Bottle o Tamoxifen
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julieagw2 Hey girl I would also like to know if the diuretic works.. I also have gained several extra pounds... I'm also interested in anything that works for hot flashes too! I'm taking evening primrose and so far it's not helping.0
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With me the diuretic took off a couple of pounds, however you can't do alot on it because you are constantly needing to use the lady's room, so if your at work,baseball, soccer or shopping it can be problematic. like everything else with bc.
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I take my first little pill tonite. The prescription info says you lose weight. Do you think they put that in there for a laugh? I cant afford to gain anymore weight. I have slowly gained about 15 pounds since I was dx. I take effexor for my flashes. I still get them, but not as severly. (also did acupunture) I will flip if the flashes come back in full force. The effexor got me thru the chemo on a good note. I really wasn't moody or witchy. I t has worked wonders or my mood.
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During, four months of chemo. (TAC), I lost 35lbs, and now have gained back 5lbs. I'm on my second bottle o tamox. and have a problem keeping my weight on. My work is very physical and I walk my dog, every day, but I really have to eat a lot of small meals. My biggest problem, is with pain in my shoulders and ribs, probably from radiation. Half way through, my day I'm just in agony. For the last month, I've been on Celexa(FDA warning list) for depression, and have been taking, Ibupr.for the pain, and now heard from the chemo. pharmacist that I should, have a liver test if I'm taking Ibupr.with Celexa. Geeze does it ever end.....test begets test and one pill leads to another.
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Good luck Kbell. Yeah,I think they put that on there for a laugh. I sincerely hope you don't gain any weight. Best of luck to you!
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I am 50 and have been on "the train" for nine months. I have gained 10 pounds, fighting it all the way. I work out five days a week, and eat as I always have, but it happened anyway. I am under 5 feet tall, so it really makes a difference on my little frame. I don't feel like I am retaining water. I am not any hungrier than before, in fact, I feel less hungry. So, I believe that the weight gain is because my metabolism is just slowed way down.
Regarding the fish oil... the one I get doesn't have any soy in it. My cancer was estrogen receptor positive, so I am not supposed to have soy, although my onc says a little is OK. For anyone out there with estrogen negative breast cancer, all the research I have read says that soy actually prevents cancer in your case.
So good to hear from Murphmort and Sue-I can Do It. Yes, we have moved on and don't check in here so much anymore. We have hair again! Hope you are well.
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Did your hair get thin while taking this? How about skin/wrinkles changes? Isn't estrogen the hormone that keeps us "youthful" or young looking? Will we age before our time?
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I've been on it for 7 months. Yes estrogen keeps us young. I am 43 and found that my skin is a bit dryer, but nothing major. I also take flax seed, which is a phytoestrogen so perhaps that's helping my skin. I also take fish oil.
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Is taking flax seed risky? I thought you had to avoid everything with any kind of estrogen.
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Took my first tamoxifen last night. No change so far! I plan to maintain that "no effect" throughout the next five years. There is something to be said for wishful thinkng, right? Or is it head in the sand? I hate cancer. OK. Rant's over. Thanks for listening.
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FLMel-I took my first pill last night too. I too am hoping for no s/e. Maybe we will be the first 2 gals to sail thru this!
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Flax is a phytoestrogen, but it has a postive effect on the receptors, unlike soy. If you are interested in it, there are several threads here on Flax. I spoke to my onc about it and she said it was fine. It is extremely healthy.
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FLmel and kjbell - congrats on taking your first pill last night. Welcome to the club. I know you will do fine!
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Happy Saturday to you all.
I have been on Tamoxifen for about a month and have had no major s/e. I get a few hot flashes but nothing big. I get warm for a few and then it passes. I had them since chemo. I know a few ladies that have been on the pill and they had no or very lil s/e! I hope to be like them.
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I had a colonoscopy so lost some weight, ha! I swear, I want to loose another 10 so I am really lean. I am motivated to think I can do this, dispite the pill!!! I've not even been on it for a month yet, but so far so good....
Spring...
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Hi ladies, I finished chemo in March and took my 1st Tamoxifen pill last night at bedtime, so far, so good. This has probably been answered somewhere, but can it take a while before se's kick in? Is it usually pretty soon that you would see the side effects, if you were to have any.
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I have been on for almost 3 months and the first side effect I got was constipation - yikes and yuk, a full feeling. I added a couple prunes to my oatmeal and that took care of that. I also have insomnia -- up every morning at 4 which is not too cool as I would like to be in bed at 7 at this rate!! hot flashes are not so bad. I have not gained weight but feel really bloated the last couple days so I am going to start a preemptive strike and go back on the south beach diet. I am only 5 ft tall and don;t like to weigh more than 108.
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Makraz-I have heard many good things about flaxseed, so i will ask the onc.
Traveler56-Is the South Beach Diet a high protein diet? I've done the high protein in the past, but now that I get regular blood work done, I'm scared all that protein will screw something up.
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Hi all I have not been on for awhile. I did not know that tamox caused constipation and I have been that way for a year. We the dr and i thought it was another med but i have a really bad time with it. I have been on the tamox since jan 2008. I thought the hot flashes where getting better and the past month they are coming back just as strong ugh i hate them. On the bright side i had a clear mamogram last month. There are probably se that i don't know about so i will do some research on that today. Peace to all and you are wonderfuly!
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With the Effexor my SE's have been minimal. I have actually lost 3 lbs, they wieghed me at radiation every week. I have not had an appetite, so I guess that helps. Also being tired at the end of the day and too tired to snack helps too. I use lotion all over my body and drink alot of water to help keep my skin from drying out. I tyr to eat healthy, but lets face it with a hectic life and three kids it is hard to eat the right things all the time. Dinner consists of a lean protien, a stacrch and a double serving of veggies.
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Jilly, I have been on it 3 weeks so far. I've heard from others here and other threads that sometimes SE's don't start for 4-6 weeks.
Stefie, consipation?????? Oh God no, is all I can say!!!!
Spring.
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I have been on it for 3 wks so far. No really big issues YET. Man I hate the waiting game.lol waiting if you get this or that... I did that with chemo...and for me i had no major problems with chemo. But I still wonder when the s/e will hit. I have hot flashes but had then during chemo. Tick tock tick tock...lol!
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Marlenet, WAIT WAIT WAIT!!!! LOL. no symptoms yet!
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LOL Springtime, that's good... I hope you dont either...
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Glad you ladies are side effect free, or at least manageable. I hope it stays that way for you. I have a feeling it will!
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Hi Ladies!SUNSHINE: Exciting news! My Onc. prescribed VENLAFAXINE for my night sweats, I was up every hour on the hour soaking wet! I now have NOT had one night of hot sweats since I started taking this pill! It is my miracle drug, I now look forward to going to bed! Don't suffer with night sweats, make sure to talk to your onc. for meds that are right for you. Gentle hugs, jeanie
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Hi everyone,
I just had a routine eye exam, and my dr. said that she recommends ALL women who are taking Tamoxifen get visual fields tests done EVERY YEAR, because Tamoxifen can cause 'changes to the Macula'. WTH?? Does this mean I'm gonna go blind??
Anyway, I'm going for some tests on May 4th, and am hoping all will be ok. But, I may have to hop off this train, if I'm having eye problems from Tamoxifen. I hope I can still come back and visit.
Hugs
Harley
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Yes Effexor/Venlavaxine, has really helped minimize my s/e from tamoxifen. I do not feel as irritable and angry all the time. I hope all continues well for those of you who have little or no S/E's. Good Luck ladies.
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Alright jeansbeans. Glad the pill stopped your night sweats. I am on the same pill and it really brightened my mood and helped keep me semi-sane thru all this. I can relate to the sweats. Mine were like yours, soaking wet and all night long. I now get a few warm sweats, sometimes I get none at all. It truly helps!
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Thanks for all your replies on the vitamins. Feel like I am alot older than what
I am. Legs aching alot. The hot flushes are still happening to. Hot and cold alot to.
Am waiting on results from my 2D6 test which I did through DNA Direct. Didn't bother
asking the doctors here. Am still trying to get them to do CA153 and CA 125 test on me
and they come up with all the excuses not to do it. I see DNA Direct does the hereditary
breast cancer test as well. I will think about that one.
I enjoy a beer or 2 a couple of times a week. I hope that doesn't hurt me .
Breast cancer sucks.
Take care everyone, will let you know what my results are when I get them.
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