Bottle o Tamoxifen
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Sloan - Thanks for the Mars rover analogy - I hope that is how it is!
molliefish - Good to hear that you are feeling so energized and ready to march forward!!
I put a sign in the closet on top of my nightgowns that says "TAMOXIFEN". I hope that will help me remember at night.
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momwriter--Just an FYI in case you need it....I take tumeric and ginger for the muscle/joint pain. I started it about 6 months into my Tamoxifen when I couldn't get more than a couple of hours of sleep at night and I hobbled around during the day. Within a week I went from a pain level of 8-9 to a 1-2 out of 10. I now sleep soundly through the night and have joined a gym and run on the treadmill, lift weights and do yoga. And as an added bonus, both are really good for your heart health.
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also picked up my tamoxifen today. I am 34 and the side effects look worrisome. Weight loss is the only good thing I see. 😃 I will start tomorrow morning. I hope to have no horrible side effects. I have to take for a yea
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weight loss....? It's been weight gain for me.
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Yeah, I didn't see weight loss as a SE. I wish.
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I've only been on it about 8 weeks and I've gained about 6 pounds. This could just be me rebounding to my normal weight after it dropped so low during chemo but I'm keeping an eye on it
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I have been on tamoxifen for seven months, I am lucky in that I have no side effects. I do attribute this to exercising for at least one hour everyday. Also a change in diet and juicing.
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Weight gain here. Not much...about 6 pounds over the last 3 years but I'm limiting calories and working out every day so I can only imagine what might have happened.
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Hello all -
I saw my MO today, but forgot to ask this question. Why do some people take tamoxifen at night vs morning with breakfast? This is only day 3 for me, but I've seen many post about that.
Thanks!
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I take mine in the morning to split up all the medications I take. I have to take my lovastatin at night so I just picked morning to space it all out some. With the Effexor, calcium and vit d it was just easier.
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Thanks, Robin. I take a few other meds also, and I just kind of lumped it in with those.
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I wonder if about 5 lbs of the weight gain on tamoxifen could be due to hormonal water retention? I was on tam for only 2.5 weeks before having to take a 2-week break. I did notice about a 5 lb. gain in that 2.5 weeks, only to lose it all within a few days of stopping. I don't think that I changed my eating/exercising habits.
That said, I am currently in radiation and it caused me to not have much of an appetite. I started back on tam 2 days ago and yesterday I was much more hungry (of course, that could just be a result of the fewer calories catching up with me).
pennsygal - I think the timing just depends upon convenience plus mitigating any SE's you might have. I did morning first go-around, but felt like I had minor nausea sometimes an hour or so afterward as well as a short wave of tiredness. So this time I switched to night,
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hello pennsy... I am weaning off of Zoloft ... Not fun, but I read that Zoloft may reduce the effectiveness of tamoxifen. thinking of switching to an a
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Yes, Jojo - it's pretty harsh. Although it's nice to burst into tears at the drop of a hat. I feel like for the past year, the zoloft kept that in check.
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Hi Trvler -
When I started Tamoxifen - last January, - that is how it affected me. About one hour after I took my pill, in the morning, I would become extremely cold. I would have to wrap myself in blankets or afghans. I don't remember how long it took me, but eventually, that changed. Now I have the other end of the spectrum - hot flashes. At first, it was only a few but recently they started to increase. I see my medical oncologist tomorrow for another 6-month follow-up. Here's to year #2 of Tamoxifen.
MarieBernice6234
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Hi Fizzdon52 -
It is funny that you should mention your shoulder pain. Just recently, I have developed a pain in my shoulder/upper arm area. I was beginning to think that I must have injured it somehow. My cancer was on the right side. Sometimes it is difficult trying to figure out what is real and what is a side effect. Going to ask my medical oncologist about it tomorrow at my appointment.
MarieBernice6234
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Sure sounds like thrush to me Solfeo. You could try a salt water rinse to see if it helps. I haven't had this experience with tam but did with chemo.
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Solfeo: (speaking from my own experience) Sometimes Candida does flare up when one's immune system is distracted--nothing to do with your own personal diet, which sounds exemplary. But this is more likely for those of us (like me) who've had flareups at either end in the past.
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MarieBernice - I am also having that cold thing. I was freezing all day yesterday and woke up in the night feeling cold.
I had bloodwork done yesterday, and it looks like I'm in menopause. I can't remember if MO was going to repeat the tests in three months, or switch me to an AI now. Never a dull moment!!
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Hey Marie - I also have horrible shoulder pain (opposite side of lumpectomy). Let me know what doc says .... hate these side effects but I guess its better than the other option
thanks.Kim
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Yaaaaaaaaaay!
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Yeah on the coffee, although I only drink one cup a day. Now if they could just say ice cream helps something.
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Yay for coffee! Now if they can find a similar benefit from beer or wine, I'll be set for life
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Those help attitude. Haha
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A good attitude is very important!
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Saw my onc last night and now I'm on Team Tamoxifen! I travel to FL the beginning of Feb for work so I'm going to wait to start taking it when I return. I really don't want to experience anything weird while traveling. I'm already having major hot flashes and I'm a little nervous about the more serious side effects. I'm mentally working through the positives of this drug and not dwell on the "what ifs". Will be tracking this post to see what others are experiencing.
Took a few extra days in FL and I plan to relax!
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Hi, goldenpawsK,
I think my issues are just normal wear and tear, although I'd love to blame the white pill, lol. I have always carried my purse on my right shoulder, I also sleep on my right side. I am scheduled for surgery on Feb. 10, so I'll be stopping the T two weeks before and won't go back on until two weeks after the surgery.
Has anyone been taking T for over a year and still having periods? I've been bleeding for two days and it's still pretty heavy.
Claire
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Don't be messing with my coffee! That is good news!
Alcohol is a bit unclear since they advise you steer clear of it with ER+ BC. But I don't think a glass of wine here and there on occasion is going to hurt anyone.
I am two weeks on Tamoxifen and happy to say I am feeling pretty darn good. Only side effect that is noticeable to me is more intense night sweats. This week was a good week - energy returned. Last week I was so tired and of course, blamed Tamox. More likely it was just a tiring week and was unrelated to the white pill.
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I don't drink anyway, so that doesn't concern me (does the sip Sunday morning counts?). Even IF I do, I have bunch of friends watching over me like hawks (2 MDs - one in cancer research, a radiologist, 2 cancer researcher-drug developers). I see them couple times a week, so I better behave myself!
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The way I looked at it was I could always stop it if I was too miserable. But so far, my only issue is chills and I was having those before I started. I am thinking some B vitamins might also be helpful.
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