Bottle o Tamoxifen
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Thank you corky your explanation cleared things up for me.
And thank you Dawn for the link. Good information. Makes me more comfortable with the decision to take tamoxifen
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Loneskier, my mouth just dropped open. For several weeks, out of the blue, I have been unable to kneel on my right knee without sharp, excruciating pain.. It never crossed my mind that this could be related to Tamoxifen. I have no other issues with this knee; it just feels as though I chipped the kneecap somehow (and how could I do that without REALLY feeling it??!!). Is that what your knee feels like, or do you have other troubles besides being unable to kneel on it?
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I started tamofexen 20 mg in September 2013 the right side of my jaw are killing me is that normal?
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I am also having knee pain since early Feb- mainly my left knee which hurts so badly sometimes I get nauseas. I have such a hard time with steps- its on the right side of my knee cap and if I touch it it hurts badly. I asked the Oncologist NP and she said it was not from Tamoxifen and said it reminded her more of arthritis. I thought why would I suddenly get that? I have not had problems before-
Does your knee hurt worse after getting up off a chair or going down the steps?
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ndgrrl, my MO told me I could get joint or bone pain with Tamox. I have knee pain especially in the morning. My fingers also hurt at night, kind or arthritis. I never had these pains before until i started with Tamoxifen so i am sure it is from that. The pain is not that bad that i would stop taking it though...
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Kneecap (patella) pain is a problem. I am going to ask for an x-ray to rule out arthritis. I am sure it is related to Tamoxifen.
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I wanted to just remind people that when you start melatonin, you should start at a very low dose and work your way up. If you take too much it has the opposite effect and will make you wide awake! I bought mine off Amazon. It's vegetarian and is only .3 mg (yes that is 0.3!).My mother has been taking this dose for 25 years and says she sleeps like a baby and she's 78 and healthy as a horse! I take one a night and it works great! I fall right to sleep and now sleep pretty much through the night. I had really bad joint/muscle pain that started about 2 months into Tamoxifen. My MO suggested Osteo Bi-Flex which didn't help at all. I then visited an holistic breast cancer doctor who suggested the melatonin as well as ginger and turmeric which are anti-inflammatories. The ginger and tumeric are also very good for your heart so win-win.
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lala, my MO told me that all those herbs like turmeric and well ginger (not a herb but for his explanation) to not to take them as concentrates. To take them natural, no pills.
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My MO lied to me, said that tamox does not cause joint pain. It took about 2 minutes of searching here to find out it does! Unfortunately, my pain has been increasing over time and it is bad enough now that I want to stop taking it. We will be having that discussion soon.
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Has anyone else heard the news report today that starting next month there will be a shortage of Tamox since there are not enough ingredients available to fill the manufacturing requests? All they said on the Boston ch 5 news is that patients will need to switch to another med (????) for which they will have to get a new prescription. Well, clearly this is not "news" to those on this thread! And if this report is accurate, I am very curious about the meds to which patients will be switched. Oy!
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Lacey, I haven't heard this on the news, and I couldn't find it just now on WCVB's website. I did find this, which makes it look as though we might be coming to the end of the shortage:
http://www.ashp.org/DrugShortages/Current/bulletin.aspx?id=1071
And of course my googling brought me right back to BCO in several spots, including a post by you, Jennie93!
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Hmmmmm, Run.....Shall I call my fellow "PT knee rehabber" who gave the report today on the local news and wonder if it was all about "alarmist news"?! I do hope that is the case, actually....since it would be awful for everyone to have to figure out how to manage a serious shortage. Thanks for your more promising info!
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I'm in Boston but never watch the news at this time, so I didn't catch the story from Lacey's buddy. ;-)
I wonder if the "switch" will be to the Watson brand? Seems like the shortage is of Teva and Mylan (which we boardies have known about for months!). I'm thinking maybe slow news day?
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Lacey, if this was heard at second hand, it could be there was a story about the ongoing shortage and the timing of it just got mixed up in the person's head--not a coming shortage, but an existing shortage, projected to be resolved in a month or so. I'll hope that, anyway.
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The Watson brand is now called Actavis and Actavis has a shortage. I don't know about the other brands.
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Just an FYI....I had a 6 month check up with my BS today. We got to discussing TX. I usually reserve these questions for my MO but my BS is really interested in side effects and such of TX. He goes to alot of conferences where it's discussed. I mention my periodic fatigue which isn't near as bad as some of you ladies! He said he has a patient who has this issue but way worse than me. She told him that after much consultation with her docs, that she takes an Excederin every day. Apparently it has the aspirin in it that alot of MOs recommend when taking my TX (mine does) but it also has some sort of energizer in it. I can't remember what he called it. She told him it has changed her life! That she feels almost normal and it also helps with her joint/muscle pain. I started taking a baby aspirin once a day when I started TX but it made me bruise like crazy so my MO cut me back to once a week. He says most docs feel that once it's built up in you, that once a week does just as much good as once a day. But for me this means I can't try the Excerdin...it has too much aspirin in it. But I just thought some of ya'll might like to ask your docs about it.
One the bright side, I no longer have much trouble sleeping cause I'm so tired!! I find that if every couple of weeks, I sleep about 10 hours then it'll carry me over for another couple of weeks. So here's to lie-ins on your day off!
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interesting. I need to ask my MO if i can take baby aspirin and how many a week. Seems Aspirin as well as Metmorfin help prevent cancer and hopefully recurrence.
http://www.sciencedaily.com/releases/2012/04/120419142932.htm
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No other issues other than my knees. I have switched to a thicker pad for yoga and it seems to help. I just had my 6 month checkup with my radiation Doctor and she says Tamoxifen doesn't cause joint pain. My follow up with my oncologist is in 2 months. If the pain gets worse I will call Doctor sooner.
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Anybody have a itchy scalp with Tamoxifen? It's kind of a weird itch.Almost feels like you have goose bumps on your scalp.It's not really the skin almost comes from the inside of the scalp or maybe your nerves in your scalp? Does that make sense?
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Lacey, didn't you mention itchy scalp?
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Yes, Josie, I have a terribly itchy scalp, ears, neck and chest....and sometimes eyes. Am supposed to be starting Vit C for allergy treatment, but want to wait for a few weeks since I want to see if not taking the Tamox for a few weeks changes the itching. Hasn't yet.....
Hope yours doesn't expand like mine has.
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i have noticed i have a flaky scalp now, but not itchy. my biggest weird body issue is the fact that my feet and urine stink like vinegar now. not sure if it is the tam, or damage from the chemo to my systems. so bizzaro.
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YES! Itichy scalp I thought it was from my shampoo and I bought another bottle brand. Yes Tammy causes aches and pains I've been taking it about a year and have sleepless nights and aches and pains and a very few but some hot flashes.I have developed a heart defect and have had several tests but no results as of today what's the final diagnosis, if I have to have surgery will know in about 2 weeks I suppose. Not likeing it a bit, seems BC is enough for one person to deal with. I have diabetes, rheumatoid arthritis, high bp , thyroid disease and high cholesterol. Can't take meds for arthritis as it depresses immune system and would let cancer come back so it's me and tami fighting this stuff. No shortage of teva here in tyler, tx. good luck getting teva. By the way if any of you have rosecia I just found out today that aloe vera gets it under control. Rub on face with pure aloe and it gets rid of it.
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Anyone struggling with reflux or heartburn from Tamoxifen? I think that Tamoxifen has brought this on. I never suffered from it prior to taking Tamoxifen, that's for sure. It's caused a cough, sore throat and heartburn.
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no, but if you take it at night be sure you drink plenty of water. Advilpm did that to me.
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Thanks, I am a big water drinker. Hot water is my "cough medicine." I am looking into the role of diet. No caffeine, citrus, carbonated beverages, chocolate and peppermint. I drink tea in the morning so I will have to give that up Only do the rest occasionally.
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Hello ladies! I am starting Tamoxifen a week after Rads are done (April 23). But I am going on a trip at the beginning of May for a few days.
I wanted to know how soon your side effects started after taking Tamoxifen. I would be in my first week of taking it, and wondering if I should just wait until I come back to start it in case I have any trouble.
Thanks!
Andrea
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Hi Andrea - I started Tamox a month after I finished rads. I started a new job and just didn't want to be concerned with SE's during the first couple of weeks.
I started the Tamox on Feb 28 and so far my only SE is really not being able to stay asleep at night. Other than that, so far (knocking on wood), I do not have anything else that I would attribute to Tamox.
If you would only be delaying your Tamox by one week, I would wait to start it upon your return from your trip. You deserve the trip - why not just go and have fun for not worry about that "cancer" and "tamox" stuff when you get back ?
(this is just my opinion tho ..)Hugs!
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I will be starting tamoxifen after completing my radiation therapy and I am concerned because I am currently taking Wellbutrin XL for depression and fatigue. The Wellbutrin has worked very well for me for about a year now, but it is not recommended to take with Tamox, so I will be weaning off of it. I am concerned about my energy level as this was a huge issue for me prior to starting the Wellbutrin. I am not as concerned with the depression part as my life situation has improved (despite a cancer diagnosis!) I am wondering if anyone has tried taking Vyvanse or anything like that to combat fatigue while taking tamoxifen. I know tamox doesn't generally cause fatigue but mine was already an issue before being diagnosed. I am also wondering if something like this would help counteract some of the weight gain with tamox. I have two sons with ADHD who take Vyvanse and I have found it to be a very safe and effective treatment for them. They can take it when they need it for school, and do without on the weekends without any side effects. Just curious. I know effexor might be recommended but I'm not really interested in trying that for many reasons.
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Welcome, kuriatis! You should talk to your PCP about this. Provigil is another med that can be taken. I do find fatigue to be an SE but not all women have SEs. Definitely talk to your doctor. Strange as it may sound, exercise can also help with fatigue. Of course it's hard to motivate yourself to do it but there are benefits. Good luck with rads!
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