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Anyone on just Taxotere and Cytoxan?

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Comments

  • Jisman
    Jisman Member Posts: 96
    edited December 2008

    Just popping in to ay Happy Holidays.  I finished at the end of April yet will forever be grateful to my cyberpals on this thread who really helped make the chemo experience much more tolerable.  My Med Onc just hadn't had that many patients who had gone through the TC protocols so while he is very good, his ability to highlight potential effects and helpful counteractions was limited.  Have now passed the one year mark from the mammo that identified the suspicious mass and nearing one-year from the actual diagnosis.  My annual exam showed nothing of concern - yeah!  Of course, doing Tamoxifen now.  Wishing you all easy treatments, peace, and happiness throughout the holidays and in the next year.

    Joan 

  • unique
    unique Member Posts: 209
    edited December 2008

    Hello everybody! Merry Christmas, Happy Hanukkah, and whatever else is around to celebrate!!!

    I have been feeling more turbulent lately and as well my eyebrows have started to thin out. Mary Ann of CJ Hats sent me the most wonderful fleece hats - nice and warm so now I have something to wear outside and inside should I choose. So that cheered me up a bit.

    Even though people tell me rads are easier I just feel soooooooo tired of it all.

    I did work hard on a Client project for three days last week, so at least I can bill *something* this fall.

  • unique
    unique Member Posts: 209
    edited December 2008

    I am soooooooooooooo tired. A month since I finished and I feel like I can barely drag my butt around. One thing I'm happy about: my cold is almost gone. Still phlegm I cough up from time to time but generally I'm not bothered. But I haven't regained my energy. This might be lack of exercise, because I felt so sick for so long. I'm going to start up again very soon.

    Monday I see the radiation lady, and get my bone density scan. So I'm on my way. Wondering if I start AIs at same time as I do rads? That doesn't sound great as I would be doing two wierd things at once. Maybe nothing is as wierd as chemo.

    Before I forget - I got a lot of hats and generally have been happy with them, but one, a really cute red flapper hat from headcovers.com, just does not look good on me. I think it's that my face has strong features and the hat is really for a person with small, delicate features (like that cute model!). If any of you want to try it, I would be happy to mail it to you. You can see it here http://www.headcovers.com/748/elizabeth-hats. It fits me very well, I just look funky in it - my head measures 22" around and all my hats have fit pretty well.

    Hair hair hair and no hair - I notice that my eyebrows are much thinner, the hair on my arms is nearly invisible, (!!!) but leg hair is still going pretty strong - I have shaved it once a week because the stubble is growing. I'm looking at my scalp and I see tiny little stubblies maybe coming up. I still have 1-inch long very thin hairs like peach fuzz on top, and this has been fallling out inside my hats again. So some is coming and some is going ...

    I am so fat. On Dr. Fox's scale I weighed 168 lbs!!! I am only 5-3 so that is humoungous! When I started this journey I was no skinny whinny, I think I was 148, so I have gained 20 lbs! I should probably weigh 130 or 140 max, so I have my work cut out for me.

    Somebody on here posted a NYT article on breast reconstruction, and I read it and was disappointed to see there's nothing else besides the implants and TRAM flap variations. I just can't see messing with my abdomen, etc. for recon, altho obviously I have plenty of belly fat for it! I don't see why they couldn't do implants with skin from my other boob, i.e. take one big boob and make two little boobs out of it. I'd go for that if they'd try it. I'm dying to be less one-sided.

    I did finally figure out bras. For some reason (10 extra pounds? chemo?) I feel blown up in the evenings, and a bra that seemed okay in the morning was biting me in the chest band part in the evening. I even rigged an extender that laced up the front hooks of my favorite one, the Jodee lace bra with pocket. But I finally gave up and I'm wearing my spaghetti strap sports bras from before my diagnosis, they're a smaller size but don't bite (looser elastic) and better yet there's no binding in the armpit where I had my nodes removed, because it's just these little tiny straps. If there's any discomfort I just pull it down some more, LOL. Maybe one of these days it'll be around my waist!

  • bobcat
    bobcat Member Posts: 526
    edited December 2008

    HI All -

    Finished my second round yesterday and only a slight reaction at the start of Tax - had to stop for 20 minutes but then started back up slowly with no problem.  Still a vey long day.  The stubble all fell out over the last two days and now I'm smooth as silk .  Tip - I used calendula hand cream and aloe vera many times a day/nught on my scalp and it keeps it soft and pliable - there is no aclohol in either product to dry your skin.  Also lots of chapstick and water all through the night - you have to get up and pee anyway so slather on the juice and keep on drinking.  Unique - try to get out for a short walk at least - I think the fresh air and exercise will help you start to reach your goal.  One more thing I did last night on a tip from someone else - Milk of Magnesia before bed after the first day of treatment.  Works like a dream and you feel so much better!  Green tea instead of heavy coffee cafffeine too.  The coffee seems to make me jittery.  I am off the to Y to see if I have enough energy to Spin and then to the Jersey shore for dinner and relaxation.  Have a nice weekend all.  Lisa - how did your second treatment go yesterday??  My typing in atrocious with this neuropathy starting in the fingers.  Did someone recommend B6? B12?  Can't remember.  ooh ooh - one more thing Unique - since you are going to Penn now try to see Dr. Lisa Wu - she is a ROCK STAR PS and will help make good decisions about your plans for surgery.  I only wear camisoles too as bras were never my thing.  Good luck to all.

    Bobbi

  • sewbutton
    sewbutton Member Posts: 9
    edited December 2008

    I have decided for kicks and grins to come down with hives. Is this all part of the fun of Taxotere and Cytoxan? 

  • sherrie1964
    sherrie1964 Member Posts: 37
    edited December 2008

    Hi Everyone!!

    I haven't posted on this thread in a while so I thought I'd drop in for a bit to say hi to all and touch base.  I just finished 30 rad treatments on Christmas Eve and went back to work full-time so I've been keeping busy. 

    It's been a little over 7 weeks since my last TC treatment and since I started rads fairly soon after I am realllllly tired.  So Annie, I'm with you on that front.  I've also been having some very slight residual neuropathy and other aches and pains.  Since I completed radiation, I've been feeling a little better each day though.  My radiation oncologist said it will take a week or two for the fatigue from radiation to lift.  I'm so looking forward to more energy.  I slacked off on my fluid intake and I'm sure that didn't help matters.  It's been a tough six weeks.  Looking back I don't think I should have gone back to work so soon.  It was a bit much towards the end. 

    Deanna - I thought I was out of the woods with my eyebrows and eyelashes, but low and behold a few days ago they really started falling out.  I have the new growth coming in pretty fast, but the old eybrows are almost gone!  Hair is really starting to fill in - slowly.  My nails are growing like weeds!!  Maybe it was all that Tea Tree oil!   I wish my hair would grow that fast...... 

    I hope everyone had a great holiday and I wish all those currently going through treatment smooth sailing.....

    Joan - congrats on your one year!! 

    Sherrie

  • unique
    unique Member Posts: 209
    edited December 2008

    Hi, Bobbi,

    Yeah, I know, but first it sleeted and then it rained, and I didn't have a car because the rental popped a flat the day before the storm. I might have driven to the mall to walk even tho it raining, but no car. Other thing - I usually walk to the store, etc. but I had terrible bronchitis and every time I went out I'd have painful coughing fits so I stopped doing that.

    Now I'm better, so except for the fatigue I'm okay for exercise, as long as the weather cooperates and I can get my car back from body work.

  • tbird57
    tbird57 Member Posts: 50
    edited December 2008

    Wishing everyone a happier, healthier, blessed New Year!  I'm really looking forward to leaving this year behind.

  • MsKarin
    MsKarin Member Posts: 105
    edited December 2008

    Greetings everyone. It has been ages since I've posted here. Had my last TC on 7/30. Thought I would stop by and see how you are all doing.

    Sherrie - I too had very slight residual neuropathy. I am happy to announce that it has been totally gone for about 3 months now.

    Bobbi - For the neuropathy my onco told me to take B-complex. Since it covers all the B's it also helped with hand foot syndrome which I also had. Just make sure there is no added vitamin C. I took Wal-Mart's B -100 complex. Worked wonders on me. You mentioned the Jersey shore. Where? I'm about 40 minutes from Wildwood.

    Annie - As far as I know they don't start you on AI's until you finish rads. Are you ankles and fingers swelling up at night also? You might be retaining water. Tell onco about it. I know of some that had that problem but I didn't.

    Rickster - Try the B - 100 complex. All I know is after onco told me to take it I saw a big difference. About 2 months after last treatment it had almost disappeared so I stopped taking it. Big mistake in a week it made a return visit. Started back up and it disappeared. I still take it now.

  • babyc
    babyc Member Posts: 20
    edited December 2008

    I've been trolling through this topic for the last two weeks and decided to jump in!  Thanks to all you folks for sharing, especially your tips for dealing....  I see my onc. tomorrow and will see if treatment starts as planned for Tuesday.  (I'm having a healing issue in one spot along incision.)  If it is a go, I plan to do some shopping on the way home.  Meanwhile, all of you have my best wishes.

  • thegoodfight
    thegoodfight Member Posts: 124
    edited December 2008

    MsKarin, I am curious about the warning about no vitamin C in the Bcomplex.  I just started taking it as suggested by my onc, but they just said get a B complex.  I just looked on my label, and there is vitamin C in mine.  What harm could this do?  I was also a little concerned to hear that you had to stay on it or the symptoms returned.  Thanks for any info.

    Caren

  • kt57
    kt57 Member Posts: 75
    edited December 2008

    Hello,

    Like babyc, I've been lurking and reading and just jumped in.  My oncologist is recommending 6 cycles of TC.  I see most of the regimens are for 4 cycles, and the research that lead to TC rather than AC compared 4 cycles of TC to 4 cycles of AC .   For you  6 cyclers out there - what were you given as the reason for 6 rather than 4.  Thanks for your help.  I start cycle one on Jan 2nd.  The information on this thread is so helpful and reassurring!   

  • Diane1214
    Diane1214 Member Posts: 23
    edited December 2008

    Hi all,

    I'm 5 weeks post treatment. Thanks Rickster and Deanna for the thoughts about post treatment aches and pains. I've noticed aches in my legs and hips and a general feeling of being much tighter and less flexible than usual. I thought it was from too many days on the couch during the last few months, which might be partly to blame, but talked to a friend recently who is 6 months post treatment and she noticed back aches, etc. which she said are getting better.

    A question please: I have been working with a Physical Therapist for a few months on my arm to recover from lymph node surgery. When I lift my arm, you can see the nerves "pop" out so that they are visible from my arm pit to my wrist. It was very painful, and is now moderately painful, but mostly feels really tight and looks very strange. My PT discharged me recently because she believes that this will hopefully heal with time, and with doing at home exercises. She doesn't have a lot of experience with this though, and thought it might never heal. She thinks it is caused by scar tissue being wrapped around the nerves. Does anyone have experience with this? I appreciate any experience or advice you can share.

    One more question please. I have caught my 3rd cold since finishing chemo. The first one was just days after the last tx and was a nasty virus with a high fever and horrible cough. That took over a week to get better and then I felt great. I caught a head cold after that and recovered from that only to get another one yesterday. I am guessing that our resistance is lowered for longer after the last treatment than I thought. Again, any experience with this would be very helpful.

    Annie - so glad your bronchitis has improved. Don't be so hard on yourself about gaining weight. It has been a tough year. A friend of mine bought a simple pedometer and has been trying to get to the recommended 10,000 steps a day. She takes an extra flight of stairs, or parks far away from the store, etc. It has worked for her so I pass it along as an idea. I have dusted off an old treadmill in my basement for lousy weather days and try walking on it at least 15 minutes a day and then do some simple exercises just to get the body moving.

    Sherri and Deanna - thanks for sharing the post treatment neuropathy, hair, nails, etc. experiences. My nails are looking very funky and I forgot about the tea tree oil advice so I'm going to give it a try. Also noticing eye lashes falling out more, but hanging onto a few and am getting good at creative mascara use.

    Happy New Year to all.

    Diane

  • binney4
    binney4 Member Posts: 1,466
    edited December 2008

    Hi, Diane,

    What you're describing with your arm sounds like "cording" (the real name for it is Axillary Web Syndrome). There are several women on the "Lymphedema After Surgery" board who have dealt with it, so we have several threads there about it. I'll go find one and bump it to the top of that board for you.

    Okay, bumped one called, "Eeeek - a cord! I'm freaking out!!!" It's here, if I can get the link to work (otherwise try copying and pasting it):

    http://community.breastcancer.org/forum/64/topic/721005?page=1#post_1162454

    At any rate, it's fairly common after our surgeries, it usually disappears after about two months whether you treat it or not, it can return but then resolves again. Once in a while it gets stubborn and hangs around longer, and if so a well-trained lymphedema therapist should be able to help you with it. One thing that seems to help is doing gentle stretches while standing in a warm (NOT HOT!) shower. It is not a nerve that's sticking out, it's either a thrombosed vein or (more commonly) partially lymph vessel tissue. Cording is just now beginning to be recognized as related to lymphedema, even an indication of heightened risk of lymphedema. So you might want to ask one of your doctors for a referral to a well-trained lymphedema therapist. Here's a link to help you find qualified lymphedema therapists near you:

    www.mylymphedema.com (Click on the Therapist Locator and follow ALL the links.)

    A good lymphedema therapist can help relieve the cording, do baseline measurements for future reference, teach you a gentle massage technique that you can use prophylactically, and give you hints for lowering your lymphedema risk. All good stuff! Smile

    Here's a website for information about lymphedema especially for us bc veterans (it has a page about finding lymphedema therapists and what to expect from them):

    www.stepup-speakout.org

    Hope some of this helps and that you soon have complete relief!

    Gentle hugs,
    Binney

  • JustStamping
    JustStamping Member Posts: 3
    edited December 2008

    I am going into my second TC treatment this week.  The biggest problem I'm having with the treatment is fatigue, weakness, and leg pain.  I too am not sure if the pain is from being a couch potatoe since surgery or if it's from the drugs.

    I have found that if I can be active for about 30 minutes at a time and then rest for about 30 minutes then I can get through the day.  Night time is hard as my leg pain is often keeping me awake at night.  I am also on Neulasta but can only take Tylenol for pain as I also have blood clots so cannot take Advil.

    I guess I'm just wondering if others have had similar problems with TC. 

    Thank you in advance...........

  • dlb823
    dlb823 Member Posts: 2,701
    edited December 2008

    Hi, Kristin ~  Just a couple of suggestions for that leg pain, which I also had really badly towards the end of my TC and still have in my right leg, although it finally seems to be letting up a bit. First, have you tried those little heating pads you warm in the microwave?  They seemed to give me some relief, especially at bedtime, which is when my pain has been the worst.  Also, try elevating your leg or legs (if pain is in both) with a pillow when you sleep.  My DH first suggested that while we were on a trip to Las Vegas, and it was the first time I slept through the night in weeks due to that pain.  I also stopped doing my 2.5 mile walk each a.m., and I think staying off of my leg has also helped it, although I miss walking and need to get back to it, but maybe shorter distances for awhile.    Deanna

  • unique
    unique Member Posts: 209
    edited December 2008

    Diane ~

    Your post makes me remember I had these things that kind of looked like tendons under the skin, when I lifted my arm they were like strings that were tighter and looked really funky. But I just looked at my armpit and they're totally gone! My armpit looks normal again. BTW, my rad onc sez she will refer me to a lymphedema PT and I will definitely go.

    Kristin ~ I had throbbing in my hips and thighs on about Days 6-8 of the first two treatments ~ so wierd ~ they were kind of like cramping, not agonizingly painful but it made me not want to walk, I felt so wobbly. Tylenol fixed it, and I did 8-hour Tylenol so it didn't wake me up those nights I had it. Last two treatments no problem. I blamed it on the Neulasta. Taxotere can do it too I hear.

    Caren ~ They think C not only helps you, it helps the cancer cells too. I was on 1500mg C every day and just stopped taking that. Altho it's a bit of an arguement and I don't know if I buy the no C angle.

    KT ~ I did a whole pile of 2nd opinions and some said 4 TC and others said 6. I went with my "expert" onc at UPenn, Dr. Kevin Fox, who said there's no extra benefit to 6. YMMV. I am sticking with the 4 as I'm just plumb exhausted.

  • otter
    otter Member Posts: 757
    edited December 2008

    Diane, I want to second what Binney said about those cords under your arm.  They are almost certainly not nerves, despite how much they hurt.

    As Binney said, what you probably have is "cording", also known as "axillary web syndrome."  The strings you are seeing and feeling are damaged veins or lymphatic vessels (or both).  There probably is some scar tissue around them that is keeping them attached to the surrounding tissue.  If you can continue doing stretching exercises, they should gradually begin to loosen up and you will feel better.  Usually, the cords go away in a few weeks with diligent stretching exercises.  Sometimes they last longer or re-develop

    Binney is right, though:  it would be a good idea if you would get a referral to a certified LE therapist.  The one you've been seeing doesn't seem to have much experience with things related to LE.  Cording/AWS is really quite common, so it's surprising that your therapist thought the cords were nerves.

    otter 

  • Diane1214
    Diane1214 Member Posts: 23
    edited December 2008

    Binney, Annie, Otter - thanks so very much for your insight. I am seeing my rad onc Friday and will ask for a referral to a lymphedema specialist. I'm frustrated that I have been seeing a PT who didn't know much about this, but surprisingly my surgeon told me I didn't need a specialist for post surgery PT, so I went to one I had liked when I broke my ankle earlier this year. My surgeon is known as one of the best in my area, so I just can't figure out why she didn't stress that I should see a lymphedema specialist. This cording/AWS condition has been going on for months, and Otter, you are right that it is surprising that my PT thought that it was nerves.

    I am so grateful for your advice

    Diane

  • PatsyMae
    PatsyMae Member Posts: 2
    edited December 2008

    Hello,

    I'm scheduled to start 4 sessions of TC next week. Some of the postings I've read are encouraging while others make me more alarmed. Most are dated Jan. 08 - is there anyone currently doing this treatment to share their experience?

    Many thanks!

    Patsy

  • PatsyMae
    PatsyMae Member Posts: 2
    edited December 2008

    ooops............just realized that I wasn't reading the posts in the correct order!  I found all of the ones dated Dec. '08 - thanks!

  • kt57
    kt57 Member Posts: 75
    edited December 2008

    PatsyMae,

    In the "chemotherapy" section of these discussion boards, there's a thread entitled "Anyone starting chemo in January 09?"  Jump on that one - it is amazing how many of us there are.   I start 6 rounds of TC on Friday.  

    Kathy

  • birdsong
    birdsong Member Posts: 56
    edited December 2008

    Hi all,

    I finished my 6 treatments on November 12 and will start rads next week. My doctor said if you had any positive lymph nodes, you need the 6 treatments, drew me a graph and showed me the gap when you stop short of where you want the treatment to reach. Picture a pice of paper in a rectangular shape with the long side on the left. Put a dot mid way on the left side. With 4 treatments  and a upside v doing a jagged pitch 4 times to the bottom,each v going lower.You have arrived. With a node involvement, the dot has to start 3/4 of the way  up on the side, not the middle. You take only 4 jagged v's down and there is a gap where the treatment doesn't reach the bottom of the page, you are not covered unless you have 2 more to get to the bottom. I am not sure if this visual is clear, but I gave it a try.    To all of you start ing out, you will get through it just fine. What you imagine is far worse than what you really experience. Just listen to your body, get pleanty of  rest, drink lots and think positive thoughts. These drugs are far less to deal with than ACT, the adriamycin is a harsh drug that can cause heart and other problems. The B  vitimans deal with the main challenge of some numbness and far less nausea. I didn't throw up once. This is a wonderful place to learn and be uplifted. Good luck to  all of you. This too will pass. Love Birdsong         

  • dlb823
    dlb823 Member Posts: 2,701
    edited December 2008

    Hi, Birdsong ~  Was that drawing based on research or ????  I don't quite get it.  What do the dots and v's represent?  Since I had 4 tx's and 1 pos node, I'm really curious what research or other data he is basing his opinion on.  What is he trying to "reach" with his drawing?   Deanna

  • birdsong
    birdsong Member Posts: 56
    edited December 2008

    Hi Deanna,

    It is what by doctor drew to convince me of having 6 instead of 4 treatments. It was her way of describing the difference. I know Dr. Stephen Jones who introduced ACT some 20 or more years ago also speaks of using 6 treatments of CT for node positive women with up to 4 nodes. It is what he speaks about in his paper and  what they have used and I assume recommend. I have listened to several of his papers and you can looks them up, He has several audio presentations also. Let me know if you are not able to fine his webiste. I'll try and describe it again, what my doctor here explained to me.. .Start with v upside down on the middle of the left side of a rectangular piece of paper.  Make 4 v's each one lower than the other and end up with the 4th v at the bottom of the paper. Now if you are node positive, there is more treatment involved, so begin the v 3/4th of the way up the paper and if you only make 4 v's the same size, you will not get to the bottom of the paper and that area is left a gap where the treatment may not be complete. The  extra 2 treatments, take the next 2 v's to to bottom, thus covering the need of making sure the nodes are addressed.   The graph ends up looking like a 4 or 6  jagged peaks descendedning to the bottom. In the end, I feel Dr. Jones comments on trials using 6 treatments for nodes positive women carries the most weight since he is the Father of the chemo treatments we use.having intrducted ACT and now recommens CT 4 vs 6 as I mentioned above. Again, let me know if  you need his webiste. Love Birdsong

  • thegoodfight
    thegoodfight Member Posts: 124
    edited December 2008

    Annie,

    thanks for your reply about the vitamin C, which I should have realized was the reasoning, since they took me off my multi-vitamin at the start of tretment and just let me keep taking my calcium and gloucosimine.  I did speak to the head nurse at my onco and she said my B-complex with the C was fine, so I am continuing.  It does seem to be keeping neuropathy from getting worse, so far.

    Yesterday was my 5th of the 6 weekly Taxol treatments that I was swithched to after 2 rounds of TC which caused severe irritation and peeling to my hands.  They did not want to take the chance of ulcerated hands so put me on the Taxol (sister to taxotere) for six weekly lower dose txs.   So far it is better and only one more do go...............wahoo!!!  I am having a few side effects, but I think that is really the cumulative effects of this whole journey.

    I see the rad oncologist on Jan 9 for my re-evaluation tatooing and will probably start that journey the first week of February.  I am waiting of course for blood levels to be more normal and we have committed to a black tie function here on Jan 31, so I figure I should go and have a good time feeling (maybe not looking) my best.  My wig actually looks great, but I do need to find a dress.

    I think I am looking at 30 to 33 rads.  My nodes were negative, but I know they feel they only feel they have once chance at this deal, so they seem to go the full monty from what I am gathering.  I am thrilled with my radiation onco who used to be head of radiation onco at UPenn.  I do not know how many years he is down in southwest Florida.

    I have a soft spot for UPenn since my first grandbaby was born there last May!!   I found my lump almost six weeks later and he has been my strength, along with my husband and three great kids.

    Well I have to go drink my first of the two bariums for my 9:00am CAT.  They are doing a second one (had first before starting tx) because they saw a node in the center of my chest enlarged, but did not appear to be diseased.   so this is a recheck to see where we are.

    Life is (still) Good!!!

    Caren

  • bobcat
    bobcat Member Posts: 526
    edited December 2008

    Hi All -

    PatsyMae - you will do fine.  I just finished my 2nd TC last Friday - just remember to keep your skin moist and body hydrated - drink tons of water especially the first week.  The rest of my fuzz rubbed off in the shower yesterday - funny how a little peach fuzz changes the way you look and feel but I will get used to it.  I do sleep in a nice soft cap because it keeps me warm and doesn't irritate my scalp against my sheets.  Bought a couple more hats off the NYC streets yesterday - it's nice to have a change.  Calendula cream for your hands and scalp is nice - anything that doesn't contain alcohol is better for your skin.  And don't know if anyone has tried this but that Milk of Magnesium the first night after treatment is a godsend.  Little meals instead of big ones although that is hard with the holidays.  AND most important - just try to stay positive but let the tears flow when you need to - we all have our breakdowns and they are therapeutic too :o).  This will all be over before you know it.  I am having 4 rounds because of no node involvement just to follow the most recent discussion.  And, yes, life is good.

    Happy New Year all you lovely survivors!

    Bobbi

  • thegoodfight
    thegoodfight Member Posts: 124
    edited December 2008

    WARNING FOR EVERYONE TO BE SURE OF YOUR TREATMENTS AND TESTS AND ALWAYS QUESTION SOMETHING IF THINK IT IS NECESSARY.....................

    The last two days I have had strange occurances, please read of the two incidents below................

    Yesterday I had my weekly tx of TAXOL and when my beeper went off, I looked up and saw there was another small bag still hanging full of liquid.  When the nurse came to unhook me, I asked what is that bag.  Hmmmmmmmmmmm,  she checked.  It was actually my steroid bag, which was empty after infusing, but "somehow" whoever hooked up my TAXOL "forgot" to clamp that line and half my taxol went to me and half to that bag.  No harm really, except I had to sit another half hour and wait for that to infuse into me.

     Today I went for a catscan.  It was being done to recheck an enlarged lymph node in my chest and fluid in a the surgical breast.  It was being done to see a comparison.  I had to get up real early so I could have coffee and something to eat, since I had to fast by 6:00 am.  Drank first barium at 7 and second at 8:30.   Off to 9am scan.   Tech says I am there for just a stomach catscan.  I said we better check since I think I need the chest done.   She calls office, of course not open yet.  Twenty minutes later, I suggest she calls again.  They say go ahead with stomach, they do not change any of the doctor's orders.  I understood that, but I said, give me a minute, I want to call my onco directly.  That's why they give you their cell numbers, right?  He got right on it and within minutes they had it cleared up..........catscan of chest only.  Great, I was on top of things and prevented a mistake and a useless catscan that would not have given them what they were looking for.   The more upsetting news was.......................I didn't need to fast, and I DID NOT NEED TO DRINK THE BARIUM!!!  I hope I don't get some of the barium after effects , that would really be cruel,   Thank goodness I was smart enough to take a xanex this morning, "just in case something happened that could be upsetting", LOL

    So the point is ladies, take care of yourself.  Know what is going on all the time.  Mistakes do happen, and you are the one who is most interested in your case and what happens.  Take charge!!

    Caren

  • dlb823
    dlb823 Member Posts: 2,701
    edited December 2008

    Wow, Caren ~ Thank you for sharing those stories.  You know, I thought it was odd that you were drinking barium to prep for a chest CT scan.  Along a similar line, my MIL is a retired RN.  In the past few of years, she's been hospitalized twice for shoulder and back surgery, and both times she's had to stop nurses or whatever they call assistant nurses in MN from giving her meds that were either not prescribed for her, or in one case, could have caused a fatal interreaction with something else she was on!  In fact, one of the LPN's (?) came back and thanked her for catching the error.  And this was at one of the top hospitals in the country!   So, you are absolutely right with your advice, and it is extremely important!  We should always pay attention to our tx and ask questions about everything.    

    Hope you get good results from that scan, Caren.  And to you and everyone else, I pray 2009 will be much happier and healthier for all ~   Deanna

  • DesertRider
    DesertRider Member Posts: 37
    edited December 2008

    Hello & Happy New Year to Everyone,

    I finished 4 treatments of TC on Oct. 31 and wow is it great to have that complete! I started Arimidex 3 weeks ago and feel good so far.

    Also, like Sherrie & Unique, I've been noticing eyebrows are really thin and I have just a few eye lashes left - but they are really long so I load them with mascara. My hair covers my head at about 1/4 inch but I still need a beanie on my head to keep warm when I open the freezer compartment!

    Like Deanna, I would like to see any studies on the 6 vs 4 TC. I had 4 and my onc keeps saying that's what the studies show as effective. I keep seeing this question so maybe it's not settled - like everything - still a doc's preference? Or a gut feeling that more is better? 

    My onc also said I didn't need rads - but Sherrie, you and a couple of others also have no pos. nodes and still got rads. I wonder if I needed that, too. Still many mysteries of treatments. 

    I didn't think I'd have any work come in - but I got a short project in Brazil - I just got back - and life seems exciting and fun again as I look to 2009. 

    A wonderful and healing new year to us all - hugs,

    Gail