & tastes good, it can't hurt.....Except I can't drink regular coffee later than afternoon, because it just makes me shake, & I can't sleep! '
BCinColorado....I'm just waiting for all the snow to melt, & I can start working outdoors! Still so much ice at our house! It melts during the day, then after that few seconds, it freezes all over again! I'm starting my tomato seeds in February...at least it will FEEL like Spring!
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Neither the doctor not the pharmacist told me anything about avoiding certain foods, meds, etc. while taking Tamoxifen. I probably should have asked, but I forgot. I expected to get some kind of an information sheet, but that didn't happen either. Sounds like there are a lot of different opinions on that--just something else to confuse me, I guess!
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susantm, I don't think they are talking about foods and meds with Tamoxifen just cancer prevention in general. I haven't heard of anything that you can't take with Tamoxifen but I will ask next time I go.
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surfette, I am with you too. I asked my onco about the whole soy controversy a few appointments ago. He said that women in Asian countries have less occurance of BC than we do and their diets are very heavy in soy and I should eat what I want and not worry about it. So, I am! I'm just trying to be healthy as I can be in my diet, within reason of course.
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hi kids: what i have read about tamox is that the only drug that they not to take is st johns wort and stattistically the is not significant corraltion between bad effects and grapefruit JUICE. my practioner explained that soy, although a wonderful sourse of protein and vitamens, it binds with estrogen and 'hold it in; so those of us the are estrogen positive, that which sorta propts the cells to eat and nourish cancer cells are advised to stay away from soy so, thats what i know today.
~ ~nancy-carol
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My onc told me if I wanted to drink soy milk in the morning that was okay. Just don't over do it and don't do a soy diet. That is not an issue with me anyway but is good to know.
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thanks jo, love it!
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Jan - You are welcome
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Hello ladies, THANKS for all the advice on what I should do going forward.....still not sure as it seems to be the hardest decision I have had yet as I am so comfortable and don't feel like doing any more surgeries. However if I do, I know I will be happier as well as long as there are no problems IN THE LONG RUN......
Tamox does not seem to be a problem for me as far as the SE.....the only thing I notice is memory and it could be related to age and the peri menopause......who knows. Hoping you ladies all have a wonderful Sunday.
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My Oncologist started me on tamoxifin right after chemo. before I started radiation. It seems like everyone else started after rads. Now I'm concerned. Was anyone else started prior to rads? I wonder now if this will effect my rads or Tamoxifin results.
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adorable thanks JO!!!
JUNE I have the same issue with memory and thought process since on Tamox. and I am pre menopausal... real hard to get my words together at times....
Have a great Sunday ladies!
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Memory is a big issue with me on T. I was post menopausal prior to taking it.
Hoping the memory thing clears up....
Jan
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As a follow up, it is called 'chemo brain'.
Yes, according to all my dr's even though T is an anti-hormonal drug it is considered a chemo drug too, just not hard core chemo. That's why all the SE's.
Jan
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huntreiter3 - According to my onc, it does not matter when you start Tamoxifen. Mine started me on Arimidex before rads but I had to stop due to se's - bad nausea. The meds will have no effect on rads.0
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My hot flashes were fierce when I first started Tamoxifen... then I got lucky and somehow got my period for 3 months and felt great. I have been exercising and lost 20 lbs thought that may have helped things settle down. NOW again.... no period hot flashes are CRAZY. I swear they are making me lose my mind. They seem worst in the evening. (I take tamoxifen in the am) And the ones all night long when trying to sleep ~ TORTURE !!! They are seriously making me want to stop tamoxifen but I fear recurrance so bad. I don't know what to do.... hoping they settle down a bit again.
Sunday hugs,
Alicia
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Alicia - Try splitting the dose. Take half in am and half in pm. It seems to be working great for me.
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Have any of you found that taking half the dosage (10 mg.) twice a day is better then taking 20 mg. all at once as far as any side effects are concerned? Have any of you had vision problem?
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ALL: memory loss extrodinaire! anyone ever see the movie "gaslight" with angela lansbury? (made maybe35,40 years ago) that's how i feel. a person could tell me told all about something and an 5 hours later i forget it. amyone can bs me these days. irony----i work with elders with alzheimers. wondering whose the greater short term memory loss? oh well, it will pass, i hope!
~ ~ nancy-carol
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ALL: memory loss extrodinaire! anyone ever see the movie "gaslight" with angela lansbury? (made maybe35,40 years ago) that's how i feel. a person could tell me told all about something and an 5 hours later i forget it. amyone can bs me these days. irony----i work with elders with alzheimers. wondering whose the greater short term memory loss? oh well, it will pass, i hope! or did i already say that? ~ ~ nancy-carol0
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You make me laugh nancy-carol !!
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