Bottle o Tamoxifen
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I also have that firmness... & noticed depend on what undergarment I wear & for how long, my skin got tingles. my Surgeon said it's the scar tissue breaking up.
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I say that often..."this too shall pass". It has helped me get through some tough times knowing that there are better days ahead. I have been getting night sweats for quite awhile (before BC) but they got intense during chemo. I would wake up 4x a night drenched. Very uncomfortable. They have backed off since chemo but now comes tamoxifen. I think that perhaps they are slightly worse again but nothing like chemo. So hard to say if it is the tamoxifen or just my body. It's only been a week.Otherwise all seems quite normal.
I loved Jazzercise at one point in my life. I went several times/week and then it moved to another location which was too far for me to travel to comfortably. Now I am a runner (ran NYC marathon in November for first time) and lately been doing some Beachbody dvds in the morning before work that are quite effective. I am addicted to exercise at some level but not a crazy person that is constantly in motion. I can be quite lazy in the evening - without any guilt.
I can't wait for the day when most of this is behind me. Hopefully soon! I have to get my tissue expander swapped out. That should be in a few months. I just want to be healthy, well, energetic and alive! 2015 really kicked my arse.
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I have started wearing a sweat wicking shirt from Lululemon at night. Any sort of cool max material would work. I find that I am not near as cold at night as the fabric never feels wet. I don't get the chills from being in a soaking wet tank top. It has helped.
Accupunture has definitely made a difference for me as well. I have had 6 treatments and have noticed a big improvement. I almost don't notice my hot flashes during the day. I do have them but they are not nearly as intense as they were.0 -
I've been on Tamoxifen for 7 weeks and just in the past week my hot flashes are getting worse. Well, not worse...just more frequent. I now get flashes every hour or so where before I was only getting them two or three times a day. It's getting really annoying. Please tell me this gets better?!
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Hello -
I've been on Tamoxifen for about 7 weeks as well and am finding the hot flashes increasing too. This past week was so bad sleeping I'm drenched in sweat in the night. So I'm making drastic changes in my bed. Here's what I'm trying: bamboo sheets or silk sheets (are cooling), cooling mattress pad (tempurpedic beds I read keep you hot), cooling pillow with gel in it that keeps your head cool, cooling cap on my head or neck that is actually wet, window wide open, minimal covers, silk pj bottoms to absorb leg sweat. The thought of wearing PJ's sounded ridiculous because I thought it would make me too hot. But I find when I'm naked the sweat gets everywhere on the sheets and my legs stick together...it's a terrible feeling. So the silk PJ's are actually cooling and do absorb the sweat. The heat from my husband in the bed isn't so great either but I can't kick him out of the bed. I sent my Oncologist an email and want to ask him about Black Cohosh I hear is good for hot flashes but I'm not sure if it's ok to take with Tamoxifen. This is just my nighttime routine. During the day hot flashes do come on every hour or so it seems like if not more. It is easier to deal with them during the day with a fan at my desk or air conditioning in the car.
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I am wondering if any of you have used essential oils to help with hot flashes? I am so scared about anything that may mimic estrogen or progesterone.0
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My MO said no black cohosh or anything like it. The only thing he approved was iCool which fortunately worked for me.
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When you read the iCool info it says you should not take it if you have had breast cancer
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I am 50. I got my last period in July the day after my 50th bday and two weeks before my first chemo. Haven't had a period since. My MO says I probably will not. I was already perimenopausal before BC but I think chemo really put me over the edge. I haven't had hot flashes but have had night sweats.
I have also been told 2 years Tam and then switch to Al.
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Hello Tamoxifen Sisters!
I have been on my 'Cancer-away' for about 16 months. I still hobble when I stand after sitting for a while. I have found the nightly muscle aches in my thighs are better if I take the pill in the morning ( instead of bedtime).
Claire ( I am a huge Outlander fan, btw!). I too just had some freaking miserable shoulder surgery. A rotator cuff tear and torn ligament as a result of my recon. Surgery. Buggers!
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I am 43 and I was perimenopausal prior to chemo. My last period was one week before my first chemo (so, a year ago last Feb). My MO predicts that I won't get my periods back. I don't know how or why he thinks that but I've been done with chemo almost 6 months and still no period so maybe he's right? We are going to check my hormone levels at the end of Feb to see if I'm truly menopausal or not.
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I will turn 43 end of March, my last period was 2.5 weeks after first Chemo, mid Aug. It was shorter/ lighter than usual, before it was very regular. Last Chemo was end of Sept. My MO thinks it would come back "couple months after chemo", but another mo said it probably won't come back. Started Tamoxifen Nov 1. So far, it's not back. but I noticed some days I have that pressure/ fullness in my tummy, like you would a week before period. I guess it's trying to come back. Guess I still have to wait & see... I don't have night sweat but do have hot flashes.
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I really, for no good reason at all, can not seem to bring myself to open my mouth and take this little white pill. I'm already into menopause, last period was in July 2013, blood tests confirm the FSH levels are consistent with full blown meno, I have had hot flashes for years so I know what it's all about. My feet hurt in the morning, have for years... the pharmacist told me to take the tablets with food as they can cause nausea. Maybe that is what the issue is. Ooy.
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I hesitate with it every morning. I've got It in my hand and I pause...but then I take it. I really don't want to. It's a daily struggle!
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No one WANTS to take Tamoxifen.
But, ( in the words of my MO it may save your life.
I am actually grateful that after that hellish chemo, surgeries and radiation; I only now need to take a small white pill everyday.
I have the SE's, the aches and stiffness, the hot flashes...( but hell, hot flashes were probably on my horizon with or without bc).
BUT... I am alive to bitch about the SEs.
So, I am grateful for the little white pill.
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It was hard for me to take that first pill too molliefish. I had the prescription sitting on the counter for a bit before starting. I decided to start Jan. 1st. I am hoping for the best with SEs. So far I think I just have a few more night sweats or maybe more intense night sweats. Possibly more tired but that could just be the day. The other day I had a headache that wouldn't go away...tamoxifen? I think it is probably easy to throw every ache and pain under the "tamoxifen SE" bandwagon but I could feel this way without it.
I try to keep that in mind as I forge forward. So much of the tough stuff behind us! Like jbokland says....we are lucky to have this pill that will greatly reduce recurrence. Thank goodness for modern medicine.
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So I had the opportunity to chat with a few wonderful woman yesterday and the topic of tamoxifen came up. These woman are all in various stages of cancer treatment and had extensive experience with the drug. I was told of a new study that came out saying that tamoxifen is only fifty percent effective at doing what it is supposed to do. After hearing that I was like why am I taking this stupid white pill.
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I wish I had a crystal ball! I just keep putting one foot in front of the other and do my best to do everything possible to avoid a recurrence. The rest is out of my hands.
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DeeRatz---
Hormone-Free, Soy-Free Hot Flash Supplements | i-cool® Products
According to iCool website, the product doesn't contain anything estrogen driven and under Frequently Asked Questions says it's ok to take if you've had breast cancer. My MO agrees with this so I'm ok with it.
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jbokland-well said. That is kind of how I feel. Anything I can do to keep this monster from coming back.
Here in Canada where I live the Cancer clinic supplies us with our Tamoxifen free of charge. I just have to go there to pick it up. I have had no problem taking them. I started the day I got them. I do think the night sweats/hot flashes are improving. Every night it gets a bit better. I took Melatonin last night and wow did I have crazy dreams. Personally I don't find that Melatonin helps with my sleep. The only thing that works for me is Ativan which I will only take once a week
Lala-I was looking at the Canadian site. I will check out the U.S. site. I'm guessing the formulations will be the same. I will be in Nashville next week so I will pick up a pack and see how they differ, if at all. Where do you buy them? Walmart? Costco?
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Good Morning/Afternoon, Wendy I hear what you are saying, and it's because you're going to be on the right side of the 50%!
OK today I will take it. Tonight, with dinner, so the food deals with any possible nausea, and I get my hot flashes when I normally do :-) at 3:30am and 5:40 am
After all, we can quit anytime right? And as my dear colleagues always say, 'if you don't shoot, you can't score'.
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I was 52 at diagnosis and my periods were still regular and I had never had one hot flash. I think I would have had a late menopause. My issue isn't so much with the hot flashes but with the chills. I am testing magnesium for it. I am also not sleeping great because the chills keep waking me up.
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When get ready to take my breakfast pills, I say, "Thank you, Tamoxifen." I know it's hard to keep in mind, but surgery, chemo, rads, and medication are all choices we got to make in order to support our health and longevity,
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This is what I read under FAQ...
"You should not use i-cool® For Menopause if you currently have or previously had breast cancer and/or breast tumours or if you have a predisposition to breast cancer, as indicated by an abnormal mammogram and/or biopsy, or a family member with breast cancer. Always remember to check with your healthcare professional before taking any new natural health product."
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This is what it says in response to the BC question: There are no known side effects attributed to taking i-cool® For Menopause. We recommend speaking with your healthcare professional to see if taking i-cool® For Menopause in combination with any other medication or supplement is appropriate for your individual situation.
Where did you find that quote, Suzanne?
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That's so weird that I got something completely different when I clicked that link.
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That is totally weird!! How is that possible?
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The link in Solfeo's message is the Canadian link. That's what comes up for me anyway. But I am in Canada..
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I am feeling so extremely defiant right now and I just want to be done with BC. How can I move on when I still have to take this pill for 10 years...that's not moving on - that's a daily reminder! I know I am going through a phase and it will pass but right now I'm just bitter that I can't close this chapter of my life completely. Yes, of course I'm grateful for having this option and I am so very grateful to be alive but I guess I just feel like I'm stuck in cancerland.
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